I am starting a channel to bring people with&without illness together so they can help eachother and share experiences, also i want to show that you can be positive even if you are disabled, life is tough when you are ill. Youtube helps me connect to the world as i cant go out and do much for myself but theres so much negativety and arguing. I would like to make people laugh and raise awareness about the hardships of disability&bring people together, i can speak personally about fibromyalgia.
I too suffer from fibromyalgia and have for so many years. Sometimes the pain is too much to bear and I can’t imagine going on another day feeling this way. But then I found a comforting scripture in the Bible. Revelation 21:4 says “And he will wipe out every tear from their eyes and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.” This is a promise from Jehovah God. This helps me cope day by day.
The doctors call it fibromyalgia, and if its a disease or not in your eyes it is the reality for a lot of people, like myself to live in servere constant pain and stifness all over. If that isnt a sort of disease,,,WHAT is a disease then. I think it is about time that doctors and scientist take this problem servere and do something about it. I really cant belive why doctors tell people that they have fibromyalgia, and afterwords they say its not a real disease. Wierd.
Holly... I also have Fibromyalgia and have suffered for a few years. I honestly didn't think it could happen, but I'm finally FREE. I've felt as if I was living in a straight jacket ... so uncomfortable. I truly feel your pain... I'd love to share this healthy nutritional product that I'm taking with you.
@keliata It's only incurable until they find a cure. That means right now it's incurable. It's not what we say, it's what the medical community and doctors say.
@keliata It's only incurable until they find a cure. That means right now it's incurable. It's not what we say, it's what the medical community and doctors say.
Go to this website and watch a video of a girl who was healed by God after suffering many years with fibromyalgia. awmi.net click on healing testimonies, Niki Ochenski . Great !
Respectfully, miss I too have fibromyalgia as well as a scoliosis in my back. It hurts, it's going to whether you mope in bed all day, or are actually living your life. It's all you've got, make the best of it.
i think the worst part is people just saying its all in your head when your in agony every day of your life and all you want is to be normal again im a 23 male I have had fibro for the past year and its a living hell my heart goes out to all the people suffering from the horrible illness
@ItsSheepyTime;I know exactly how you feel./; I barely got diagnosed with FibroMyalgia,and everyone thinks that I'm just pretending to be in pain. They don't know how it feels to be in this much pain,to not be able to move and to just keep crying because it hurts so badly. But it's not just an act. And my medication just makes it worse.
I recommend a really good book by Janet Hurrel called The Journey Through ME?Chronic Fatigue and covers everything you need to know about Fibromyalgia. You can get it on Amezon and its on Ebay
My dad is in constant pain everyday every single minute and hour of the day, Because of an injury, Hopefully surgery for this disease. He HAS fibromyalgia and as soon as I saw this I was like oh my god, Every time I'm with my dad I feel his pain and worrie about how everyday is a struggle for him, He can get grumpy because of it, But he trys not to.
Holly, I can relate to everything you are saying. I was an athlete and had to stop playing softball about 15 years ago (I played for 25 years including college ball. That was depressing for me.
The only thing that makes me get up and use my muscles everyday is my dog. He is a certified therapy dog...but not for me.... I use him to volunteer at my local library helping children to gain confidence in reading aloud. He has been my savior. I battle daily with pain. My dog makes me walk 3x a day!
I was diagnosed with Fibromialgya about a year ago even though I been suffering for years. They diagnosed me with both osteoarthritis and rheumatoid arthritis and I knew there was something wrong with me... But I tired everyday to battle this conditions and enjoy the most I can out of life even if it means living the rest of my life with pain.
cont: so yeah been doing this routine for like 2 weeks and my shoulder pain and tightness have rapidly eased off still got a long way to go though. Just trying to say check your own body for muscle imbalances which could be bending your spine and correct em and your myofascial pain will go. This wont work for people with true fibromalgia cause its a totaly different cause.
Alot of people say they have fibromalgia but havent got it, they will have myofascial pain syndrome which has more or less the same symptoms. If your muscles are hurting get your spine x ray'd if its even slightly bent they can press on your nerves and cause fibro symptoms. Ive had this problem for years and realised my back muscles on one side are strong and well tight and on my other there weak and lenghened, just started streching my tight strong side also doing core exercises cont:
Keliata, please become a person... you sound much like an monster, you know! Show some feelings. It's amazing how stupid people can be when they don't know enough about something...
I'm a retired RN with FM and Sjogren's disorder. In the 1950's people with MS were told it was an emotional/mental disorder. I do wish the people who don't believe it is real could experience it for 1 wk. Critics simply have no idea. I was granted SS Dis first try (rare), 15 yrs ago by a very skeptical judge after a 15 min conversation with me. Of course I wanted to go from being a productive, caring RN, $55,000 yr to $1200 mo + ridicule. I'm just so much happier now! I miss nursing everyday.
Amazed at how many others have this. I have had Fibro for years but did not know what it was, some days could barely get washing hung out because arms filled with burning like lactic acid, would take my breath away. I have had Epstein Barr Virus (Glandular Fever) twice and Shingles, lucky with shingles though, caught it before 72 hours and had injection to stop it. Have advanced austio arthritis in numerous places.
I don't remember, what not having pain is like.........
Everyone with Fibromyalgia should get an MRI brain scan to rule out a possible neurological base such as brain tumour, Chiari 1 Malformation or Syringomyelia.
Got fibro? Do yourself a favor and check your medical records to see if you'd taken Cipro, Levaquin, Avelox or any other quinolone antibiotics in the weeks or months prior to your symptoms arising. Doctors give out these terribly poisonous drugs like they're candy, and they are known to cause DELAYED REACTIONS that mimic fibro symptoms nearly perfectly. Because of this delay in reaction time, many people never make the connection between the drugs and their new mysterious health problems.
@Laura65177 Quinolone antibiotics are the ones you need to be concerned with, they are the ones that cause horrific delayed reactions. They are also NOT approved for use in children because they screw up kids' cartilage! I would suggest anyone reading this steer very clear of all quinolone antibiotics they are BAD NEWS.
@jtooj I have tried it for a brief period of time. It didn't really do much of anything for me. I do have to say when I eat a healthier diet and cut out sweets and sodas it's hard for a few weeks because of the lack of caffine but after that it's actually been better for me since I'm not having all the added little negative withdraws and drops in blood sugar. While they aren't that noticable to the average healthy person I did notice a difference once I quit them for me.
Do you have any advice for someone with Fibromyalgia? I've had it for years now and it is very limiting. I have tried many things but still can't get a full nights rest nor stop the pain... Anything would be helpful. Thanks.
I suffered with Fibro for many years and found a simple safe cure. Please contact me and I will send you a link to this info. It is FREE except for a few things you will need to pick up at the health food store. You will have to change your diet. If you are desperate to try, I would love to send you this info.
Please email me at suesurla@hotmail.com and I will send you links that you will need with info about why body PH is so important to our health and also links with food lists containing the foods that you should and should not be eating and other instructions that you will need to get started. I have nothing to sell or to benefit ...just the desire to let others know that they DO have some control over their own health. Sue
i also have this iv had it since i was 16 im now 32 ,i get stabbing pains all over body,chest, back just all over ibwas diognosed with fibromialgia in 2003.since iv had this problem i constantly think im gonna die this has been goin on for 16 plus years.i have 5 kids and a wife who all have to go through this with me,,people just dont understand,i need a proper test to prove its fibro at the minute there is none so until there is im gonna always think the worse ,hope this makes sense,take care
i totally understand what your going threw and there is nothing that has made my pain any better i can,t have no one touch me.Itake showers and the water hurts me.Iwould love to be pain free and suicide has crossed my mind many many times.what to do.
@gemini16th what is wrong with you? i hope you get something like this so that you will know what its like to be in constant pain, suffering. and having no escape. It IS a serious illness. you are stupid and selfish for thinking otherwise.
@gemini16th I wouldn't wish this illness on anyone - it is ruining my life. I am a 19 year old girl, and I still cry in pain. How pathetic is that? And you know what?! I'm not even eligible for benefits. Yeah, you heard. Most of us with fibro can't work, and aren't entitled to any help. It's not that we don't want to work - I'd give my last breath to be able to lead a normal life. Your comments are hurtful and derogatory and I hope one day you know how it feels to have to 'live' like this.
@Fiolacola Sweetie,you are not pathetic and neither am I.I too was 19 when I found out I not only had spondilothesis but fibromyalgia and raynauds disease.I am 30 now and I know what its like waking up and feeling like someone has beat the crap out of me all night.Don't listen to someone like gemini 16.Probably just trolling or just so full of hate.We have to keep on keeping on until someone finds something to cure this thing.Much love and many blessings :)
I know a person who's mother 'suffers' from this. In reality she is controlling his life and has used this to prevent him ever living his own life. Its just so incredibly selfish it makes me angry for him.
@gemini16th They complain about taxes, yet they vote for politicians who cut taxes on the rich, but not the lower and middle classes. The same politicians who keep spending wildly on the military and keep putting us deeper into national debt. These same people even put us into a bankrupt war that cost us 3 trillion dollars. Yet they complain that even a single family receives 100 dollars a month to feed their children for only 6 months, families who were laid off from work due to a bad economy.
@blobvision I am very lucky I live in Australia free medical and drugs are only around $10 we are the lucky country I could not imagine living in a country where you are not looked after with health care................very poor on the USA behalf
@gemini16th They're even ignorant of economics, as they tend to believe that welfare and other government funded social service programs are the main use of their tax dollars, despite the fact that these programs see less tax dollars than military spending alone, which Republicans keep increasing. The military is the reason why taxes are so high. The US spends the least on welfare than any industrialized country in the world, yet they keep complaining.
