So sad, "more NOT- as a LITTLE BIT help" to me. CH comes as first i was 21 in 1999, til today i didnt find anyone of medicine that can help me. 4 to 6 attacks a day, i think i know that some of us would like to die. Sometimes i am too...
PLEAS LET OTHER PEOPLE IN PAIN KNOWI have no more headaches 2012 there is a new cure Dr. Brian Cody, 602-265-8800 Arizona Pain Center, Phx AZ. Dr. Brian Cody, will tell you where to go for painless procedure. God Bless Jan 602-908-4125
@2upendra I don't have this, but the fact that this is a possibility makes me not even want to live here. If you have this honestly don't want to live, my advice to you is to try everything you can to help it. From weed to Oxycontin to mushrooms. Ive heard people say lsd or mushrooms help. That or live life at 1000 miles an hour. and enjoy the pain free minutes as fast as you can. I'm sorry that this happened to you if you have this and I really wish you the best of luck in your future.
I have suffered with CHRONIC Cluster Headaches since I was 13 years old. I am now 20 years and can't work a job or live on my own because I cant financially support myself. Its hard when even doctors sit there and not believe a word your saying and its even more frustrating when doctors keep saying migraines because they arn't even close to migraines. Hospitals refuse to do anything about it and they say there is NOTHING they can do. I never have had a normal life and I guess I never will.
i dont suffer for it but i would blow my brains out if i did just because of the fact the human body is that much of a universe fault to destroy itself
WOW.... i started getting them at about 16 i was living on my own and racked up thousands of dallars in just one year from cat scans and 911 calls because i really thought that i was dieing..... later i had talked to my dad and found out that he has them and that there is nothing they can do...... and the sad thing is when i found out what it was showed my docters the medical vids they said they never heard of it and that its stress and tryed to give me some blood pressure pills. REALLY
I absolutely admire you people who have this disease. I had a fracture on my leg when I was young wherein you can even see the bone out of your skin, I though it was the most painful pain anyone could experience until I saw this video. I hope they get you cure fast! That's literally living in hell.
Ive suffred kidney stones and 3 natural childbirths.. there is NOTHING compared to this cluster BS. Ive told elsewhere, Id contemplated using a dremel to put a hole in my head or pulling my own eyes out. Unfortunately Suma doesnt work for me. Just Dilaudid, zofran, and pure oxygen. That makes it somewhat bearable but I know nothing that takes it away. They wont give me o2, so I have to somehow get to the ER to get it. You cant hardly live with this.
@suggy1970 I know how you feel. I've done all those pills you said and nothing helps mine. Mine are chronic and im only 20 years old and i've had it since I was 13. Guess i'll never have a normal life or be a normal girl.
I have suffered from regular kidney stones in the past. Incredibly painful. I have also experienced migraines a few times which strangely subsided quite quickly after vomiting. Once the migraine was gone, I craved salty food. Then after I wake up the next day, I felt better than usual.
My experiences with these are nothing compared to what I imagine CH sufferers experience. I feel an innate need to help them get through it when watching people going through and attack on video.
Hi guys i first started getting cluster headaches about 2years ago,my life was abit upside down and i just put it down to stress and didnt do anything about it althouth then i knew nothing about them so didnt know it was ch if that makes sense,then 1 day they just stopped.7 days ago i woke with excruciating pain behind and around my left eye and have continued to get it every day at the same time for 15-60 minutes,absolute HELL!!!
LSD and Magic Mushrooms can treat Cluster headaches: the government needs to start using them. Trust me, LSD and Magic Mushrooms are not dangerous drugs, they have gotten a lot of undeserved bad rep. Something like Alcohol is much, much more dangerous then LSD or Mushrooms will ever be.
mine start in my shoulder neck and jaw on one side then worsens as it explodes in my temple and the back of my eye..hot showers and prednizone have worked the past 3 episodes..my dr thinks they are tension headaches but i demanded predizone which have awful side effects that intensifies my condition before it finally subsides
Mine too are changing to a chronic format - I am sick of consultants and live in fear of attack - I have never wanted to apply in the past but I am considering applying for Disability due to the life altering nature of the clusters and the effects on my work . For those that post comment who have had no experience of cluster either as a sufferer or as one who has seen a friend or a loved one go through it - think very carefully before offering comment - this condition is no laughing matter -
@dcorcoran64 I agree. Some people are just really fucking stupid. I really couldn't imagine that shit... I feel for you man! Live strong and don't let those fucking headaches bring you down!
