@honeybabe214 I understand the frustration...big time! Any form of vasculitis can take months to years to get a confirmed diagnosis. Once that diagnosis is in place, treatment is short term. Give it more time and patience, that's all you can do. Good luck.
@Cheesewyck tnx a lot..now im taking prednisone 5mg 2 times a day for 1 wek,1 1/2 for another wek and once a day for the last wek..hope it will improve my situation..
im have red patches in my foot for almost a year the dermatologist said that this is a vasculitis ive done some test and i have and i have high urine infection...he gave me antibiotics but after i finish taking the medicine it came back again together with the red patches...this red patches will almost cover my whole foot..urine infection can cause vasculitis?pls help..
@honeybabe214 It's hard to say if it's related to vasculitis. The urine test checks for blood and protein to indicate something is wrong with the kidneys. Red patches could be a number of things not related to vasculitis. Keep in mind there are 15 types of vasculidities and finding out which one you have can take months to years to get a confirmed diagnosis.
@Cheesewyck now my feet are so bad it is full of red patches the doctor said it is allergic vasculitis..i take so many medicine but it keeps on coming back..im so tired to go to hospital because i think its useless...
What you say is so true!! There are times when I'm unwell, but, I dont have all the symptoms at the same time.. I also thought I had the flu, but about 4 weeks later it still hadn't moved,.and when you said you go light headed after eating I nearly fell off my chair!! so do I, and I just thought I was going crazy!! How do you cope with the periods of utter weakness??
Hi there, I have an update I had another mri scan but it came back normal. My doctor has now put me on prednisone 30mg for 2 weeks, then 20 mg for another 2 weeks, and 10mg for a week. Ive only started today. Im really worried about the side effects. Can you tell me if you had any bad side effects? What should I eat while on it?
To be honest I wish it was wegners as it could be something more serious and at least there is treatement for wegners. thanks for all your help really appreciate it.
@neil1758 You're welcome. Sorry to hear it's nothing we've talked about. Then again, them telling you it's not Wegener's is iffy too... I was told it's nothing until it presented itself more clearly as time passed.
Hey haven't been on this in a while. Just to update you I got the results of my blood and protien in urine test and it came back normal. I suppose its safe to say I don't have wegners now. It's really frustrating. There doing an MRI scan now to find out whats wrong. The sooner the better I just want to be better.
Hi Just saw my family doctor he said I have to phone up the eye doctor myself to ask if he will put me on steroids. This is so frustrating all i want is the medication to get better. This is a nightmare. my eyes and pain arent getting any better.
Hi Just saw my family doctor he said I have to phone up the doctor myself to ask if he will put me on steroids. This is so frustrating all i want is the medication to get better. This is a nightmare. my eyes and pain arent getting any better.
There saying i'm going to have to wait another 6 weeks. I'm going to see my family doctor on thursday and telling him I want on the prednisone as my eyesight it so blurry. Its so annoying. I just want treatement to get better.
I'm still waiting on my urine result if this comes back positive I'm sure I will be on the prednisone and immuno suppresants. It's still a waiting game just now.
Did it feel like someone is squeezing your eyes at back. The pain is really horrible. I think I need to ask for the Prednisone as the other tablets Flurbiprofen aren't doing anything.
I'm soooooooo scared. my left eye has been in sooo much pain recently and doctors can't figure out why. I wish they would just give me the prednisone now to see if it helps. Did you have really bad pain in your eye before you got treatement?
Hey man went to see my eye doctor yesterday. Its all a bit scary he wants to do more tests on me like an mri of my brain, more blood tests ect. I've been put on Flurbiprofen a non-steriodal inflammatory drug. I hope it works. I asked him about vasculitis but he said all my blood tests showed I am negative for it such as ANA and other stuff.
Hi I was just looking into this but what is the difference between lupus and vasculitis they seem to be pretty much the same. The doctor said I do not have lupus but how can i be so sure. I'm all confused.
@neil1758 Yes, same treatment but the dosage may be lower and it's also based on your overall body weight as well. You may be given nasal steroids and eye drops with steroids to reduce the inflamation if the vasculitis is restricted to that area. But the diagnosis is important because if you don't get it... Wegener's has the ability to worsen and get the kidneys involved; which is what you don't want to happen or you'll end up like me with the full systemic version of it. It sucks! LOL
@neil1758 If the urine test is normal, still get the biopsy from the nasal cavity only. Some people have vasculitis that's limited to one area and the kidneys don't get involved. If it's normal and you don't get it checked, you're getting a false sense of security that you're really ok when you're not. Don't fall for that.
Yeah I'm really hoping the diagnosis is a yes. I've been sick for so long without any answers. I still haven't got the results of my urine test and I haven't asked for a biopsy yet either.
@neil1758 The main thing you need is a confirmed diagnosis of vasculitis, the type of vasculitis (15 of them) and the severity of it. All of that will determine what medication you should be on and how much daily for the first 30 days. It's a bitch when you only suspect it and not confirmed yet. Give it time, you will hear yes or no to the diagnosis.
Thank god! its funny though because my hair only started to go thin since I started to get unwell so i'm sure it is linked. This vascultis affects a lot of things in the body. I just hope I can start using these immnosupressants.
This is a completely random question but i've found that my hair has been thinning recently. I don't know if this is to do with the tb treatement or maybe vasculitis. Did you have this problem?
@neil1758 Yes, thinning hair has to issues with Wegener's vasculitis... it could be from the vasculitis itself because of inflamation of blood vessels under the hair and/or from chemo.... methotrexate or cyclophosphamide. If you're not getting any immunosuppressant drugs then it would be from the vasculitis itself. That happened to me last year from the vasculitis. As soon as my immune system was being suppressed, my hair started growing DURING chemo! :D
Thanks I need every bit of luck I can get at the moment. Every doctor I have had until now thinks its in my head it drives me crazy because my symptoms are totally real and very physical. I hope this treatement works its the only hope I got. I'll keep you updated.
Cool. I'm still on TB treatement for another 4 months so i think they might just give me prednisone for now. I'll have to ask the doctors about that. thanks again for your help.
@neil1758 No worries. I hope it does help out to your advantage. I'm not familiar with TB treatment but I can still Google it. I would love to know the end result. My family doctor swore on a stack of bibles it was all in my head. In reality, it was all in my lungs, kidneys and partially in my head... the sinuses! Your body doesn't tell lies, it warns you that something isn't right. Remember that! Good luck!