@gemini16th Conservatives love to be selfish and immature. They love to make up their own facts, basing them on prejudices and ignoring scientific evidence on everything ranging from medicine, history, economics and race issues. They profess to believe in the Christian god, yet they abhor everything Jesus commanded of us, such as charity, kindness, compassion and love. They hate the poor and sick, unlike Jesus. Nothing they do resembles the mature responsibility they claim to possess.
This is caused by inflamation . Sugar and vaccines are are number one causitives. Then other toxins in your food and environment. Go to dr. mercola's website it is his last name plus a dot com. For eye opening facts about vaccines go to (all one word) think twice . com Drugs are only a temporary help. Nutrition and reducing your inflamation causes will bring alot of help.. Study the healing testimonies on awmi dot net (put it together)
Hi, it's me again fl2080. I am taking a supplement that helps produce Glutathione into the body Glutathione is the Master of antioxydants. Go see your doctor and tell him that you want to be tested (blood test) to know your Glutathione level in your blood. I am sure that it will be very low and that is why we have that disease. It is also proven to be the case for all the diseases. Please, please all of you, ask your doctor for that blood test, insiste if he thinks that you don't need it.
I'm sorry sweetie........I know what ur going through not much helps but here's a tip when things start poping out of whack try a sports trainer they are really good and often work the first time...also try stretching i find it helps but i can never seem to get the pain 2 go away so what i've had to do is take medication for what i can fix rather then what i can't like meds for stomach and chronic headaches is about all i find that helps anything go away.......I pray alot an find hobbys 2 get by
I am from Canada. I saw your video which is very touching. I too suffer from Fibromyalgia.Type the words: MaxGXL+fibromyalgia and look at eveything there is on the subject. I swear to you that since I take it I feel much much better. this is not a scam I swear. I would never give hope to someone who suffer the same that I did. You have nothing to lose and everything to gain believe me. I was very sceptical myself but like I said, I have nothing to lose. I hope to hear from you.
I too am a fibromite. Thank yu for posting this to help raise awareness. I have lived with it for over 11 years and only got my diagnosis 2 years ago.
Hi Kestraly! Thank-you for sharing your story and suffering. I too suffer greatly form fibro and it is nice to know I am not alone. Please ignore Valerie below. She is trying to sell us her 'cure' and i se-mailing every person that has a link to any fibro video, etc. I am just wanting to see videos and make supportive friends and every time I find a video here tonight, she is selling her cure. Take care. *HUGS*
@ValerieLumley hi again, with myself yes i have feel down the stair 2-3 times because i have meniers disease and didn;t know about it for years, my mother lets just say had a bad child hood so yes she did have back injurys and also we both have arthritis of the spin, my uncle i don't think have ever had an injury but my brother had a very bad bike crash where he flew over the handle bars coming down a hill. hope that helps, but ask more if you want bye : )
@lightisnotmatter I have been so lucky after 18years of having this illness i have never suffered from depression even though i can go 2-3 days with out sleep and then totally crash for 24hours.My heart really do feel for the people with this illness and depression. brightest blessings.
Dear Girl, go to Ukraine ( Crimea) they will treat you. I have got the same problem, hashimotos desease and fibromyalgiya. In UK you will never be treated it, I swear!
@Pichukid456 there were even some doctors who thought i was a whiney complaining baby and was threathning me with painful procedures..
hang in there, do what you can, take it easy, take all the breaks you need and WANT and then dont feel guilty about it either! Enjoy anything and everything.. it certainly helps..
Develop some passionate hobbies, it really keeps one motivated
@Pichukid456 there were even some doctors who thought i was a whiney complaining baby and was threathning me with painful procedures..
hang in there, do what you can, take it easy, take all the breaks you need and WANT and then dont feel guilty about it either! Enjoy anything and everything.. it certainly helps..
Develop some passionate hobbies, it really keeps one motivated
@Pichukid456 best is to ignore or reolly their ignorant comments.. I had this since i was about 12/13 too.. But at that age i thought it was normal, so u can imagine i was quite miserable, it helps to have the support of family and frnds (now i barely pay attention to what those other people have to say).. I get crazy angry if i get even a hint from someone who thinks i'm slacking or irresponsible..
Bless them for making this video and putting the reason for fibro in such a concise and accurate form: less seretonin in the brain .. causes the lack of muscle relaxing during sleep... story of my life!
hope research does something ssssoooooooooooooooooooon (and good to know there's other young girls around my age with this.. the rest of her families quite well aware like mine too.. by now)
damn shtraight about dem massages! i wished they were free and available 24/7 .. haha
Thanks Janey, I think (hope) the yeast is under control. If it returns, I'll tryout your remedy.
I had a blood test which reports a problem with my " Serum C protein levels" which was borderline dangerous. It would have been higher when I was in more pain. I'm due to have it checked again soon.
The pain has died down now but there does seem to be some permanent damage in the shoulder joints. I get sharp "ringing" pain when I put on jackets that doesn't have much give in them.
I agree diet and liver cleansing once every 2 week via enema bag. No, I'm not kidding. I had fibromyalgia with chronic psoriasis and now with nutrition(raw diet) no raw meats only cooked, enzymatic therapy with fish oil, I have completely eliminated both problems. My psoriasis has been in remission for 6 month and my energy levels are out of the roof. I eat a salad consisting of shave carrots, the tender shoots of asparagus cucumbers apples onions tomatoes with my own raspberry vinegarette...
I wanted to share with everyone my journey over the last 6 months. I have cronic fatige fybromyalgia as well as Cervical Spondilytas. I have had this for the last 14 Years. A young age for all this as i am only 44. I have been seeing a Osteomyoligist. Who has just changed my life. I had a food intolarance test which showed, i had no vitamins, digestive enzimes, alot of the food i ate my body was intollarant to. I changed my diet, and yes Sugar is a big no no with this condition.
fibromaljia or whatever sounds like a viral infection it's just the greek name for pain in the muscles or joints I forget which one .. Docs dont even know what causes it Fibro -- just sounds MEDICAL so you get billed big money
My name is Laurie. I just have taken the third SAVELLA pill, and I actually have been able to sleep without so much pain in my joints, side, chest and shoulder!!! My doctor had changed me from synthroid to Armour thyroid, and I still was having pain. She's tested me for EVERYTHING and Monday, June 15, she started me on Savella because we'd tested for everything BUT fibromyalgia. Savella has allowed me to walk down the stairs with out pain today,
it sadly did not work for me but he is an amazing man. I am 33 and was diagnosed by age 20. I rook the meds for 2 years. God bless you. I am so happy it is working for you. my only advice- smile- dream big- listen to your body- and for the rest of your life swear off all the pain killing drugs, killers in themselves. i wish you well. kit
did you know if you go to a vector born disease dr he or she may be able to help you . also did you know the same treatment that is for lyme disease only from a lyme specialist can also help people with fibromyalgia please look into it . I don't like seeing people suffer like me. we have similar symptoms some would say the same symptoms please see my video I have chronic lyme disease
I have had fibro for many yrs. The doctors I've seen haven't been very helpful. In doing some research of my own I noticed the similarity between fibro & lyme disease. Do you know the name of the medication used for lyme disease. I don't think we have any vector born disease specialists here.
i just happened on this fibro vid and noticed u'r comment. living in old lyme, ct and having had lyme disease twice - i can tell u that u need to see a dr. who knows about it. lyme disease is caused by a spirochete bacteria and needs to be treated with antibiotics (preferrably doxycycline or amoxicillin) .
i've had both illnesses and they are very similar. getting screened for lyme is a must.
Hello Dellaruth IM sorry you and others have to go through this. :( the medicine that was used for my lyme disease is called Doxycycline & Vancomycine & Rocefton & tetracycline Also Zithromax these were used in different combanations = IV & ORAL
omg i so understand this i got the diagnosis when i was 13 back in 2000 and fibro doesnt need to be a life sentence u can learn to live with it even when the drugs dont work thanks for putting this on here its so true!
I tried chiropracty, massage, epidurals, exercise, etc. If you have low back pain, mid-back pain, or WHATEVER it may be, there is a really great read called "Healing Back Pain" by Dr. John Sarno. It conveys the most Responsible Content on the matter that I have ever come across and is NOT "about" anatomy in general. You can google his name they probably have the book at your local library. P.S. I've had 2 discectomies in the past - didn't know better, and...yeah, it's a really worthwhile read.
For all those who feel that people with Fibromyalgia are faking their pain I can assure you that they are not. I have personally spoken to dozens of people who have come in to our treatment center almost paralyzed from this disease. I wish the best of luck to those of you seeking treatment
There is this other guy Alex Chiu with his Immortality Rings, he treated lots of fybro myalgia cases. I had his Immortality Rings on and it certainly did help my pain a lot.
I am 36 and have really never felt will since I was in my early teens. I was labled lazy by teachers when I could not get up in the morning because I was always tired and achy. Everything seemed to be an effort. P.E. was torture even although I was a fit, slim and healthy teen. I had my kids at 23 and 24 and spent the majority of the time sleeping. I could not function for total and utter lethargy.
i have had fibro for about 5 years now but just recently got diagnosed. this video really touched me, there arent alot of young people with this and i feel like i am alone.
hey. i just wanted you to know, you are NOT alone..i am 22, and i have had fibro since i was 3 yrs old..i am currently undergoing biofeedback therapy for it..i hope it works
I just started bio-feedback - how is it going for you? I notice that my pain level is a lot better and I have been getting more good night sleep - and don't wake up during the night. I hope that it is helping you. I also think that finding ways to relax the stress out of our musles helps as well.
