@deadpoetoftheyear is right. The criteria that must be met are more severe. Insurance companies are pushing for this change so that tells you something right there. People who could havebeen diagnosed with aspergers before will now not have any spectrum disorder per the DSM-V and therefore, no services will be provided. I wish it were to help people with aspergers but its not. It is to exclude them
@garramdol--The implications of what is happening with the DSM-V are clear. I live in a residential school that specializes in autism. I have HFA and so do some otheres here. Some are severe. The staff, and that includes doctors and psychiatrists, indicate the DSM-V will clearly make it harder for some people to get diagnosed although the proposals are not yet set in stone. The DSM-V has been reworked and pushed back several times. The goal is to limit the number of autism diagnoses
The DSM-V is going to make it very hard for people with Aspergers and HFA to get services. One of the onditions now will be a cognitive impairment that disrupts daily life. If you don't meet it, no services.
I think it is in the right spot on the DSM-IV. I was diagnosed when I was 22 years old... So yeah I lived my life not knowing wth was going on with me. I like your videos and I think we need more people talking bout it so we can get more ppl to know about it and be able to take their kids to get tests or whatever and help them out as soon as possible.
You have a lot of interesting points. Thanks for making this video. This is meant in the nicest way possible and meant totally constructive: Slowing down a little and practicing clear annunciation would be make your video even MORE awesome. I think many people with ASD (myself included) also have APD (audio processing disorder) thus making it difficult to understand words. It was a challenge to keep up with what you were saying as I was trying to take it all in and figure out each word. Thanks.
Hey Amanda, you should really check out this site called "Autism Hangout", let them have some of your views. I think they are really really important. I'm a psych student, and HFautistic, and I think we need to self-advocate because NTs just can't understand us. And I think you are dead-on, absolutely right! "Disability" needs to be re-defined; and Aspergers (now 'mild autism') has yet to be accurately defined. DSM is not great...version 3 said gay was an illness 4eg! (I'm bi; so offended 2!) HP
I really can't hear you very well, I am hearing impaired. But I agree with you. I am 30 years olds an diagnosed in 2002 with Asperger's and I ave to say that I am NOT pleased of the plan to group it with the Autistic Spectrum Disorders as that category is way too broad. Asperger's has traits of autism but I don't think it's the same as autism. Ya dig? I think Asperger's should be a separate category.
Otherwise there are deficits which is not an absolute, the word lack is an absolute. I don't lack that, my reciprocity is different, but not lacking. So I will be excluded. No way around that dudes.
I can be wrong, but I have a feeling making it into a big autism spectrum disorder, actually will make less people "have" autism. I don't know if I'm against grouping Asperger's with autism, but I do know I don't like the diagnostic criteria for autism. I know it will exclude a lot of people with Asperger's, including myself. People have just assumed all aspies will automatically be auties. One criteria that must be filled is Lack of social reciprocity. Otherwise there are deficits which is not
Hi gorramdoll, I really love your Asperger's Videos,
You're really smart and I hope I've grasped everything you said accurately.
I hope this will truly be beneficial for Asperger's people. I'm happy it will bring you some peace. I just worry because I think sub types of main disorders are valid as they are. Like Down Syndrome, Autism (and it's spectrum disorders) is a proven medical disorder ....Continued below
I don't understand the inconsitent ignorance in the world. There are different types of ADHD and bipolar. They don't agree yet on how many types exactly are correct but they don't get rid of the disorder names for the sub-types of those disorders. ..Continued below
>... . It is genetic in most cases. There are genetic facial features that doctors rely upon to help identify Autism (spectrum). I can back this up with many links choc full info (upon request). This "un-diagnosis" is spear headed by prejudiced ignorants and poorly trained/qualified doctors who shouldn't be allowed to diagnos/undiagnose Asperger's. ...Continued below
>...If a doctor was prejudice toward cancer patients should he be allowed to determine their diagnsis?! It's prejudice! I like your videos on Asperger's. This one makes a lot of sense. Please, don't erase it, maybe make a #1, #2, and so on. I'd like to be able to refer back to this one often. Your train of thought is well on track :D
Been thinking aout this myself from the other view point. Here is Uta Frith, an eminent expert in autism (wow i wish I had her knowledge/experience) talking about how we need to be careful about this and that it is essential to think in terms of subgroups.
