Added: 4 years ago
From: KimDreamVietnam
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  • I put this on my channel to raise awareness! I know how much this hurts....We can not even image how much these kids suffer!

  • I have hydrocephalus, thankfully it was found before I was even born, and then treated. I'm working on spreading awareness of hydrocephalus and seeing this video is going to make me work even harder to get it out there! No one deserves to go untreated like these kids. I'm only 16 but I know I can make a difference. I honestly hope that more awareness will be spread very soon because no one deserves to die from something that can be so easily fixed by a surgery that is a daily occurrence here in

  • I have hydrocephalus, thankfully it was found before I was even born, and then treated. I'm working on spreading awareness of hydrocephalus and seeing this video is going to make me work even harder to get it out there! No one deserves to go untreated like these kids. I'm only 16 but I know I can make a difference. I honestly hope that more awareness will be spread very soon because no one deserves to die from something that can be so easily fixed by a surgery that is a daily occurrence here in

  • Im going to this Orphanage tomorrow. Is there anyone out there who knows what is the cost of a shunt operation? We do need to do a needs analysis to find whats the best way to use whatever funds we've raised as students.

  • @theasiancountries Hi, That is very sweet of you. My organisation is able to get an operation for hydrocephalus done for free via a French NPO/NGO called ADM Vietnam. The majority of kids are in the late stages so can not be operated on & recently a newborn has been operated on. Perhaps you should ask the Director of Go Vap orphanage what else she would prefer donations to be spent on. Love & Vietnam Volunteer Network.

  • THIS VIDEO SHOULD NOT BA ALLOWED ON YOUTUBE ! ITS HEARTBREAKING AND I FEEL FOR THESE POOR ANGELS. BUT IS THERE ANY NEED TO PUT THEM ON YOUTUBE? THESE KIDS ARE DYING WHY ON EARTH WOULD U WANT TO SHOW A VIDEO THIS TRAUMATISING? IM A MOTHER OF A CHILD WITH HYDRO, THIS IS NOT SOMETHING I WANT TO SEE, THANK YOU ! & IM PRETY SURE OTHERS WILL AGREE.. ITS WRONG AND SAD TO POST THESE VIDEOS !

  • @alanaahx Dear Alanaahx, I am sorry this is distressing for you to watch. However these videos have helped me to raise awareness about hydrocephalus, find the right organisations to help the children in Vietnam who will operate for free to prevent these late stages & has also brought on average 3 volunteers per month to this orphanage. The staff do a good job of cleaning feeding these children, however my volunteers give these kids love & care before they die. Kind regards, Kim

  • I wish I could go volunteer at your hospital and just sit with the kids and at least try to make them feel better. So sad. I hope the best for your hospital and that you find someone to donate, no kid should be left untreated, no matter where they are, how much money they have, or what their condition is. We're all human! Maybe if I get deployed somewhere near there I'll stop by :)

  • God bless you and your work....Know that you are a special angel in these children's lives!

  • i have a question and i hope it brings no offence and doesn't sound ignorant but is hydrocephalus common in people of asian decent ? because i have seen a few other parents whom are asian and their kids have had it and in this video the amount of kids there is a big number to me i hope this really doesnt sound ignorant i am asking out of curiosity i really feel terrible for these kids and want to learn more about this orphanage

  • My heart is broken. These poor children suffering like that. Very diffucult to watch without crying :( It was a little comforting to see a caring nurse taking care of them though. God bless them<3

  • im sooooo upst these poor chidren the pain they r suffering &they r jst left they need 2 b help i saw how much pain my boy wz in y cnt they b helped

  • By best friend has this. :( and she needs to get her shunt replaced :((

  • of course it's sad seeing this children that have no other way of communicating by crys seeing them in pain is hard but yeah i kind of wanted to no why you were speaking that way sorry

  • It's not "water" in our heads.It's cerebral spinal fluid (csf) not "water"

  • @MrsMelanieC Thanks for the correction on my writing 'water on the brain' but that was taken in 2007 & the Dr had told me that in laymens terms.