I know that feeling all too well esp. when doctors keep saying you are too young for all of this pain. Trust the body your in, not the information you are fed. I know those lonely nights wishing someone could shoot my whole body up with novacaine, laying on ice, and thinking i was already half way dead. 13 years later, yes i am still in pain, and yes you learn that we are all in our bodies ALONE, but for all of us to stick together and have faith together is healing in itself. xoxo
I had fibromyalgia for about 4 years, tried everything. Some treatments did nothing others eased it a bit. Finally bought a portable infrared sauna. Got rid of it completely.I have to keep it up though otherwise it gradually creeps back
Umm. hi there . my mom has Fibomagyia, and it has realy had a huge inpact on my life, shes just not the same. what does infrared meen? we have a sauna in our building but im not sure if its the same as yours. ive been living with a depressed women for 2 years. School isnt the same, friends arnt the same, nothing is the same PLEASE reply to me, please,
One time they made me park up on the hill & I had to walk down all the stairs and I fell down them. They could care less. I'm sick and tired of all this "all in your head" bs. These pains started since childhood. They need to stop letting companies like Phizer dictate the research and actually do something about this.
I hate it! It's so hard, because I look young and healthy on the surface, ppl think I am completely making it up. I just wish it would go away. I go to the Univ of WA and they make me feel like a criminal for even asking 4 accommodations. Even though I have a disabled plcrd, they continue to ticket me 4 parking by the handicap bec not enough spaces, & tell me to walk down the 3,000 stairs just like everyone else. Doc notes are never good enough either.
It's hard isn't it. I think it will always be "in our head" to other people. Pain is such a personal thing. And to top that we are just too worn out all the time to complain about it. If we were to do that, there would be no bright side anymore.
Just know that there are people who DO understand you, other patients, and maybe a close family member. Don't lose hope.
Your comment is childish and rude! However no matter how stupid you seem by saying this. I wouldn't wish this on you. Ignorance must be bliss. Time will change and one day you will change your mind. I just hope you don't have to go through this in order to get to that point.
Saying that it is "quite easy to diagnose" is not true for most of us. Some of us go through years without being able to get a DX. We suffer in "Limboland" questioning if we are crazy and going through one possible dx after another before we ever Know. It can be easy for some to get a dx but only for a small amount of people.
Also it should be noted that it always looks easy to those who have not gone through it themselves and haven't seen you at your worst.
Excuse me I have had fibro for 18 years now, got diagnosed last yr. And with the diagnoses of MS I was taliking about, there are test out there that shows if you have the disease or not, I know 5 ppl with it!! Anf I DO NO WHAT IT FEELS LIKE!@
I understand that you were talking about MS. Which I have along with Fibromyalgia. In your statement you said you "know" people with MS not that you had it. If you are upset by me not agreeing with you that is your problem. I have gone through both FMS and MS so forgive me if I have a different view then you. They do have tests for MS but it is not easy for all to get the DX. I stick to what I said and wish that you had not taken it so personally. Good day to you.
Sorry that you have to go through all of that. But,you dont have to be so snippy!! All I made was a comment and my brother in law stays on top of all the new news on MS and that is what he told me!!Im not gonna argue with you anymore about it, its a waiste of energy!
hey im 23 and a mother of two great , but ful on lil boys. I hav had fibro pains since i was about 3 or 4 and was diagnosed when i was 17. since then i hav developed more pains in many differnt parts of my body. I am so over this illness as not one thing i hav tried has helped. The hardest thing for me is that i can not do all of the daily things a mother should do for her children. If i could change one thing it would be to wake up and actually feel rested and refreshed
im 19 now and have had it since i was 14... doctors hadnt a clue and thought i was making it up... i cant remember what it feels like not to be in pain.. im here trying 2 study for an exam and am tryin to imagine how easy it would be to ace every exam if you didnt have to study through chronic pain!
I was also diagnosed with M.E three years ago. Being just 16, it ruins your life. I'm happy to talk to any other suffers about the conditition or just to brighten their day (:
i've had it fully since 22 but looking back i've really had some of it since earlier..i'm 37 and am over the fibro largely but i've still got immune system problems which make my life hell...fibro is a nervous, immune and hormonal overlapping condition..
I so agree with you on the fact that it is neural, immune, and hormone related. it is what my body has always told me but what the doctors refuse to believe. I also have enometriosis, a weak immune system, a hormanal imbalance, arthritis and I could go on, but I see you understand. If anyone had any sucess with supplements or diet please let me know. I have run the gammit, but refuse to give up.
I'm soon becoming 19, and they diagnosed me recently after 3 years being in all those pain and the doctors keep telling you just to relax and saying the pain you feel is only from 'stress'.
I understand it's hard, because I'm going thrue the same proces of 'accepting' it. It's realy hard, I'm in so much pain and even go to school seems imposible, or only for a day or 2 and then be sick again.
I realy hate it. I wish I could have a normal life, and be able to get a diploma or so :(
My girlfriend was diagnosed 2 years ago and she's now 21. She lives with pain every day and had trouble going to school. Her college lasted 2 weeks and she recently had to stop. But she will be going back in the fall.
My thoughts are with you. I understand completely what you're going through. Stay strong and don't let it get you down :)
I am 35, male, and have had this since I was 21. Yes, very dehabilitating. I have tried everything I can to help relieve the pain. Nothing helped much. However, I used to live in the UK and now live in the sunshine and warmth of Australia and I have noticed that the warmer weather has given me a reduction in symptoms. :)
Since my diagnosis, doctors haven't helped me much, but my faith has.
I am strengthed everyday by God.
I am so blessed to have my family who is there for me, my true friends who have actually stuck by me, and new friends. Each and every day is a blessing.
Since my diagnosis, doctors haven't helped me much, but my faith has.
I am strengthed everyday by God.
I am so blessed to have my family who is there for me, my true friends who have actually stuck by me, and new friends. Each and every day is a blessing.
I have been suffering from for 19 years, I was diagnosed two years ago. I do Lu Jong once a week, for over a year, inicially it was painfull and tiring, but makes a huge difference. I prefere exercise to medication, it is more benificial. Also apositive mental attitude is a must, negativity will make us go down hill. Keep active in any possible way, even if it just means walking more than you usually would. I paint, try to play guitar and sing, whatever makes me feel good!
The only thing that has slightly improved my condition is fun exercise. It was hard to start it because of the intense fatigue and body pain, but, after finding some motivation (via a silly kids show), I began to do fun exercises and, amazingly, began to gradually feel slightly better, have a little more energy, and my sleep cycle improved a bit. Of course, too much exercise can hurt, so it's important to find your limit and do fun activities without overdoing it.
I was Diagnosed over 10 years ago. The only thing that makes life bearable, and beleive me I've tried EVERYTHING. 1. Lots of exercise (LABOR Intensive Jobs :) "Migth as well get pay'd to feel better") and here's the most important part....... A medicinal Plant that God placed on this earth to heal mankind. You can get medically certified in several states for this condition.
Iv been diagnosed with Fibromyalgia and Raynaud's Phenomenon.
im 17 years old and im finding it really dificult to explain this to my parents.
My parents only speak Arabic. However, i can't speek it very well so its really hard and they just dont get it.. My mum just thinks im lazy and i friken hate that..
And its true.. i also dont remember the last time iv had a reall sleep
Perhaps an Arabic-speaking doctor could talk with your parents and explain your condition to them. Sometimes that's the only way relatives will understand that what you have is a real condition (if a doctor sits with them and talks to them about your health problem).
lol i AM 37 YEARS OLD and both me and my mom speak the same language, and she still thinks I am lazy and I showed her all my paper work for the illness!!!Actually most of my family thinks that! I gave up trying to explain it too them!!
feel your pain, i'm 37 and it's been a nightmare to explain this to anyone..recently though my mum has started to get some of it..took 15 yrs for her to get even what she does now...it's a cruel condition as being outside the norm we're subject to disbelief and sceptiscm as well as rejection
My chiropractor has almost cured me of fibro. It was due to pinched nerves in my spine that showed on x-rays, you just have to go to someone who has experience with actually reading them! Hope this advice helps! Oh yeah and don't say u have already had x- rays and the doctor did not find anything because you need to keep trying and pushing past the obstacles like I did. I could barely walk then, now I can run full speed!
Awesome video, my heart goes out to Holly. It's supporting to hear from others my age who also manage Fibromyalgia. People typically develop the disease when they're older, but its especially hard having to live with fibro when you're only a teen and in your prime years. It's really scary to wonder what it'll be like in 10 or 20 years. Having a positive attitude really helps though! It is possible to lead a normal life!! It just takes lots of management and a positive attitude! Good luck Holly!
OMG how old is Holly? she seems to be about my age!! FINALLY, anothor girl my age who knows! what a relief to know I am not the only woman my age with this.. F**KING fibro anyway...
Hey princesslaura2384, I'm Holly. I was 21 when the video was made, 23 now. Glad you found this video. I know it helps to know you aren't alone. Thanks to everyone else who wrote supportive msgs too
I live in horrible pain every day...my life went from a 10 to a 2 in 9 years...stress flares it. I lost my oldest son 5 months ago in a accident...and my pain doubled.
where do I get this Kangen water from? I'd like to know because I don't have any medical and my life is almost non-existent. Just about everything I do takes more effort than I am even willing to give it, can you please give me some more tips, thanks.
Having suffered 17 years, I understand. They didn't know what to call FM when I first had it. I started taking this myvemma(dot)com/GregGies and in 2 weeks I got off 9 medications! This stuff really works. Check it out, you have nothing to lose but PAIN. I wish you all the relief I have found (and I've tried just about everything). Hugs!