Thats amazing! I really hope I get on the prednisone soon. I've been sick for too long now! sorry if i've asked this question before but were you put on methotrexate or cyclophosphamide at the same time as the prednisone or after you had taken the steroids? My doctor only talked about taking the steroids not the other ones. I wonder If I should tell him about them.
@neil1758 Actually, prednisone is the steroid treatment. Methotrexate and prednisone or cyclophosphamide and prednisone. But prednisone is definitely in there. You take prednisone with either of the other 2.
Did you find your eyesight improved when you were on the prednisone? I'm finding my eyesight is really blurry recently. The eye pain has always been there. I'm getting a really worried. The attitude with the doctors here is so bad, they don't seem to care and they always put treatement off till later. At the moment they can't do anything until one of the doctors comes back which is in 2 weeks time. I really don't want to wait that long. I'm still waiting on the urine results to come back.
@neil1758 yes! When you're on prednisone for 3 weeks or more, all the problems disappear AT THE SAME TIME!!! That's the good thing, you forget you were even sick. It's the confirmed diagnosis that's the bitch of it all. Without that they can't treat you for a suspicion.
Yeah my doctor did warn me of weight gain. that sounds really hopeful! it would be amazing to get rid of this sinus pressure and eye pain. I've not really had any skin problems though. I also get pain in my neck, arms and knees hopefully this will go away. How long were you on the pednisone for?
@neil1758 I was on prednisone from March 2010 to December 2010. The first month was bad, 60 mg per day everyday for the first 30 days. Then I started tapering off it. I must say, I've been scrawny my entire life and for a change fat sure as hell looked good on me. Now that I'm off prednisone since December, I REALLY miss my fat! LOL
Yeah my doctor did warn me of weight gain. that sounds really hopeful! it would be amazing to get rid of this sinus pressure and eye pain. I've not really had any skin problems though. I also get pain in my neck, arms and knees hopefully this will go away. How long were you on the pednisone?
Ok i'll ask for a biopsy of my nasal tissue. I was told im going on steroids so i'm guessing this is prednisone. What was your dosage of prednisone? I really hope it works the inflammation in my eyes and sinus is so bad. thanks so much for your information its really helpful don't know what I would do without it.
@neil1758 No worries. If you're going on steroids, more than likely it will be prednisone. The dosage I can't tell you because I don't know how much inflamation you have. It will definitely make a difference getting rid of the pain and around your eyes & sinuses. After 3 weeks using prednisone, you'll notice weight gain so cut back on your intake of food prior to it. Any skin problems, prednisone will remove them until you're fully off of it.
Ok where should I get a biopsy for? I have a lot of symptoms going on. My doctor said they couldn't get a biopsy from my eyes. Went to see my eye doctor and he said I have to get part of my eye frozen and I'm going to be put on steroids. What is the treatement for vasculitis? Do you know names of drugs? I'm going to see my family doctor again soon. I've already had a mri scan to rule out MS and blood tests have ruled out Lupus.
@neil1758 You need a biopsy of the nasal tissue, the lung, or a kidney. You can't biopsy the eyes, that's right. OUCH! LOL Treatment is prednisone and methotrexate or prednisone and cyclophosphamide. Either way, prednisone is part of it to get rid of the inflamation. The methotrexate or cyclophosphamide is to put your immune system into remission. Glad to hear you ruled out MS and lupus!
Hiya, I found out my results of the urine test for the blood and protien it came back normal. My doctor said that systemic vasculitis is not likely. I don't know what to do. I still have all these terrible symptoms and my eyes are soooooo bad. I'm thinking about seeing my family doctor again. this is so scary. Im soooo sick and no doctors will help me.
@neil1758 If the results came back normal, only the biopsy will tell the tale. However, if the biopsy proves nothing, then the Wegener's vasculitis has been ruled out. You could have a different type of vasculitis if the doctor has ruled out systemic vasculitis. You might want to also check for other autoimmune diseases such as Lupus, M.S. and Sarcoidosis.
My doctor said that my blood tests for my kidneys were absolutlely fine. This illness is strange and seems very hard to get the actual diagnosis. So if the blood and protein comes back negative can I rule out wegners? or is there still a possibilty I could have it? thanks for replying.
@neil1758 Nope, you need the biopsy of the 3 areas to rule out Wegener's. Nasal, lung or kidney. It's the negative results that give you the false feeling of secuirty. It's not like diabetes, hepatitis or HIV testing.... these ones come back easily. Those are more accurate. Autoimmune diseases can take months to years to get confirmed.
Hi just an update the doctor has sent me a urine casts test. I told him about wegners he said the urine test usually indicates whether I have it. What was the result of your urine test? if it is negative should I still ask for a biopsy?
@neil1758 Nope, the urine test shows signs of Wegener's, not the illness itself. The urine test would show blood and protein. The higher the levels of both blood and protein the more damage is being done to the kidneys. They need to biopsy the kidney, lung or nasal to get a confirmed diagnosis. The blood work didn't prove anything but that does not reject the diagnosis either. It's hard to get diagnosed because many things have to be ruled out.
thanks. I'm seeing my doctor tommorow so will ask about the biopsy and blood & protien in urine isn;t present. This is all so scary the vision in my left eye is getting worse. I know that I have vasculitis I just need to prove it and get treatement.
Hi thanks for all your help on here Cheesewyck. I'm still no longer to a diagnosis. Trying to make an appointment with my Family doctor soon. My ANCA however is negative.
@neil1758 I knew it would come back negative but I didn't want to get you worked up. Next should be the biopsy; which is more accurate anyway. The main thing is to make sure blood and protein isn't present in large amounts in the urine test.
I told the last ENT doctor I went to see that I might have vasculitis but he said there is no way to prove it and nothing he could do. The doctors over here don't seem to know what there doing. I get crusting in my nose and sinus pressure but never have nose bleeds. Did you get a lot of nose bleeds? I'm a bit lost to be honest every test i'm getting comes back negative when I know I have all the symptoms for vasculitis.
@neil1758 Nose bleeds are common but not everybody will get them. I got them my entire life even when I didn't have Wegener's. Wegener's just made the nosebleeds occur more often. The ENT "can" do a biopsy of your nasal cavity. Why can't he prove it? Maybe they don't specialize in vasculitis. A rheumatologist knows what to look for. They think of this all the time.