  • how is it to late i didn"t have my Surgery till i was 14

    Then agian this is Japan

  • @99boyz Sorry, are you from Japan? I filmed this in Vietnam. It also depends on when you get hydrocephalus & how big your head is, so if you did not have it as a baby but did as a teenager then I can understand you being operated on at 14. Glad you're ok though :o)

  • @KimDreamVietnam I know it probably sounds ignorant, and I don't mean to be, but do the kids get any exercise or massages to stimulate muscle development even though they're dying? Would such measures be considered hopeless, given the condition these kids are in?

  • why does she have a british accent?

  • @julianaestefany Really, after watching this video you can only post that as a question? Perhaps you should read my bio on YouTube which may explain why I speak with a British accent.

  • @mydoggeez Hi, actually the ceilings have been painted with wonderful art for those kids. Please feel free to check my website or the Vietnam Volunteer Network Facebook for updates on the children at this orphanage.

  • @KimDreamVietnam Thank you for caring! Hydro means water in Greek but it's not literal... Getting the wod out is more important than that little word. :)

  • Please, can we help paint this room with happy scenes? These poor babies are terminal and the least we could do is bring some color and teddybears to their lives.God bless them and there families.

  • Question: If these kids would have gotten the operation and its not too late can they learn to sit up and/or walk etc? I ask because I know a mom with a toddler who is 3 and has had the operation but is still lying flat. Also no vocabulary yet. Thanks for any insight.

  • @KSitz77 Hi, I'm 31 and have hydrocephalus. I'm as normal as anybody! I've done alot of research and your friend's toddler might be a little delayed in learning but has every chance of being a normal child! Hope that helps...

  • @KSitz77 Hi & in answer to your question yes they can lead normal lives after a successful operation. Check out this video I took of a little boy at Go Vap who was operated on without a shunt 'Caution: Volunteering In Vietnam At Go Vap Orphanage Can Touch Your Heart & Help Others Too!'

  • that nurse is HOTTTT

  • Kim can you please give me the address of Go Vap orphan, I would love to come to visit them if I have a chance. I'll check back with you here to get the address, Thank you so much.

  • this makes me feel like i dont deserve life

  • @destroyallnerds Oh dear, that was not what I wanted people to feel when I took this video. I hope from seeing this clip, you will look at it from another angle & live life to the full. Every time I go back to Vietnam & to my old orphanage (Go Vap), it is the children who teach me about life. They are so loving & giving despite their malformations, so have taught me to not only give back to them and to my enviroment & local community in London, but to also live life to the full.

  • @KimDreamVietnam Of course it CAN be different. Surely they can be breated better. I mean, I don't live the life of a king, I have my limitations and have had almost 30 shunt revisions, but these kids CAN have a semi decent life

  • Kim great work your doing god bless you.Your video of Go vap inspired me to visit an orpnage with my wife and 2 boys at Phu My in HCMC and have a ward the same as this soooo sad i was a grown man in tears.initially we were in shock but when you get to know them they are so affectionate just lack love.I made me and my family a better view and not selfish my 2 boys actually wanted to visit their friends and we end up visiting 3 time and spend his birthday there thanks for you video

  • I work with a child like this. i love her dearly!

  • hey, i had Hydrocephalus when i was born and i went to healing masses with my family and a priest held me and well.. god blessed me and cured me the next day when i had to get a scan i was normal i belive if i can go and see these children i may be able to heal them as i have before .

  • OOOO que cavezones

  • Comment removed

  • omg!!! that's so sad!!!!!

  • I am 16 yrs old and wanting to start a fundraiser for kids who suffer from hydrocephalus. My little brother is my hero because of this he is 10yrs old now and has gone through 12 surgeries. I want to help raise money to help him and others. Where do i start?

