Limb Girdle Muscular Difficulty 2A--getting up off the couch and computer chair

[speakfoundation]

Glad I saw this video! Thank you sweet friend for sharing! You are beautiful!

[RandomNameOne]

How old were you when you made this video?

[JDBoogy510]

@RandomNameOne I was 22...Now 25

[CureMD1316]

I love you Boo! You are such an inspiration for my baby boo (you know who I am) Love always Mama

[victyler1]

Hi, I just stumbled upon your vidoe and others just like it.......I never knew these videos existed but I am interested to see that others do the same movements as I did or do. I also have LGMD. Nice to meet you.

[JDBoogy510]

Yes I have become more weak since this...Its definitely a little more of a struggle getting up from the same chair...I do not have the couch anymore though! @hyperactivecalvino--no need to thank me :) @ Brook3Lynn3--Wow, I've never heard of so many generations in the same family being diagnosed! I am now 24, any questions, just inbox me! Hope to hear from you soon!

p.s.---I'll be posting more vids just as soon as I get my cam back from my sis! :))

[Regislive]

@JDBoogy510 I hope you;ll post more vids soon...I'm sure i'm not the only one wondering how your doing.

[Brook3Lynn3]

my dad, me, my sister, uncle, grandma, and 2 friends have md, all of us have lgmd as well except my friends. my sister and i have it in our genes but not officially affirmed yet. i was wondering how old you are? im hoping to know as much about lgmd as possible, were doing a ton of fundraising hoping for a cure in one of the upcoming generations :)

[hyperactivecalvino]

Thank you for posting this.

[jubinjibin]

now its 2011 how are u now have become more weak just asking

[JDBoogy510]

I actually just got married in August. We actually had a skydiving wedding in Las Vegas! My idea of course :)

Thank you for all the kind words and I'm really working on getting more videos up here, finally got a new camera!!! requests? inbox me....I think I'll do the walking video....any others?

[thallious9876]

beautiful woman!

[floweriepot]

@thallious9876 exactly wat i was thinking! her energy is so contagious!

[thallious9876]

@floweriepot these type always hav a ring on THE finger

[pelacable1974]

thank you for this video.

[pelacable1974]

thank you for this video.

[dshopperz001]

can u make a video of you walking

[bengjie]

hi! i have CMD, glad to see more and more people with MD post video's like this. . a while ago i posted one of me getting up.. and a LOT of people thought i was faking..and making fun of others. .and it's so rare that i get to see someone else move like me. . i dont know when you were diagnosed but i was since i was 3. and one of the very few times i ever felt "normal" was being at MDA camp. .spending time with others i could relate to. . Keep up the good work! . .P.S. - you are cute as all hell

[Mitosynergy]

Hi thanks for sharing. Please message me I want to talk to you.

[JustWatchingYourVids]

Hey! (is it Jen?), i just wanted to thank you for posting this video. Not because I needed to be educated on the subject but I just needed to know you exist :). I too have a similar form of MD. So I know all too well about the things we do to get around. I wish I knew you in person but I just wanted to say a simple hi and say good luck to you! Best wishes and you should post more videos because you'd be a great spokes-person for us and bring hope so we're not alone! Bye friend

[edwardhsiung]

thank you very much for this picture, it's very helpful for my studing this disease.you know...watching a real patient is indeed much more impressive than read textbook's plain murmur...

[Mebako]

Hey! Great video! I also have LGMD, but I dont know the exact type. I noticed something wasnt right around the age of 16, but was diagnosed when I was 21, now Im 27. I remember when I used to get up from seats like that! Anyways its great to know a girl who is going through the same thing. If you dont mind Id love to get to know more about your experiences-message me. Anyways thanks for posting this video-I yet dont have to courage to do something like this, lol. *Mirabel

[ButtpirateWho69]

hey if you need help i could always help :)

[dylan7147]

Great keep up the vids it makes me feel good cause my freind has the same problem

[photofox1985]

I'm a 25 year old guy from Arizona and I have Limb G. too. I do all the same moves as you when would get up but the roller chair you sat on would have rolled out from under me and I would have fallen flat on my ass. I did the hand walk up the legs too and even walking with me knee's locked. I cant walk anymore because of another completely unrelated problem that kept me in a hospital bed for 10 months. Keep up the good work! and keep the videos coming!

[penetrator626]

Hey great video. Thank you very much. please feel free to e mail me at: tattoomania08@aol.com.

[kennydeeedeee]

My husband 42 years old was just diagnosed with MD Limb-Gridle. It took 2 years for the doctors to finally come up with a diagnose. he just started to use cain, can anyone please tell me what he can do to make his walk easier? I hate seen him strugle like this. He used to be very athletic person and now he can barely walk. I fell for you, but I see that you have high self asteem and keep up the good work. Thanks for the video..

[kennydeeedeee]

My husband 42 years old was just diagnosed with MD Limb-Gridle. It took 2 years for the doctors to finally come up with a diagnose. he just started to use cain, can anyone please tell me what he can do to make his walk easier? I hate seen him strugle like this. He used to be very athletic person and now he can barely walk.

