I would be happy to help anyone who want advice. I've been helping people all these years to get better through food!! That's why people get autoimmune diseases. It's usually gluten-dairy intolerances that develop into severe health problems. Anyone with these diseases can get MUCH healthier and children can some times completely cure themselves over time if they eat what they were created to eat! Wheat & dairy in America have been modified and are too hard to digest. They are making us sick!
My daughter was 8 years old when she had EVERY tough symptom of Crohn's. She started the SCD diet and it worked!! After she started the diet (which is not easy but WORTH making the changes to get healthy!!) She stayed on the diet for 13 months with NO cheating. Then she slowly added foods off the diet. She will never eat dairy or gluten anymore however. Our whole family of 6 helped her by eating the same foods. We are ALL so much healthier!! 4 years later she still has NO more Crohn's!!
i'm going to be getting an ileostomy at cincinati in the next couple months. beth is one of my favorite nurses (: and toni, how could he not be on here?!
i had to get this same surgery when I was 4 years old. I still have it now at 13. Later on this summer, I'm gonna get the surgery to fix it back again. This was very inspriring. :)
Heyy i also have Crohns Disease And i am going to do a Q and A vid, so if Anyone would like to know go ahead and ask! Check out my channel i only have one vid so it should be easy, or u can go to /watch?v=8Vvsm9yt_Sw please check it out!! <3
hi, i have had ulcerative colitis (UC) for 6 years and had a severe case of it. i was diagnosed when i was 4 in 2005. my doctor had gotten it under control for a long time, then in late 2011 i had a huge flare-up. there was nothing else my doctor could due and i had to have ileostmy surgery. i had abcesses twice, and had to stay in the hospital 4 a month thoughout christmas 2011. nov. 29-dec.27 . i really do understand your story and i know how it feels. much love, rachel
I have had Crohns Disease for most of my life and my daughter is about your age and you are a very brave teenager and i hope you are doing well with everything.
Oh my goodness your video was do inspiring I'm 11 and I've been diagnosed for 2 years and my chrones hasn't been that bad yet! I'll pray that you stay well.
im going to pray for you to get better sis :) im 23 and i have crohns disease since 2 years ago . you are strong and that what you sould do and you have crohns disease . god bless you
i constantly watch this video, so so strong ...so young.... im 26 and living with chron's recently been in and out of the hospital.. they keep sending me home on meds :( pain has become apart of me- you have had much more done to you but knowing you are doing ok makes me feel that much better having to go through this to. you def have god watching over you !!!!...aml
Hey, so first off, I don't understand why anyone would dislike this video. And second, thankyou!. Your video was touching, I'm 17 and have been living with crohn's disease, and colitis since i was six years old. I also have an ileostomy, and have been on TPN, remicade, humira. & so much more. You're such a strong person, and through all of this , you still manage to keep a smile on your face. (: I hope everything only gets better for you, from here on out! god bless you and your family!<3
Thank you so much for sharing your story! On October 3, 2011, I went to the hospital with severe stomach pain, I had pain for about a month, every time I ate I would get pain on the left side of my stomach. I went to the Dr. and was told that there was nothing on the left side of stomach that would cause pain. Finally I got a fever and went to the hospital and after a CT and some other tests I was told I had a perforated bowel and need surgery. I woke up the next day with and ileostomy.
Hello to everyone who have posted comments here. My son underwent a total colectomy this June due to crohns and unfortunately the internal join failed two weeks post surgery. He then had to have emergency surgery loosing over half of his small intestine and now has an ileostomy. He has suffered since age 10 with crohns and has been on all the different drugs from pentasa to two years on remicade every four weeks! every one who suffers crohns is a brave person it is a wicked disease.
I stumbled upon your video when I was trying to research my daughter's upcoming surgery. My daughter is 4 years old, although she does not have crohn's disease she needs to have an ileostomy done, she has a muscular disease. She had a cecostomy done less a month ago and it was unsuccessful. She is going back into surgery in 2 weeks to have the ileostomy. I am petrified over this next surgery, but I am glad to see that things do get better. Thank you for sharing your story, it helped me.
There is no fear in love. But perfect love drives out fear, because fear has to do with punishment. The one who fears is not made perfect in love. :) 1 John 4-18. I recently had a colectomy and I hope this verse brings comfort to you as it has me. God Bless :)
Hi. I am 15 and a crohns disease patient, diagnosed in 2006, when I lost my granny and my sister was going to college. I feel your pain and Jesus is with you and will take all our pain away! I have been on a medication called Remicade every 6 weeks for about 2yrs and seem to only be in remission for about a couple of weeks to 2 months. But keep trusting in God, u have very STRONG faith.
Hi there Gloria. I am a father that had a son who had crohn's disease. It was diagnosed when he too had bad pain in his bowels. We went through a lot when he went to the hospital and had a huge amount of test's. He had to get a type of colostomy like yours and that was hard on him. He was only 14 when this happened and he was doing well until he suddenly was very tired and the doctors were too late in finding out what was wrong. He passed away in 2004 at age 18. We really miss him.
This video has left me with tears rolling down my face, you are such a brave, brave girl and I hope that you stay well for many years to come. I was diagnosed with Crohn's about half a year ago now and seeing your strength has helped me find some strength of my own. Thank you for sharing your story, lots of love ♥
@MTHKITEBOARDS I was thinking the same thing. I had this surgery 4 years ago and now don't eat anything that is tough to digest. No red meat, raw vegetables, grains, milk,, etc. Whenever I feel the pains start I immediately stop all food intake and do a liquid diet for a day or two. This works everytime. Haven't had a flare in 6 months
your so brave! I've been wanting to study all about the "stomas, urostomys or ostomys" theres so many names that they've called it lol. Really love the video, God Bless.
