Would you mind if we used this on our facebook website, here in the Uk we are a home care sector and look after people with many different medical and critical conditions. I my self have looked after 2 people who have died from MND.
Regards
Jenny. Community Service Coordinator for Home Instead Senior Care Leicester
Thank you for your poem. Sadly I have recently been diagnosed w MND.. I really like your poem - not sentimental, stark yet beautiful. Very good writing.
@echo680 I am sorry to hear about your diagnosis, Echo. It can't be easy. The person who inspired this poem was actually one of the longest survivors known. I guess your hope has got to be that the disease moves slowly and that they find a way of alleviating the severe symptoms, if not curing them. You have my best wishes.
I love this piece of music; it moves me to tears on its own - but coupled with your poem...I'm still amazed. I can't really say more than this at this time.
Voice, body, mind, lung, life. An acquaintance with ALS/MND observes that her sister needs to "translate" for her inasmuch as she's at the point speech has become difficult. But her mind... always sharp and reflective upon lessons learned.
Would you mind if we used this on our facebook website, here in the Uk we are a home care sector and look after people with many different medical and critical conditions. I my self have looked after 2 people who have died from MND.
Regards
Jenny. Community Service Coordinator for Home Instead Senior Care Leicester
Hiscleicester 7 months ago
Thank you for your poem. Sadly I have recently been diagnosed w MND.. I really like your poem - not sentimental, stark yet beautiful. Very good writing.
echo680 10 months ago
@echo680 I am sorry to hear about your diagnosis, Echo. It can't be easy. The person who inspired this poem was actually one of the longest survivors known. I guess your hope has got to be that the disease moves slowly and that they find a way of alleviating the severe symptoms, if not curing them. You have my best wishes.
purpledogstar 9 months ago
Hye thanks a lot for responding! :)
phantomdoodler 3 years ago
Hiya i have emailed you before about this poem but that was under my old screen name. Just want you to know this means a lot to me
phantomdoodler 3 years ago
Thanks for your comment, phantom. I've received quite a few emails for this vid. I do my best to reply to them all, as well as I can.
purpledogstar 3 years ago
I gave 5 stars. excellent
bubloojee 4 years ago
Beautiful. An understanding of this disease, in such few words. Listen to them. Act. Let's find a cure.
urnycfriend 4 years ago
I love this piece of music; it moves me to tears on its own - but coupled with your poem...I'm still amazed. I can't really say more than this at this time.
xysea 4 years ago
Voice, body, mind, lung, life. An acquaintance with ALS/MND observes that her sister needs to "translate" for her inasmuch as she's at the point speech has become difficult. But her mind... always sharp and reflective upon lessons learned.
Thanks for adding the music data too.
praetoris 4 years ago
Bravo Purpledogstar ;)
urbandeva 4 years ago