Read from bottom up to make sense......... If you did not get WORSE during antibiotics you MAY NOT have a tick borne illness... if you did.....look further. My wife still has fibro, but she is getting better. Take care.
loggerbuck you are like a broken record. Some people find something that works for them, then DEMAND everyone else follow them. There is NO one-size-for-all in fibro. If you are cured, great for you!!
2hot, actually I very much agree with you. I just don't want people to ASSUME they do not have an infectious source for their problems. Even if one finds a Lyme related cause for their illness; people find many different paths back to better health. My concern is that Fibro is such a dead end Diagnosis.... which in reality is just symptoms of SOME SORT OF PROBLEM.
It is a dead-end. Mine began with CFS, which I still have despite antibiotic therapy. Most of us have simply been too well poisoned by the environment, at least that's MY take on a lot of cases.
My wife was dx with CFIDS and Fibro 6 y ago. declined until I got her to someone who could make THE CLINICAL DX for Tick Borne. 1/07 she was pre-terminal. Today she is about 30%. Must consider Borrelia, Babesia, Erlichea, Bartonella.. most have a "SOUP" of these critters skating around inside them.
that's a fair point. i presumed everyone gets checked for lyme early on. and as far as i remember, most people have epstein barr but not fibromyalgia.
Western Blot is typically negative in the Chronic Lyme person. A "CD57" lab test is specific to Chronic Lyme (Borrelia).... if read by a Lyme Competent MD. Also MOST labs are absolutely INCOMPETENT for run a Western Blot; and the sicker Chronic Lyme person is VERY likely to have a NEGATIVE WB. Use only IgenX if you persue this. Some are getting better!
I too have fibromyalgia. Yes, supplements can help you. I have been symptom free for 6 years. I was able to do a triathalon in Sept. I am 44 years old. I watched a good friend of mine be bedridden for 2 years until she started on a supplement. Please don't give up. Their is much hope out there.
Some people can still work andhave "episodes" some have moderate pain,some like me have severe pain constantly. I go to bed in pain and wake up in pain and my body can't heal,when asked to describe the pain I said imagine you were tied up and thrown off a 2 story building and a couple of days later you had started to heal and they threw you off again,pretty close. I pray they will find a cure my prayers go out to anyone who suffers from this
Fibromyalgia is cureable! You see, drugs cover up the disorder. Muscles do not heal properly and need vitamins and especially cleansing. Absorption of nutrients and vitamins by good bacteria. I am currently taking vitamins, and bacteria for my fibromyalgia and feel way better. I got hooked up with these remedies from my naturopathic doctor and health food store.
If vitamins and nutrients have made you feel better, it does not mean that FMS is cureable. Sure, they will probably make FMS more tolerable, but they have nothing to do with the source of it. No offense, but if you think nutrients have got you to the point where you can almost say "I feel perfecty healthy" then maybe FMS is not your problem.
car accident at 28yrs. took 2 years to spread all over and Myofacsial pain disorder. I tried many things. There are no cure, and everyone is so unique with this condition. I believe our muscles are traumatized and turned into hard tissue instead of being soft. A lack of oxigen not being able to go into the muscle is one of the causes I think. Guaifenesin as well has helped. Like having diabetes there's many different levels, just like fibromyalgia.
I heard what your mom said at the end worried about what would happen if you had a family. Im a single mom, age 37, My daughter is 13. Ive had fibro for about 5 years. I still can take care of the house, my daughter, the dogs and cat.
You will have good days and bad days. But you still can lead a semi normal life.
I have fibromyalgia, and I can tell you- no amount of opiate pain killers or anti-depressants can help the way cannabis helps. It really does work. I'm not a stereotypical pothead, nor am I lazy and unmotivated. The stereotypes are not true.
Ditto. I don´t even smoke (5 years stopped now!), but sometimes I get so desperate with my fibro pain, I get some hash off friends and smoke a little bit of it pure, without tobacco, in a little pipe I have. The only problem is, I couldn´t go to work in the relaxed state I am in after, I just flop on the sofa and relax and enjoy that the pain is finally 100% gone! :D
Great video! I guess it´s so much worse for you because you´re so young and you´re really missing out on things... I only had symptoms after I was 26, but lived more than 10 years without a diagnosis and endless useless treatments. An important thing you forgot to mention in the video though, I felt was that you LOOK normal/trendy, young and healthy so people do not see (nor believe!) that you are chronically ill... Good luck!
maybe medicinal marijuana will help slow the body down. It does slow your system down maybe that will be a... improvement to this problem. I'm being totally serious.
It doesn't "slow" your system down. What cannabis does, is switch off the sympathetic system and switch on the parasympathetic system. There are cannaboid receptors in the brain. If anything, cannabis has been shown to be an active placebo. What this means is that it produces a physiological change, which allows people to make mental changes. Cannabis does help with FMS pain and mental clarity.
I am starting a channel to bring people with&without illness together so they can help eachother and share experiences, also i want to show that you can be positive even if you are disabled, life is tough when you are ill. Youtube helps me connect to the world as i cant go out and do much for myself but theres so much negativety and arguing. I would like to make people laugh and raise awareness about the hardships of disability&bring people together, i can speak personally about fibromyalgia.
LifesMyWife 2 weeks ago
@annsipp wear purple?!?
ChillMascaras 2 months ago
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I too suffer from fibromyalgia and have for so many years. Sometimes the pain is too much to bear and I can’t imagine going on another day feeling this way. But then I found a comforting scripture in the Bible. Revelation 21:4 says “And he will wipe out every tear from their eyes and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away.” This is a promise from Jehovah God. This helps me cope day by day.
charliebelson 2 months ago
@LucaBlightBadass
The doctors call it fibromyalgia, and if its a disease or not in your eyes it is the reality for a lot of people, like myself to live in servere constant pain and stifness all over. If that isnt a sort of disease,,,WHAT is a disease then. I think it is about time that doctors and scientist take this problem servere and do something about it. I really cant belive why doctors tell people that they have fibromyalgia, and afterwords they say its not a real disease. Wierd.
MyHanne2011 2 months ago
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Holly... I also have Fibromyalgia and have suffered for a few years. I honestly didn't think it could happen, but I'm finally FREE. I've felt as if I was living in a straight jacket ... so uncomfortable. I truly feel your pain... I'd love to share this healthy nutritional product that I'm taking with you.
please e-mail me at relivinmaine@gmail.com
relivinmaine 3 months ago
@keliata It's only incurable until they find a cure. That means right now it's incurable. It's not what we say, it's what the medical community and doctors say.
lorreann1 4 months ago
@keliata It's only incurable until they find a cure. That means right now it's incurable. It's not what we say, it's what the medical community and doctors say.
lorreann1 4 months ago
Go to this website and watch a video of a girl who was healed by God after suffering many years with fibromyalgia. awmi.net click on healing testimonies, Niki Ochenski . Great !
cottoncandypoms 5 months ago
@cottoncandypoms yeah it just sounds like a load of old rubbish. There is no god so you have to help yourself.
Hertsman50 4 months ago
pregabalin helps!
lunarshift 5 months ago
Respectfully, miss I too have fibromyalgia as well as a scoliosis in my back. It hurts, it's going to whether you mope in bed all day, or are actually living your life. It's all you've got, make the best of it.
theyspar 5 months ago
i think the worst part is people just saying its all in your head when your in agony every day of your life and all you want is to be normal again im a 23 male I have had fibro for the past year and its a living hell my heart goes out to all the people suffering from the horrible illness
willeystyle 6 months ago
@ItsSheepyTime;I know exactly how you feel./; I barely got diagnosed with FibroMyalgia,and everyone thinks that I'm just pretending to be in pain. They don't know how it feels to be in this much pain,to not be able to move and to just keep crying because it hurts so badly. But it's not just an act. And my medication just makes it worse.
lexxibear16 6 months ago
I recommend a really good book by Janet Hurrel called The Journey Through ME?Chronic Fatigue and covers everything you need to know about Fibromyalgia. You can get it on Amezon and its on Ebay
essy111 6 months ago
My dad is in constant pain everyday every single minute and hour of the day, Because of an injury, Hopefully surgery for this disease. He HAS fibromyalgia and as soon as I saw this I was like oh my god, Every time I'm with my dad I feel his pain and worrie about how everyday is a struggle for him, He can get grumpy because of it, But he trys not to.
woahXgirl94 6 months ago
Holly, I can relate to everything you are saying. I was an athlete and had to stop playing softball about 15 years ago (I played for 25 years including college ball. That was depressing for me.
The only thing that makes me get up and use my muscles everyday is my dog. He is a certified therapy dog...but not for me.... I use him to volunteer at my local library helping children to gain confidence in reading aloud. He has been my savior. I battle daily with pain. My dog makes me walk 3x a day!
kevinspaceysno1fan 7 months ago
I was diagnosed with Fibromialgya about a year ago even though I been suffering for years. They diagnosed me with both osteoarthritis and rheumatoid arthritis and I knew there was something wrong with me... But I tired everyday to battle this conditions and enjoy the most I can out of life even if it means living the rest of my life with pain.
Kismetbloodmoon 7 months ago
Holly hang in there, I can relate to your everything in your video and more,keep smiling :)
jamzo261 7 months ago
cont: so yeah been doing this routine for like 2 weeks and my shoulder pain and tightness have rapidly eased off still got a long way to go though. Just trying to say check your own body for muscle imbalances which could be bending your spine and correct em and your myofascial pain will go. This wont work for people with true fibromalgia cause its a totaly different cause.
