Honey. Are you still living? It is two years since you posted this vid. I know what hell you are in, I have been there. I started developing jaw movements and I quit cold turkey. Psychiatrist was so angry at me, he threatened me. I was not a 18 year old, I was a mature man and evaded his grasp. I still get tremors, it is fifteen years since I got off the psych dope. If a person is 'mentally ill' the best thing for that person to to CHANGE ENVIRONMENT. I did. Money is not worth going wonky for.
I have ticks and I jerk the right side of my body really bad sometimes, especially in private and when I am really stressed, but I have never taken any kind of medication in my life for any reason. Also, one time I read an article about Autism and I didn't feel like I was getting enough oxygen to my brain an so I started to breathe deeper and deeper and than I just gave up reading the damn article. Sorry.
Marijuana is a natural medicine that grows directly from the earth, it has been used for several thousand years as a medication. You may think taking a pill would be better for you, but it's really not. Those side effects are not worth it. It makes me so sad that marijuana is illegal in America because it could be helping so many people right now. The pharmaceutical companies just want everyone's money. I will never take another prescription again. They just want you to think you need them.
It saddens me a lot to hear about your story. I know marijuana is illegal and the media and DARE has hyped it up to be some scary horrible drug, but it is actually a very effective medication for many many ailments. I don't know if it would help with the TD, but I know several bipolar people who take it to level out their mood. I personally have depression and use it to keep my spirits up on a day to day basis. I have tried every anti-depressant and mood stabilizer out there but nothing compares
Hi Lidia, my name is Lynne. Please tell your mother to consider using The Oxygen Therapy Program to see if it will help you. If money is a problem, I will help pay for it.
I was convinced that my tics were caused by the seroquel, but I was told by my neurologist that wasnt possible.
Tardive tourettism. That's the first I've heard of that. Maybe that's what I have. I know I have tourettes now and it started when I was on high dose seroquel.
I'm glad you made this video. Thank you for sharing this and I hope to hear more from you.
I think I would have preferred to remain bi-polar. My oldest daughter is seriously bi-polar. I used to be bi-polar but not much anymore. I taught my daughter how to use hypnotic triggers to manage her bi polar episodes which I learned from an old native man. My daughter is now 30 and has only resorted to medication once and that was 5 mg of valium for about 2 weeks. it just reset her brain and then she went off it and resumed the hypnotic trigger techniques. Thank you for this video :o) brave.
I think I would have preferred to remain bi-polar. My oldest daughter is seriously bi-polar. I used to be bi-polar but not much anymore. I taught my daughter how to use hypnotic triggers to manage her bi polar episodes which I learned from an old native man. My daughter is now 30 and has only resorted to medication once and that was 5 mg of valium for about 2 weeks. it just reset her brain and then she went off it and resumed the hypnotic trigger techniques. Thank you for this video :o) brave.
I am taking 500mg Of seroquel a day at the moment for Autism/paranoia. I most say it works very good. I feel good when i take the seroquel. But i am very afraid vor long term side effects. but i cant take other meds. I already had Risperdal, Zyprexa, Abilify, Haldol. And they all maked me sick. Anybody got any tips for me??
You are very brave to film you own Tardive dyskinesia. And you are extremely smart to illustrate how the movements stop when you concentrate on them and then restart when you try to perform a task. I am so impressed with your intelligence. I think you will be able to overcome just about any kind of handicap thrown your way. My heart goes out to you. I hope you will continue your work to educate other people about neurological disorders.
Hi Lydia, I just wanted to thank you so much for your bravery and insight in filming your TD and putting it up on the web. I am a nursing student and was just learning about TD and here you are to teach me! I think you are amazing. Thank you again. Alison, Australia
Hi Lydia, I just wanted to thank you so much for your bravery and insight in filming your TD and putting it up on the web. I am a nursing student and was just learning about TD and here you are to teach me! I think you are amazing. Thank you again. Alison, Australia
Hi Lydia, I just wanted to thank you so much for your bravery and insight in filming your TD and putting it up on the web. I am a nursing student and was just learning about TD and here you are to teach me! I think you are amazing. Thank you again. Alison, Australia
Hi Lydia, I just wanted to thank you so much for your bravery and insight in filming your TD and putting it up on the web. I am a nursing student and was just learning about TD and here you are to teach me! I think you are amazing. Thank you again. Alison, Australia
Not to mention psychiatrists like to diagnose by prescription: if drugs cause symptoms of other "mental disorders" like tics, depression, irritibility, etc. they just readjust the diagnosis and add more drugs.