Hi there, loved the vid. My name is Sean and I was also diagnosed with crohns at the age of 6. Last week I had a Colostomy Stoma done and I had so many tubes and what not in me. I know exactly what you've been through, and are really nevous about getting my picc line taken out, ANY TIPS haha but be strong and yes I am from New Zealand
What an absolute inspiration you are. I have Crohn's and you remind me of myself when I was younger. You look so brave in those pictures. I'm having a rough time at the moment but you've really touched and inspired me with this video.
Gloria, you are so brave and even more brave to share this video. I am a 50 year old mother who has to have the same kind of surgery. I had it once before over 19 years ago and I wasn't afraid. For some reason, this time, I'm afraid. And then I see your sweet video. I wish there was a way to meet you and your mother. You don't realize how much you've helped a 50 year old chicken. My kids tell me to be brave all the time. I guess I'll find my strength thru them. Bless you.
Hello my name is Wendy, i have Crohns disease as well and i was given my ileostomy about 12 yrs ago i named him Russell. i watched your video and it brought back alot of memories for me, i was 25 when Russell was created i am now almost 37, i was amazed to see someone so young be so strong in the face of something so scary you are a true battler and i commend you for your strength My thoughts during all of my dramas was "what ever doesn't kill you makes you stronger". Thank you
big hi from the uk...i have spent the last two years in hospital on and off...i had ulcerative colitus...i had to have a total colectomy as my intestines had began to rupture, doctors and sugerns saved my life as i only had about 6 hours left. They took my entire bowel, 6 metres of my large intestines and some of my small. i am open for a reversal but am not going to take it. im healthy again and it has not stopped me doing anything. i spent my 21st birthday going through all this. keep strong x
Great video. Crohn's disease changed my life. When I was diagnosed I felt so alone..I didn't really want to tell people at school about it because not many had a clue as to what it was and what it does to you. All you can do is just get up each day and appreciate even the smallest of things.. you will also find out who your true friends are. It is a difficult life.. 38 years of it and two resections but you probably already know this from watching my videos. Keep your head up and keep smiling
Hi Sweety, your video really touched my heart, I cried while watching your video from the begeninig til the end. I just had my ileostomy, but they did it to save my life, I was so sick that my large intestint was bleeding by inside.. so they remove all of it.
I had the crohns for 15 years.. I had my surgery done last august... Finally !! It make me so sad that young kids have to go through all this...God bless you xox
Your video was really touching, especially when you quoted Revelation 21:4. I think your Crohn's was worse than my Colitis, but I can sympatize with what you went through. I had Ulcerative Colitis for about 10 years and had J-Pouch surgery on June 2. I'll go in for the take-down surgery on July 20th. I'll have to show my wife this video. She will be blessed. I wish you the best. :) 2 Cor 4:18
hey crohn's friend the way to keep disease under wraps to me is to positive never fails and its workin for you see ya and good luck in da futur o i also have crohn's peace
My wife had an emergency ileostomy two months ago at age 57. It's been two months and we are still learning what works best. We are getting better, but still not getting as good results as we want. We continue to experiment and adapt and expect continued improvement. Thank you for sharing and wishing you all the best, With your strength and friends and family, i am sure you will have a full well rounded life.
i was diagnosed with crohn's when i was ten...i tried all these meds (remicade, cimzia, humira, etc) but im only steroid responsive, so im getting an ileostomy on the 25th, its not a permanent one, just for 2-3 months probably. good luck to you and everyone else
need to have this done soon, but I have been putting it off for years. Mine would be permenant and can't immagine living with it and still being able to do everything I want to do - how clothes will fit - and pain. Im an adult (40 something) and commened you for handling this with a smile. I need to remember your face when I go through this. It can't be put off much longer, and I hope I can face it with the same courage as you have shown.
I have Crohn's as well. I had my first surgery at 21 and had my second a few weeks ago (at 23). I also dealt with the serious infections that you seem to -- I've had a "monster pole" before. :) I can't imagine how terrible it is to spend your childhood this way. I am very happy that you have such a supportive family to help you through this. Having no close family has been the hardest part of this for me -- never forget how lucky you are to have them. Best of luck to you!
i admire you so much your so young and your handling this disease and surgery like an adult would im 18 years old and almost died from my chrons disease but lucky i didnt thanks to surgery and im glad ur ileostomy wasnt perminant mine isnt either
I have Crohn's. Had a foot of my ilium removed, have felt great ever since. Although there is no "cure", there are ways to lessen or get around it. Good Luck Everyone.
i have crohns and im 11. you are so sweet and to have that much cheer and love us and inspiration! i was diegnosed when i was 8 and i dont like it but it makes me who i am! god loves you and wont let you go babydoll' i promise. -Emily
I had my colon removed due to sever Colitis. I posted Vlogs on my entire experience in hospital on my channel. You can watch them if you wish. :-) You are so sweet.
U r trully an inspiration!!Thank u so much for ur info and insight. I have uc/pancolitis n currently looking towards surgery as my final option. Currently on remicade n doesn't seem to b working. Going to talk to surgeon soon. May God bless u. N thank u. U make me feel like I'm not alone!!
gd luck kid. you and your family should check out 'Dr Raphael Mechoulem' from the hebrew university of Jerusalem he goes into great detail on the Endogenous cannabinoid system,its no big pharma quack crap!! its genuine science,also there is some great info from Dr Bob Melamede an associate professor of biology at the University of Colorado. good medicinal cannabis has immune modulating power to surpass any pharma drugs ,im currently cutting down on 6mp and eating gd Q hash high in CBD.