  • Comment removed

  • that is sick what your doing ther coz i also have hydrocephalus & i was 2 when i was shunted & i have my own car & my own flat Job

  • Aknowledge this: I can never understand the true suffering of the one that lives it, and my empathy will never be enough to save them. These babies can barely understand what life is, they probally never had any education since they must be concidered as "Useless" to the eyes of society. Here in Canada, we are lucky to have access to health care, but its only minor. They wont pay for major sicknesses, they wont pay to save lives. Health is for the rich or lucky. I pray for these lost souls.

  • i don't believe that there no too late

  • Thank you for your comment Diffie64. Unfortunately for these children it is too late & too dangerous to operate. This is due to the open sores as well as the pressure on their brains, so the Dr's do not want to risk operating on them. Unfortunately, it appears that if the child has a lot of brain damage they will not spend money on an operation. The solution would be for Vietnam for to have a health care system like the NHS & to train nurses/carers to spot hydrocephalus in time.

  • I do not believe it is ever too late. Like these children, I have hydrocephalus. I am certain that doctors from various parts of the world have been able to help children in similar situations. The solution would have to occur over a fairly long period of time with many different operations, but I am certain it can be done. I believe the real reason that these children are waiting to die is that there is not enough money nor the medical resources available to perform the necessary procedures.

  • Thank you for this short clip of LOVE that is a gift to us all.

  • Its me again sorry if I tried to send a comment again. As I said before im one of the parent who had a child with HC. Im just thinking if you have some reading materials to share on how could we better nurse our child.it just so happen that we don’t able to provide the things for our son due to financial reason. I just wish if you could help us up. your such an amazing lady, that exert some effort to help for patients like our son. Thank you in advance!

  • I have hydrocephalus and this video broke my heart! Im happy that i got a shunt at birth but feel so sad for those in poor countries that haven't gotten one on time! :(

  • Definately broke my heart.......my Hydrocephalus was caught from birth, every child should be afforded such care!

  • What is she talking about. Take it from someone who's been there;it's never too late.

  • To Husky57887, I am talking about the children who have passed the stage of no return. If the head has become too big, the pressure becomes too much & they can not operate. That is a fact! If a baby has been diagnosed early then they can operate. Phuc (the child in this video) actually passed away 2 years ago! Hien is still alive (I created another video last year on Hien).

  • Just got back from the hospital yesterday. My 18 day old just had a shunt inserted. It's scary to experience this, but we caught it early enough and our baby is back to being active, alert and healthy. My heart aches for those who were too late.

  • Thank you for you comment. I am sorry you had to endure going through that experience with your little one. I am so happy that your baby was diagnosed & operated on in time. Please do not worry, the babies operated on over here (when done in time), live long & healthy like any other child. x

  • hot nurse. Why can't operate?

  • Thanks but I'm not a nurse. I live in London but volunteer once a year at Go Vap orphanage. The Dr's could not operate on these children as they had passed the point of no return but if treated on time they could have operated. The children's heads had become too big & there is too much pressure which is dangerous.

  • @Stephie2007: Me too! Seeing these kids makes me realize that my case could've been so much worse had I not had the good doctors I have now to treat my condition.

  • that nurse is sexy... poor kids tho

  • I'd rather you look at the children & not me! Btw, I'm not a nurse. I volunteer at the orphanage once a year.

  • @thesnowman777  che scemo che 6

  • those poor kids. I too have this condition (thankfully, i was given a shunt operation) this video just goes to show me if I had gone untreated, I wouldn't be here typing this. good job and God Bless

  • Thank you for your comment. I am so glad that you were operated on in time. Blessings to you too!

  • @Stephie2007 those poor kids :( I was a preemie born 42 years ago and luckily was shunted early enough - wish I could do something to help so babies don't have to suffer from this treatable condition.

  • Heartbreaking. As bad off as we are here in the US we must be thankful that it is not like this. Pray for these children.

