Kristi, she is so beautiful! I hope she can come home with you soon. I wrote down the name of her disorder and I will be doing some research on my own. I will let you know if I come up with anything! Good Luck Honey!
the video is lovely, you both look like great parents to little Isabella, and she is beautifull!! i love the bit at the end of her 1st smile. Its great that she has drunk a whole bottle of her milk! i remember when i had to do that with izabelle before i could take her home too.
(PLEASE CLICK " WATCH IN HIGH QUALITY" ON THE BOTTOM RIGHT PORTION OF THE VIDEO) We are just trying to reach out to as many people we can unlike many other disorders,hers is very rare and there really isn't many treatments. We weren't surprised when we started talking to doctors and they looked at us like we had 10 heads. So this is another route we are takeing. There are many children with this disorder any questions feel free to contact us at anytime... -Nick, Kristi, & Isabella GodBless-
Kristi, she is so beautiful! I hope she can come home with you soon. I wrote down the name of her disorder and I will be doing some research on my own. I will let you know if I come up with anything! Good Luck Honey!
Christine (Cassie's Mom)
131Home 3 years ago 2
the video is lovely, you both look like great parents to little Isabella, and she is beautifull!! i love the bit at the end of her 1st smile. Its great that she has drunk a whole bottle of her milk! i remember when i had to do that with izabelle before i could take her home too.
hollie x
p.s i hope you get to take her home very soon
holliemchugh 3 years ago
(PLEASE CLICK " WATCH IN HIGH QUALITY" ON THE BOTTOM RIGHT PORTION OF THE VIDEO) We are just trying to reach out to as many people we can unlike many other disorders,hers is very rare and there really isn't many treatments. We weren't surprised when we started talking to doctors and they looked at us like we had 10 heads. So this is another route we are takeing. There are many children with this disorder any questions feel free to contact us at anytime... -Nick, Kristi, & Isabella GodBless-
NickArcella 3 years ago