Just wanted to thank you for posting this. I am a medical student learning all about GI diseases and it is good to see the human side of it. I wish you the best of luck in the future, and thanks again
:29 is the reason why you are in the bad state that you are in. I have Crohn's too, and I can not stress enough, YOU CAN NOT EAT THAT GARBAGE. Anything fried, dairy, or too sugary damages your intestines' lining.
My grandmother just had an ileo yesterday. I haven't been able to learn enough about it, or at least i feel like i can't because i want to understand. She is 80 years old though & we're all so worried. You are such a blessing. I cried when I saw this but it touched me. God has been the best salvation I have found and I have felt so lonely & depressed over my own illness that i forgot how much happier i am that I have God by my side. You were just one of the things that brought it to light! =]
You are an amazing little girl. Like some of the people before me I cried when I saw this. I study medicine and lately I have had a lot of trouble coping with the stresses and demands. I was left very humbled by you.. Very humbled. Tomorrow, I am going to go in with a new attitude. I feel like I owe it to you and people like you to at least try. Faced with a stoma I would have just fallen apart, you call it "Rosebud" and charge Barbara to watch over it! I cant tell you how much I admire you.
Well done such strength shown from someone so young. I had my entire large intestine removed but they hope to reverse it in the future. I had ulcerative colitis so I'm looking forward to a much better quality of
Life in the future. Take care and god bless. Simon from Ireland
im an 18 year old boy. i suffer from crohns to. i just want to say i cried at this and i dont cry at things that easy. your fantastic, your smiling in every pic. Thank you for your story
You are such a brave little girl...Your video made me cry :( I am 31yrs old and need an ileostomy due to a bowel defect that cannot be corrected even after multiple bowel surgeries. I could not even imagine what it has been like for you given that you are so young. I was only 16yrs old when my symptoms began and I had my first surgery at 18yrs...You are an inspiration and I won't lie that I am afraid of what lies ahead.....Thank-you for sharing your story - keep fighting little one!
This video brought back so many memories, I know exactly what you went through. Thank you for posting this video, I know I would not have had the guts to do it. Hope your feeling alot better.
Godbless u!Ian on t.p.n and have a illeostomy from a car accident.you are a survivor,check out my story "serendipity "memoirs from the fith floor at blurb.com.keep inspiring ( :
You are so young to go through this. I hope you're well now. I was diagnosed with Ulcerative Colitis 16/11/10. Unfortunately, I had/have an extreme and rare case. 6/12/10 I went in for an emergency Total Abdominal Collectomy with illeostomy end. In 2 years I have lost more than 180lbs. I was in hospital 3 weeks but am finally home. They've told me a minimum of 1 year for reversal, but it is a cure. It's nice to know were not alone. It's just a matter of learning to live with myself now. I'm 21.
i was in my local hospital (john radcliff oxford) l for 8 weeks with a i was near in a critical condition but the fantastic docturs realy helped and i have a stoma now thanks for a great vid!
Continue to stay strong in the Lord!! God sees the tears we sometimes struggle to see through. In our weakness He remains when we are broken He sustains! ~Kristina
How brave are you Hunni? I had my ileostomy 6 months ago now and have named him Eric! Mine is permanent but its no problem, he saved my life! I hope that you can start to enjoy life a little bit now as I am! After 20 years with Crohns Im just pleased to be able to go out and not worry! Luv'n'ugz
you are a brave little girl, you have some amount of courage, im struggling with my condition and it is not a patch on what you have went through. Keep fighting kido
Thank you for putting this up. I have Ulcerative Colitis (diagnosed in 2004) and am going in for my fist of the two surgeries in a couple weeks. I have been in denial and havent wanted to research any part of the surgery. This was the first video I watched. You are so brave, I'm 17 and this surgery scares me to death. But I know that He will get me through it. Thanks for the encouragement.
@hollisterbabe59476 From one UC sufferer to another, I hope your surgery goes well! After 23 years of this lousy disease I've so far avoided surgery...it's not looking like I'll get away with it forever though and I'm just as terrified as you. Hopefully by the time you read this, it'll all be over and you'll be on the way to getting on with life. ;o)
I feel like this should be obvious, but what are the blue styrofoam things at 1:17, 1:25, 1:39 etc. Are they just some sort of prop or do they signify something? My favorite nurse brought me something similar to these so sit on and arm/head rests and I didn't know if they were the same thing or different. My reversal is still looking good for next spring-- hope you're doing very well :)
I have an ileostomy myself and as a child I suffered so much from stomach pain. I was born with Cloacal Exstrophy and have had over 100 surgeries on reconstruction of my abdoman....I'm am still young and 18 and let me tell you that you are not alone! You will, and have I assume, go through many challenges with the ileostomy...always keep the skin around it very clean...try not to bump the skin...its annoying with a lot of bag changes...man...i wish i could meet you now!
I am 29 and have struggled with Chrons Disease for 5 years now, and that included a bowel resection and an illeostomy, and your video made me laugh. Because when you suffer with this disease, humor is how you keep going. Isn't contrast yummy? And the clear liquid diet..mmm can't get enough of the hospital "beef broth"!! And the pain button is your best friend! NG tubes are the worst! You are a brave and fantastic girl, be strong my "poo bag" sister!!