Look up Uta Frith on youtube: 'A single disorder- or a disorder spectrum?'
I don't know what is right and I don't have the experience you do with working with autistic people. I find it fascinating though. I have AS, apparently.
My son would also lose his diagnosis of Autistic Disorder as well. I also have a diagnosed "mental disorder" called Dysthymic Disorder" They want to change that too.
I don't think your son would be losing anything, just being called something that's more accurate. I don't know what dysthymic disorder is; what is it being changed to?
No, if this proposal goes through Autistic Disorder will no longer be a diagnosis. Changing his diagnosis to Autism Spectrum Disorder will be LESS specific/accurate.
And as for MY dsm dx, THAT's exactly why they want to change the name from Dysthymic Disorder to Chronic Depressive Disorder, so people know what it is when they hear it. LOL.
it'll actually be more specific because it will specify what level his communication impairments are on and what level his rituals and repetitive behaviors are at.
"autistic disorder" just means that...well, it basically doesn't say anything, it just means that he was considered "low-functioning" at some point and probably had a speech delay (which could mean he's nonverbal now, but not necessarily, some people with "autistic disorder" diagnoses get decent/good language at a later age).
It is interesting for me to talk to you about this. Please don't misunderstand me as argumentative. All I am saying is that "They" are proposing to remove my son's diagnosis from the DSM every bit as much as They would remove Asperger's. To me, that is pooling everyone together where I thought clear distinctions existed. To get really basic and metaphoric, My son is (mellow) yellow, and you are (for example) green. But suddenly instead, They say we must call him & you & orange & pink "Colored"
It seems They want to make it easier for themselves. But then They need to make distinctions somehow, so they attribute Level of Functioning, as if red is Good/High and blue is Bad/Low. Maybe that is how some people already think of Aperger's Syndrome and Autistic Disorder. I think everyone has ups and downs in skills. IQ is no measure of a person. I also think people in general are on a spectrum with weird and normal being polar opposites. Anyway. Cheers from Wisconsin.
I don't think that you're being argumentative, but I don't think they are really removing either of us. there are some people who are sort of lime and the system as it is now has no sensible way of handling such people. besides when I was a kid some people thought I was kind of yellowish. also I know kids who are labeled yellow who seem pretty green to me, etc. "autistic disorder" and "asperger's" aren't good labels if they describe a bunch of people who are incredibly various
because the average person thinks that everyone with asperger's is one way and everyone with autistic disorder is another day. and they don't even understand pdd-nos. "autism spectrum disorder" is better because it says right in the name that there are lots of ways to be asd. and the diagnosis could say: severe communication problems, moderate problems with rituals, or something. and I think this is really good because it explains EXACTLY what the situation is. "autistic disorder" and
I thought it strange that The general public has either a neutral or fairly positive view of the term Aspergers syndrome, was used as a reason to be against the removal of Aspgerger's from the dsm.
More often than not, the general public has a too positive view, not understanding the true complexities of milder disorders on the spectrum, which I sometimes find offensive and insulting.
Too many people think that people with Asperger's can adjust themselves fairly easily, and don't actually realise the common struggles behind all of it.
Similarily, people view classical autism in an entirely too negative light; again not understanding the complexities of the spectrum.
If Aspergers/HFA/et cetera = too positive
and Classical autism = too negative
a diagnosis of Autism Spectrum disorder would get us closer towards the balance both sides require.
The article said that the decision to remove aspergers hasn't been made yet. It's only a proposal. Personally, I have mixed feelings. I see both points of view.
ha sorry I just got so excited I forgot it wasn't for sure. I mean, I had no idea it was even being considered at all.
I guess it will mean that people will have to change the words we use for things and that will be messy and sort of annoying, but that's the only real problem I can think of. What about you?
The more that I think about it, I would say it could be a good thing. The only drawbacks I can see are people losing a sense of their identity (Asperger people). Also, will doctors be less likely to diagnose a mild person if aspergers is not available as a diagnosis? But I have long thought that Autism, Aspergers, PDD-NOS are all really the same thing, but just manifesting in different ways depending on the severity. Changing it may make it less confusing in the long run.
