Added: 3 years ago
From: JoeFenstermaker
Views: 3,377
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  • this is a great video about fsh and what might happen to people, but what's aggravating and frustrating is how some of the people in this video think that they cannot be active and not live a life. fsh does not have to consume you. look at kristin duquette who uses a walker to get around but is swimming and training towards her dream. it's all what you make of yourself.

  • The mind is the most powerful tool for all of us who have fshd. If you become depressed and feel like giving up it will feed the disease. My dad who also suffers from fshd always lets me know that WHERE THERES A WILL THERES A WAY. Intelligence is far more powerful than any muscle.

  • i,am a 35 year old male. i was 15 when i found out that i had fsh. not wanting to hear what the doctors told i took matters in to my own hands.

    i have very import info that might help you. there are medication that could help you live a more productive life . because i have to cover my own ass i will only talk about these matters over the phone. my name is steve here's my number 561 929-7786 thats in bocas raton fl.

  • I live with this painful disease. Anybody who wants to chat about FSHD let me know.

  • It takes courage for you all to inform people of this disease,best of luck to all of you :) Il add a little positivity here, which hopefully comes true.A new approach to the treatment of

    muscular dystrophy offers hope to sufferers

    for a reversal of the diseases devastating

    effects, writes Dick Ahlstrom,They showed that the

    experimental gene therapy actually reverses some of the secondary damage caused by

    the life-threatening disease.Clinical results..2010, Sandy Ireland X x X :) :) :)

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