You are so very brave, My brother has severe Crohn's disease and uc to, He has been so unwell it breaks my heart to see him like this. I will pray for you and my brother x x Keep well honey x x x big kisses and hugs from England x x x x
Amazing! I hope you are doing well. I was diagnosed w/Crohn's 9 years ago at age 26. Immediately, I had to have surgery, then two more surgeries w/in 4mos. the second surg. included a temp. ileo, I had it reversed 3 mos. later successfully. I pray yours will go well, too. It was tough on me at age 26. I couldnt imagine having to face this disease and surgery at your age! You are handling all this with such class, keeping your faith, & finding your smile even in bad times. You are my inspiration!
I am so impressed with ur courage & faith darl.Iam a 49 year old man who has had crohn's for 15years,have had numerous surgeries,my last being a year ago due to cancer,with my colon removed and left with an end ileostomy with oversewn rectal stump,i know what u have been through.Iam not a man of faith,but seeing ur blog has made me want to search.thank you so much,and best wishes for the future.cheers Tony.
I am proud of you for being so strong !! I am a nurse as well as a crohn's patient. I loved the pictures and the story you tell...may your courage and message reach the mutlitude ! =) HUGS !
This is brianna sanders, i dont know if you remember me but i know you through the Brunkers and Amber. I just thoguht you should know that, thsi video was very touching:)
Gloria, What an awesome video of your journey. You have such a wonderful testimony and God is using you to reach so many others with your story. Hope you are doing well and staying healthy:)
estimony and God is using you already to minister to those with crohn's. Keep your sweet spirit and I can't wait to take care of you again when you come back for your closure.
Hi Sweetheart, You guessed it, your big cry-baby dad is wiping tears from his face as he writes this after watching your video. You are such a pillar of strength in the Lord and I see you differently now than I used to. You've grown so. The Lord has built such character in you as you have braved this ordeal the last few months. It has been a priveledge to walk with you through this. We'll keep praying. Keep standing strong my Beautiful Little Lady. -Dad
You seem like such a brave girl I know it's hard sometimes because I'm living a life like this right now but I'm goin undiagnosised and no treatment. I'm on an all liquid diet to try and rid some pain. I have a vid on my channel if you Want to know kore of my story :). I'll be praying for you
Awesome video Gloria! I thank God for your willingness to minister to others. Romans 8:28 We continue to pray for your complete healing and love you bunches!
Gloria, it's Aunt Gabe. I love you so much. You are such and inspiration of what happiness, love, peace, and grace are, even through the most horrible struggle. I pray for you all of the time, and I miss you so much. I pray that Jesus numbs your pain. You are a beautiful young lady and a blessing to so many, I love you so much!
I would be happy to help anyone who want advice. I've been helping people all these years to get better through food!! That's why people get autoimmune diseases. It's usually gluten-dairy intolerances that develop into severe health problems. Anyone with these diseases can get MUCH healthier and children can some times completely cure themselves over time if they eat what they were created to eat! Wheat & dairy in America have been modified and are too hard to digest. They are making us sick!
HelenFields 6 days ago
My daughter was 8 years old when she had EVERY tough symptom of Crohn's. She started the SCD diet and it worked!! After she started the diet (which is not easy but WORTH making the changes to get healthy!!) She stayed on the diet for 13 months with NO cheating. Then she slowly added foods off the diet. She will never eat dairy or gluten anymore however. Our whole family of 6 helped her by eating the same foods. We are ALL so much healthier!! 4 years later she still has NO more Crohn's!!
HelenFields 6 days ago
tiniest kitten i have ever seen omg <3
ItsJustJasmine 1 week ago
i'm going to be getting an ileostomy at cincinati in the next couple months. beth is one of my favorite nurses (: and toni, how could he not be on here?!
TheHospitalgirl 1 week ago
You'll never know how many lives you touch with your bravery here. God bless you and grant you many, many years!
alyvideo 4 weeks ago
i had to get this same surgery when I was 4 years old. I still have it now at 13. Later on this summer, I'm gonna get the surgery to fix it back again. This was very inspriring. :)
lyrics4luVs 1 month ago
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Heyy i also have Crohns Disease And i am going to do a Q and A vid, so if Anyone would like to know go ahead and ask! Check out my channel i only have one vid so it should be easy, or u can go to /watch?v=8Vvsm9yt_Sw please check it out!! <3
Crohnstalk101 1 month ago
hi, i have had ulcerative colitis (UC) for 6 years and had a severe case of it. i was diagnosed when i was 4 in 2005. my doctor had gotten it under control for a long time, then in late 2011 i had a huge flare-up. there was nothing else my doctor could due and i had to have ileostmy surgery. i had abcesses twice, and had to stay in the hospital 4 a month thoughout christmas 2011. nov. 29-dec.27 . i really do understand your story and i know how it feels. much love, rachel
lpsloverrachel 1 month ago
I have had Crohns Disease for most of my life and my daughter is about your age and you are a very brave teenager and i hope you are doing well with everything.
photobart1 1 month ago
Oh my goodness your video was do inspiring I'm 11 and I've been diagnosed for 2 years and my chrones hasn't been that bad yet! I'll pray that you stay well.
carriecatt2000 2 months ago
im going to pray for you to get better sis :) im 23 and i have crohns disease since 2 years ago . you are strong and that what you sould do and you have crohns disease . god bless you
greetings from kuwait
tecana88 2 months ago
i constantly watch this video, so so strong ...so young.... im 26 and living with chron's recently been in and out of the hospital.. they keep sending me home on meds :( pain has become apart of me- you have had much more done to you but knowing you are doing ok makes me feel that much better having to go through this to. you def have god watching over you !!!!...aml
ashleymly1 2 months ago
Please look into Hemp Oil. It cured Shona Banda. I've also heard good things about the herb Cat's Claw. God bless!