Mine feels like someone is taking a pair of pliers and breaking my jaw out of my head. No one, who doesn't actually have it, can truly understand the fear of attack, the pain and the desperation we experience.
Because of this, I do not get angry with others who tell me to take an aspirin or say: 'Oh yeah.. I had a really bad headache like that last week"
Private doc said that dont ask help from phd doctors cos they are lied on the way many times. He said that the was too much metal in the body. After 13 years of suffering whitout any medicine he stoppped it for 1.5 years clean. Didint ave any headeace till yeasterday. And they started again straight after i ate red kidney beans. You must know that most of the common beans a made. They are notGodsfood. Watch what ya eat, drink, wear, watch and touch. Some are more sensitive to the universethanone
Perhaps because of the extreme pressure in the vein and the forced breathing at the same time. It's really tiring, but I say, it's worth to try out! Have a good luck for you.
Dear All, I'm a sufferer from Hungary, that's why my english is soo poor.... To tell the truth the only solution for me - even in the midnight, awaking from my deepest dream!!!! - to begin work-out, especially a huge amount of dips. It means not some 10 or 20 repetitions, but as much as i'm able to execute. Almost till death. I know, this would sound as an unbelievable "method", but it really works!!!! (for me...) Everytime I begin to push my dips, pain break off in no more than 10 minutes.
@palmisano First off. I can't imagine how it would be to have CH. I mean, Jesus Christ... Seriously... I heard it's one of the most painful things ever. And yes, stupid people will say "Urr... He's suicidal!" But, I'd figure it's natural to think, "Fuck, should I just kill myself?" I feel for you man, its really painful for me to know that some people have to live with this... Stay strong man.
31 m episodic. I use the 2000 lb. oxygen tanks used for metal cutting torches, from a welding supply place. It is an enormous savings compared to a medical supply facility (around 12 - 20 american dollars for a refill) where i live. If anyone does this, please have a professional, or someone knowledgeable with pressure fittings assist you in setting it up with the regulator, and mask. Obviously not something you can take shopping, but invaluable to have at your home, if it is possible.
These are exactly what I get....i've had them for around 8 years episodic. I just use Propranolol for prevention when the bout starts, and then Migraleive, Ibuprofen and Sumatriptan Succinate tablets when the pain begins...usually last between 15 minutes - 4 hours. If anyone is doing any other documentaries I'll be involved !! I've always wanted to try Oxygen tanks but there is no funding for them where I live through the NHS.
@rightirishlass I once tried large amounts of Ibuprofen to abort the attack, no luck. It took me 8 years of experimenting on myself until I found Cafergot, which helps immensely for me =)
im trying to get all the knowledge i can about this subject because i myself am also a cluster headache sufferer i know what it feels like and also about all the mediciations and remedies but why do we get them ? somehow we all lack certain chemicals in are bodies or whatnot and this is what im trying to understand, please help me by listing things ur normally do or dont do etc.
Has anyone tried histamine? It is given by iv and it can put clusters in remission. My husband was in remission for 7 years but they have recently returned. He has just finished another histamine treatment and so far it has worked.
Thank you for information because only histamin I never tried .
I have cluster last 8 years , specialy at the summer and I haved remission first time this summer but i scare very much all the time because I haved beets few years also at the winter .
It took nearly twenty five years for me to get diagnosed and my working life has been wrecked because sickness benefit and employers' patience never lasted as long as my 3 month cluster. Working through attacks when I was younger required extremely high levels of aggression, so I'd need a new job after each cluster. Big respect to my woman of 12 years for sticking by me and to all the people who have worked to help her and our children understand it's not just me.
I suffered for many years, I wanted to jump out the window and end my life, it was horrible. Verapamil and Imitrex worked for me. Don't give up, find another doctor. and they will go away eventually. I have been in remission for 10 years.
@CambridgeHeights Me to man... I couldn't imagine having to deal with that shit. Doesn't it make you kind of appreciate how lucky you are not to have something like this?
I have just gone through 15 attacks in 26 hours and am at my wits end. I have high flow rate oxygen with a non re breather mask and my oxygen co is amazing.....I went through 2 tanks in the 26 hour bout and am still not getting any respite. The worst thing for me is that my doctors are more than happy to prescribe some truly toxic drugs...some of which I am not brave enough to try as I have a history of unusual reactions to drugs but they won't even consider anything less toxic with no licence??