  • This woman is doing something more than reciting a prayer. Things are accomplished when someone DOES something...not by reciting words....

  • Yes prayer not only heals but dollars do as well. So if anyone reads my post please do not just pray but donate and help if you can. Kastnmagic by suggesting prayer I did not intend to neglect telling ppl to send $ - that is obvious.

  • Thank you... I'm not very religious but am more spiritual & at times when I volunteer & try to get help for these children, it can be tough & I have been known to say 'please God help!'

  • @KimDreamVietnam Hi madam.im from the philippines and have a son who is Hydrocephalus w/myelomeningocele. he had been operated by a state hospital for free while he is one month old. im so inspired that there is someone like you who can spent time for those baby’s.God will surely bless you with your dids. this is my first time to post a reply.i dont know how it will work for you to see. GodBless

  • it really hits home for me how VERY lucky me and my son are, for him to be born and operated on a day later to have a shunt fitted...there are soooo amny babies who could of had a far better life just to be given a shunt first...and this is just one ward. it's soooo sad

  • my son has that he is 2 1/2 he looks fine and is doing great and after seeing this im more thankful that we have a good childrens hospital and good doctors that fixed me son because he got real sick when he was 2 ...i feel for these kids it breaks me heart and they are not ugly!!!!

  • Keep laughing, and God will smite you good.....

    I hope you'll laugh then.

  • did she say they were 7 YEARS OLD? they look like babies! ( no offense to them)

  • The waiting room...such a sad world, but so real...

    Si il y a un dieu, je crois que cela fait longtemps qu'ils nous a oublié...

  • I seen a kid like these in Phnom penh in his mothers arms begging in the street.

    Really sad video

  • my brother has hydrocyphlus and i couldnt imagine him bein like that. its so sad.

  • no it cant

  • If the US would allow special needs children to be adopted from Vietnam, children such as these could receive the help they need before it is too late for them. Ask your Senators to ask the Department of State why they will not allow special needs adoptions from Vietnam!

  • i feel so fortunate when i see kids like this, they're just waiting to die.

    also, my dad's sister died of hydrocephalus :(

    god bless.

  • How sad is this.

    Amazing how the U.S. can spend trillions on invading and occupying nations abroad and building a police state domestically. As well as giving $3 billion a year to Israel so that it can hurt more Palestinians, yet the U.S. can't pay a few hundred or thousand dollars to buy shunts to save all of these precious babies.

  • With regards to your comment on my hydrocephalus video; actually it was a US chemical & Government that caused the high amount of malformations in Vietnam. Agent Orange was used during the Vietnam War & worldwide medical professionals attributed the dioxins used in Agent Orange as the cause.

  • This is the only comment here that made any sense and it got booed out with thumbs down. These libs are so blind.

  • well said

  • Someone please help them please!

  • so sad, those kids are just laying there waiting to die...

  • Not helping these little ones is a crime. What the hell?

  • This is absolutely terrible these poor babies, it makes me sick to the stomach.

    Have have an arachnoid cyst and also hydrocephalus, shunt fitted.

    Mine went undiagnosed until i was 13 months old, although i had it before birth.

    Im thriving, and noone can tell i have this condition unless i tell them.

    I say get these babies to Great Ormond street hospital, whatever the cost, im sure there are people in England wanting to adopt a child as precious as these, The hospital works miracles!

  • They haven't got the money to buy them medication? so how are they going to get them to England, come on be real.

  • I actually know of a little girl, who was brought over from a country in poverty from funds, she was fostered into a family in america, where she was given a shunt.

    Unfortunately she died just as things improved for her...and that 'real'

  • Yeah thats 'real' she was very lucky that someone funded her the money to fly over and pay hospital fee's, not everyone has that luck. So you get fucking real, and piss-off

  • what the fuck has rattled your cage?!

    why get offended by what i have said, I have simply said someone needs to get these babies taken care of...as the res tof these comments are saying.

