Compare it to falling backwards off the empire state building accompanied with violent vomitting, instant diarreah, crawling on your hands and knees to get to the bathroom, sweating profusely, having to lie flat with no light and no sound....and hope that it goes away in less than 8 hours is what my life was like before the gent.
I saw Dr. Rauch 15 years ago...told me to stay with Umass, offered me no alternatives. I have had severe Menieres for 16 years and have just had my 5th gent shot. Comparing it to an old car is ridiculous. continued next post.
We are NOT like broken down cars-Cold steel heart or just disconected from his feelings? I have had drop attacks for 11 years now and before that milder episodes that lasted up to 4 days when I was 13-I'm 53 now.
Had it for about two years. Horible dizziness, ringing ears, just awful. Had the profusion procedure done, the medications after will almost kill you. Still having dizzinness.
Somebody I know, who does not have health insurance suffers from: Ringing in the ear, vertigo, diarrhea nausea, vomiting sweating, feels like you are losing control of your entire system. Strong episodes repeating about once every six months.. Usually goes from mild dizziness to full blown episodes in about 30 to 60 minutes. Within a week is back to normal, except a lingering mild dizziness and ringing...Has anyone experience these symptoms, in strong episodes?
take the salt out of your diet. less than 500mg per day. read every label. cook everything yourself. eat potassium like bananas or two prunes per day with orange juice. I don't know why but the potassium off sets the sodium levels. I've had it for 14 years with 12 years in remission and NO surgery just low salt diet...asprin products can worsen it and also calcium suppliments can make ears feel full.
@kamariegrosz I've taken doc's advice- no caffiene, low sodium, still doesn't help me. Hadn't heard about potassium in diet. I have taken a vitamin supplement called Lipoflavanoid, not sure it helps.
Bad analogy, doc. Unreliable car, get another one. 'Unreliable ear' uh...you're stuck with it. This is why the analogy does not work. It oversimplifies. Meniere's affects MUCH more than the affected ear. A car does not get vertigo, or vomit. A car does not have children to take care of or bills to pay. A car does not worry or get stressed out when it doesn't work. A car is a thing not a human being. You want an analogy look at that Van Gogh self-portrait. It is a picture of Menieres.
"Effectiveness of Acyclovir on Meniere's Syndrome III Observation of Clinical Symptoms in 301 cases," Mitsuo Shichinohe, M.D., Ph.D., The Sapporo Medical Journal, Vol. 68, No. 4-6, Cases of 301 MD patients treated with antiviral meds The results were: In 82.5% of cases diagnosed as Meniere's Disease, 85% of cases diagnosed as Meniere's Syndrome, and 89.1% of cases diagnosed as vestibular dysfunction, vertigo disappeared, and tinnitus and hearing were improved.
Department of Otolaryngology-Head and Neck Surgery, University of Massachusetts Medical School,
Morphological and clinical evidence supports a viral neuropathy in Ménière's disease (MD). Quantitative examination with transmission electron microscopy of vestibular ganglion cells excised from a patient with MD revealed viral particles enclosed in transport vesicles. Antiviral treatment controlled vertigo in 32 of 35 patients with MD (91%). PMID: 19142031 [PubMed - indexed for MEDLINE]
It's becoming common knowledge that Meniere's is caused by a viral infection and can be cured in 85%~90% of cases by taking Valtrex 1000mg three times a day or Zovirex 800mg five times a day for 4~6 weeks. These drugs are not even mentioned by most ENTs could lead many a reader to consider drastic, ineffective and irreversible surgical management which is still being pushed bymany lagging doctors. Sources above:
I think my poor mother is suffering from this. She had ear surgery over a year ago and the doctors still cant tell her whats wrong. She suffers everyday.
I was diagnosed with this disease about two years ago. For me it's more like a flare up of pressure, tinnitus, and poor hearing that occurs about every week and a half to two weeks and lasts about 2-5 days. Fortunatly, only one bout of vertigo at the beginning...then never again. But, it's taking my hearing in my left ear. It's a hard disease to live with. Anyone who has it, has my sympathy.
How are you doing today with the Meniere's? I started getting dizzy and having pressure this past Thursday. My doctor said that it is possibly Meniere's. I hope that I can get over this, it has ruined the last three days for me. I notice that I get it more standing than sitting. Do you notice that?
Comparing it to an unreliable car is a bit inaccurate, consider a mechanic can usually fix your car. With menieres there is no "fix" that works for every one. I don't mean to be rude, but I think that analogies like these actually just make it harder for people to understand. The facts were great, but the analogy is pointless. Time would have been better spent discussing symptoms.
There's a social network for Meniere's Disease sufferers, their family and friends. It has forums, groups, video, chatrooms, games and loads more.
Just Google menieresworld
menieresworld 4 months ago
There's a social network for Meniere's Disease sufferers, their family and friends. It has forums, groups, video, chatrooms, games and loads more.
menieresworld 4 months ago
Compare it to falling backwards off the empire state building accompanied with violent vomitting, instant diarreah, crawling on your hands and knees to get to the bathroom, sweating profusely, having to lie flat with no light and no sound....and hope that it goes away in less than 8 hours is what my life was like before the gent.