I just had a weird thought. What if these sufferers were shot with a x26 taser, 50,000 volts of electricity. It would have to effect that nerve somehow.
im haveing my 5-6 week spell now. please find a cure. and if i dont pull through, and really do committ suicide, these fucken headaches are why. cant deal with the pain no more
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here2helpu2day 1 week ago
So sad, "more NOT- as a LITTLE BIT help" to me. CH comes as first i was 21 in 1999, til today i didnt find anyone of medicine that can help me. 4 to 6 attacks a day, i think i know that some of us would like to die. Sometimes i am too...
Greez to all from Germany
MrEquinoxx 2 weeks ago
This has been flagged as spam show
here2helpu2day 2 weeks ago
I dont even wanna live on this earth anymore
SMWhit3out 1 month ago
@SMWhit3out mee too
2upendra 4 weeks ago
@2upendra I don't have this, but the fact that this is a possibility makes me not even want to live here. If you have this honestly don't want to live, my advice to you is to try everything you can to help it. From weed to Oxycontin to mushrooms. Ive heard people say lsd or mushrooms help. That or live life at 1000 miles an hour. and enjoy the pain free minutes as fast as you can. I'm sorry that this happened to you if you have this and I really wish you the best of luck in your future.
SMWhit3out 4 weeks ago
I just watched a show on NatGEO that showed eating mushrooms twice a month keeps the headaches away.
jackrabbittt333 1 month ago
@jackrabbittt333 Like... shrooms? or the stuff you put on pizza?
SMWhit3out 4 weeks ago
@SMWhit3out Shrooms, it was just on drugs,inc on natgeo. The trippy fuck stuff.
EpicBagel98 1 week ago
Maybe the reason we get these headaches is because were THAT smart. Were so smart that are brains cant fit in are head.
Rioretti 1 month ago
Psilocybin Mushrooms.
emoeven 1 month ago
I have suffered with CHRONIC Cluster Headaches since I was 13 years old. I am now 20 years and can't work a job or live on my own because I cant financially support myself. Its hard when even doctors sit there and not believe a word your saying and its even more frustrating when doctors keep saying migraines because they arn't even close to migraines. Hospitals refuse to do anything about it and they say there is NOTHING they can do. I never have had a normal life and I guess I never will.
LOVExTWLOHA 2 months ago
Comment removed
2upendra 4 weeks ago
@LOVExTWLOHA same with me..ruined my studies..daily headaches from last 4 years..24 hrs a day...looking for way to painless death
2upendra 4 weeks ago
i dont suffer for it but i would blow my brains out if i did just because of the fact the human body is that much of a universe fault to destroy itself
sdfefde 2 months ago
WOW.... i started getting them at about 16 i was living on my own and racked up thousands of dallars in just one year from cat scans and 911 calls because i really thought that i was dieing..... later i had talked to my dad and found out that he has them and that there is nothing they can do...... and the sad thing is when i found out what it was showed my docters the medical vids they said they never heard of it and that its stress and tryed to give me some blood pressure pills. REALLY
hotboy6940 2 months ago
I absolutely admire you people who have this disease. I had a fracture on my leg when I was young wherein you can even see the bone out of your skin, I though it was the most painful pain anyone could experience until I saw this video. I hope they get you cure fast! That's literally living in hell.
dharmdevil 2 months ago 2
Ive suffred kidney stones and 3 natural childbirths.. there is NOTHING compared to this cluster BS. Ive told elsewhere, Id contemplated using a dremel to put a hole in my head or pulling my own eyes out. Unfortunately Suma doesnt work for me. Just Dilaudid, zofran, and pure oxygen. That makes it somewhat bearable but I know nothing that takes it away. They wont give me o2, so I have to somehow get to the ER to get it. You cant hardly live with this.
suggy1970 2 months ago
@suggy1970 I know how you feel. I've done all those pills you said and nothing helps mine. Mine are chronic and im only 20 years old and i've had it since I was 13. Guess i'll never have a normal life or be a normal girl.
LOVExTWLOHA 2 months ago
I have suffered from regular kidney stones in the past. Incredibly painful. I have also experienced migraines a few times which strangely subsided quite quickly after vomiting. Once the migraine was gone, I craved salty food. Then after I wake up the next day, I felt better than usual.
