Added: 2 years ago
From: irishbear76
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  • Thats interesting, I have never herd of the Liberation Procedure. Does it work for everyone and how do you go upon getting the procedure done? I now all about the JC virus (PML). Yeah it is scary and yes the risks suck. Thanks for the response, much appreciated.

  • Maybe you can get on Tysabri. A infusion for it is once a month where you where you get one little needle prick. Oral does sound better but does it compare to Tysabri? I dont know, do you? Thanks

  • Maybe you can get on Tysabri. A infusion for it is once a month where you where you get one little needle prick. Oral does sound better but does it compare to Tysabri? I dont know, do you? Thanks

  • @2digitsoff

    I had the Liberation Procedure a year ago and my MS is gone.

    A good friend of mine almost died from Tysabri.

    I would rather eat a bowl of dung than put that in my body.

    I did not mind the Rebif injections every other day. IF I ever need to go back on meds, that will be the one.

    (I hated it too, though :)

    Blessings to you and thank you for thinking of others.

    Read up on PML and make sure you are informed.

    Keep truckin'

    Mark

  • Hi My Friend.. Thanks for the update... Rebiff did not work for me at all! I had one flair up at least per month on it.. so Tysabri has been my God send.. Miss you! huggss Violet

  • does tyrsabri really work im on betaseron now its pretty cool they're thinking about changing me to tysabri

  • I just watched your video on youtube and was impressed with news about lamidiiquad for oral consumption in disease modification of MS. I will definately be looking for this drug to come on the market for my self having taken many many needles with copaxone and now rebif. I'll give it up for ya with your video presentation of how you feel about treating your MS. I've been since 97 my dad's MS for over 35 yrs. You have a great attitude planely seen on your video. Thanks... :-)

  • I'm 16 and I was just diagnosed with MS and I literally got told today what injections i could take and its Rebith that I'm goin on, when i got home I looked on the ITV news and seen this pill and didn't know if it was true or not so hopefully it'll pass all the tests and stuff

  • I have taken Rebif and it is a wonderful drug. It stopped my MS from progressing for quite a long time.

    It causes some nasty flu-like symptoms but they become tolerable stay with it.

    Yes the oral drugs are coming and they will be very nice.

    i am yet to hear a date that they will be made available.

    You always will have a support system here on YouTube. There are a lot of good people with MS here.

    God bless.

    Mark

  • cared of needles man really scared and they're coming in couple of weeks

    thanks alot man i aint got a clue how am dealing with it though people look at me differently now but i dunno i'll just carry on with ma guitar ya know

    thanks mark

  • @Nonightmaresmusic

    It will be fine.

    GIving yourself a shot is so UNNATURAL but somehow it is easier than you can ever imagine.

    Just be strong and tell yourself it will give you years of function.

    I suggest ibuprofen an hour ahead of time and putting ice where you are going to shoot yourself to cut down on injection site pain.

    U will be fine.

    Mark

  • thanks alot man

    take care

    guy - no nightmares

  • @Nonightmaresmusic hahaha same thing here i had it at 14 but i found out at now at 16 to xD If this pill comes out I wouldn't give a !@#$ about MS that much

  • @abyroj yeah i've been on rebith for a year and it doesnt seem to be effecting me i went to see a man 3 days ago and started LDN and i have felt the effects i should of started it ages ago -> it's a liquid form and a 1ml dose thats how amazed i am i've litterally only had 3ml and 30 sesions of the hyperbaric chamber aswell as rebif - but i'd have to say the hyperbaric and the LDN deffinetly work

  • u seem like a really nice guy, keep up the good work. it's inspring and helpful to others both with MS and trying to learn more about living with MS.

  • I can't wait! I'm really crossing my fingers.

    I've been on Copaxone, Rebif, and I'm about to switch over to Tysabri since I have too many injection site reactions.

    Thanks for the great video! :D

  • I'm very hopeful for no long term life altering/threatening side effects with this medication. Crossing the fingers and toes!

  • All I have heard is that the side effects are less than the injectables.

    We will see however.

  • I'm on BetaSeron, and it works great for me, but it would give me such peace of mind not to have to give myself injections anymore. That whole process just makes me really nervous, which I know is something I'm not alone in!

    Thank you so much for posting this - It gives me hope ^_^

  • It appears to be coming very soon.

    As FAR AS HOPE IS CONCERNED

    It is the thing that gets us by day after day.

    Hold onto that hope.

    Mark

  • wish it was got now! love your paddy hat. keeping this short as the last one didnt go. best wishes louise

  • I hate it when that happens!

    Take care, lass.

    Mark

  • Sounds hopeful. But I think it's won't work for me. I have no relapsing MS, but primairy progressive (no relapse, slowly getting worser and no remitting at all). Even methyl-prednisolone doesn't work for me...

  • Come to think of it.

    I do remember hearing something about research being done on primary and secondary progressive multiple sclerosis.

    It does seem like most of the new treatments are geared toward RRMS.

    Have you been tried on Novantrone?

    I remember hearing that it is the gold standard for SPMS and PPMS.

    I pray that you get some relief from your symptoms.

    GOD BLESS YOU WATCHER.

    Mark.

  • ooh ahh - does sound good! Thanks for sharing the discovery. Hope you are doing well :-) Love to you to, Kerri

  • Doesn't it sound too good to be true?

    MS'ers are due for some good news.

    I hope you are well too.

    Summer can be a hard time for us so try to relax and enjoy all that is around you.

    God Bless,

    Mark

  • A pill once a day would be a godsend!

    The injection sites are just the worse, and thanks for the shout out, it means a lot to me!

  • Isn't it great!

    No problem on the shout out.

    I am extremely proud of you and your attitude.

    I honestly believe that WILL is important.

    and you know the saying ...

  • Haha me too! My doctor and I have talked about these oral drugs a little. He is concerned that people will flock to them because of the "no needle" thing when another injectable drug may work better for them.

    That being said, this is a HUGE deal and I really hope it works as well as or better than the injectable meds. I would really love to go a week without having a day of the flu!

  • Everything I am getting from the phase III trials is that this drug is showing the same efficacy as Rebif which is the darling of the betaferons.

    The same percentage of decreased lesions and relapse without the OUCHIES.

    This is a no-brainer.

  • You are so awesome! Thank you for sharing this news!

  • You are welcome.

    The MS community of physicians is buzzing about the drug, that is how I got a hold of it.

    TEVA is also known for getting drugs out there at a cheaper cost. They handle many generics so this is a good outfit when you think of Big Pharma.

  • Thanks for info Mark!

    Cool hat too! :-)

  • No problem!

    I know how much you hate needles!

    Can you believe it?

    I AM FREAKIN' EXCITED.

    I bet this stuff hits the market before Christmas. What a present to give people with Multiple Sclerosis!

    I sure hope I was a good boy this year!

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