    So dont you dare start rowing with me.

    I have hydrocephalus myself, i dont like seeing babies like this, i know what its like, ive spent most my life on a hydrocephalus ward. If there is that tiniest bit of chance then it should be taken, thats all im saying.

    Idiot.

  • if they have a good chance of surviving,if been operated at 3 months...why havent they been operated on yet?i hope it not money issues,cause if they can save someones life why not do it?

  • I was wondering the same thing. I have hydrocephalus and received a shunt at birth. This is sad that it hasn't happened yet for them

  • A rather depressing sight. I probably haven't looked like that since I was three months old (My first shunt operation happened when I was 4 months old).

    But something CAN be done - at least alleviate the PAIN! Ohhhhh it gives me the willies just thinking of it.

  • hey everyone! just had my surgery to get a new vp shunt because my last one was clogged by excess brain tissue. check out my two videos i've made about it and if you have questions, then please feel free to ask me. :)

  • hiya im mark

    i have an appointment with a neurologist and i might have to have my shunt changed and i was wondering what do they do?

    do they tahe the old one out or do they just put a new one on the opposite side?

  • it depends on how serious it is. it also depends if it is clogged or damaged. if you do have to have surgery, you wont have to worry. you get to eat all the jello you want lol.

  • haha lovely jelly (jello) lol im from GB haha

  • lol im from CA

  • yeah i cheked your profile out ^^

  • that is so sad, its terrible that nothing can be done for these poor children, with all the medical advances out there you would think someone somewhere would reach out to help them.

  • That's sad D:

  • this is very very very sad... breaks my heart

  • Hello everyone! My name is Denise and I have Hydrocephalus. My last surgery was when i was 13 and i am 18 now. I want to get to know others who have it as well so hit me up if you want please!.. I am really happy that I got my shunt right after i was born so yeah. Love Life!!!

  • Hello Denise. I myself do not have Hydrocephalus, but two of my best friends do. I hope this comment finds you well.

    ~Kristin

  • oh wow! i would like to chat with them if it is okay... is one of them a girl because i would like to ask some questions to a girl if that is okay.. thank you so much for replying!

  • Both are boys. I'm afraid I've lost contact with one. and the other i regret to say has passed. at least he isn't suffering now.

    i met them at the OU Childrens Hospital.

  • awe! i am so sotty! how old were they?

  • Jeremy was 21, JJ is 19. last i checked jj was in the hospital.

    so, how are you this day?

  • i am okay. just fine. yeah i met someone on myspace who had the VP Shunt and he said he was 44. right now i have a minor head ache but that is just ecause of the new year and i parties little too much. but not what you think... lol

  • XD stayin up too late, perhaps? i know if i stay up too late, i get headaches.

    he's 44 now? thats amazing. talk to ya soon

  • alright. i hope you have a wonderful start of the year!

  • Thank you, I hope you do too!

  • Hot nurse TBH

  • Im sure their are a lot of kids on youtube....but ignorance is only in a mind of one who knows no better...Whoever wrote anything obsurb should realize they one day they will have kids..and they may not be lucky..

  • For the cases of the hydrocephalic babies, if they miss the window of opportunity to be diagnosed or operated early on then unfortunately they are condemned to die & have a life span of approximately 8 years of age.

    It is frustrating for me to witness life slipping away when the pain & suffering they endure could easily be prevented if the birth mothers participated in pre natal care or if the hydrocephalic babies were diagnosed earlier. Please see my channel for more info on KimDreamVietnam

  • whats the charity called because i will do some charity work car washes or anything to help people like me with hydrocephalus

    from lonesnipe

  • that's a mean thing to say...

    they waiting room of death....

    MUAHAHAHAHA.

    evil people.