IAmMichaelMyers 2 months ago
Hey, so first off, I don't understand why anyone would dislike this video. And second, thankyou!. Your video was touching, I'm 17 and have been living with crohn's disease, and colitis since i was six years old. I also have an ileostomy, and have been on TPN, remicade, humira. & so much more. You're such a strong person, and through all of this , you still manage to keep a smile on your face. (: I hope everything only gets better for you, from here on out! god bless you and your family!<3
kellyxmichelle25 3 months ago
Thank you so much for sharing your story! On October 3, 2011, I went to the hospital with severe stomach pain, I had pain for about a month, every time I ate I would get pain on the left side of my stomach. I went to the Dr. and was told that there was nothing on the left side of stomach that would cause pain. Finally I got a fever and went to the hospital and after a CT and some other tests I was told I had a perforated bowel and need surgery. I woke up the next day with and ileostomy.
momisue74 3 months ago
Hello to everyone who have posted comments here. My son underwent a total colectomy this June due to crohns and unfortunately the internal join failed two weeks post surgery. He then had to have emergency surgery loosing over half of his small intestine and now has an ileostomy. He has suffered since age 10 with crohns and has been on all the different drugs from pentasa to two years on remicade every four weeks! every one who suffers crohns is a brave person it is a wicked disease.
slgk1000 3 months ago
I stumbled upon your video when I was trying to research my daughter's upcoming surgery. My daughter is 4 years old, although she does not have crohn's disease she needs to have an ileostomy done, she has a muscular disease. She had a cecostomy done less a month ago and it was unsuccessful. She is going back into surgery in 2 weeks to have the ileostomy. I am petrified over this next surgery, but I am glad to see that things do get better. Thank you for sharing your story, it helped me.
Courtneysmiller1 3 months ago
There is no fear in love. But perfect love drives out fear, because fear has to do with punishment. The one who fears is not made perfect in love. :) 1 John 4-18. I recently had a colectomy and I hope this verse brings comfort to you as it has me. God Bless :)
jeremiahh2911 3 months ago in playlist live strong
Hi. I am 15 and a crohns disease patient, diagnosed in 2006, when I lost my granny and my sister was going to college. I feel your pain and Jesus is with you and will take all our pain away! I have been on a medication called Remicade every 6 weeks for about 2yrs and seem to only be in remission for about a couple of weeks to 2 months. But keep trusting in God, u have very STRONG faith.
P.S. the nurses do make it better!!!
FreedumMuse 4 months ago
Hi there Gloria. I am a father that had a son who had crohn's disease. It was diagnosed when he too had bad pain in his bowels. We went through a lot when he went to the hospital and had a huge amount of test's. He had to get a type of colostomy like yours and that was hard on him. He was only 14 when this happened and he was doing well until he suddenly was very tired and the doctors were too late in finding out what was wrong. He passed away in 2004 at age 18. We really miss him.
mywolf1 4 months ago
This video has left me with tears rolling down my face, you are such a brave, brave girl and I hope that you stay well for many years to come. I was diagnosed with Crohn's about half a year ago now and seeing your strength has helped me find some strength of my own. Thank you for sharing your story, lots of love ♥
brokenlittlexgirl 5 months ago
@MTHKITEBOARDS I was thinking the same thing. I had this surgery 4 years ago and now don't eat anything that is tough to digest. No red meat, raw vegetables, grains, milk,, etc. Whenever I feel the pains start I immediately stop all food intake and do a liquid diet for a day or two. This works everytime. Haven't had a flare in 6 months
CJC2456 5 months ago
I'm not alone :') I've had Crohn's since i was 7 and im 13 now... :(
IlovePeterFCarlisleC 5 months ago
your so brave! I've been wanting to study all about the "stomas, urostomys or ostomys" theres so many names that they've called it lol. Really love the video, God Bless.
MonzaMac 5 months ago
and I'm 14 by the way
KiwiRemix 5 months ago
Hi there, loved the vid. My name is Sean and I was also diagnosed with crohns at the age of 6. Last week I had a Colostomy Stoma done and I had so many tubes and what not in me. I know exactly what you've been through, and are really nevous about getting my picc line taken out, ANY TIPS haha but be strong and yes I am from New Zealand
KiwiRemix 5 months ago
What an absolute inspiration you are. I have Crohn's and you remind me of myself when I was younger. You look so brave in those pictures. I'm having a rough time at the moment but you've really touched and inspired me with this video.
<3
xxxxxxxxxx
vickyturd 5 months ago
:p cute video, i have to get my ileum taken out :[ but that's crohn's for you. Gl with everything. Cheers.
NickFromRS 6 months ago
Gloria, you are so brave and even more brave to share this video. I am a 50 year old mother who has to have the same kind of surgery. I had it once before over 19 years ago and I wasn't afraid. For some reason, this time, I'm afraid. And then I see your sweet video. I wish there was a way to meet you and your mother. You don't realize how much you've helped a 50 year old chicken. My kids tell me to be brave all the time. I guess I'll find my strength thru them. Bless you.
hajon99 6 months ago
you are so courageous!!! i applaud you...thanks for sharing :)
TKayeful 6 months ago
May the Lord Bless you
MMJforever1 6 months ago
Everyones saying sweet things here, but I will be honest, Why are you eating wheat "gluten" That shit will kill you if you have Crohns.
My parents did the same thing, gave me any food I wanted when I was sick,
But today I regret it knowing what I know now.
Read the SCD book, takes about 2 hours, then decide if you still want that hamburger again. Take care!