Yeah I have all the symptoms you are talking about pain in my chest, sinus pressure, eye problems ect. I'm pretty sure I have vasculitis but the problem is proving it. At this point I don't care about getting a diagnosis I've been ill for so long I just want a diagnosis. Do you know what type of doctor I have to see to get a biopsy? what type of specialist? I think if I mentioned Wegners to my family Doctor he wouldn't have a clue. what do they look for in the biopsy? thanks for all your help.
@neil1758 No worries, I understand what you're facing now. The doctor to get a sample from the nasal is an ENT... ear nose throat doctor. If it's from the lungs that's a pulmonologist and if it's a kidney sample it's done by a nephrologist. From all the problems you are experiencing, the easiest one is the ENT doctor, freeze & drill your nasal cavity, pull a piece and it will only bleed for about an hour. Results within a week or two.
I went to see my doctor yesterday about my eye. He showed me results of my ANCA test and it was negative. He is now ordering a test for the urine test with protein and blood. He told me its very difficult to prove I have classic vasculitis. Cheesewyck what were your results of the ANCA test? I think i'm going to see my GP again. I'm so sure I have vasculitis but its gonna be hard to get the diagnosis.
@neil1758 I've done about 7 ANCA tests since we "suspected" vasculitis and unfortunately every single one of them came back negative. A negative result makes you feel good...OH YAY I DON'T HAVE IT... not so true! The biopsy results came in 2 days after the ANCA test confirming I did have Wegener's. Therefore, a negative result does NOT rule out this type of vasculitis. If blood and protein are present in the urine test, your kidneys are now at risk.
@neil1758 Bloody mucus caused from crusting in the nasal cavities, chest pain when inhaling or exhaling and eye problems were the beginning of my problems. It was almost a year later my kidneys became a threat to me causing me to have a hard time walking... my ankles were so bad I had to crawl to the kitchen or bathroom on my knees to avoid the additional pressure on my feet.
@neil1758 Just follow the steps, I know it's hard. The most difficult thing is getting the diagnosis saying, "YOU HAVE IT!" Once it's diagnosed, after the first treatment your problems will start to disappear. Nobody likes to be diagnosed of anything but in this case, a diagnosis is a blessing because it's the beginning of ending your problems.
My son has wegeners and it affects his sinuses and then his lungs. He suffered fron "sinus infections" for years.Finally after being diagnosed he is being treated. if left untreated this is a deadly disease.
@BMXoLife You got that right! Even though it's not as dangerous as cancer, if left untreated too long it will kill you. My kidneys were almost down to 60% functional but because the suspicion for Wegener's was determined early, it still took long to get a confirmed diagnosis. But my specialist was so smart... do the biopsy first, then the treatment while waiting for the results. If we had waited for the results first the Wegener's could have done more extensive damage.
@neil1758 The chest x-ray didn't reveal much. It was the urine test with protein and blood including the crusting in my nose during the tear duct surgery that lead them to believe Wegener's was the culprit.
All my blood tests are coming back normal which is why they don't suspect systemic vasculitis. When you got blood tests was there anything abnormal such as a the kidneys? I read Wegener's Granulomatosis can affect the kidneys.
What do they look for in the biopsy? I'm not sure If I have it of the sinuses. My symptoms are a feeling of pressure in my sinus and jaw. did you have similar?
I did the tear duct surgery and that's when the suspicion for vasculitis was discovered. I would go right for the source.... nasal biopsy! Tell them to look for Wegener's Granulomatosis and Microscopic Polyangiitis. Those 2 vasculitis types rely on both the c & p ANCA tests. If I had known 2 years ago what I know now, I would have gone directly for the biopsy to avoid future "irreversable" damage.
what treatement should I demand from the eye doctor? I'm so worried about my eyes. they have done very little and I've had inflammation for over two months now.
I have no clue to be honest if my doctor has checked for c-ANCA or p-ANCA all I have been told is that I have vasculitis in my eyes. I have so many other symptoms going on and there all so similar to yourself which is why your video caught my eye. Most of the doctors I have seen don't seem to know very much at all about vasculitis.
@neil1758 There's a posibility you have vasculitis limited to the sinuses. That's also possible, yes. But you can't be told that without proof. That biopsy will tell the story. Request one ASAP. The longer it takes to diagnose prior to treatment, the more damage it can do in the mean time. Treatment is EASY AS HELL!!! The diagnosis is 80% of the battle.
Hi Cheesewyck thank you so much for all your messages. So far I have got that I need a c-ANCA & p-ANCA test, check for anti-neutrophil cytoplasmic antibody, Biopsy and Urine Sample to check for blood and protein in it. I was wondering what eye treatement did you get? My eyes are getting worse the pain/inflammation is so bad and I see floaters in my left eye and there both blurry. All they have done so far is laser surgery to seal blood vessels at the back of my eye which hasnt helped. thanks.
The doctor said He doesn't think I think vasculitis in other parts of the body as my ESR level which measures inflamation in the body would be high and it isn't. Is this true? I really want to know whats wrong with me it's really depressing I can't find a way out for all these crazy symptoms and pain. Please if you could provide more info of how you got diagnosed that wud be great or what tests my doctor should carry out.
@neil1758 It is depressing I know. Not sure what an ESR test is. It's called an ANCA test. The results are "ususally" negative which does NOT rule out vasculitis. Only a biopsy can be more accurate! Every blood test I did, proved nothing but the biopsy told complete opposite. One of 3 biopsies will work, 1) nasal 2) lung 3)kidney. Nasal is the least painful which is why I chose that route.
@neil1758 There are 2 ANCA tests!!!! c-ANCA and p-ANCA to search for 2 different vasculidity types. It's the c-ANCA test that is associated with Wegener's Granulomatosis. Wegener's is kinda iffy.... it's an illness to itself and it is also a vasculitis type. This is what makes a diagnosis so hard to do. It can take months to years go get a confirmed diagnosis unless you are showing TONNES of reasons to believe it's a particular type. Good luck, hope this helps!
@neil1758 Write down every symptom you get and how long/far apart they "occurred" Not every vasculitis patient gets them all nor at the same time. Ask your doctor to do a urine sample to check for blood and protein in it, that's a major sign (end damage)! Do you caugh up blood? That's a sign that it's active in your lungs. Are you having problems breathing through your nostils with lots of dried up mucus? That's the early stages sign.
@neil1758 Oh hell sorry...ESR, (erythrocyte ->red blood cells) sedimentation rate. That has NOTHING to do with vasculitis! It's the (Neutrophil ->type of white blood cell) that is high which is what he/she should be looking at. What they're checking is for anemia; which is standard medical practice when doing blood work. Vasculitis is when your immune system is dangerously high and attacks important parts of your body.... the blood vessels!!!