It's just a complicated form of abuse by people who know better.
This reminds me when risperdal came out, the first patented atypical "antipsychotic". Doctors and the public were first told that it caused no movement disorders (brain damage) and claimed that it's incidence of parkinsonium symptoms were "Equal to placebo" (Placebo's cant cause it but the control groups can easily be organized). Today Risperdal is considered the worse in this regard, even having its own neurological movement disorder called rabbit syndrome and the same rate of TD as with Haldol
Thanks for sharing, you are very attractive btw. Have you tried marijuana to relieve your symptoms? Many bipolar sufferers find relief in smoking marijuana as an alternative or to supplement the effectiveness of their anti-psychotic medication. Also medication side effects such as involuntary movements and tremors have been effectively diminished for many bipolar sufferers that use marijuana.
You are a precious, gorgeous girl. My 15 yr old daughter has Bipolar Disorder, and has been taking 5mgs of Abilify for about 4 yrs. I am taking her to have her med. adjusted. I am so afraid of TD and/or seizures. God Bless you for sharing your story, Sweetie...
I hope this offers a glimmer a hope, but i went on Diamox for the involuntary movements and muscle spasms much like you're experiencing and found it helped tremendously. I alternate between diamox and ativan now. I was diagnosed with POTS and went on Mestinon and it caused many of the symptoms you are experiencing and when I tried to come off it I started developing involuntary trembling much like yours and dystonia- like symptoms. I feel your pain. You're not alone.
@SuperOxideDimutase Actually, there are no effective treatments for TD and drugs like cogentin can sometimes make them worse. If the drug is stopped right after symptoms occur than there is roughly a 50/50 chance of them getting better but never completely going away and there is no treatment for these movement disorders because they occur when the basal ganglia swells and in effect becomes like a tumor.
I've been on Seroquel for 7 months too, and I'm also beginning to develop these tics, yet my condition has not improved, so I am, unfortunately, switching to an older medication, Haldol. I wish you well.
I've been on Seroquel for 7 months too, and I'm also beginning to develop these tics, yet my condition has not improved, so I am, unfortunately, switching to an older medication, Haldol. I wish you well.
@snowstormburning225 You poor girl i wonder if opium would help get some poppy seeds from shop soak or simmer filter drink the water they work for me with restless legs that i get from these meds help to relax work that night if i take it in the day
I Don't do it offen as i dont want to become adddicked but it gives me a good night rest
I developed tardive dystonia from an antipsychotic (amisulpride) but after about a year it went away it was affecting my speech and eye muscles. I hate these drugs so much all they have done is cause me suffering.
I disagree that newer antipyschotics are much safer than older ones. Blocking Dopamine receptors is blocking dopamine receptors. Big pharma says they're safer because the new ones are on patent and this makes them more money. Seroquel probably not as bad as Reglan, but they all cause TD. Your Bipolar, so maybe you have to take them. If you can avoid them you should. If you take them longer than 3 mos your risk of permanent TD and Parkinson's goes way up.
@lftcoco Clozapine is one of the few that doesn't cause these side effects. However, it causes other severe effects. I have been taking 50mg of Seroquel XR. It's a small amount but it seems to work for me. I had side effects in the beginning but nothing anymore. TD is actually a rare case for Seroquel. I'm sorry to see she got it.
@lftcoco Actually, aytpicals have a fascinating mechanism of action. They antagonize both dopamine and serotonin receptors. Since serotonin can decrease levels of dopamine in the brain, blocking both receptors is thought to act as a sort of dopamine stablizer.