That would suck if they didn't diagnose mild people; that definitely wouldn't be a good thing. I assumed that all the same people, if not even more people, would be considered ASD.
So because it's confusing, let's get rid of it? No, it's just an empty-headed asinine move to make it easier for more people to understand and work with. How about instead of getting rid of it, we work with it and figure out more of what it means? It's a problem with the people!
I was diagnosed with it in late '97 when I was about 11 or 12 years old and worked for over ten years to shape my identity and educate people a little bit on what it is that I have, and now this?
Confusing is probably the wrong word to use. It might be better to say that changing it to Autism Spectrum disorder may actually fit the scientific research that is being done now better. But that is up to the scientists to decide based on the research. Just because it is a proposal doesn't mean it will actually happen. But your comments definitely demonstrate the point that I made earlier that changing it may cause people to lose their sense of identity. Thanks for reinforcing that point.
@deadpoetoftheyear is right. The criteria that must be met are more severe. Insurance companies are pushing for this change so that tells you something right there. People who could havebeen diagnosed with aspergers before will now not have any spectrum disorder per the DSM-V and therefore, no services will be provided. I wish it were to help people with aspergers but its not. It is to exclude them
DarkQuietWyattON 3 weeks ago
@garramdol--The implications of what is happening with the DSM-V are clear. I live in a residential school that specializes in autism. I have HFA and so do some otheres here. Some are severe. The staff, and that includes doctors and psychiatrists, indicate the DSM-V will clearly make it harder for some people to get diagnosed although the proposals are not yet set in stone. The DSM-V has been reworked and pushed back several times. The goal is to limit the number of autism diagnoses
DarkQuietWyattON 3 weeks ago
The DSM-V is going to make it very hard for people with Aspergers and HFA to get services. One of the onditions now will be a cognitive impairment that disrupts daily life. If you don't meet it, no services.
DarkQuietWyattON 3 weeks ago in playlist Asperger"s - (gorramdoll)
@DarkQuietWyattON I'm no fan of the dsm, but it doesn't say that.
gorramdoll 3 weeks ago
I think it is in the right spot on the DSM-IV. I was diagnosed when I was 22 years old... So yeah I lived my life not knowing wth was going on with me. I like your videos and I think we need more people talking bout it so we can get more ppl to know about it and be able to take their kids to get tests or whatever and help them out as soon as possible.
TheBoronMaster 1 month ago
You have a lot of interesting points. Thanks for making this video. This is meant in the nicest way possible and meant totally constructive: Slowing down a little and practicing clear annunciation would be make your video even MORE awesome. I think many people with ASD (myself included) also have APD (audio processing disorder) thus making it difficult to understand words. It was a challenge to keep up with what you were saying as I was trying to take it all in and figure out each word. Thanks.
miasansom 1 year ago
This has been flagged as spam show
Hey Amanda, you should really check out this site called "Autism Hangout", let them have some of your views. I think they are really really important. I'm a psych student, and HFautistic, and I think we need to self-advocate because NTs just can't understand us. And I think you are dead-on, absolutely right! "Disability" needs to be re-defined; and Aspergers (now 'mild autism') has yet to be accurately defined. DSM is not great...version 3 said gay was an illness 4eg! (I'm bi; so offended 2!) HP
welcomesodoing 1 year ago
I really can't hear you very well, I am hearing impaired. But I agree with you. I am 30 years olds an diagnosed in 2002 with Asperger's and I ave to say that I am NOT pleased of the plan to group it with the Autistic Spectrum Disorders as that category is way too broad. Asperger's has traits of autism but I don't think it's the same as autism. Ya dig? I think Asperger's should be a separate category.
WeatherMondacicci 1 year ago
@WeatherMondacicci I don't agree with you, I completely disagree
gorramdoll 1 year ago
BTW, I think this is a conscious step to reduce the increasing number of people diagnosed with something autistic.
deadpoetoftheyear 1 year ago
Otherwise there are deficits which is not an absolute, the word lack is an absolute. I don't lack that, my reciprocity is different, but not lacking. So I will be excluded. No way around that dudes.
deadpoetoftheyear 1 year ago
I can be wrong, but I have a feeling making it into a big autism spectrum disorder, actually will make less people "have" autism. I don't know if I'm against grouping Asperger's with autism, but I do know I don't like the diagnostic criteria for autism. I know it will exclude a lot of people with Asperger's, including myself. People have just assumed all aspies will automatically be auties. One criteria that must be filled is Lack of social reciprocity. Otherwise there are deficits which is not
deadpoetoftheyear 1 year ago
Hi gorramdoll, I really love your Asperger's Videos,
You're really smart and I hope I've grasped everything you said accurately.