@neil1758 Sorry to message you so much but you really caught my attention. I CAN'T BELIEVE... your doctor is checking for vasculitis in red blood cells, where did he/she get their license to do medicine... in a cracker jack box??? That's why they keep telling you that shit. It's like playing BINGO looking for G17, there's no such damn thing! Hope that makes you smile!
@neil1758 Last response to your question. When the leukocyte...(White type of cell -> Neutrophil) attacks the antibodies in your blood vessels, it causes the inflamation. They need to check for the c-ANCA... anti-neutrophil cytoplasmic antibody! 80% of the time when looking for it, it doesn't show up. Doing the ESR... it will never show up because they're checking for it in the erythrocytes->red blood corpuscles. Red cells are for oxygen and carbondioxide transporting.
@neil1758 Screwed up my last message, shit! ESR does show inflamation but is not accurate enough when looking for vasculitis.... THERE, NOW I'M DONE! HAHAHAHA
The doctor said He doesn't think I think vasculitis in other parts of the body as my ESR level which measures inflamation in the body would be high and it isn't. Is this true? I really want to know whats wrong with me it's really depressing I can't find a way out for all these crazy symptoms and pain. Please if you could provide more info of how you got diagnosed that wud be great.
How did you get diagnosed? is it a blood test? any other specific tests? right now they found I have retinal vasculitis and have been having problems with my eyes. They suspect that the cause is TB however I've been taking the anti TB medicine for 5 weeks and had no change in the inflammation or vision in my eyes. I asked the doctor if he thought I had Vasculitis in other parts of the body as I have been having weird symptoms of fatigue, pain over the body, dizziness for two years.
Hi thanks for your reply. I've been so sick for the last two years doctors couldn't find anything until now. Although I've not had any treatement yet. Are you feeling better after the treatement?
@neil1758 After the first chemo treatment, all the tension with inflamation disappeared INSTANTLY! The hardest part is getting a "confirmed" diagnosis. Vasculitis has a way of mimmicing other illnesses which need to be ruled out first. Wegener's Granulomatosis is one type of vasculitis.... it resembles lupus A LOT. Try not to get them mixed up.
Hi there, thanks for your video. I currently have vasculitis in my eyes. However I have been sick for two years with pain in my body, severe fatigue, dizziness, and digestion problems. Is it possible I may have vasculitis in other parts of my body? is there any treatement which can help. I'm desperate.
@neil1758 Yes, if you have vasculitis and it's not diagnosed and treated in time, your chances of getting a second or third vasculitis type increases by 75%! They all cause fatigue, dizziness, weakness and weight loss. You may not get all symptoms at the same time. It took me 2 years to get one of them. Cyclophosphamide and prednisone are both used to treat most vasculidities. Hope this helps and all the best. Vasculitis is a bitch!
Hi thanks for your video it has really helped me. I have been newly diagnosed with vasculitis and its a frightening prospect. I have also been sick for years and newly had problems with my eyes. I am hoping to get treatement soon.
Thank you for this post. It's a difficult thing to be sick and not know why. Then when you do go to the doctor they do not always do the right thing for you. This is a difficult thing to deal with sometimes. Peace to you and blessings.
You look great Chad (as usual). So glad you're better. And to my men out there, please go to the doctor. Stop thinking that 'Tylenol' and 'Rubitussin' cures everything!
Wow...so glad u are a soilder....see one Must fight for their heath...and ask questions dispite what the physican say....after all like the sign on the door says they are "just practicing"....thanks again my dear
the doctor said its an allergic vasculitis..i dont have any idea about this one i take a lot of medicine but it keeps on coming back..
honeybabe214 1 month ago
@honeybabe214 I understand the frustration...big time! Any form of vasculitis can take months to years to get a confirmed diagnosis. Once that diagnosis is in place, treatment is short term. Give it more time and patience, that's all you can do. Good luck.
Cheesewyck 3 weeks ago
@Cheesewyck tnx a lot..now im taking prednisone 5mg 2 times a day for 1 wek,1 1/2 for another wek and once a day for the last wek..hope it will improve my situation..
honeybabe214 3 weeks ago
Thanks for the info. Very helpful!
smathews24 2 months ago
im have red patches in my foot for almost a year the dermatologist said that this is a vasculitis ive done some test and i have and i have high urine infection...he gave me antibiotics but after i finish taking the medicine it came back again together with the red patches...this red patches will almost cover my whole foot..urine infection can cause vasculitis?pls help..
honeybabe214 2 months ago
@honeybabe214 It's hard to say if it's related to vasculitis. The urine test checks for blood and protein to indicate something is wrong with the kidneys. Red patches could be a number of things not related to vasculitis. Keep in mind there are 15 types of vasculidities and finding out which one you have can take months to years to get a confirmed diagnosis.
Cheesewyck 2 months ago
@Cheesewyck now my feet are so bad it is full of red patches the doctor said it is allergic vasculitis..i take so many medicine but it keeps on coming back..im so tired to go to hospital because i think its useless...
honeybabe214 4 weeks ago
What you say is so true!! There are times when I'm unwell, but, I dont have all the symptoms at the same time.. I also thought I had the flu, but about 4 weeks later it still hadn't moved,.and when you said you go light headed after eating I nearly fell off my chair!! so do I, and I just thought I was going crazy!! How do you cope with the periods of utter weakness??
cassiesmum 4 months ago
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cassiesmum 4 months ago
Hi there, I have an update I had another mri scan but it came back normal. My doctor has now put me on prednisone 30mg for 2 weeks, then 20 mg for another 2 weeks, and 10mg for a week. Ive only started today. Im really worried about the side effects. Can you tell me if you had any bad side effects? What should I eat while on it?
neil1758 4 months ago
Yeah this could be the case. I think they will probably treat me with steroids if they don't find anything else. So if they work then problem solved.
neil1758 5 months ago
To be honest I wish it was wegners as it could be something more serious and at least there is treatement for wegners. thanks for all your help really appreciate it.
neil1758 5 months ago
@neil1758 You're welcome. Sorry to hear it's nothing we've talked about. Then again, them telling you it's not Wegener's is iffy too... I was told it's nothing until it presented itself more clearly as time passed.
Cheesewyck 5 months ago
Hey haven't been on this in a while. Just to update you I got the results of my blood and protien in urine test and it came back normal. I suppose its safe to say I don't have wegners now. It's really frustrating. There doing an MRI scan now to find out whats wrong. The sooner the better I just want to be better.
neil1758 5 months ago
@neil1758 Well that's good news as for the Wegener's part. But it still doesn't tell what you do have. Now I don't know what to tell you.