@snowstormburning225 Anything that blocks dopamine in the brain causes these adverse reactions because the brain makes compensatory adaptations (E.G. morphological changes) in an attempt to fight the drugs effect and bring the brain back to its normal state. With neuroleptics it causes a increase in the density of dopamine receptors, an enlargement of the basal ganglia and shrinkage of the frontal lobes. Reserpine - a herb from india which decreases dopamine in the brain, also causes this.
@snowstormburning225 Lastly, by saying that it's fascinating by working on two receptors is much like saying that Haldol should be just as fascinating when taken with an SSRI. That's really all it is. There are at least (with neuroscientists still discovering more) 150 trillion synapses and billions of neurons in the brain.
As for the marijuana thing, thanks, but no thanks. :P Maybe I'll try it if all else fails, but I really don't want to deal with legal drama on top of everything else.
Just so that you know, Marinol, Nabilone, and Sativex, are the pharmaceutical synthetic THC products. I can't attest to their effectivenes or safety compared to naturally occurring THC, but if your TD were to get worse they would be worth a shot and without legal hassle.
I would have to agree with the fellow below recommending marijuana. I take it about 1-2 times a YEAR for acute abdominal pain and for that, it's extremely effective. Although I hear that it can be very effective for treating neurological problems.
Hi I found your video while studying TD for my psychology final. Will your symptoms go away after discontinuing the medication or are you stuck with them for life? Your case kind of reminds me of that girl a while back who got the flu shot and then started experiencing convulsions and disrupted speech that completely went away when she walked backwards or ran.
@tropdars Sometimes, TD is permanent and untreatable, sometimes it can be controlled or minimized with medication, and sometimes it goes away completely after the medication is ceased. It really depends on the individual. No one knows why someone gets permanent, life-long TD from a low dose of a mild AAP and why another can stay on high-dose Haldol for years without getting any EPS at all.
Honey. Are you still living? It is two years since you posted this vid. I know what hell you are in, I have been there. I started developing jaw movements and I quit cold turkey. Psychiatrist was so angry at me, he threatened me. I was not a 18 year old, I was a mature man and evaded his grasp. I still get tremors, it is fifteen years since I got off the psych dope. If a person is 'mentally ill' the best thing for that person to to CHANGE ENVIRONMENT. I did. Money is not worth going wonky for.
LoudMouthedYank 5 days ago
I have ticks and I jerk the right side of my body really bad sometimes, especially in private and when I am really stressed, but I have never taken any kind of medication in my life for any reason. Also, one time I read an article about Autism and I didn't feel like I was getting enough oxygen to my brain an so I started to breathe deeper and deeper and than I just gave up reading the damn article. Sorry.
iHomestarrunner69 1 year ago
Marijuana is a natural medicine that grows directly from the earth, it has been used for several thousand years as a medication. You may think taking a pill would be better for you, but it's really not. Those side effects are not worth it. It makes me so sad that marijuana is illegal in America because it could be helping so many people right now. The pharmaceutical companies just want everyone's money. I will never take another prescription again. They just want you to think you need them.
matsukazenazi 1 year ago
It saddens me a lot to hear about your story. I know marijuana is illegal and the media and DARE has hyped it up to be some scary horrible drug, but it is actually a very effective medication for many many ailments. I don't know if it would help with the TD, but I know several bipolar people who take it to level out their mood. I personally have depression and use it to keep my spirits up on a day to day basis. I have tried every anti-depressant and mood stabilizer out there but nothing compares
matsukazenazi 1 year ago
Hi Lidia, my name is Lynne. Please tell your mother to consider using The Oxygen Therapy Program to see if it will help you. If money is a problem, I will help pay for it.
lynnegordon 1 year ago
That's insane. How awful.
I was convinced that my tics were caused by the seroquel, but I was told by my neurologist that wasnt possible.
Tardive tourettism. That's the first I've heard of that. Maybe that's what I have. I know I have tourettes now and it started when I was on high dose seroquel.