Natureboywhooo 7 months ago
Alot of people say they have fibromalgia but havent got it, they will have myofascial pain syndrome which has more or less the same symptoms. If your muscles are hurting get your spine x ray'd if its even slightly bent they can press on your nerves and cause fibro symptoms. Ive had this problem for years and realised my back muscles on one side are strong and well tight and on my other there weak and lenghened, just started streching my tight strong side also doing core exercises cont:
Natureboywhooo 7 months ago
Keliata, please become a person... you sound much like an monster, you know! Show some feelings. It's amazing how stupid people can be when they don't know enough about something...
zanaduarte 9 months ago
Please, please go see MaxGXL by Max International. IT IS WORKING. I am now free of pain. Do yourselves a favour.
2080fl 10 months ago
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I'm a retired RN with FM and Sjogren's disorder. In the 1950's people with MS were told it was an emotional/mental disorder. I do wish the people who don't believe it is real could experience it for 1 wk. Critics simply have no idea. I was granted SS Dis first try (rare), 15 yrs ago by a very skeptical judge after a 15 min conversation with me. Of course I wanted to go from being a productive, caring RN, $55,000 yr to $1200 mo + ridicule. I'm just so much happier now! I miss nursing everyday.
AK2161P 10 months ago
Amazed at how many others have this. I have had Fibro for years but did not know what it was, some days could barely get washing hung out because arms filled with burning like lactic acid, would take my breath away. I have had Epstein Barr Virus (Glandular Fever) twice and Shingles, lucky with shingles though, caught it before 72 hours and had injection to stop it. Have advanced austio arthritis in numerous places.
I don't remember, what not having pain is like.........
Is there help???
jodyfarquhar 11 months ago
Everyone with Fibromyalgia should get an MRI brain scan to rule out a possible neurological base such as brain tumour, Chiari 1 Malformation or Syringomyelia.
jetbax13 11 months ago
hurts so bad,, why does none belive us? i am a nurse and am in jeprody of losing job because the pain is so bad, nothing is working
ljb415 11 months ago
Got fibro? Do yourself a favor and check your medical records to see if you'd taken Cipro, Levaquin, Avelox or any other quinolone antibiotics in the weeks or months prior to your symptoms arising. Doctors give out these terribly poisonous drugs like they're candy, and they are known to cause DELAYED REACTIONS that mimic fibro symptoms nearly perfectly. Because of this delay in reaction time, many people never make the connection between the drugs and their new mysterious health problems.
papatoony 1 year ago
@papatoony Im 18, with Fibro. I had german measles young and I assume I was given antibiotics at a very young age. I have always felt pain.
Laura65177 1 year ago
@Laura65177 Quinolone antibiotics are the ones you need to be concerned with, they are the ones that cause horrific delayed reactions. They are also NOT approved for use in children because they screw up kids' cartilage! I would suggest anyone reading this steer very clear of all quinolone antibiotics they are BAD NEWS.
papatoony 1 year ago
Has anyone tried gluten free/dairy free diet for fibromyalgia? Thanks for the video, it's comforting to know someone else knows how I feel.
jtooj 1 year ago
@jtooj I have tried it for a brief period of time. It didn't really do much of anything for me. I do have to say when I eat a healthier diet and cut out sweets and sodas it's hard for a few weeks because of the lack of caffine but after that it's actually been better for me since I'm not having all the added little negative withdraws and drops in blood sugar. While they aren't that noticable to the average healthy person I did notice a difference once I quit them for me.
KronicAdiktion 1 year ago
Moving mountains FTW
d4ni5h 1 year ago
Do you have any advice for someone with Fibromyalgia? I've had it for years now and it is very limiting. I have tried many things but still can't get a full nights rest nor stop the pain... Anything would be helpful. Thanks.
KronicAdiktion 1 year ago
It's always strange to hear someone having the exact same symptoms as you do. I'm sixteen, and I'm in pain all the time too. And no painkillers help.
OmgDroppedLollipop 1 year ago
I suffered with Fibro for many years and found a simple safe cure. Please contact me and I will send you a link to this info. It is FREE except for a few things you will need to pick up at the health food store. You will have to change your diet. If you are desperate to try, I would love to send you this info.
CuredForSure 1 year ago
@CuredForSure please send me the info... i'm 20 and have suffered with fibro for 4-5 years now.
sea9529 1 year ago
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@sea9529
Please email me at suesurla@hotmail.com and I will send you links that you will need with info about why body PH is so important to our health and also links with food lists containing the foods that you should and should not be eating and other instructions that you will need to get started. I have nothing to sell or to benefit ...just the desire to let others know that they DO have some control over their own health. Sue
CuredForSure 1 year ago
gemini16th believe me this is no ballshit.hope you get it.
broadbanks 1 year ago
i also have this iv had it since i was 16 im now 32 ,i get stabbing pains all over body,chest, back just all over ibwas diognosed with fibromialgia in 2003.since iv had this problem i constantly think im gonna die this has been goin on for 16 plus years.i have 5 kids and a wife who all have to go through this with me,,people just dont understand,i need a proper test to prove its fibro at the minute there is none so until there is im gonna always think the worse ,hope this makes sense,take care
broadbanks 1 year ago
i totally understand what your going threw and there is nothing that has made my pain any better i can,t have no one touch me.Itake showers and the water hurts me.Iwould love to be pain free and suicide has crossed my mind many many times.what to do.
kuehlpamela45 1 year ago
@gemini16th what is wrong with you? i hope you get something like this so that you will know what its like to be in constant pain, suffering. and having no escape. It IS a serious illness. you are stupid and selfish for thinking otherwise.
kinkster85 1 year ago
@gemini16th I wouldn't wish this illness on anyone - it is ruining my life. I am a 19 year old girl, and I still cry in pain. How pathetic is that? And you know what?! I'm not even eligible for benefits. Yeah, you heard. Most of us with fibro can't work, and aren't entitled to any help. It's not that we don't want to work - I'd give my last breath to be able to lead a normal life. Your comments are hurtful and derogatory and I hope one day you know how it feels to have to 'live' like this.
Fiolacola 1 year ago
@Fiolacola Sweetie,you are not pathetic and neither am I.I too was 19 when I found out I not only had spondilothesis but fibromyalgia and raynauds disease.I am 30 now and I know what its like waking up and feeling like someone has beat the crap out of me all night.Don't listen to someone like gemini 16.Probably just trolling or just so full of hate.We have to keep on keeping on until someone finds something to cure this thing.Much love and many blessings :)
mommastcb 1 year ago
Well said Gemini16th.
I know a person who's mother 'suffers' from this. In reality she is controlling his life and has used this to prevent him ever living his own life. Its just so incredibly selfish it makes me angry for him.
ohpleasereally 1 year ago
@gemini16th They complain about taxes, yet they vote for politicians who cut taxes on the rich, but not the lower and middle classes. The same politicians who keep spending wildly on the military and keep putting us deeper into national debt. These same people even put us into a bankrupt war that cost us 3 trillion dollars. Yet they complain that even a single family receives 100 dollars a month to feed their children for only 6 months, families who were laid off from work due to a bad economy.
blobvision 1 year ago
@blobvision I am very lucky I live in Australia free medical and drugs are only around $10 we are the lucky country I could not imagine living in a country where you are not looked after with health care................very poor on the USA behalf
patrick45sue 1 year ago
@gemini16th They're even ignorant of economics, as they tend to believe that welfare and other government funded social service programs are the main use of their tax dollars, despite the fact that these programs see less tax dollars than military spending alone, which Republicans keep increasing. The military is the reason why taxes are so high. The US spends the least on welfare than any industrialized country in the world, yet they keep complaining.
blobvision 1 year ago
@gemini16th Conservatives love to be selfish and immature. They love to make up their own facts, basing them on prejudices and ignoring scientific evidence on everything ranging from medicine, history, economics and race issues. They profess to believe in the Christian god, yet they abhor everything Jesus commanded of us, such as charity, kindness, compassion and love. They hate the poor and sick, unlike Jesus. Nothing they do resembles the mature responsibility they claim to possess.
blobvision 1 year ago
This is caused by inflamation . Sugar and vaccines are are number one causitives. Then other toxins in your food and environment. Go to dr. mercola's website it is his last name plus a dot com. For eye opening facts about vaccines go to (all one word) think twice . com Drugs are only a temporary help. Nutrition and reducing your inflamation causes will bring alot of help.. Study the healing testimonies on awmi dot net (put it together)
cottoncandypoms 1 year ago
Hi, it's me again fl2080. I am taking a supplement that helps produce Glutathione into the body Glutathione is the Master of antioxydants. Go see your doctor and tell him that you want to be tested (blood test) to know your Glutathione level in your blood. I am sure that it will be very low and that is why we have that disease. It is also proven to be the case for all the diseases. Please, please all of you, ask your doctor for that blood test, insiste if he thinks that you don't need it.
fl2080 1 year ago
I'm sorry sweetie........I know what ur going through not much helps but here's a tip when things start poping out of whack try a sports trainer they are really good and often work the first time...also try stretching i find it helps but i can never seem to get the pain 2 go away so what i've had to do is take medication for what i can fix rather then what i can't like meds for stomach and chronic headaches is about all i find that helps anything go away.......I pray alot an find hobbys 2 get by
lillmissbaaadasss 1 year ago
I am from Canada. I saw your video which is very touching. I too suffer from Fibromyalgia.Type the words: MaxGXL+fibromyalgia and look at eveything there is on the subject. I swear to you that since I take it I feel much much better. this is not a scam I swear. I would never give hope to someone who suffer the same that I did. You have nothing to lose and everything to gain believe me. I was very sceptical myself but like I said, I have nothing to lose. I hope to hear from you.
fl2080 1 year ago
I too am a fibromite. Thank yu for posting this to help raise awareness. I have lived with it for over 11 years and only got my diagnosis 2 years ago.