My experiences with these are nothing compared to what I imagine CH sufferers experience. I feel an innate need to help them get through it when watching people going through and attack on video.
papersplease 2 months ago
Hi guys i first started getting cluster headaches about 2years ago,my life was abit upside down and i just put it down to stress and didnt do anything about it althouth then i knew nothing about them so didnt know it was ch if that makes sense,then 1 day they just stopped.7 days ago i woke with excruciating pain behind and around my left eye and have continued to get it every day at the same time for 15-60 minutes,absolute HELL!!!
rachers2004 3 months ago
LSD and Magic Mushrooms can treat Cluster headaches: the government needs to start using them. Trust me, LSD and Magic Mushrooms are not dangerous drugs, they have gotten a lot of undeserved bad rep. Something like Alcohol is much, much more dangerous then LSD or Mushrooms will ever be.
silverleaf81 4 months ago
mine start in my shoulder neck and jaw on one side then worsens as it explodes in my temple and the back of my eye..hot showers and prednizone have worked the past 3 episodes..my dr thinks they are tension headaches but i demanded predizone which have awful side effects that intensifies my condition before it finally subsides
sacapunta2 4 months ago
DAILY!? holy shit. :S
1234Rofllollmao 4 months ago
Mine too are changing to a chronic format - I am sick of consultants and live in fear of attack - I have never wanted to apply in the past but I am considering applying for Disability due to the life altering nature of the clusters and the effects on my work . For those that post comment who have had no experience of cluster either as a sufferer or as one who has seen a friend or a loved one go through it - think very carefully before offering comment - this condition is no laughing matter -
dcorcoran64 5 months ago
@dcorcoran64 I agree. Some people are just really fucking stupid. I really couldn't imagine that shit... I feel for you man! Live strong and don't let those fucking headaches bring you down!
EcnelOvelam 3 months ago
Mine feels like someone is taking a pair of pliers and breaking my jaw out of my head. No one, who doesn't actually have it, can truly understand the fear of attack, the pain and the desperation we experience.
Because of this, I do not get angry with others who tell me to take an aspirin or say: 'Oh yeah.. I had a really bad headache like that last week"
orangemod 6 months ago
Private doc said that dont ask help from phd doctors cos they are lied on the way many times. He said that the was too much metal in the body. After 13 years of suffering whitout any medicine he stoppped it for 1.5 years clean. Didint ave any headeace till yeasterday. And they started again straight after i ate red kidney beans. You must know that most of the common beans a made. They are notGodsfood. Watch what ya eat, drink, wear, watch and touch. Some are more sensitive to the universethanone
ahuli1 6 months ago
my friend was so desperate he shot up h :/
omid11 6 months ago
Very useful information....! thanks for upload this video...!
HeadacheTreatment 7 months ago
@daniacea Don't try and make money from other people's suffering, you sick, sick person.
EdgeZombie 9 months ago
Perhaps because of the extreme pressure in the vein and the forced breathing at the same time. It's really tiring, but I say, it's worth to try out! Have a good luck for you.
kegabor 9 months ago
Dear All, I'm a sufferer from Hungary, that's why my english is soo poor.... To tell the truth the only solution for me - even in the midnight, awaking from my deepest dream!!!! - to begin work-out, especially a huge amount of dips. It means not some 10 or 20 repetitions, but as much as i'm able to execute. Almost till death. I know, this would sound as an unbelievable "method", but it really works!!!! (for me...) Everytime I begin to push my dips, pain break off in no more than 10 minutes.
kegabor 9 months ago
I really really hope for the future that we find ways to relief all pain, because hell and pain are about the same level to me.
Solution2012 9 months ago
Don't let this video misconstrue the belief that all CH sufferers are suicidal, because most of us aren't.
palmisano 1 year ago 20
@palmisano ,no it didn't, it does give me some idea of how painfull this must be.
Solution2012 9 months ago
@palmisano First off. I can't imagine how it would be to have CH. I mean, Jesus Christ... Seriously... I heard it's one of the most painful things ever. And yes, stupid people will say "Urr... He's suicidal!" But, I'd figure it's natural to think, "Fuck, should I just kill myself?" I feel for you man, its really painful for me to know that some people have to live with this... Stay strong man.
EcnelOvelam 3 months ago
@palmisano I'm sorry for you. I have frequent headaches and i can only imagine how hard your life can be. No1 deserves to feel that costant pain.