I'm glad you made this video. Thank you for sharing this and I hope to hear more from you.
idranktheseawater 1 year ago
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TheDarrenJordan 1 year ago
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I think I would have preferred to remain bi-polar. My oldest daughter is seriously bi-polar. I used to be bi-polar but not much anymore. I taught my daughter how to use hypnotic triggers to manage her bi polar episodes which I learned from an old native man. My daughter is now 30 and has only resorted to medication once and that was 5 mg of valium for about 2 weeks. it just reset her brain and then she went off it and resumed the hypnotic trigger techniques. Thank you for this video :o) brave.
ahbitterdregs 1 year ago
I think I would have preferred to remain bi-polar. My oldest daughter is seriously bi-polar. I used to be bi-polar but not much anymore. I taught my daughter how to use hypnotic triggers to manage her bi polar episodes which I learned from an old native man. My daughter is now 30 and has only resorted to medication once and that was 5 mg of valium for about 2 weeks. it just reset her brain and then she went off it and resumed the hypnotic trigger techniques. Thank you for this video :o) brave.
ahbitterdregs 1 year ago
I am taking 500mg Of seroquel a day at the moment for Autism/paranoia. I most say it works very good. I feel good when i take the seroquel. But i am very afraid vor long term side effects. but i cant take other meds. I already had Risperdal, Zyprexa, Abilify, Haldol. And they all maked me sick. Anybody got any tips for me??
jugglingfreaky 1 year ago
You are very brave to film you own Tardive dyskinesia. And you are extremely smart to illustrate how the movements stop when you concentrate on them and then restart when you try to perform a task. I am so impressed with your intelligence. I think you will be able to overcome just about any kind of handicap thrown your way. My heart goes out to you. I hope you will continue your work to educate other people about neurological disorders.
sheilank01 1 year ago
Comment removed
sheilank01 1 year ago
Hi Lydia, I just wanted to thank you so much for your bravery and insight in filming your TD and putting it up on the web. I am a nursing student and was just learning about TD and here you are to teach me! I think you are amazing. Thank you again. Alison, Australia
AllieGoodwin 1 year ago
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Hi Lydia, I just wanted to thank you so much for your bravery and insight in filming your TD and putting it up on the web. I am a nursing student and was just learning about TD and here you are to teach me! I think you are amazing. Thank you again. Alison, Australia
AllieGoodwin 1 year ago
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Hi Lydia, I just wanted to thank you so much for your bravery and insight in filming your TD and putting it up on the web. I am a nursing student and was just learning about TD and here you are to teach me! I think you are amazing. Thank you again. Alison, Australia
AllieGoodwin 1 year ago
Hi Lydia, I just wanted to thank you so much for your bravery and insight in filming your TD and putting it up on the web. I am a nursing student and was just learning about TD and here you are to teach me! I think you are amazing. Thank you again. Alison, Australia
AllieGoodwin 1 year ago
Prescription drugs cause more harm than good.
They also don't warn you about the withdrawal.
Not to mention psychiatrists like to diagnose by prescription: if drugs cause symptoms of other "mental disorders" like tics, depression, irritibility, etc. they just readjust the diagnosis and add more drugs.
It's just a complicated form of abuse by people who know better.
Greenteam83 1 year ago
This reminds me when risperdal came out, the first patented atypical "antipsychotic". Doctors and the public were first told that it caused no movement disorders (brain damage) and claimed that it's incidence of parkinsonium symptoms were "Equal to placebo" (Placebo's cant cause it but the control groups can easily be organized). Today Risperdal is considered the worse in this regard, even having its own neurological movement disorder called rabbit syndrome and the same rate of TD as with Haldol
M1thotyn 1 year ago
Thank you for this educational video. I hope these side effects subside, so you can enjoy the benefits of seroquel.
hancloushe 1 year ago
I don't care what anyone says. That would be one hell of a blow job
beastloving 1 year ago
you are a very bright and very brave girl. Your video taught me a lot. Very informative.
I thank you for sharing, and may God bless you sweetie.