greenmomoftwo 1 year ago
Hi Kestraly! Thank-you for sharing your story and suffering. I too suffer greatly form fibro and it is nice to know I am not alone. Please ignore Valerie below. She is trying to sell us her 'cure' and i se-mailing every person that has a link to any fibro video, etc. I am just wanting to see videos and make supportive friends and every time I find a video here tonight, she is selling her cure. Take care. *HUGS*
energyila 1 year ago
@ValerieLumley hi again, with myself yes i have feel down the stair 2-3 times because i have meniers disease and didn;t know about it for years, my mother lets just say had a bad child hood so yes she did have back injurys and also we both have arthritis of the spin, my uncle i don't think have ever had an injury but my brother had a very bad bike crash where he flew over the handle bars coming down a hill. hope that helps, but ask more if you want bye : )
moonwitch1981 1 year ago
@lightisnotmatter I have been so lucky after 18years of having this illness i have never suffered from depression even though i can go 2-3 days with out sleep and then totally crash for 24hours.My heart really do feel for the people with this illness and depression. brightest blessings.
moonwitch1981 1 year ago
I have FM/CFS/MCS and attribute getting it from exposure to insecticides and was
wondering how many of you with FM were exposed to insecticides at home or at work
just before you started getting tired and achy? Thanks
lightisnotmatter 1 year ago
@tracytalks2u do you still take Lyrica? I take Lyrica, and numerous other meds.
nyc2hnl 1 year ago
@grimelab heartless bastard
jrtd47 1 year ago
This is tough, but so true. God bless everyone with fibro.
janiejeans 1 year ago
They sound British. At least the UK has a national health care system unlike the U.S. ::sigh::
LoveToday8 1 year ago
Dear Girl, go to Ukraine ( Crimea) they will treat you. I have got the same problem, hashimotos desease and fibromyalgiya. In UK you will never be treated it, I swear!
Noorghamwaw 1 year ago
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slopok8225 1 year ago
@slopok8225 Oh m8 thats awfull but I understand been 12yrs for me now and im sick of being sick&in pain as you obviously ;;no;;
floydgirl7 1 year ago
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mnm508 1 year ago
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@Pichukid456 there were even some doctors who thought i was a whiney complaining baby and was threathning me with painful procedures..
hang in there, do what you can, take it easy, take all the breaks you need and WANT and then dont feel guilty about it either! Enjoy anything and everything.. it certainly helps..
Develop some passionate hobbies, it really keeps one motivated
StuckWhereIAm 1 year ago
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@Pichukid456 there were even some doctors who thought i was a whiney complaining baby and was threathning me with painful procedures..
hang in there, do what you can, take it easy, take all the breaks you need and WANT and then dont feel guilty about it either! Enjoy anything and everything.. it certainly helps..
Develop some passionate hobbies, it really keeps one motivated
StuckWhereIAm 1 year ago
@Pichukid456 best is to ignore or reolly their ignorant comments.. I had this since i was about 12/13 too.. But at that age i thought it was normal, so u can imagine i was quite miserable, it helps to have the support of family and frnds (now i barely pay attention to what those other people have to say).. I get crazy angry if i get even a hint from someone who thinks i'm slacking or irresponsible..
StuckWhereIAm 1 year ago
Bless them for making this video and putting the reason for fibro in such a concise and accurate form: less seretonin in the brain .. causes the lack of muscle relaxing during sleep... story of my life!
hope research does something ssssoooooooooooooooooooon (and good to know there's other young girls around my age with this.. the rest of her families quite well aware like mine too.. by now)
damn shtraight about dem massages! i wished they were free and available 24/7 .. haha
StuckWhereIAm 1 year ago
Her last line say it for anyone with fibromyalgia .
"I'm just gradually trying everything that I can think of, in the hope something will make it go away."
westpur 1 year ago
hi
i am doing an assignment on Fibromyalgia i need some hand out or brochure to give to my class. can anyone please tell me who to contact.
mortaza1111 1 year ago
@slopok8225 I am trying to start A network of symptoms, Bad Dr's, Socio-economic similarities BUT NO energy! LOL
Keep it up, BABE!
FIBRO HELL MICHELLE
mcertonio 1 year ago
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Im sitting here... With a handfull of sleeping pills and a bottle of vodka... Hope that will do the job... I give up...
haczu86 2 years ago
i have this and i am in pain every day.. it sucks....
italiamom 2 years ago 2
Thanks Janey, I think (hope) the yeast is under control. If it returns, I'll tryout your remedy.
I had a blood test which reports a problem with my " Serum C protein levels" which was borderline dangerous. It would have been higher when I was in more pain. I'm due to have it checked again soon.
The pain has died down now but there does seem to be some permanent damage in the shoulder joints. I get sharp "ringing" pain when I put on jackets that doesn't have much give in them.
Jeorney 2 years ago
Visit the sight it cost noting to ask questions.
Janey3571 2 years ago
I agree diet and liver cleansing once every 2 week via enema bag. No, I'm not kidding. I had fibromyalgia with chronic psoriasis and now with nutrition(raw diet) no raw meats only cooked, enzymatic therapy with fish oil, I have completely eliminated both problems. My psoriasis has been in remission for 6 month and my energy levels are out of the roof. I eat a salad consisting of shave carrots, the tender shoots of asparagus cucumbers apples onions tomatoes with my own raspberry vinegarette...
fringefries 2 years ago
I wanted to share with everyone my journey over the last 6 months. I have cronic fatige fybromyalgia as well as Cervical Spondilytas. I have had this for the last 14 Years. A young age for all this as i am only 44. I have been seeing a Osteomyoligist. Who has just changed my life. I had a food intolarance test which showed, i had no vitamins, digestive enzimes, alot of the food i ate my body was intollarant to. I changed my diet, and yes Sugar is a big no no with this condition.
Janey3571 2 years ago
pleaswe look into 5-htp thanks
yourboyken 2 years ago
how did you do it? pls tell!!
TheFatoink 2 years ago
fibromaljia or whatever sounds like a viral infection it's just the greek name for pain in the muscles or joints I forget which one .. Docs dont even know what causes it Fibro -- just sounds MEDICAL so you get billed big money
feedbacksol 2 years ago
Got diagnosed today!!!!
After 5+ years of pain!!
Understand EXACTLy wgere you coming from...
000diablo 2 years ago 2
Hi,
My name is Laurie. I just have taken the third SAVELLA pill, and I actually have been able to sleep without so much pain in my joints, side, chest and shoulder!!! My doctor had changed me from synthroid to Armour thyroid, and I still was having pain. She's tested me for EVERYTHING and Monday, June 15, she started me on Savella because we'd tested for everything BUT fibromyalgia. Savella has allowed me to walk down the stairs with out pain today,
Laurie Cheslak
Lauriewriter 2 years ago
it sadly did not work for me but he is an amazing man. I am 33 and was diagnosed by age 20. I rook the meds for 2 years. God bless you. I am so happy it is working for you. my only advice- smile- dream big- listen to your body- and for the rest of your life swear off all the pain killing drugs, killers in themselves. i wish you well. kit
namastefaith 2 years ago
did you know if you go to a vector born disease dr he or she may be able to help you . also did you know the same treatment that is for lyme disease only from a lyme specialist can also help people with fibromyalgia please look into it . I don't like seeing people suffer like me. we have similar symptoms some would say the same symptoms please see my video I have chronic lyme disease
mitchbguitars 2 years ago
I have had fibro for many yrs. The doctors I've seen haven't been very helpful. In doing some research of my own I noticed the similarity between fibro & lyme disease. Do you know the name of the medication used for lyme disease. I don't think we have any vector born disease specialists here.
Dellaruth 2 years ago 2
i just happened on this fibro vid and noticed u'r comment. living in old lyme, ct and having had lyme disease twice - i can tell u that u need to see a dr. who knows about it. lyme disease is caused by a spirochete bacteria and needs to be treated with antibiotics (preferrably doxycycline or amoxicillin) .
i've had both illnesses and they are very similar. getting screened for lyme is a must.
best of luck. :)
TruAletheia 2 years ago
Hello Dellaruth IM sorry you and others have to go through this. :( the medicine that was used for my lyme disease is called Doxycycline & Vancomycine & Rocefton & tetracycline Also Zithromax these were used in different combanations = IV & ORAL
mitchbguitars 2 years ago
omg i so understand this i got the diagnosis when i was 13 back in 2000 and fibro doesnt need to be a life sentence u can learn to live with it even when the drugs dont work thanks for putting this on here its so true!
pamela1724 2 years ago
I tried chiropracty, massage, epidurals, exercise, etc. If you have low back pain, mid-back pain, or WHATEVER it may be, there is a really great read called "Healing Back Pain" by Dr. John Sarno. It conveys the most Responsible Content on the matter that I have ever come across and is NOT "about" anatomy in general. You can google his name they probably have the book at your local library. P.S. I've had 2 discectomies in the past - didn't know better, and...yeah, it's a really worthwhile read.
itrainsinoctober 2 years ago
For all those who feel that people with Fibromyalgia are faking their pain I can assure you that they are not. I have personally spoken to dozens of people who have come in to our treatment center almost paralyzed from this disease. I wish the best of luck to those of you seeking treatment
bayrecovery 2 years ago
Acupuncture: I am a firm believer!
FrigginBecca 2 years ago
I have just started going to a special chiropractor that deals specifically with the nerves. Only had 2 treatments, but I hope it works.
najibandtaressa 2 years ago
There is this other guy Alex Chiu with his Immortality Rings, he treated lots of fybro myalgia cases. I had his Immortality Rings on and it certainly did help my pain a lot.
alexapollo22 2 years ago
I am 36 and have really never felt will since I was in my early teens. I was labled lazy by teachers when I could not get up in the morning because I was always tired and achy. Everything seemed to be an effort. P.E. was torture even although I was a fit, slim and healthy teen. I had my kids at 23 and 24 and spent the majority of the time sleeping. I could not function for total and utter lethargy.
portreekyd 2 years ago
For me fms for 20 years was caused by a stupid dental infection not some unknown brain disease.
choooglin 2 years ago
how did you take care of it ?
