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  • Thank you, thank you, thank you!! I'm not alone. I have been suffering from this for over a decade with no real answers for this condition. I have been trying to find a solution for this and now a know where to start! I will be contacting the PPA today! Again, thank you. -Alisha

  • Linda, For those who do not know you, these two videos show only a fraction of your courage and commitment. Hearing you speak about a life with PP is a narrative that needs to be heard in the medical community. Your story is a life of grace and courage, tenacity and generosity. You and doctor Lehmann-horn (whom you call a "hero") along with Dr. Levitt are reshaping the what it means to live with PP, and possible in the future. You bring peace in a "paralyzed storm". Gratitude! Love. Hope.

  • Linda, Thank you for that wonderful part 1. Mickey forwarded it to me.

    All the best,

    Lynn

  • Thank you,Linda, for sharing this . It was especially helpful to hear you mention the extreme pain you experienced . So many doctors do not understand that pain can be a big problem for Periodic Paralysis patients. I'm eager to hear Part II !

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