to those that say just to to a naturopath..I have & it didnt help..I tried VentigoHeel, B12 shots,,went to a chiropracter, b/c i thought i had mild TMJ...nope.
After seeing my 5th ENT, I was just diagnoised with MAV & am taking Nortriptyline .It has helped about 60%, although the side effects kind of suck. also read that 5HTP can help with migraine/dizzyness.
Hi MilkNCereal thanks for the reply.I remember watching this vid a year ago and felt awful. I still live 24/7 with the same issues but this past year has been a little kinder some of the time. There are days and weeks were the dizziness is less intense but believe me still a problem and there are days/weeks out of the blue that suck. Specialists/docs don't know what to do. Anyway thanks for the reply. I hope you are feeling better. I guess we have to just push on and hope time heals this thing.
i can relate...ive been dizzy for 10 yrs, always thought i had menieres..but i have no hearing loss so i was told nope..not menieres, maybe MAV?...i cannot get diagnoised. i also feel anti-social now , i avoid crowds, its embarresing if i get dizzy, people think im on drugs & i stagger. no one really understands. sorry we have to live like this.
@ammaretto Everything you have described is exactly how I feel. It's so unfortunate how lonely this disorder can make you feel. I once loved talking to people and being around people, I still do when I feel good -- but when I'm at my worst I fear being around people because I know they don't understand and just think I am being unfriendly - but really my world is just spinning and it's impossible to hold a conversation during that time.
I know how horrible a vestibular problem is! I have some sort of vestibular problem too. I think its a complicated BPPV case, but I am starting to wonder about MAV. Oh and by the way.... You're cute!!
I suggest you do. I have heard from a lot of interesting people about this disorder ever since I made the videos. You get to hear from unfortunate people who really struggle and I have so much sympathy for. The more videos out there the better, we need to create more awareness. I suffer from all those symptoms and I have not found much relief. I tried Vestibular Rehab one time, but couldn't afford to keep going as my co-pay was too high. I'm trying meds for now. Hope you get better!
I congratulate you for being so brave as to explain your condition so very precisely and in an understandable manner, I only hope your medical advisor's are understanding and are capable of offering you needed assistance. You have hit the nail on the head for sure.
@pgjfpgjf Well I very much appreciate your comment! Unfortunately, most doctors I go to have no idea what to do. I see some neurologists these days. I just do my research and tell them what meds I need. They mostly sit dumbfounded and have no idea what to do. More research needs to be done with this disorder because many doctors do not know what to do.
Thanks for sharing. I should really post a video about my experience. Its been 3 years for me after waking one morning with vertigo. 24/7 since I have experienced aggressive visual motion and internal motion. Crowds,corridors,small spaces,busy visual enviroments are hell. I feel detached from reality ,stutter and brain dead.The only relief is sleep and yes i to spin in my dreams. Have you tried vestibular rehabilitation. I have given up explaining to people cause they will never understand.
@Jimmycrow1980 That is exactly the same symptoms I have - 24/7 visual problems/dizziness. I tried vestibular rehabilitation once - but I couldn't afford the 3 classes a week at $35. Time will heal and make it a bit easier to cope. At times, it gets very difficult because you do feel so alone, but there is also a sense of pride that you are so strong to get through this. I hope you are feeling better!
I Know How You Feel. Today I found out I Have Vestibular Disorder And I Cant Believe surgery makes it worse. I signed up for CHOP (Children Hospital) and they do studies and stuff and talk to different ppl
I don't exactly understand what you're getting at. Do you mean do you think I don't understand how other people feel because I've always had this? The answer is no. I have not always had this. I have had a normal life. The worst of this disorder didn't start until 2 1/2 years ago. I am now 22. I started out well above average academically. I was always top of my class, etc. I made this videos just to help out other people who suffer from this illness.
I certainly don't think about this all the time. Fortunately, I've always been a very happy & positive person. I see this just as another challenge for me in life. I'll overcome it, & I'll be stronger because of that. Life isn't meant to be faultless. It's filled with imperfections.
Embrace that people are different! :) People struggle. Life is hard enough as is. For me, the more people I can help & lift up in spirit, the more I think it's okay I only have a short while to live on this Earth.
There is a cure for everything. Go see an herbalist it can be fixed that and lots of exercises believe me go se an herbalist they will cure you its going to take maybe month or more then one month but after that youll be fine. They read your whole systenm and they tell you what vitamins you need and everything else. Dizziness is a symptom so is inner ear infection they will cure you good luck. Write me sometimes thank you.
I do like your take on it. I am going to school for Dietetics/Nutrition and the idea of a healthy/ natural alternative to finding a cure is that of the ideal situation for me. Thank you for sharing your positive experience.