Squabbles10 2 years ago
i have had fibro for about 5 years now but just recently got diagnosed. this video really touched me, there arent alot of young people with this and i feel like i am alone.
lolodamico 2 years ago
hey. i just wanted you to know, you are NOT alone..i am 22, and i have had fibro since i was 3 yrs old..i am currently undergoing biofeedback therapy for it..i hope it works
esyale187 2 years ago
I just started bio-feedback - how is it going for you? I notice that my pain level is a lot better and I have been getting more good night sleep - and don't wake up during the night. I hope that it is helping you. I also think that finding ways to relax the stress out of our musles helps as well.
najibandtaressa 2 years ago
i think i am noticing a difference! oh im so glad ur getting better!!!!!!! this is amazing
esyale187 2 years ago
I know that feeling all too well esp. when doctors keep saying you are too young for all of this pain. Trust the body your in, not the information you are fed. I know those lonely nights wishing someone could shoot my whole body up with novacaine, laying on ice, and thinking i was already half way dead. 13 years later, yes i am still in pain, and yes you learn that we are all in our bodies ALONE, but for all of us to stick together and have faith together is healing in itself. xoxo
namastefaith 2 years ago
This has been flagged as spam show
Read about Gerson therapy and whear grass juicing .
bulgarotangra 2 years ago
I had fibromyalgia for about 4 years, tried everything. Some treatments did nothing others eased it a bit. Finally bought a portable infrared sauna. Got rid of it completely.I have to keep it up though otherwise it gradually creeps back
twazzercheese 2 years ago
Umm. hi there . my mom has Fibomagyia, and it has realy had a huge inpact on my life, shes just not the same. what does infrared meen? we have a sauna in our building but im not sure if its the same as yours. ive been living with a depressed women for 2 years. School isnt the same, friends arnt the same, nothing is the same PLEASE reply to me, please,
NAKEDPISTOL1994 2 years ago
One time they made me park up on the hill & I had to walk down all the stairs and I fell down them. They could care less. I'm sick and tired of all this "all in your head" bs. These pains started since childhood. They need to stop letting companies like Phizer dictate the research and actually do something about this.
missmarie273 2 years ago
I hate it! It's so hard, because I look young and healthy on the surface, ppl think I am completely making it up. I just wish it would go away. I go to the Univ of WA and they make me feel like a criminal for even asking 4 accommodations. Even though I have a disabled plcrd, they continue to ticket me 4 parking by the handicap bec not enough spaces, & tell me to walk down the 3,000 stairs just like everyone else. Doc notes are never good enough either.
missmarie273 2 years ago 2
It's hard isn't it. I think it will always be "in our head" to other people. Pain is such a personal thing. And to top that we are just too worn out all the time to complain about it. If we were to do that, there would be no bright side anymore.
Just know that there are people who DO understand you, other patients, and maybe a close family member. Don't lose hope.
JosVanOosterwijck 2 years ago
I can relate. Hang in there. I will if you will.
kdc300z 2 years ago 3
Your comment is childish and rude! However no matter how stupid you seem by saying this. I wouldn't wish this on you. Ignorance must be bliss. Time will change and one day you will change your mind. I just hope you don't have to go through this in order to get to that point.
mtbearm 3 years ago
Saying that it is "quite easy to diagnose" is not true for most of us. Some of us go through years without being able to get a DX. We suffer in "Limboland" questioning if we are crazy and going through one possible dx after another before we ever Know. It can be easy for some to get a dx but only for a small amount of people.
Also it should be noted that it always looks easy to those who have not gone through it themselves and haven't seen you at your worst.
mtbearm 3 years ago
Excuse me I have had fibro for 18 years now, got diagnosed last yr. And with the diagnoses of MS I was taliking about, there are test out there that shows if you have the disease or not, I know 5 ppl with it!! Anf I DO NO WHAT IT FEELS LIKE!@
jessi1971 3 years ago
I understand that you were talking about MS. Which I have along with Fibromyalgia. In your statement you said you "know" people with MS not that you had it. If you are upset by me not agreeing with you that is your problem. I have gone through both FMS and MS so forgive me if I have a different view then you. They do have tests for MS but it is not easy for all to get the DX. I stick to what I said and wish that you had not taken it so personally. Good day to you.
mtbearm 3 years ago
Sorry that you have to go through all of that. But,you dont have to be so snippy!! All I made was a comment and my brother in law stays on top of all the new news on MS and that is what he told me!!Im not gonna argue with you anymore about it, its a waiste of energy!
jessi1971 3 years ago
hey im 23 and a mother of two great , but ful on lil boys. I hav had fibro pains since i was about 3 or 4 and was diagnosed when i was 17. since then i hav developed more pains in many differnt parts of my body. I am so over this illness as not one thing i hav tried has helped. The hardest thing for me is that i can not do all of the daily things a mother should do for her children. If i could change one thing it would be to wake up and actually feel rested and refreshed
hunterdamin 3 years ago
im 19 now and have had it since i was 14... doctors hadnt a clue and thought i was making it up... i cant remember what it feels like not to be in pain.. im here trying 2 study for an exam and am tryin to imagine how easy it would be to ace every exam if you didnt have to study through chronic pain!
egurly7 3 years ago
I was also diagnosed with M.E three years ago. Being just 16, it ruins your life. I'm happy to talk to any other suffers about the conditition or just to brighten their day (:
Best of luck to people suffering.
SpongeBobGemPants 3 years ago 2
i've had it fully since 22 but looking back i've really had some of it since earlier..i'm 37 and am over the fibro largely but i've still got immune system problems which make my life hell...fibro is a nervous, immune and hormonal overlapping condition..
vincent4500 3 years ago
I so agree with you on the fact that it is neural, immune, and hormone related. it is what my body has always told me but what the doctors refuse to believe. I also have enometriosis, a weak immune system, a hormanal imbalance, arthritis and I could go on, but I see you understand. If anyone had any sucess with supplements or diet please let me know. I have run the gammit, but refuse to give up.
namastefaith 2 years ago
Hi,
I'm soon becoming 19, and they diagnosed me recently after 3 years being in all those pain and the doctors keep telling you just to relax and saying the pain you feel is only from 'stress'.
I understand it's hard, because I'm going thrue the same proces of 'accepting' it. It's realy hard, I'm in so much pain and even go to school seems imposible, or only for a day or 2 and then be sick again.
I realy hate it. I wish I could have a normal life, and be able to get a diploma or so :(
Althaea7 2 years ago
My girlfriend was diagnosed 2 years ago and she's now 21. She lives with pain every day and had trouble going to school. Her college lasted 2 weeks and she recently had to stop. But she will be going back in the fall.
My thoughts are with you. I understand completely what you're going through. Stay strong and don't let it get you down :)
russellblevins 2 years ago
the sickness isnt harmless in any way it seems :*(
is the massage and the painkillers only way to help it ???
Shetyre 3 years ago
I am 17. i was diagnosed this summer. I've had it going on six years.
Totally know what you are going through.
ariheart 3 years ago
sAME HAPPEDED TO ME, i AM 37 JUST GOT DIAGNOSED A FEW MONTHS AGO, BUT HAD IT SINCE I WAS 19!
jessi1971 3 years ago
I am 35, male, and have had this since I was 21. Yes, very dehabilitating. I have tried everything I can to help relieve the pain. Nothing helped much. However, I used to live in the UK and now live in the sunshine and warmth of Australia and I have noticed that the warmer weather has given me a reduction in symptoms. :)
ianhit 3 years ago
Since my diagnosis, doctors haven't helped me much, but my faith has.
I am strengthed everyday by God.
I am so blessed to have my family who is there for me, my true friends who have actually stuck by me, and new friends. Each and every day is a blessing.
bonjovilover 3 years ago 2
Since my diagnosis, doctors haven't helped me much, but my faith has.
I am strengthed everyday by God.
I am so blessed to have my family who is there for me, my true friends who have actually stuck by me, and new friends. Each and every day is a blessing.
bonjovilover 3 years ago
i liked the video. I feel sorry she has to suffer this so young. I hope doctors finally find a cure or a treatment that really works.
Best wishes.
HACKEMBRUCH 3 years ago
my mom went 2 the hospital yesterday because she had pain and the doctors just told her she has fibromyalgia i hope one day theres a cure
1luckymother 3 years ago
I have been suffering from for 19 years, I was diagnosed two years ago. I do Lu Jong once a week, for over a year, inicially it was painfull and tiring, but makes a huge difference. I prefere exercise to medication, it is more benificial. Also apositive mental attitude is a must, negativity will make us go down hill. Keep active in any possible way, even if it just means walking more than you usually would. I paint, try to play guitar and sing, whatever makes me feel good!
mysteryteacher9 3 years ago
The only thing that has slightly improved my condition is fun exercise. It was hard to start it because of the intense fatigue and body pain, but, after finding some motivation (via a silly kids show), I began to do fun exercises and, amazingly, began to gradually feel slightly better, have a little more energy, and my sleep cycle improved a bit. Of course, too much exercise can hurt, so it's important to find your limit and do fun activities without overdoing it.
sportagirl12 3 years ago
I was Diagnosed over 10 years ago. The only thing that makes life bearable, and beleive me I've tried EVERYTHING. 1. Lots of exercise (LABOR Intensive Jobs :) "Migth as well get pay'd to feel better") and here's the most important part....... A medicinal Plant that God placed on this earth to heal mankind. You can get medically certified in several states for this condition.
hggns81 3 years ago
Sounds like my story. I'm in my early 20s and have had fibro since I started high school.
sportagirl12 3 years ago
Iv been diagnosed with Fibromyalgia and Raynaud's Phenomenon.
im 17 years old and im finding it really dificult to explain this to my parents.