MTHKITEBOARDS 6 months ago
Thank you for sharing your story. God bless you.
howdytex26 6 months ago
Dearest Gloria
Hello my name is Wendy, i have Crohns disease as well and i was given my ileostomy about 12 yrs ago i named him Russell. i watched your video and it brought back alot of memories for me, i was 25 when Russell was created i am now almost 37, i was amazed to see someone so young be so strong in the face of something so scary you are a true battler and i commend you for your strength My thoughts during all of my dramas was "what ever doesn't kill you makes you stronger". Thank you
Wendycooper74 6 months ago
big hi from the uk...i have spent the last two years in hospital on and off...i had ulcerative colitus...i had to have a total colectomy as my intestines had began to rupture, doctors and sugerns saved my life as i only had about 6 hours left. They took my entire bowel, 6 metres of my large intestines and some of my small. i am open for a reversal but am not going to take it. im healthy again and it has not stopped me doing anything. i spent my 21st birthday going through all this. keep strong x
MegaMitchy1989 6 months ago
hi i have uc and i must say your a very strong person
angelpearl2471 7 months ago
Hello sweet angel, I'm very glad you have a loving supporting group of people around you .I'm so proud to see how you are helping other people.
Make sure your docs don't cheap out on any pain medication you need.
3344utube 7 months ago
Great video. Crohn's disease changed my life. When I was diagnosed I felt so alone..I didn't really want to tell people at school about it because not many had a clue as to what it was and what it does to you. All you can do is just get up each day and appreciate even the smallest of things.. you will also find out who your true friends are. It is a difficult life.. 38 years of it and two resections but you probably already know this from watching my videos. Keep your head up and keep smiling
Justicexhaze 7 months ago
Hi Sweety, your video really touched my heart, I cried while watching your video from the begeninig til the end. I just had my ileostomy, but they did it to save my life, I was so sick that my large intestint was bleeding by inside.. so they remove all of it.
I had the crohns for 15 years.. I had my surgery done last august... Finally !! It make me so sad that young kids have to go through all this...God bless you xox
TheEricJosee 7 months ago
Hi there,
Your video was really touching, especially when you quoted Revelation 21:4. I think your Crohn's was worse than my Colitis, but I can sympatize with what you went through. I had Ulcerative Colitis for about 10 years and had J-Pouch surgery on June 2. I'll go in for the take-down surgery on July 20th. I'll have to show my wife this video. She will be blessed. I wish you the best. :) 2 Cor 4:18
SuperBennett97 7 months ago
hey crohn's friend the way to keep disease under wraps to me is to positive never fails and its workin for you see ya and good luck in da futur o i also have crohn's peace
cluts12 7 months ago
You are wonderful.
84KS03 7 months ago
My wife had an emergency ileostomy two months ago at age 57. It's been two months and we are still learning what works best. We are getting better, but still not getting as good results as we want. We continue to experiment and adapt and expect continued improvement. Thank you for sharing and wishing you all the best, With your strength and friends and family, i am sure you will have a full well rounded life.
flatboat70452 8 months ago
Bod bless you.
angelcandles 8 months ago
Hey everyone!
I started a blog so when someone posts something, everyone can see it and those with the same questions will be answered, in one blog post.
My blog is kickingcrohns4life.blogspot.com
~Blessings~
Gloria
JesusRedeemsMe 8 months ago 2
Thank you for watching my video! I appreciate all of you!!
JesusRedeemsMe 8 months ago
@JesusRedeemsMe Thank you for watching my video! I appreciate all of you!!
JesusRedeemsMe 8 months ago
i was diagnosed with crohn's when i was ten...i tried all these meds (remicade, cimzia, humira, etc) but im only steroid responsive, so im getting an ileostomy on the 25th, its not a permanent one, just for 2-3 months probably. good luck to you and everyone else
dodgernation07 8 months ago
need to have this done soon, but I have been putting it off for years. Mine would be permenant and can't immagine living with it and still being able to do everything I want to do - how clothes will fit - and pain. Im an adult (40 something) and commened you for handling this with a smile. I need to remember your face when I go through this. It can't be put off much longer, and I hope I can face it with the same courage as you have shown.
hagridsmom 9 months ago
I have Crohn's as well. I had my first surgery at 21 and had my second a few weeks ago (at 23). I also dealt with the serious infections that you seem to -- I've had a "monster pole" before. :) I can't imagine how terrible it is to spend your childhood this way. I am very happy that you have such a supportive family to help you through this. Having no close family has been the hardest part of this for me -- never forget how lucky you are to have them. Best of luck to you!
hattaway 9 months ago
i admire you so much your so young and your handling this disease and surgery like an adult would im 18 years old and almost died from my chrons disease but lucky i didnt thanks to surgery and im glad ur ileostomy wasnt perminant mine isnt either
bcmhmm112511 9 months ago
I had to have a illistomy installed in 1990,,because of chronze Iwas also told that Iam also a dibitec,,which makes things worse,
Dolphindream15 10 months ago
I have Crohn's. Had a foot of my ilium removed, have felt great ever since. Although there is no "cure", there are ways to lessen or get around it. Good Luck Everyone.
GXPFiend 10 months ago
i have crohns and im 11. you are so sweet and to have that much cheer and love us and inspiration! i was diegnosed when i was 8 and i dont like it but it makes me who i am! god loves you and wont let you go babydoll' i promise. -Emily
emmyandshane10 10 months ago
I had my colon removed due to sever Colitis. I posted Vlogs on my entire experience in hospital on my channel. You can watch them if you wish. :-) You are so sweet.
MsAshleyls1 10 months ago
U r trully an inspiration!!Thank u so much for ur info and insight. I have uc/pancolitis n currently looking towards surgery as my final option. Currently on remicade n doesn't seem to b working. Going to talk to surgeon soon. May God bless u. N thank u. U make me feel like I'm not alone!!