  • Do you know why they miss the window and are not diagnosed in time? My son has this disease and was given a shunt at 2 weeks old. He is now 4 and is growing and thriving like any 4 year old should. He did have one shunt revision, when he was having very severe headaches. Are the children in the orphanage in pain? How do they control their pain? If you could help me find out more about them and how I can help in any way!

  • i can tell you now your son will grow up to be a healthey young lad i mean i have hydrocephalus and i turn 18 tomorrow and i am perfectly normal maybe a few headaches now and then but they can be easily sorted with a paracetamol ^^

  • What other treatments for hydrocephalus are there? I remember reading about a cerebral shunt in the 80s. Have the fail rates on this surgery decreased?

  • I am back in Vietnam & have been visiting the kids at Go Vap Orphanage.Once I arrived I was informed that Phuc had passed away at the age of 8 years old. However, Hien is still alive & clinging on to life. Since my last visit 1 year ago, there has been a huge increase of babies with hydrocephalus, tumours & malformations.

  • By the way, children with hydrocephalus, even if they have brain malformations, they can still act and react like normal people, dependind on the damage of the brain. Please, people, don't ask before looking something on the net! The kids are wonderful and deserve a chance, and deserve respect, and at list we should pray for them, especially if they will not be saved.

  • i have hydrocephalus and luckily enough i got a shunt when i was born and not 7 years later man i feel sorry for the poor kids and i need to get mine replaced because i have grown out of it and it has started to cause headaches and to be honest i have a banging headache now :(

  • I hope someone will help them, because they CAN live a normal life, if they get the shunt in time. It is absurd, stupid and unhuman to laugh at them, or to say they should just die and that's it. My heart breaks seeing them, because my child could have had the same fate if not treated when needed.

  • this is just so sad....

  • well this is just so sad ... they are all waiting to die :(( never had a chance to experience life, poor little boys and girls ...

  • i was born with hydrocephalus

  • i have the same diease

  • this is so sad........ "the waiting room to die"? thats so sad!

  • This is why we need Universal Health Care in the US. We typically don't see this in the US because these are the babies aborted in partial birth abortions. Give parents every option available. It won't cost us any more. Many will pay less than they are currently paying. People won't use emergency rooms for routine care and skip out on the bills. I don't know anyone who doesn't want health insurance. Many just can't afford it or can't afford enough.

  • Oh my gosh that was heartbreaking to watch those innocent children lying there ..

  • omg it sounds horrible in there with all the moaning, can they understand anything?

  • boy is that a stupid comment. Kill them? Hydrocephaly can be cured with a shunt.

  • it can be treated...currently there is no cure, remove the shunt and the chances of survival are very slim...having an artificial object effectivley keeping you alive isnt a cure...but your right, that was a stupid comment

  • These children will never be able to have a healthy life, they are way to far ahead in the disease. Eutanasi is the only right choise.

  • wow. This really made my heart cry out for these poor babies. Is there anyway to adopt and bring them to the usa for help?

  • you shouldn't have to adopt them, all they SHOULD need are the people who can perform the operations and the materials...also, Hydrocephalus is rather tricky to insure in the US

  • i wish there was more that we could do I am now seventeen yrs old I had a shunt placed at 3 months and I can see how blessed I am it makes me cry to see them so helpless I wish I could help

  • What country is this?

  • Vietnam

  • Just to think, this happened in the west until quite recently, I personally have hydrocephalus, have had about 50 replacements so I know pretty much for sure I'd have died like the poor children here....something has to be done in the third world about this treatable condition

  • omg this made me cry... it's so awful that they all could have been saved but weren't.

  • that is so sad, why cant they get canadian health care like ours :(, I feel awful when our children in this country get care right away, sometimes before birth, and everywhere else suffer. This country is blessed

  • Wow that's truly amazing...my daughter was born with hydrocephalus and had a shunt placed when she was 2 weeks old....I can't imagine what it would be like for her had her doctor not been so vigilent. Thanks for posting, I feel sorry for those babies

  • hydrocephalus bro.

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