Cheesewyck 5 months ago
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Hi Just saw my family doctor he said I have to phone up the eye doctor myself to ask if he will put me on steroids. This is so frustrating all i want is the medication to get better. This is a nightmare. my eyes and pain arent getting any better.
neil1758 5 months ago
@neil1758 They should be doing that for you, contacting each other that is. But they can't really prescribe anything without a confirm diagnosis.
Cheesewyck 5 months ago
Hi Just saw my family doctor he said I have to phone up the doctor myself to ask if he will put me on steroids. This is so frustrating all i want is the medication to get better. This is a nightmare. my eyes and pain arent getting any better.
neil1758 5 months ago
sorry for my rant.
neil1758 5 months ago
There saying i'm going to have to wait another 6 weeks. I'm going to see my family doctor on thursday and telling him I want on the prednisone as my eyesight it so blurry. Its so annoying. I just want treatement to get better.
neil1758 5 months ago
I'm still waiting on my urine result if this comes back positive I'm sure I will be on the prednisone and immuno suppresants. It's still a waiting game just now.
neil1758 6 months ago
@neil1758 That's the main problem is the final answer. The treatment is nothing compared to the waiting times.
Cheesewyck 5 months ago
I'm still waiting on my urine result if this comes back positive I'm sure I will be on the prednisone and immuno suppresant.
neil1758 6 months ago
Did it feel like someone is squeezing your eyes at back. The pain is really horrible. I think I need to ask for the Prednisone as the other tablets Flurbiprofen aren't doing anything.
neil1758 6 months ago
Hey was just wondering was your sight affected when you had vasculitis? was your eyesight quite blurry? I'm getting scared now.
neil1758 6 months ago
@neil1758 Eye problems? Oh yes! That was the first thing to happen to me in 2008.
Cheesewyck 6 months ago
I'm soooooooo scared. my left eye has been in sooo much pain recently and doctors can't figure out why. I wish they would just give me the prednisone now to see if it helps. Did you have really bad pain in your eye before you got treatement?
neil1758 6 months ago
Hey man went to see my eye doctor yesterday. Its all a bit scary he wants to do more tests on me like an mri of my brain, more blood tests ect. I've been put on Flurbiprofen a non-steriodal inflammatory drug. I hope it works. I asked him about vasculitis but he said all my blood tests showed I am negative for it such as ANA and other stuff.
neil1758 6 months ago
Hi I was just looking into this but what is the difference between lupus and vasculitis they seem to be pretty much the same. The doctor said I do not have lupus but how can i be so sure. I'm all confused.
neil1758 6 months ago
ok, My symptoms are really bad i'm pretty sure I have the systemic version of it. I just need the doctor to prove it.
neil1758 6 months ago
Ok thanks for the advice. Is the treatement still the same if you have vasculitis limited to one area?
neil1758 6 months ago
@neil1758 Yes, same treatment but the dosage may be lower and it's also based on your overall body weight as well. You may be given nasal steroids and eye drops with steroids to reduce the inflamation if the vasculitis is restricted to that area. But the diagnosis is important because if you don't get it... Wegener's has the ability to worsen and get the kidneys involved; which is what you don't want to happen or you'll end up like me with the full systemic version of it. It sucks! LOL
Cheesewyck 6 months ago
So if the urine test is normal I shouldn't get a biopsy? and it means I don't have vasculitis?
neil1758 6 months ago
@neil1758 If the urine test is normal, still get the biopsy from the nasal cavity only. Some people have vasculitis that's limited to one area and the kidneys don't get involved. If it's normal and you don't get it checked, you're getting a false sense of security that you're really ok when you're not. Don't fall for that.
Cheesewyck 6 months ago
Yeah I'm really hoping the diagnosis is a yes. I've been sick for so long without any answers. I still haven't got the results of my urine test and I haven't asked for a biopsy yet either.
neil1758 6 months ago
@neil1758 The urine test result will determine the biopsy. Abnormal results triggers the next step if necessary.
Cheesewyck 6 months ago
It worries me a lot its soooooo thin! It's not fallen out thank god but just feels mega thin and growth is slow.
neil1758 6 months ago
@neil1758 The main thing you need is a confirmed diagnosis of vasculitis, the type of vasculitis (15 of them) and the severity of it. All of that will determine what medication you should be on and how much daily for the first 30 days. It's a bitch when you only suspect it and not confirmed yet. Give it time, you will hear yes or no to the diagnosis.
Cheesewyck 6 months ago
Thank god! its funny though because my hair only started to go thin since I started to get unwell so i'm sure it is linked. This vascultis affects a lot of things in the body. I just hope I can start using these immnosupressants.
neil1758 6 months ago
This is a completely random question but i've found that my hair has been thinning recently. I don't know if this is to do with the tb treatement or maybe vasculitis. Did you have this problem?
neil1758 6 months ago
@neil1758 Yes, thinning hair has to issues with Wegener's vasculitis... it could be from the vasculitis itself because of inflamation of blood vessels under the hair and/or from chemo.... methotrexate or cyclophosphamide. If you're not getting any immunosuppressant drugs then it would be from the vasculitis itself. That happened to me last year from the vasculitis. As soon as my immune system was being suppressed, my hair started growing DURING chemo! :D
Cheesewyck 6 months ago
Thanks I need every bit of luck I can get at the moment. Every doctor I have had until now thinks its in my head it drives me crazy because my symptoms are totally real and very physical. I hope this treatement works its the only hope I got. I'll keep you updated.
neil1758 6 months ago
@neil1758 Awesome, all the best!
Cheesewyck 6 months ago
Cool. I'm still on TB treatement for another 4 months so i think they might just give me prednisone for now. I'll have to ask the doctors about that. thanks again for your help.
neil1758 6 months ago
@neil1758 No worries. I hope it does help out to your advantage. I'm not familiar with TB treatment but I can still Google it. I would love to know the end result. My family doctor swore on a stack of bibles it was all in my head. In reality, it was all in my lungs, kidneys and partially in my head... the sinuses! Your body doesn't tell lies, it warns you that something isn't right. Remember that! Good luck!