I hope this will truly be beneficial for Asperger's people. I'm happy it will bring you some peace. I just worry because I think sub types of main disorders are valid as they are. Like Down Syndrome, Autism (and it's spectrum disorders) is a proven medical disorder ....Continued below
Malesande 1 year ago
I don't understand the inconsitent ignorance in the world. There are different types of ADHD and bipolar. They don't agree yet on how many types exactly are correct but they don't get rid of the disorder names for the sub-types of those disorders. ..Continued below
Malesande 1 year ago
@Malesande oops, I lost the below piece
Malesande 1 year ago
>... . It is genetic in most cases. There are genetic facial features that doctors rely upon to help identify Autism (spectrum). I can back this up with many links choc full info (upon request). This "un-diagnosis" is spear headed by prejudiced ignorants and poorly trained/qualified doctors who shouldn't be allowed to diagnos/undiagnose Asperger's. ...Continued below
Malesande 1 year ago
>...If a doctor was prejudice toward cancer patients should he be allowed to determine their diagnsis?! It's prejudice! I like your videos on Asperger's. This one makes a lot of sense. Please, don't erase it, maybe make a #1, #2, and so on. I'd like to be able to refer back to this one often. Your train of thought is well on track :D
Malesande 1 year ago
@Malesande cool, I'm glad you like it.
gorramdoll 1 year ago
Hi!
I like your video very much. Keep up your great work.
I have 2 daughters and the oldest has just got diagnosed Autism Spectrum Disorder and mild mental retardation.
The youngest is going to make the tests to see if she also has ASD
danchewie 1 year ago
Been thinking aout this myself from the other view point. Here is Uta Frith, an eminent expert in autism (wow i wish I had her knowledge/experience) talking about how we need to be careful about this and that it is essential to think in terms of subgroups.
Look up Uta Frith on youtube: 'A single disorder- or a disorder spectrum?'
I don't know what is right and I don't have the experience you do with working with autistic people. I find it fascinating though. I have AS, apparently.
Lizbethbike 2 years ago
My son would also lose his diagnosis of Autistic Disorder as well. I also have a diagnosed "mental disorder" called Dysthymic Disorder" They want to change that too.
wiscsuzski 2 years ago
I don't think your son would be losing anything, just being called something that's more accurate. I don't know what dysthymic disorder is; what is it being changed to?
gorramdoll 2 years ago
No, if this proposal goes through Autistic Disorder will no longer be a diagnosis. Changing his diagnosis to Autism Spectrum Disorder will be LESS specific/accurate.
And as for MY dsm dx, THAT's exactly why they want to change the name from Dysthymic Disorder to Chronic Depressive Disorder, so people know what it is when they hear it. LOL.
wiscsuzski 2 years ago
it'll actually be more specific because it will specify what level his communication impairments are on and what level his rituals and repetitive behaviors are at.
"autistic disorder" just means that...well, it basically doesn't say anything, it just means that he was considered "low-functioning" at some point and probably had a speech delay (which could mean he's nonverbal now, but not necessarily, some people with "autistic disorder" diagnoses get decent/good language at a later age).
gorramdoll 2 years ago
It is interesting for me to talk to you about this. Please don't misunderstand me as argumentative. All I am saying is that "They" are proposing to remove my son's diagnosis from the DSM every bit as much as They would remove Asperger's. To me, that is pooling everyone together where I thought clear distinctions existed. To get really basic and metaphoric, My son is (mellow) yellow, and you are (for example) green. But suddenly instead, They say we must call him & you & orange & pink "Colored"
wiscsuzski 2 years ago
It seems They want to make it easier for themselves. But then They need to make distinctions somehow, so they attribute Level of Functioning, as if red is Good/High and blue is Bad/Low. Maybe that is how some people already think of Aperger's Syndrome and Autistic Disorder. I think everyone has ups and downs in skills. IQ is no measure of a person. I also think people in general are on a spectrum with weird and normal being polar opposites. Anyway. Cheers from Wisconsin.