Rita5287 10 months ago
You have Great family support , get well ,wish you all the best . Ive had crohn's 29 years.
Bands1999 11 months ago
gd luck kid. you and your family should check out 'Dr Raphael Mechoulem' from the hebrew university of Jerusalem he goes into great detail on the Endogenous cannabinoid system,its no big pharma quack crap!! its genuine science,also there is some great info from Dr Bob Melamede an associate professor of biology at the University of Colorado. good medicinal cannabis has immune modulating power to surpass any pharma drugs ,im currently cutting down on 6mp and eating gd Q hash high in CBD.
herbalenquiry 11 months ago
Just wanted to thank you for posting this. I am a medical student learning all about GI diseases and it is good to see the human side of it. I wish you the best of luck in the future, and thanks again
robertrutter71 11 months ago
:29 is the reason why you are in the bad state that you are in. I have Crohn's too, and I can not stress enough, YOU CAN NOT EAT THAT GARBAGE. Anything fried, dairy, or too sugary damages your intestines' lining.
CommunityCam 11 months ago
ewww contrast that crap was nasty!
HamHamHamstery 11 months ago
can you tell me guys what is the cause of crohns??
carmancilla 11 months ago
My grandmother just had an ileo yesterday. I haven't been able to learn enough about it, or at least i feel like i can't because i want to understand. She is 80 years old though & we're all so worried. You are such a blessing. I cried when I saw this but it touched me. God has been the best salvation I have found and I have felt so lonely & depressed over my own illness that i forgot how much happier i am that I have God by my side. You were just one of the things that brought it to light! =]
folieadeux8381 1 year ago
I'm 12 years old and I also have crohn's...
You're an inspiration, you have so much strenght!
TheLipxGloss 1 year ago
You are an amazing little girl. Like some of the people before me I cried when I saw this. I study medicine and lately I have had a lot of trouble coping with the stresses and demands. I was left very humbled by you.. Very humbled. Tomorrow, I am going to go in with a new attitude. I feel like I owe it to you and people like you to at least try. Faced with a stoma I would have just fallen apart, you call it "Rosebud" and charge Barbara to watch over it! I cant tell you how much I admire you.
kaeyy 1 year ago
Well done such strength shown from someone so young. I had my entire large intestine removed but they hope to reverse it in the future. I had ulcerative colitis so I'm looking forward to a much better quality of
Life in the future. Take care and god bless. Simon from Ireland
simonmc78 1 year ago
im an 18 year old boy. i suffer from crohns to. i just want to say i cried at this and i dont cry at things that easy. your fantastic, your smiling in every pic. Thank you for your story
pekitivey 1 year ago
You are such a brave little girl...Your video made me cry :( I am 31yrs old and need an ileostomy due to a bowel defect that cannot be corrected even after multiple bowel surgeries. I could not even imagine what it has been like for you given that you are so young. I was only 16yrs old when my symptoms began and I had my first surgery at 18yrs...You are an inspiration and I won't lie that I am afraid of what lies ahead.....Thank-you for sharing your story - keep fighting little one!
Benicio8888 1 year ago
i have a ostomy and i got a transplant at cincinnati childrens hospital
bevbrown64 1 year ago
This video brought back so many memories, I know exactly what you went through. Thank you for posting this video, I know I would not have had the guts to do it. Hope your feeling alot better.
LuckyNatties 1 year ago
There is testing of the new drug called Myoconda from Giaconda based in Sydney, Australia. The drug should be on the market next year.
Best to contact Giaconda by phoning Sydney, Australia [612] 9370 0069
wallyoff 1 year ago
Godbless u!Ian on t.p.n and have a illeostomy from a car accident.you are a survivor,check out my story "serendipity "memoirs from the fith floor at blurb.com.keep inspiring ( :
blaytantguyon 1 year ago
You are so young to go through this. I hope you're well now. I was diagnosed with Ulcerative Colitis 16/11/10. Unfortunately, I had/have an extreme and rare case. 6/12/10 I went in for an emergency Total Abdominal Collectomy with illeostomy end. In 2 years I have lost more than 180lbs. I was in hospital 3 weeks but am finally home. They've told me a minimum of 1 year for reversal, but it is a cure. It's nice to know were not alone. It's just a matter of learning to live with myself now. I'm 21.
mmajor2889 1 year ago
i was in my local hospital (john radcliff oxford) l for 8 weeks with a i was near in a critical condition but the fantastic docturs realy helped and i have a stoma now thanks for a great vid!
jigasaw0 1 year ago
i have an ileostomy its nice to know im not alone :D
jigasaw0 1 year ago
Continue to stay strong in the Lord!! God sees the tears we sometimes struggle to see through. In our weakness He remains when we are broken He sustains! ~Kristina
AmazingGrace160 1 year ago
I remember when i had cancer, it really sucked, i hope your better now :)
Jaxxon10 1 year ago
How brave are you Hunni? I had my ileostomy 6 months ago now and have named him Eric! Mine is permanent but its no problem, he saved my life! I hope that you can start to enjoy life a little bit now as I am! After 20 years with Crohns Im just pleased to be able to go out and not worry! Luv'n'ugz
freakyalien75 1 year ago
you are a brave little girl, you have some amount of courage, im struggling with my condition and it is not a patch on what you have went through. Keep fighting kido
snedz1982 1 year ago
Thank you for putting this up. I have Ulcerative Colitis (diagnosed in 2004) and am going in for my fist of the two surgeries in a couple weeks. I have been in denial and havent wanted to research any part of the surgery. This was the first video I watched. You are so brave, I'm 17 and this surgery scares me to death. But I know that He will get me through it. Thanks for the encouragement.