My parents only speak Arabic. However, i can't speek it very well so its really hard and they just dont get it.. My mum just thinks im lazy and i friken hate that..
And its true.. i also dont remember the last time iv had a reall sleep
Thanx for this vid.
ADyingTragedy 3 years ago
Perhaps an Arabic-speaking doctor could talk with your parents and explain your condition to them. Sometimes that's the only way relatives will understand that what you have is a real condition (if a doctor sits with them and talks to them about your health problem).
sportagirl12 3 years ago
lol i AM 37 YEARS OLD and both me and my mom speak the same language, and she still thinks I am lazy and I showed her all my paper work for the illness!!!Actually most of my family thinks that! I gave up trying to explain it too them!!
jessi1971 3 years ago
feel your pain, i'm 37 and it's been a nightmare to explain this to anyone..recently though my mum has started to get some of it..took 15 yrs for her to get even what she does now...it's a cruel condition as being outside the norm we're subject to disbelief and sceptiscm as well as rejection
vincent4500 3 years ago 3
I've had pain for 2 years now and they still don't know what is wrong! MS or Fibromyalgia? Getting really tired of the pain!!
nopossi 3 years ago
I've been through the same thing. Hold on there!
mamabear2x2 3 years ago
This has been flagged as spam show
My chiropractor has almost cured me of fibro. It was due to pinched nerves in my spine that showed on x-rays, you just have to go to someone who has experience with actually reading them! Hope this advice helps! Oh yeah and don't say u have already had x- rays and the doctor did not find anything because you need to keep trying and pushing past the obstacles like I did. I could barely walk then, now I can run full speed!
MaestroBABrimer 3 years ago
Awesome video, my heart goes out to Holly. It's supporting to hear from others my age who also manage Fibromyalgia. People typically develop the disease when they're older, but its especially hard having to live with fibro when you're only a teen and in your prime years. It's really scary to wonder what it'll be like in 10 or 20 years. Having a positive attitude really helps though! It is possible to lead a normal life!! It just takes lots of management and a positive attitude! Good luck Holly!
blondemusicgurl 3 years ago
I have been in pain but not from fibromyalgia, I have found something for it and have friends that have fibromyalgia and it has done wonders for it.
parksdikurt 3 years ago
OMG how old is Holly? she seems to be about my age!! FINALLY, anothor girl my age who knows! what a relief to know I am not the only woman my age with this.. F**KING fibro anyway...
princesslaura2384 3 years ago
Hey princesslaura2384, I'm Holly. I was 21 when the video was made, 23 now. Glad you found this video. I know it helps to know you aren't alone. Thanks to everyone else who wrote supportive msgs too
pricklesxpq 3 years ago 2
I live in horrible pain every day...my life went from a 10 to a 2 in 9 years...stress flares it. I lost my oldest son 5 months ago in a accident...and my pain doubled.
wunderbarmom 3 years ago
where do I get this Kangen water from? I'd like to know because I don't have any medical and my life is almost non-existent. Just about everything I do takes more effort than I am even willing to give it, can you please give me some more tips, thanks.
girlneedingtruth 3 years ago
Orange juice produces the same level of negative ions as Kangen water. Kangen water appears to be a product designed to make money and not much else.
kestraly 3 years ago
agree ;-)
zebbie27 3 years ago
Having suffered 17 years, I understand. They didn't know what to call FM when I first had it. I started taking this myvemma(dot)com/GregGies and in 2 weeks I got off 9 medications! This stuff really works. Check it out, you have nothing to lose but PAIN. I wish you all the relief I have found (and I've tried just about everything). Hugs!
GoodGregg 3 years ago
Read from bottom up to make sense......... If you did not get WORSE during antibiotics you MAY NOT have a tick borne illness... if you did.....look further. My wife still has fibro, but she is getting better. Take care.
loggerbuck 4 years ago
Holly you're such an awesome inspiration! I love you always! Regards, Rutt
smokinaces100 4 years ago
Your lucky you have family and friends to support you, not everybody with a chronic condition has that support.
atigeronwheels 4 years ago 3
Keep up the good work, we need to raise awareness and find a cure!
HOLLYWOODCURE 4 years ago
loggerbuck you are like a broken record. Some people find something that works for them, then DEMAND everyone else follow them. There is NO one-size-for-all in fibro. If you are cured, great for you!!
2hotinaz 4 years ago
2hot, actually I very much agree with you. I just don't want people to ASSUME they do not have an infectious source for their problems. Even if one finds a Lyme related cause for their illness; people find many different paths back to better health. My concern is that Fibro is such a dead end Diagnosis.... which in reality is just symptoms of SOME SORT OF PROBLEM.
loggerbuck 4 years ago
It is a dead-end. Mine began with CFS, which I still have despite antibiotic therapy. Most of us have simply been too well poisoned by the environment, at least that's MY take on a lot of cases.
2hotinaz 4 years ago
My wife was dx with CFIDS and Fibro 6 y ago. declined until I got her to someone who could make THE CLINICAL DX for Tick Borne. 1/07 she was pre-terminal. Today she is about 30%. Must consider Borrelia, Babesia, Erlichea, Bartonella.. most have a "SOUP" of these critters skating around inside them.
loggerbuck 4 years ago
that's a fair point. i presumed everyone gets checked for lyme early on. and as far as i remember, most people have epstein barr but not fibromyalgia.
4ourthofjuly 4 years ago
Western Blot is typically negative in the Chronic Lyme person. A "CD57" lab test is specific to Chronic Lyme (Borrelia).... if read by a Lyme Competent MD. Also MOST labs are absolutely INCOMPETENT for run a Western Blot; and the sicker Chronic Lyme person is VERY likely to have a NEGATIVE WB. Use only IgenX if you persue this. Some are getting better!
loggerbuck 4 years ago
I too have fibromyalgia. Yes, supplements can help you. I have been symptom free for 6 years. I was able to do a triathalon in Sept. I am 44 years old. I watched a good friend of mine be bedridden for 2 years until she started on a supplement. Please don't give up. Their is much hope out there.
nutrition4U 4 years ago
Some people can still work andhave "episodes" some have moderate pain,some like me have severe pain constantly. I go to bed in pain and wake up in pain and my body can't heal,when asked to describe the pain I said imagine you were tied up and thrown off a 2 story building and a couple of days later you had started to heal and they threw you off again,pretty close. I pray they will find a cure my prayers go out to anyone who suffers from this
BillyJackets 4 years ago
Fibromyalgia is cureable! You see, drugs cover up the disorder. Muscles do not heal properly and need vitamins and especially cleansing. Absorption of nutrients and vitamins by good bacteria. I am currently taking vitamins, and bacteria for my fibromyalgia and feel way better. I got hooked up with these remedies from my naturopathic doctor and health food store.
MaestroBABrimer 4 years ago
If vitamins and nutrients have made you feel better, it does not mean that FMS is cureable. Sure, they will probably make FMS more tolerable, but they have nothing to do with the source of it. No offense, but if you think nutrients have got you to the point where you can almost say "I feel perfecty healthy" then maybe FMS is not your problem.
nkerio 4 years ago
car accident at 28yrs. took 2 years to spread all over and Myofacsial pain disorder. I tried many things. There are no cure, and everyone is so unique with this condition. I believe our muscles are traumatized and turned into hard tissue instead of being soft. A lack of oxigen not being able to go into the muscle is one of the causes I think. Guaifenesin as well has helped. Like having diabetes there's many different levels, just like fibromyalgia.
lady2464 4 years ago
I heard what your mom said at the end worried about what would happen if you had a family. Im a single mom, age 37, My daughter is 13. Ive had fibro for about 5 years. I still can take care of the house, my daughter, the dogs and cat.
You will have good days and bad days. But you still can lead a semi normal life.
gsmith35 4 years ago
Please stop by the fibro forums & let us know how your doing..:)
Peach1968 4 years ago
I have fibromyalgia, and I can tell you- no amount of opiate pain killers or anti-depressants can help the way cannabis helps. It really does work. I'm not a stereotypical pothead, nor am I lazy and unmotivated. The stereotypes are not true.
GlynnisO 4 years ago
Ditto. I don´t even smoke (5 years stopped now!), but sometimes I get so desperate with my fibro pain, I get some hash off friends and smoke a little bit of it pure, without tobacco, in a little pipe I have. The only problem is, I couldn´t go to work in the relaxed state I am in after, I just flop on the sofa and relax and enjoy that the pain is finally 100% gone! :D
vonfluffenstein 4 years ago
Great video! I guess it´s so much worse for you because you´re so young and you´re really missing out on things... I only had symptoms after I was 26, but lived more than 10 years without a diagnosis and endless useless treatments. An important thing you forgot to mention in the video though, I felt was that you LOOK normal/trendy, young and healthy so people do not see (nor believe!) that you are chronically ill... Good luck!
vonfluffenstein 4 years ago
maybe medicinal marijuana will help slow the body down. It does slow your system down maybe that will be a... improvement to this problem. I'm being totally serious.
VirusInferno 4 years ago
It doesn't "slow" your system down. What cannabis does, is switch off the sympathetic system and switch on the parasympathetic system. There are cannaboid receptors in the brain. If anything, cannabis has been shown to be an active placebo. What this means is that it produces a physiological change, which allows people to make mental changes. Cannabis does help with FMS pain and mental clarity.
manensol 4 years ago