@Awalkerphoenix No you are wrong. Go see a few homeopaths and you will see that they can help you out. No it is not the time, exercise yes that will help too but homeopaths can help with this. There a few people that had this problem and went to homeopaths and they are fine now. Sitting and talking at the forums about this will not help anyone it will just make you more frustrated.
@Panasonic295 Everyone has a different approach to this disorder as it is very difficult to treat. To say they are "wrong," is -- well, not an approach I would take. I have tried natural remedies and to no avail. My best advice is to do the research yourself and do what you feel is best for you. Many doctors and the like will have completely different takes on all of it. Find what is best for you. For me, I had to go the med route unfortunately because nothing else has worked.
I know how you feel i have this disorder too. It is rare.. I have only ever met 2 people in my life who have it too. I totally understand what it's like and it feels like your whole life is all about the dizziness, and i have lost friends because they couldn't handle it. If you wanna PM me or something then i would like to talk to you cos it really helps to talk to someone who knows what it's like.
It does make you feel a bit lonely at time. Most people don't know what it is. And absolutely no one knows how much we suffer each second of the day, like those who actually have it. I'm sorry you are forced to go through this, but take it as an experience to grow stronger. It's the only way I've managed to shed a positive light to this circumstance. I hope all is well and I hope you are able to find a cure for yourself.
to those that say just to to a naturopath..I have & it didnt help..I tried VentigoHeel, B12 shots,,went to a chiropracter, b/c i thought i had mild TMJ...nope.
After seeing my 5th ENT, I was just diagnoised with MAV & am taking Nortriptyline .It has helped about 60%, although the side effects kind of suck. also read that 5HTP can help with migraine/dizzyness.
ammaretto 1 month ago
Hi MilkNCereal thanks for the reply.I remember watching this vid a year ago and felt awful. I still live 24/7 with the same issues but this past year has been a little kinder some of the time. There are days and weeks were the dizziness is less intense but believe me still a problem and there are days/weeks out of the blue that suck. Specialists/docs don't know what to do. Anyway thanks for the reply. I hope you are feeling better. I guess we have to just push on and hope time heals this thing.
Jimmycrow1980 1 month ago
i can relate...ive been dizzy for 10 yrs, always thought i had menieres..but i have no hearing loss so i was told nope..not menieres, maybe MAV?...i cannot get diagnoised. i also feel anti-social now , i avoid crowds, its embarresing if i get dizzy, people think im on drugs & i stagger. no one really understands. sorry we have to live like this.
ammaretto 11 months ago
@ammaretto Everything you have described is exactly how I feel. It's so unfortunate how lonely this disorder can make you feel. I once loved talking to people and being around people, I still do when I feel good -- but when I'm at my worst I fear being around people because I know they don't understand and just think I am being unfriendly - but really my world is just spinning and it's impossible to hold a conversation during that time.
MilkNCereal394 1 month ago
I've had labyrinthitis for two years now, turned my life upside down. Hope you're feeling better.
PEEBLIES 11 months ago
@PEEBLIES I am sorry to hear that. The good news is I've heard some people get better from that condition. Are you any better?
MilkNCereal394 1 month ago
@MilkNCereal394 Yes very slowly, I'd say about about 70% better but it still limits my freedom. I have found out who my real friends are...
PEEBLIES 1 month ago
I know how horrible a vestibular problem is! I have some sort of vestibular problem too. I think its a complicated BPPV case, but I am starting to wonder about MAV. Oh and by the way.... You're cute!!
ichbindarren 1 year ago
I suggest you do. I have heard from a lot of interesting people about this disorder ever since I made the videos. You get to hear from unfortunate people who really struggle and I have so much sympathy for. The more videos out there the better, we need to create more awareness. I suffer from all those symptoms and I have not found much relief. I tried Vestibular Rehab one time, but couldn't afford to keep going as my co-pay was too high. I'm trying meds for now. Hope you get better!
MilkNCereal394 1 year ago
@MilkNCereal394 thank you for sharing,
I congratulate you for being so brave as to explain your condition so very precisely and in an understandable manner, I only hope your medical advisor's are understanding and are capable of offering you needed assistance. You have hit the nail on the head for sure.
Mind yourself.
pgjfpgjf 1 year ago
@pgjfpgjf Well I very much appreciate your comment! Unfortunately, most doctors I go to have no idea what to do. I see some neurologists these days. I just do my research and tell them what meds I need. They mostly sit dumbfounded and have no idea what to do. More research needs to be done with this disorder because many doctors do not know what to do.