hollisterbabe59476 1 year ago
@hollisterbabe59476 From one UC sufferer to another, I hope your surgery goes well! After 23 years of this lousy disease I've so far avoided surgery...it's not looking like I'll get away with it forever though and I'm just as terrified as you. Hopefully by the time you read this, it'll all be over and you'll be on the way to getting on with life. ;o)
Akkra0 1 year ago
I feel like this should be obvious, but what are the blue styrofoam things at 1:17, 1:25, 1:39 etc. Are they just some sort of prop or do they signify something? My favorite nurse brought me something similar to these so sit on and arm/head rests and I didn't know if they were the same thing or different. My reversal is still looking good for next spring-- hope you're doing very well :)
mychainsaregone1 1 year ago
I have an ileostomy myself and as a child I suffered so much from stomach pain. I was born with Cloacal Exstrophy and have had over 100 surgeries on reconstruction of my abdoman....I'm am still young and 18 and let me tell you that you are not alone! You will, and have I assume, go through many challenges with the ileostomy...always keep the skin around it very clean...try not to bump the skin...its annoying with a lot of bag changes...man...i wish i could meet you now!
TheGirlWhoGames 1 year ago
I am 29 and have struggled with Chrons Disease for 5 years now, and that included a bowel resection and an illeostomy, and your video made me laugh. Because when you suffer with this disease, humor is how you keep going. Isn't contrast yummy? And the clear liquid diet..mmm can't get enough of the hospital "beef broth"!! And the pain button is your best friend! NG tubes are the worst! You are a brave and fantastic girl, be strong my "poo bag" sister!!
missmelrocks 1 year ago
Stay strong kiddo! I have CD and am going for my operation this winter. Peace crohnie! PS: @ 2:40 is that a morphine drip or a nurse buzzer ?
ReptilianTeen 1 year ago
You are so very brave, My brother has severe Crohn's disease and uc to, He has been so unwell it breaks my heart to see him like this. I will pray for you and my brother x x Keep well honey x x x big kisses and hugs from England x x x x
siennakirk 1 year ago
Amazing! I hope you are doing well. I was diagnosed w/Crohn's 9 years ago at age 26. Immediately, I had to have surgery, then two more surgeries w/in 4mos. the second surg. included a temp. ileo, I had it reversed 3 mos. later successfully. I pray yours will go well, too. It was tough on me at age 26. I couldnt imagine having to face this disease and surgery at your age! You are handling all this with such class, keeping your faith, & finding your smile even in bad times. You are my inspiration!
shell1115 1 year ago
Comment removed
tonylovis 1 year ago
I am so impressed with ur courage & faith darl.Iam a 49 year old man who has had crohn's for 15years,have had numerous surgeries,my last being a year ago due to cancer,with my colon removed and left with an end ileostomy with oversewn rectal stump,i know what u have been through.Iam not a man of faith,but seeing ur blog has made me want to search.thank you so much,and best wishes for the future.cheers Tony.
tonylovis 1 year ago
you're beautiful! I'm crying!
FlyinHyy 1 year ago
I am proud of you for being so strong !! I am a nurse as well as a crohn's patient. I loved the pictures and the story you tell...may your courage and message reach the mutlitude ! =) HUGS !
3whisperedwords 1 year ago
This is brianna sanders, i dont know if you remember me but i know you through the Brunkers and Amber. I just thoguht you should know that, thsi video was very touching:)
youknowitsthejnb 1 year ago
Great video! Crohn's disease can really suck at times, and God is the only way to get through it! Stay strong!!!
StarsShadow08 1 year ago
Gloria, What an awesome video of your journey. You have such a wonderful testimony and God is using you to reach so many others with your story. Hope you are doing well and staying healthy:)
Nurse Mindy
buch3r 1 year ago
estimony and God is using you already to minister to those with crohn's. Keep your sweet spirit and I can't wait to take care of you again when you come back for your closure.
Peace,
Nurse Mindy
buch3r 1 year ago
Hi Sweetheart, You guessed it, your big cry-baby dad is wiping tears from his face as he writes this after watching your video. You are such a pillar of strength in the Lord and I see you differently now than I used to. You've grown so. The Lord has built such character in you as you have braved this ordeal the last few months. It has been a priveledge to walk with you through this. We'll keep praying. Keep standing strong my Beautiful Little Lady. -Dad
JesusRedeemsMe 1 year ago 11
Hi Gloria, Nice video! It was really cool of you to want to share with and
help other people. You rock! I'm still praying for you.
Uncle Brent
BookandSong 1 year ago
You seem like such a brave girl I know it's hard sometimes because I'm living a life like this right now but I'm goin undiagnosised and no treatment. I'm on an all liquid diet to try and rid some pain. I have a vid on my channel if you Want to know kore of my story :). I'll be praying for you
hannahlover100 1 year ago
Awesome video Gloria! I thank God for your willingness to minister to others. Romans 8:28 We continue to pray for your complete healing and love you bunches!
JLPRICE100 1 year ago
Gloria, it's Aunt Gabe. I love you so much. You are such and inspiration of what happiness, love, peace, and grace are, even through the most horrible struggle. I pray for you all of the time, and I miss you so much. I pray that Jesus numbs your pain. You are a beautiful young lady and a blessing to so many, I love you so much!
Gabforhome 1 year ago
this is an amazing video that Elle shared with me.... god bless you xxoo~nicole
saphre1964 1 year ago