[greatfrenchgirl]

You dont have to be nervous youre very very beutiful i have Muscular Distrophy too youre great

[davinder1818]

i have mascular dystrophy and my 2 sisters also have this diseases...

[dagotiger]

I also have limb gridle, but i have the courage to fight. and i will not give up till death.

[SuperCC59]

I think you did a very good job describing how you get up from soft couch and computer chair. Keep up the good work and stay happy!

[djrstm]

Hi there.I can understand how your life is..but dont forget that you are speacial person in this world.yea

[avugar]

I am very proud of you! I think you are great!!! And I would like to say that you are doing well. Also I would like to give little advice to anyone who has Limb Grid Muscular Dystrophy, please, please guys do not, do not get disappointed, keep up as much as you can.I know that it can be difficult, however try your best.

[erdmancrew]

I almost cried when I saw this...what in inspiration..thank you. I too have LGMD! I'm 33 and these are so helpful to explain to others what I'm dealing with, maybe sometime I can make a video.

[matthewpenix]

i have limb girdle musclar dystrophy 2i and was recently gave a wheel chair keep up the good work and keep fighting.

[portmeirionman]

51hutch. You just posted similar on my profile. You just made a big mistake. You are filth.

[rani1214]

damn i didnt know there a hot girl with the same problem as me

[ARMAS242]

Hi, i am Armando from Queretaro Mexico, my sister has Limb Girdle MD she is taking Fendel Krais therapy which is helping a lot and a week ago start with a nectar treatment from grece that is a natural complement and some aminoacids and creaine what kind of treatment are you using now??? meabe you can help us with some info...

[aidanne07]

I thought that only men get this complant.

[JDBoogy510]

lucky me ;) I actually know more females with this disease than men. I have read that its most common in men generally speaking of Muscular Dystrophy.

[future49]

i also have limb gurdle md but i dont know what kind. i get up the same way! lol im only 14 btw

[RandomNameOne]

@aidanne07 men only get 'Beckers' and 'Duchenne' type of MD, LGMD affects boys and girls equally, my sister is 19, she has MD and we are almost certain that it is LGMD

[czarnicknmb]

I was diagnosed with LGMD ~ 10 yrs ago. Quads would give out when jogging. I'm now 48. Can't run or jog anymore but still get around with cane as my balance is a bit off. I normally have to push-off on chair arms or table to get out of chairs. How did they determine you had 2A form? The Dr. never really said what version I have? I really appreciate your video and hope to see more like this so we can all share our experiences with this physical "bump in the road" we are dealing with. Good work!

[wana053]

nice cleavage! i use one hand on the knee and one hand on the couch or chair,or even my dog (big belgian Shepperd) is getting used to being my 'personal lifter' on commando 'pull' she pulls a rope toy that I'm holding on to on on 'steady' she knows i'm leaning and pushing on to her!

LG's getting creative!

[JDBoogy510]

like a service dog! how fabulous!!! keep it up and take care :)

[blomstersenter]

Part 2

I do experience physical pain, but paracetamentol take it away. I also take magnesium when I have cramps. Thanks a lot for sharing. Wish you all the best.

JOHN GRAYBILL RULES for starting this.

Take care, love Ola

[blomstersenter]

Part 1

Hi Jennifer, thanks a lot for this great video. I am rising from the coach the exact same way. To actually see others with the same medical condition makes me feel less alone. I am 31 years old, from norway and what really kills me is how I cant run around and play with my four year old daughter. What I am very interested in knowing is how old where you when you got diagnosed and how old you are now? Do you experience physical pain?

[BackstreetAbortion]

Oh and please make more videos!!!!!

[shilpa2708]

pls check, whether ur daughter also is effected, coz it is genetic.

[BackstreetAbortion]

Hey! I just tried out your technique!

IT WORKS!! Im gonna start doing that a few times over and over again. And stand like that everytime I get out of the couch and off of the toilet! I always lean towards the counter and use that to leverage myself up off the toilet. But now I can do it without holding on to the counter! Thanks so much! Hopefully soon I will get more used to it and be able to sit down in public!! :D

[JDBoogy510]

Hey, I'm glad it helped :) Anything you have questions on---feel free to ask. Oh, and as for the toilet part (haha) why not try a "commode"? Its a beautiful thing!!!!! It's alot easier too!

[BackstreetAbortion]

haha I'm not ready for a commode yet! But I'm sure they are handy things!

[BackstreetAbortion]

thanks so much! I don't feel so alone now!

I have my sister that I live with has MD so I kinda got an MD friend lol. But I've never seen anyone else with MD. You have alot of courage for showing that on video. For me I'm always embarrassed, and when I go in public I have to make sure I can sit in a chair that I can get out of. I always feel stupid for standing up in a waiting room, cause I can't sit in a chair without something like a table in front of me to help me get up. Im subscribing!

[kingphred]

Great vid...I also have LGMD 2a...Ill also send u a friend request ...KEEP in touch.

[nikpmub]

Keep up the independance it is a inspiration for all us who have LGMD ..

[John71377]

I love your courage jen. Thank you.