MilkNCereal394 1 month ago
Thanks for sharing. I should really post a video about my experience. Its been 3 years for me after waking one morning with vertigo. 24/7 since I have experienced aggressive visual motion and internal motion. Crowds,corridors,small spaces,busy visual enviroments are hell. I feel detached from reality ,stutter and brain dead.The only relief is sleep and yes i to spin in my dreams. Have you tried vestibular rehabilitation. I have given up explaining to people cause they will never understand.
Jimmycrow1980 1 year ago
@Jimmycrow1980 That is exactly the same symptoms I have - 24/7 visual problems/dizziness. I tried vestibular rehabilitation once - but I couldn't afford the 3 classes a week at $35. Time will heal and make it a bit easier to cope. At times, it gets very difficult because you do feel so alone, but there is also a sense of pride that you are so strong to get through this. I hope you are feeling better!
MilkNCereal394 1 month ago
i been having odd feelings to your very pretty really hot lol does eveything feel slow and dead in ur head kinda?
mdh00423 1 year ago
How do the doctors diagnose this? Do you have to perform balancing exercises?
CaptainKhrenov 2 years ago
I Know How You Feel. Today I found out I Have Vestibular Disorder And I Cant Believe surgery makes it worse. I signed up for CHOP (Children Hospital) and they do studies and stuff and talk to different ppl
MrsKeshaMartinxD 2 years ago
Comment removed
pinochet222 2 years ago
Comment removed
pinochet222 2 years ago
I don't exactly understand what you're getting at. Do you mean do you think I don't understand how other people feel because I've always had this? The answer is no. I have not always had this. I have had a normal life. The worst of this disorder didn't start until 2 1/2 years ago. I am now 22. I started out well above average academically. I was always top of my class, etc. I made this videos just to help out other people who suffer from this illness.
MilkNCereal394 2 years ago
I certainly don't think about this all the time. Fortunately, I've always been a very happy & positive person. I see this just as another challenge for me in life. I'll overcome it, & I'll be stronger because of that. Life isn't meant to be faultless. It's filled with imperfections.
Embrace that people are different! :) People struggle. Life is hard enough as is. For me, the more people I can help & lift up in spirit, the more I think it's okay I only have a short while to live on this Earth.
MilkNCereal394 2 years ago
im going through the same shit my girl just be strong as u can
lkhkjlhjjkh 2 years ago
We have no other choice! We can do it though. I'm sorry to hear you are suffering through this.
MilkNCereal394 2 years ago
There is a cure for everything. Go see an herbalist it can be fixed that and lots of exercises believe me go se an herbalist they will cure you its going to take maybe month or more then one month but after that youll be fine. They read your whole systenm and they tell you what vitamins you need and everything else. Dizziness is a symptom so is inner ear infection they will cure you good luck. Write me sometimes thank you.
Panasonic295 2 years ago
I do like your take on it. I am going to school for Dietetics/Nutrition and the idea of a healthy/ natural alternative to finding a cure is that of the ideal situation for me. Thank you for sharing your positive experience.
MilkNCereal394 2 years ago
@Panasonic295 sorry, but herbalists cannot help with this condition. No one can. Only time and exercise.
Awalkerphoenix 3 months ago
@Awalkerphoenix No you are wrong. Go see a few homeopaths and you will see that they can help you out. No it is not the time, exercise yes that will help too but homeopaths can help with this. There a few people that had this problem and went to homeopaths and they are fine now. Sitting and talking at the forums about this will not help anyone it will just make you more frustrated.
Panasonic295 3 months ago
@Panasonic295 Everyone has a different approach to this disorder as it is very difficult to treat. To say they are "wrong," is -- well, not an approach I would take. I have tried natural remedies and to no avail. My best advice is to do the research yourself and do what you feel is best for you. Many doctors and the like will have completely different takes on all of it. Find what is best for you. For me, I had to go the med route unfortunately because nothing else has worked.
MilkNCereal394 1 month ago
Hey
I know how you feel i have this disorder too. It is rare.. I have only ever met 2 people in my life who have it too. I totally understand what it's like and it feels like your whole life is all about the dizziness, and i have lost friends because they couldn't handle it. If you wanna PM me or something then i would like to talk to you cos it really helps to talk to someone who knows what it's like.
dramaqueen412 2 years ago
It does make you feel a bit lonely at time. Most people don't know what it is. And absolutely no one knows how much we suffer each second of the day, like those who actually have it. I'm sorry you are forced to go through this, but take it as an experience to grow stronger. It's the only way I've managed to shed a positive light to this circumstance. I hope all is well and I hope you are able to find a cure for yourself.
MilkNCereal394 2 years ago