KnKsgram 6 months ago
I saw Dr. Rauch 15 years ago...told me to stay with Umass, offered me no alternatives. I have had severe Menieres for 16 years and have just had my 5th gent shot. Comparing it to an old car is ridiculous. continued next post.
KnKsgram 6 months ago
We are NOT like broken down cars-Cold steel heart or just disconected from his feelings? I have had drop attacks for 11 years now and before that milder episodes that lasted up to 4 days when I was 13-I'm 53 now.
stynqueone 11 months ago
i hope i was misdiagnosed... i'm only 19 years old and i refuse to believe i'm in any way a broken down car.
a7x1afi2 1 year ago
Had it for about two years. Horible dizziness, ringing ears, just awful. Had the profusion procedure done, the medications after will almost kill you. Still having dizzinness.
graycloud057 1 year ago
Somebody I know, who does not have health insurance suffers from: Ringing in the ear, vertigo, diarrhea nausea, vomiting sweating, feels like you are losing control of your entire system. Strong episodes repeating about once every six months.. Usually goes from mild dizziness to full blown episodes in about 30 to 60 minutes. Within a week is back to normal, except a lingering mild dizziness and ringing...Has anyone experience these symptoms, in strong episodes?
zekigpr 1 year ago
take the salt out of your diet. less than 500mg per day. read every label. cook everything yourself. eat potassium like bananas or two prunes per day with orange juice. I don't know why but the potassium off sets the sodium levels. I've had it for 14 years with 12 years in remission and NO surgery just low salt diet...asprin products can worsen it and also calcium suppliments can make ears feel full.
kamariegrosz 2 years ago
@kamariegrosz I've taken doc's advice- no caffiene, low sodium, still doesn't help me. Hadn't heard about potassium in diet. I have taken a vitamin supplement called Lipoflavanoid, not sure it helps.
RunToThisHouse 7 months ago
Bad analogy, doc. Unreliable car, get another one. 'Unreliable ear' uh...you're stuck with it. This is why the analogy does not work. It oversimplifies. Meniere's affects MUCH more than the affected ear. A car does not get vertigo, or vomit. A car does not have children to take care of or bills to pay. A car does not worry or get stressed out when it doesn't work. A car is a thing not a human being. You want an analogy look at that Van Gogh self-portrait. It is a picture of Menieres.
333Rhapsody 2 years ago
"Effectiveness of Acyclovir on Meniere's Syndrome III Observation of Clinical Symptoms in 301 cases," Mitsuo Shichinohe, M.D., Ph.D., The Sapporo Medical Journal, Vol. 68, No. 4-6, Cases of 301 MD patients treated with antiviral meds The results were: In 82.5% of cases diagnosed as Meniere's Disease, 85% of cases diagnosed as Meniere's Syndrome, and 89.1% of cases diagnosed as vestibular dysfunction, vertigo disappeared, and tinnitus and hearing were improved.
sirlanc 2 years ago
Department of Otolaryngology-Head and Neck Surgery, University of Massachusetts Medical School,
Morphological and clinical evidence supports a viral neuropathy in Ménière's disease (MD). Quantitative examination with transmission electron microscopy of vestibular ganglion cells excised from a patient with MD revealed viral particles enclosed in transport vesicles. Antiviral treatment controlled vertigo in 32 of 35 patients with MD (91%). PMID: 19142031 [PubMed - indexed for MEDLINE]
sirlanc 2 years ago
It's becoming common knowledge that Meniere's is caused by a viral infection and can be cured in 85%~90% of cases by taking Valtrex 1000mg three times a day or Zovirex 800mg five times a day for 4~6 weeks. These drugs are not even mentioned by most ENTs could lead many a reader to consider drastic, ineffective and irreversible surgical management which is still being pushed bymany lagging doctors. Sources above:
sirlanc 2 years ago
I think my poor mother is suffering from this. She had ear surgery over a year ago and the doctors still cant tell her whats wrong. She suffers everyday.
Winter077 2 years ago
I was diagnosed with this disease about two years ago. For me it's more like a flare up of pressure, tinnitus, and poor hearing that occurs about every week and a half to two weeks and lasts about 2-5 days. Fortunatly, only one bout of vertigo at the beginning...then never again. But, it's taking my hearing in my left ear. It's a hard disease to live with. Anyone who has it, has my sympathy.
plapnab 3 years ago 7
How are you doing today with the Meniere's? I started getting dizzy and having pressure this past Thursday. My doctor said that it is possibly Meniere's. I hope that I can get over this, it has ruined the last three days for me. I notice that I get it more standing than sitting. Do you notice that?
drumbasher 2 years ago
Comparing it to an unreliable car is a bit inaccurate, consider a mechanic can usually fix your car. With menieres there is no "fix" that works for every one. I don't mean to be rude, but I think that analogies like these actually just make it harder for people to understand. The facts were great, but the analogy is pointless. Time would have been better spent discussing symptoms.
AnterisOnassis 3 years ago 4