321SpikE 1 week ago
clarification: the oxygen cylinder is size " H "
KickinShadows 1 year ago
31 m episodic. I use the 2000 lb. oxygen tanks used for metal cutting torches, from a welding supply place. It is an enormous savings compared to a medical supply facility (around 12 - 20 american dollars for a refill) where i live. If anyone does this, please have a professional, or someone knowledgeable with pressure fittings assist you in setting it up with the regulator, and mask. Obviously not something you can take shopping, but invaluable to have at your home, if it is possible.
KickinShadows 1 year ago
These are exactly what I get....i've had them for around 8 years episodic. I just use Propranolol for prevention when the bout starts, and then Migraleive, Ibuprofen and Sumatriptan Succinate tablets when the pain begins...usually last between 15 minutes - 4 hours. If anyone is doing any other documentaries I'll be involved !! I've always wanted to try Oxygen tanks but there is no funding for them where I live through the NHS.
rightirishlass 1 year ago
@rightirishlass I once tried large amounts of Ibuprofen to abort the attack, no luck. It took me 8 years of experimenting on myself until I found Cafergot, which helps immensely for me =)
palmisano 1 year ago
@pimpo911 you obviously have no clue what you are talking about.
robertbuick1 1 year ago 9
theres a cure for this.....Meditation
pimpo911 1 year ago
@pimpo911
LSD......
RJDamage 1 year ago
im trying to get all the knowledge i can about this subject because i myself am also a cluster headache sufferer i know what it feels like and also about all the mediciations and remedies but why do we get them ? somehow we all lack certain chemicals in are bodies or whatnot and this is what im trying to understand, please help me by listing things ur normally do or dont do etc.
tomsports 1 year ago
Has anyone tried histamine? It is given by iv and it can put clusters in remission. My husband was in remission for 7 years but they have recently returned. He has just finished another histamine treatment and so far it has worked.
jhartist123 1 year ago
@jhartist123 Toni 32 Croatia
Thank you for information because only histamin I never tried .
I have cluster last 8 years , specialy at the summer and I haved remission first time this summer but i scare very much all the time because I haved beets few years also at the winter .
tonizgcr 1 year ago
It took nearly twenty five years for me to get diagnosed and my working life has been wrecked because sickness benefit and employers' patience never lasted as long as my 3 month cluster. Working through attacks when I was younger required extremely high levels of aggression, so I'd need a new job after each cluster. Big respect to my woman of 12 years for sticking by me and to all the people who have worked to help her and our children understand it's not just me.
TheRasibo 1 year ago
I suffered for many years, I wanted to jump out the window and end my life, it was horrible. Verapamil and Imitrex worked for me. Don't give up, find another doctor. and they will go away eventually. I have been in remission for 10 years.
metalmoto 1 year ago
I couldn't do it. I would probably off myself after 2 or 3 of those things.
CambridgeHeights 1 year ago
@CambridgeHeights Me to man... I couldn't imagine having to deal with that shit. Doesn't it make you kind of appreciate how lucky you are not to have something like this?
EcnelOvelam 3 months ago
I have just gone through 15 attacks in 26 hours and am at my wits end. I have high flow rate oxygen with a non re breather mask and my oxygen co is amazing.....I went through 2 tanks in the 26 hour bout and am still not getting any respite. The worst thing for me is that my doctors are more than happy to prescribe some truly toxic drugs...some of which I am not brave enough to try as I have a history of unusual reactions to drugs but they won't even consider anything less toxic with no licence??
beltanebabe55 1 year ago
please find a cure!!!!!!
ducmix 1 year ago
I just had a weird thought. What if these sufferers were shot with a x26 taser, 50,000 volts of electricity. It would have to effect that nerve somehow.
Grasshoppa065 1 year ago
When I have the attack - I get so violent because of the excruciating pain. I can't help it. I fell so sorry for all of us who has it..
09omac 1 year ago
Comment removed
clusterheadachesfree 2 years ago
im haveing my 5-6 week spell now. please find a cure. and if i dont pull through, and really do committ suicide, these fucken headaches are why. cant deal with the pain no more
robvischjr 2 years ago
Comment removed
clusterheadachesfree 2 years ago
Not only the most painful headache you can get, but the most pain a human being will ever know.
dunskie 2 years ago
"ONE of the most painful headaches you can get"???
Try THE most painful BY FAR.
dunskie 2 years ago
No questions. These headaches are the most painful thing, ever.
Kazikox 2 years ago