wiscsuzski 2 years ago
I don't think that you're being argumentative, but I don't think they are really removing either of us. there are some people who are sort of lime and the system as it is now has no sensible way of handling such people. besides when I was a kid some people thought I was kind of yellowish. also I know kids who are labeled yellow who seem pretty green to me, etc. "autistic disorder" and "asperger's" aren't good labels if they describe a bunch of people who are incredibly various
gorramdoll 2 years ago
because the average person thinks that everyone with asperger's is one way and everyone with autistic disorder is another day. and they don't even understand pdd-nos. "autism spectrum disorder" is better because it says right in the name that there are lots of ways to be asd. and the diagnosis could say: severe communication problems, moderate problems with rituals, or something. and I think this is really good because it explains EXACTLY what the situation is. "autistic disorder" and
gorramdoll 2 years ago
"asperger's" aren't clear-cut at all, and when people think they are, they just make stupid assumptions.
gorramdoll 2 years ago
ok. I see what you mean. If the distinctions made weren't helpful overall, best to do away with them. I am now off do see what Lizbethbike suggested.
Thanks!
wiscsuzski 2 years ago
I thought it strange that The general public has either a neutral or fairly positive view of the term Aspergers syndrome, was used as a reason to be against the removal of Aspgerger's from the dsm.
More often than not, the general public has a too positive view, not understanding the true complexities of milder disorders on the spectrum, which I sometimes find offensive and insulting.
dietcokewithcherry 2 years ago
Too many people think that people with Asperger's can adjust themselves fairly easily, and don't actually realise the common struggles behind all of it.
Similarily, people view classical autism in an entirely too negative light; again not understanding the complexities of the spectrum.
If Aspergers/HFA/et cetera = too positive
and Classical autism = too negative
a diagnosis of Autism Spectrum disorder would get us closer towards the balance both sides require.
I think.
dietcokewithcherry 2 years ago
i hate my spelling, thanks.
dietcokewithcherry 2 years ago
That would be cool if more focus was given to health issues that quite often accompany ASDs.
sushipie29 2 years ago
The article said that the decision to remove aspergers hasn't been made yet. It's only a proposal. Personally, I have mixed feelings. I see both points of view.
jjazman1234 2 years ago 2
ha sorry I just got so excited I forgot it wasn't for sure. I mean, I had no idea it was even being considered at all.
I guess it will mean that people will have to change the words we use for things and that will be messy and sort of annoying, but that's the only real problem I can think of. What about you?
gorramdoll 2 years ago
The more that I think about it, I would say it could be a good thing. The only drawbacks I can see are people losing a sense of their identity (Asperger people). Also, will doctors be less likely to diagnose a mild person if aspergers is not available as a diagnosis? But I have long thought that Autism, Aspergers, PDD-NOS are all really the same thing, but just manifesting in different ways depending on the severity. Changing it may make it less confusing in the long run.
jjazman1234 2 years ago
That would suck if they didn't diagnose mild people; that definitely wouldn't be a good thing. I assumed that all the same people, if not even more people, would be considered ASD.
gorramdoll 2 years ago
So because it's confusing, let's get rid of it? No, it's just an empty-headed asinine move to make it easier for more people to understand and work with. How about instead of getting rid of it, we work with it and figure out more of what it means? It's a problem with the people!
I was diagnosed with it in late '97 when I was about 11 or 12 years old and worked for over ten years to shape my identity and educate people a little bit on what it is that I have, and now this?
OldschoolVgamer 2 years ago 2
Confusing is probably the wrong word to use. It might be better to say that changing it to Autism Spectrum disorder may actually fit the scientific research that is being done now better. But that is up to the scientists to decide based on the research. Just because it is a proposal doesn't mean it will actually happen. But your comments definitely demonstrate the point that I made earlier that changing it may cause people to lose their sense of identity. Thanks for reinforcing that point.
jjazman1234 2 years ago
Thank you.
rennblautur 2 years ago