Wearing a 24 hr Heart Monitor and Not Trusting the Pharmacy

[EASTKID10]

I would take care of you..most defitnely!!!

[EASTKID10]

your beautiful!

[Yariseini0922]

DOES THE HEART MONITOR HAVE TODO WIT THE EDS ...MI DOCTOR DIDNT TELL ME THAT .... O AND THE MARIGUANA UM IT WORKS IF U BOIL IT IN UM GREEN RUBBING ALCOHOL AND THEN SOAK A RAG OR SOMETHINGIN IT AND THEN JUST LET IT SIT ON WHEREVER IT HURTS OVER NIGHT AND IN THE MORNING U SHUD FEEL BETTER ... I MEAN THATS WHAT IM DOIN AND IT HELPS WIT THE PAIN ... BTD I HAVE EDS TYPE 3 ALSO ...

[Yariseini0922]

DOES THE HEART MONITOR HAVE TODO WIT THE EDS ...MI DOCTOR DIDNT TELL ME THAT

[Rolandencore]

And how is your heart now? Do you have any problems with arrhythmia? What can I say to you is to give all your problems in the hands of Jesus. Jesus took our pain and our infirmities. He loves you very much and do not want to see your little heart sad. He wants to see you happy! A hug and if you need a friend, call God! If you need prayer, talk to me. I'll do whatever I can to help you! God bless you!

[LivingWithEDS]

@Rolandencore I have a diagnosis of MVP. I always have arrhythmias that cause chest pain. Because of an MRI of my chest they discovered that my left lung may also be adding to the chest pain because apparently I hyperflex my diaphram when I breath (not sure how that works) & my left lung appears to be obstructed. They went in & tried to fix the obstruction but decided more procedures are needed. I can't afford any further treatment tho. So I'm just dealing with the pain.

[mystery8881]

I'm currently wearing the same thing...

[81792100]

Thanks for your videos. My two sons are dealing with EDS. Their echocardiograms were okay, thank goodness but it is still scary. I am very concerned they might have the Vascular type but we haven't been tested for that as yet. I did just request the test. You are too young to be dealing with these issues, best of luck to you. My younger son is 18 and it is basically just laying around 24/7, so not fair.

[SindromeED]

nadia im so sorry to heard about your heart monitor the only thing i can say to you right now is keep figting even when our body is weak our will is strong and we need to keep figthing

[MissMochibon]

Trying to find a cardiologist in my area because of your vids. I didn't know I was supposed to get my heart checked, so you may have saved me. I hope you feel better soon and that everything goes well with your heart.

I always count and check my meds when I get them because I have had a similar thing happen. You can check the numbers on the pill online and match the pills by description for a quick check. I have been shorted and given the wrong meds before, its very scary.

[LivingWithEDS]

@MissMochibon Thanks! And I am so glad to hear that you made a cardio appointment. I hope all is well with your heart...keep me posted on how things go ith your checkup. Yea, I checked what the pills are supposed to look like and I couldn't find any that match what I have. So I am going to go to another pharmacy tomorrow and ask them to tell me what the two medications are. It is very scary when the wrong meds are given to you, especially when the meds are so potent.

[MissMochibon]

@LivingWithEDS will do, it may be awhile as I will be out of state for Xmas but I will tell you as soon as I get info. As of right now I am alright. As ok as I can get right now as far as living with eds goes. I got a commercial ankle brace which is actually really helping me out. I never realize how unstable I was until I put them on... like when you get a new pair of glasses and you realize holy cow, I was blind!