Cheesewyck 6 months ago
Cool. I'm still on TB treatement for another 4 months so i think they might just give me prednisone for now. I'll have to ask the doctors about that.
neil1758 6 months ago
Thats amazing! I really hope I get on the prednisone soon. I've been sick for too long now! sorry if i've asked this question before but were you put on methotrexate or cyclophosphamide at the same time as the prednisone or after you had taken the steroids? My doctor only talked about taking the steroids not the other ones. I wonder If I should tell him about them.
neil1758 6 months ago
@neil1758 Actually, prednisone is the steroid treatment. Methotrexate and prednisone or cyclophosphamide and prednisone. But prednisone is definitely in there. You take prednisone with either of the other 2.
Cheesewyck 6 months ago
Did you find your eyesight improved when you were on the prednisone? I'm finding my eyesight is really blurry recently. The eye pain has always been there. I'm getting a really worried. The attitude with the doctors here is so bad, they don't seem to care and they always put treatement off till later. At the moment they can't do anything until one of the doctors comes back which is in 2 weeks time. I really don't want to wait that long. I'm still waiting on the urine results to come back.
neil1758 6 months ago
@neil1758 yes! When you're on prednisone for 3 weeks or more, all the problems disappear AT THE SAME TIME!!! That's the good thing, you forget you were even sick. It's the confirmed diagnosis that's the bitch of it all. Without that they can't treat you for a suspicion.
Cheesewyck 6 months ago
Yeah my doctor did warn me of weight gain. that sounds really hopeful! it would be amazing to get rid of this sinus pressure and eye pain. I've not really had any skin problems though. I also get pain in my neck, arms and knees hopefully this will go away. How long were you on the pednisone for?
neil1758 6 months ago
@neil1758 I was on prednisone from March 2010 to December 2010. The first month was bad, 60 mg per day everyday for the first 30 days. Then I started tapering off it. I must say, I've been scrawny my entire life and for a change fat sure as hell looked good on me. Now that I'm off prednisone since December, I REALLY miss my fat! LOL
Cheesewyck 6 months ago
Yeah my doctor did warn me of weight gain. that sounds really hopeful! it would be amazing to get rid of this sinus pressure and eye pain. I've not really had any skin problems though. I also get pain in my neck, arms and knees hopefully this will go away. How long were you on the pednisone?
neil1758 6 months ago
Ok i'll ask for a biopsy of my nasal tissue. I was told im going on steroids so i'm guessing this is prednisone. What was your dosage of prednisone? I really hope it works the inflammation in my eyes and sinus is so bad. thanks so much for your information its really helpful don't know what I would do without it.
Neil.
neil1758 6 months ago
@neil1758 No worries. If you're going on steroids, more than likely it will be prednisone. The dosage I can't tell you because I don't know how much inflamation you have. It will definitely make a difference getting rid of the pain and around your eyes & sinuses. After 3 weeks using prednisone, you'll notice weight gain so cut back on your intake of food prior to it. Any skin problems, prednisone will remove them until you're fully off of it.
Cheesewyck 6 months ago
Ok where should I get a biopsy for? I have a lot of symptoms going on. My doctor said they couldn't get a biopsy from my eyes. Went to see my eye doctor and he said I have to get part of my eye frozen and I'm going to be put on steroids. What is the treatement for vasculitis? Do you know names of drugs? I'm going to see my family doctor again soon. I've already had a mri scan to rule out MS and blood tests have ruled out Lupus.
thanks.
neil1758 6 months ago
@neil1758 You need a biopsy of the nasal tissue, the lung, or a kidney. You can't biopsy the eyes, that's right. OUCH! LOL Treatment is prednisone and methotrexate or prednisone and cyclophosphamide. Either way, prednisone is part of it to get rid of the inflamation. The methotrexate or cyclophosphamide is to put your immune system into remission. Glad to hear you ruled out MS and lupus!
Cheesewyck 6 months ago
Hiya, I found out my results of the urine test for the blood and protien it came back normal. My doctor said that systemic vasculitis is not likely. I don't know what to do. I still have all these terrible symptoms and my eyes are soooooo bad. I'm thinking about seeing my family doctor again. this is so scary. Im soooo sick and no doctors will help me.
neil1758 6 months ago
@neil1758 If the results came back normal, only the biopsy will tell the tale. However, if the biopsy proves nothing, then the Wegener's vasculitis has been ruled out. You could have a different type of vasculitis if the doctor has ruled out systemic vasculitis. You might want to also check for other autoimmune diseases such as Lupus, M.S. and Sarcoidosis.
Cheesewyck 6 months ago
My doctor said that my blood tests for my kidneys were absolutlely fine. This illness is strange and seems very hard to get the actual diagnosis. So if the blood and protein comes back negative can I rule out wegners? or is there still a possibilty I could have it? thanks for replying.
neil1758 6 months ago
@neil1758 Nope, you need the biopsy of the 3 areas to rule out Wegener's. Nasal, lung or kidney. It's the negative results that give you the false feeling of secuirty. It's not like diabetes, hepatitis or HIV testing.... these ones come back easily. Those are more accurate. Autoimmune diseases can take months to years to get confirmed.
Cheesewyck 6 months ago
Hi just an update the doctor has sent me a urine casts test. I told him about wegners he said the urine test usually indicates whether I have it. What was the result of your urine test? if it is negative should I still ask for a biopsy?
neil1758 6 months ago
@neil1758 Nope, the urine test shows signs of Wegener's, not the illness itself. The urine test would show blood and protein. The higher the levels of both blood and protein the more damage is being done to the kidneys. They need to biopsy the kidney, lung or nasal to get a confirmed diagnosis. The blood work didn't prove anything but that does not reject the diagnosis either. It's hard to get diagnosed because many things have to be ruled out.
Cheesewyck 6 months ago
thanks. I'm seeing my doctor tommorow so will ask about the biopsy and blood & protien in urine isn;t present. This is all so scary the vision in my left eye is getting worse. I know that I have vasculitis I just need to prove it and get treatement.
neil1758 6 months ago
Hi thanks for all your help on here Cheesewyck. I'm still no longer to a diagnosis. Trying to make an appointment with my Family doctor soon. My ANCA however is negative.
neil1758 6 months ago
@neil1758 I knew it would come back negative but I didn't want to get you worked up. Next should be the biopsy; which is more accurate anyway. The main thing is to make sure blood and protein isn't present in large amounts in the urine test.
Cheesewyck 6 months ago
I told the last ENT doctor I went to see that I might have vasculitis but he said there is no way to prove it and nothing he could do. The doctors over here don't seem to know what there doing. I get crusting in my nose and sinus pressure but never have nose bleeds. Did you get a lot of nose bleeds? I'm a bit lost to be honest every test i'm getting comes back negative when I know I have all the symptoms for vasculitis.
neil1758 7 months ago
@neil1758 Nose bleeds are common but not everybody will get them. I got them my entire life even when I didn't have Wegener's. Wegener's just made the nosebleeds occur more often. The ENT "can" do a biopsy of your nasal cavity. Why can't he prove it? Maybe they don't specialize in vasculitis. A rheumatologist knows what to look for. They think of this all the time.
Cheesewyck 7 months ago
Yeah I have all the symptoms you are talking about pain in my chest, sinus pressure, eye problems ect. I'm pretty sure I have vasculitis but the problem is proving it. At this point I don't care about getting a diagnosis I've been ill for so long I just want a diagnosis. Do you know what type of doctor I have to see to get a biopsy? what type of specialist? I think if I mentioned Wegners to my family Doctor he wouldn't have a clue. what do they look for in the biopsy? thanks for all your help.
neil1758 7 months ago
@neil1758 No worries, I understand what you're facing now. The doctor to get a sample from the nasal is an ENT... ear nose throat doctor. If it's from the lungs that's a pulmonologist and if it's a kidney sample it's done by a nephrologist. From all the problems you are experiencing, the easiest one is the ENT doctor, freeze & drill your nasal cavity, pull a piece and it will only bleed for about an hour. Results within a week or two.
Cheesewyck 7 months ago
I went to see my doctor yesterday about my eye. He showed me results of my ANCA test and it was negative. He is now ordering a test for the urine test with protein and blood. He told me its very difficult to prove I have classic vasculitis. Cheesewyck what were your results of the ANCA test? I think i'm going to see my GP again. I'm so sure I have vasculitis but its gonna be hard to get the diagnosis.
neil1758 7 months ago
@neil1758 I've done about 7 ANCA tests since we "suspected" vasculitis and unfortunately every single one of them came back negative. A negative result makes you feel good...OH YAY I DON'T HAVE IT... not so true! The biopsy results came in 2 days after the ANCA test confirming I did have Wegener's. Therefore, a negative result does NOT rule out this type of vasculitis. If blood and protein are present in the urine test, your kidneys are now at risk.
Cheesewyck 7 months ago
@neil1758 Bloody mucus caused from crusting in the nasal cavities, chest pain when inhaling or exhaling and eye problems were the beginning of my problems. It was almost a year later my kidneys became a threat to me causing me to have a hard time walking... my ankles were so bad I had to crawl to the kitchen or bathroom on my knees to avoid the additional pressure on my feet.
Cheesewyck 7 months ago
@neil1758 Just follow the steps, I know it's hard. The most difficult thing is getting the diagnosis saying, "YOU HAVE IT!" Once it's diagnosed, after the first treatment your problems will start to disappear. Nobody likes to be diagnosed of anything but in this case, a diagnosis is a blessing because it's the beginning of ending your problems.
Cheesewyck 7 months ago
My son has wegeners and it affects his sinuses and then his lungs. He suffered fron "sinus infections" for years.Finally after being diagnosed he is being treated. if left untreated this is a deadly disease.
BMXoLife 7 months ago
@BMXoLife You got that right! Even though it's not as dangerous as cancer, if left untreated too long it will kill you. My kidneys were almost down to 60% functional but because the suspicion for Wegener's was determined early, it still took long to get a confirmed diagnosis. But my specialist was so smart... do the biopsy first, then the treatment while waiting for the results. If we had waited for the results first the Wegener's could have done more extensive damage.
Cheesewyck 7 months ago
Sorry to message again just forgot one more thing. Did you have any abnormalties in your chest? I've had a chest x-ray which is normal.
neil1758 7 months ago
@neil1758 The chest x-ray didn't reveal much. It was the urine test with protein and blood including the crusting in my nose during the tear duct surgery that lead them to believe Wegener's was the culprit.
Cheesewyck 7 months ago
All my blood tests are coming back normal which is why they don't suspect systemic vasculitis. When you got blood tests was there anything abnormal such as a the kidneys? I read Wegener's Granulomatosis can affect the kidneys.
neil1758 7 months ago
What do they look for in the biopsy? I'm not sure If I have it of the sinuses. My symptoms are a feeling of pressure in my sinus and jaw. did you have similar?
neil1758 7 months ago
I did the tear duct surgery and that's when the suspicion for vasculitis was discovered. I would go right for the source.... nasal biopsy! Tell them to look for Wegener's Granulomatosis and Microscopic Polyangiitis. Those 2 vasculitis types rely on both the c & p ANCA tests. If I had known 2 years ago what I know now, I would have gone directly for the biopsy to avoid future "irreversable" damage.
Cheesewyck 7 months ago
what treatement should I demand from the eye doctor? I'm so worried about my eyes. they have done very little and I've had inflammation for over two months now.
neil1758 7 months ago
I have no clue to be honest if my doctor has checked for c-ANCA or p-ANCA all I have been told is that I have vasculitis in my eyes. I have so many other symptoms going on and there all so similar to yourself which is why your video caught my eye. Most of the doctors I have seen don't seem to know very much at all about vasculitis.
neil1758 7 months ago
@neil1758 There's a posibility you have vasculitis limited to the sinuses. That's also possible, yes. But you can't be told that without proof. That biopsy will tell the story. Request one ASAP. The longer it takes to diagnose prior to treatment, the more damage it can do in the mean time. Treatment is EASY AS HELL!!! The diagnosis is 80% of the battle.
Cheesewyck 7 months ago
Hi Cheesewyck thank you so much for all your messages. So far I have got that I need a c-ANCA & p-ANCA test, check for anti-neutrophil cytoplasmic antibody, Biopsy and Urine Sample to check for blood and protein in it. I was wondering what eye treatement did you get? My eyes are getting worse the pain/inflammation is so bad and I see floaters in my left eye and there both blurry. All they have done so far is laser surgery to seal blood vessels at the back of my eye which hasnt helped. thanks.
neil1758 7 months ago
The doctor said He doesn't think I think vasculitis in other parts of the body as my ESR level which measures inflamation in the body would be high and it isn't. Is this true? I really want to know whats wrong with me it's really depressing I can't find a way out for all these crazy symptoms and pain. Please if you could provide more info of how you got diagnosed that wud be great or what tests my doctor should carry out.
neil1758 7 months ago
@neil1758 It is depressing I know. Not sure what an ESR test is. It's called an ANCA test. The results are "ususally" negative which does NOT rule out vasculitis. Only a biopsy can be more accurate! Every blood test I did, proved nothing but the biopsy told complete opposite. One of 3 biopsies will work, 1) nasal 2) lung 3)kidney. Nasal is the least painful which is why I chose that route.
Cheesewyck 7 months ago
@neil1758 There are 2 ANCA tests!!!! c-ANCA and p-ANCA to search for 2 different vasculidity types. It's the c-ANCA test that is associated with Wegener's Granulomatosis. Wegener's is kinda iffy.... it's an illness to itself and it is also a vasculitis type. This is what makes a diagnosis so hard to do. It can take months to years go get a confirmed diagnosis unless you are showing TONNES of reasons to believe it's a particular type. Good luck, hope this helps!
Cheesewyck 7 months ago
@neil1758 Write down every symptom you get and how long/far apart they "occurred" Not every vasculitis patient gets them all nor at the same time. Ask your doctor to do a urine sample to check for blood and protein in it, that's a major sign (end damage)! Do you caugh up blood? That's a sign that it's active in your lungs. Are you having problems breathing through your nostils with lots of dried up mucus? That's the early stages sign.
Cheesewyck 7 months ago
@neil1758 Oh hell sorry...ESR, (erythrocyte ->red blood cells) sedimentation rate. That has NOTHING to do with vasculitis! It's the (Neutrophil ->type of white blood cell) that is high which is what he/she should be looking at. What they're checking is for anemia; which is standard medical practice when doing blood work. Vasculitis is when your immune system is dangerously high and attacks important parts of your body.... the blood vessels!!!
Cheesewyck 7 months ago
@neil1758 Sorry to message you so much but you really caught my attention. I CAN'T BELIEVE... your doctor is checking for vasculitis in red blood cells, where did he/she get their license to do medicine... in a cracker jack box??? That's why they keep telling you that shit. It's like playing BINGO looking for G17, there's no such damn thing! Hope that makes you smile!
Cheesewyck 7 months ago
@neil1758 Last response to your question. When the leukocyte...(White type of cell -> Neutrophil) attacks the antibodies in your blood vessels, it causes the inflamation. They need to check for the c-ANCA... anti-neutrophil cytoplasmic antibody! 80% of the time when looking for it, it doesn't show up. Doing the ESR... it will never show up because they're checking for it in the erythrocytes->red blood corpuscles. Red cells are for oxygen and carbondioxide transporting.
Cheesewyck 7 months ago
@neil1758 Screwed up my last message, shit! ESR does show inflamation but is not accurate enough when looking for vasculitis.... THERE, NOW I'M DONE! HAHAHAHA
Cheesewyck 7 months ago
The doctor said He doesn't think I think vasculitis in other parts of the body as my ESR level which measures inflamation in the body would be high and it isn't. Is this true? I really want to know whats wrong with me it's really depressing I can't find a way out for all these crazy symptoms and pain. Please if you could provide more info of how you got diagnosed that wud be great.
neil1758 7 months ago
How did you get diagnosed? is it a blood test? any other specific tests? right now they found I have retinal vasculitis and have been having problems with my eyes. They suspect that the cause is TB however I've been taking the anti TB medicine for 5 weeks and had no change in the inflammation or vision in my eyes. I asked the doctor if he thought I had Vasculitis in other parts of the body as I have been having weird symptoms of fatigue, pain over the body, dizziness for two years.
neil1758 7 months ago
Hi thanks for your reply. I've been so sick for the last two years doctors couldn't find anything until now. Although I've not had any treatement yet. Are you feeling better after the treatement?
neil1758 7 months ago
@neil1758 After the first chemo treatment, all the tension with inflamation disappeared INSTANTLY! The hardest part is getting a "confirmed" diagnosis. Vasculitis has a way of mimmicing other illnesses which need to be ruled out first. Wegener's Granulomatosis is one type of vasculitis.... it resembles lupus A LOT. Try not to get them mixed up.
Cheesewyck 7 months ago
Hi there, thanks for your video. I currently have vasculitis in my eyes. However I have been sick for two years with pain in my body, severe fatigue, dizziness, and digestion problems. Is it possible I may have vasculitis in other parts of my body? is there any treatement which can help. I'm desperate.
neil1758 7 months ago
@neil1758 Yes, if you have vasculitis and it's not diagnosed and treated in time, your chances of getting a second or third vasculitis type increases by 75%! They all cause fatigue, dizziness, weakness and weight loss. You may not get all symptoms at the same time. It took me 2 years to get one of them. Cyclophosphamide and prednisone are both used to treat most vasculidities. Hope this helps and all the best. Vasculitis is a bitch!
Cheesewyck 7 months ago
Hi thanks for your video it has really helped me. I have been newly diagnosed with vasculitis and its a frightening prospect. I have also been sick for years and newly had problems with my eyes. I am hoping to get treatement soon.
neil1758 7 months ago
My story is very similar....Its a rough road....I have Polyarteris Nodosa...
Lawdhavmerci72 10 months ago
Thank you for this post. It's a difficult thing to be sick and not know why. Then when you do go to the doctor they do not always do the right thing for you. This is a difficult thing to deal with sometimes. Peace to you and blessings.
EarthElla 1 year ago
you should have your own tv show, lol very Barbara Walters...
sexymiyoki 1 year ago
Thank you for sharing you story. As I get older, I trust my instincts even more.
BogleGarvey 1 year ago
You look great Chad (as usual). So glad you're better. And to my men out there, please go to the doctor. Stop thinking that 'Tylenol' and 'Rubitussin' cures everything!
EricaYE6 1 year ago
Wow...so glad u are a soilder....see one Must fight for their heath...and ask questions dispite what the physican say....after all like the sign on the door says they are "just practicing"....thanks again my dear
swarthyprincess 1 year ago
Whew honey! That's a lot for one person to go through. I'm glad to see that you are well. Thanks for the info.
nubianangel01 1 year ago
@nubianangel01
Thank you... no matter what your doctor tells you, like I said, your body knows you better than everyone else!
Cheesewyck 1 year ago
Thank you for sharing .
106harlem232 1 year ago
@106harlem232
You're quite welcome! Hope all is well with you. Take care & many blessings.
Cheesewyck 1 year ago
I'm glad to hear you are okay now and you look good!
tanyatmr 1 year ago
they put a tube in your eye?
unrecordable 1 year ago
u needed Dr. House Man! glad u ok tho!
Cinnamedian 1 year ago
u livin? glad to know!
abbeymore1 1 year ago