Toni Gormley
elvencloud 1 year ago
Thanks for sharing, you are very attractive btw. Have you tried marijuana to relieve your symptoms? Many bipolar sufferers find relief in smoking marijuana as an alternative or to supplement the effectiveness of their anti-psychotic medication. Also medication side effects such as involuntary movements and tremors have been effectively diminished for many bipolar sufferers that use marijuana.
DancingWithEagles 1 year ago
you have a creamy white titties & killing smile @ 4.08. GOD bless you.
DISKETTES1000 1 year ago
Comment removed
M1thotyn 1 year ago
I bet you burn a lot of calories with those ticks. At least you won't get fat.
IFknHateUTube 1 year ago
I am very sorry this happened to you. My Grandma has been diagnosed with Tardive Dyskinesia after taking Reglan. Medical pot Helps.
lizzy6550 1 year ago
Parents who fuck their kids up with meds should be shot
tt2ent 1 year ago
You are a precious, gorgeous girl. My 15 yr old daughter has Bipolar Disorder, and has been taking 5mgs of Abilify for about 4 yrs. I am taking her to have her med. adjusted. I am so afraid of TD and/or seizures. God Bless you for sharing your story, Sweetie...
CATZscamp 1 year ago
I hope this offers a glimmer a hope, but i went on Diamox for the involuntary movements and muscle spasms much like you're experiencing and found it helped tremendously. I alternate between diamox and ativan now. I was diagnosed with POTS and went on Mestinon and it caused many of the symptoms you are experiencing and when I tried to come off it I started developing involuntary trembling much like yours and dystonia- like symptoms. I feel your pain. You're not alone.
rebco77 1 year ago
Neuroleptics are nasty meds, even the newer ones. There are treatments for TD, I hope you improve soon!
SuperOxideDimutase 1 year ago
@SuperOxideDimutase Actually, there are no effective treatments for TD and drugs like cogentin can sometimes make them worse. If the drug is stopped right after symptoms occur than there is roughly a 50/50 chance of them getting better but never completely going away and there is no treatment for these movement disorders because they occur when the basal ganglia swells and in effect becomes like a tumor.
M1thotyn 1 year ago
Thank you so much, thank you.
sayleighful 1 year ago
I just wanted to let you know that I am praying for you.
seuss75 1 year ago
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I've been on Seroquel for 7 months too, and I'm also beginning to develop these tics, yet my condition has not improved, so I am, unfortunately, switching to an older medication, Haldol. I wish you well.
egyptianghetto56 1 year ago
I've been on Seroquel for 7 months too, and I'm also beginning to develop these tics, yet my condition has not improved, so I am, unfortunately, switching to an older medication, Haldol. I wish you well.
egyptianghetto56 1 year ago
you are very pretty!!!
IsThisTourettes 1 year ago
@IsThisTourettes Thanks! :)
snowstormburning225 1 year ago
@snowstormburning225 You poor girl i wonder if opium would help get some poppy seeds from shop soak or simmer filter drink the water they work for me with restless legs that i get from these meds help to relax work that night if i take it in the day
I Don't do it offen as i dont want to become adddicked but it gives me a good night rest
ManofSin 1 year ago
@snowstormburning225 hang in there
ManofSin 1 year ago
why are you putting on this voice?
mettabee 1 year ago
@mettabee I am not "putting on" anything. It's not easy to try to talk with your tongue spazzing out.
snowstormburning225 1 year ago
I developed tardive dystonia from an antipsychotic (amisulpride) but after about a year it went away it was affecting my speech and eye muscles. I hate these drugs so much all they have done is cause me suffering.
madbandicooot 1 year ago
I disagree that newer antipyschotics are much safer than older ones. Blocking Dopamine receptors is blocking dopamine receptors. Big pharma says they're safer because the new ones are on patent and this makes them more money. Seroquel probably not as bad as Reglan, but they all cause TD. Your Bipolar, so maybe you have to take them. If you can avoid them you should. If you take them longer than 3 mos your risk of permanent TD and Parkinson's goes way up.
lftcoco 1 year ago
@lftcoco Clozapine is one of the few that doesn't cause these side effects. However, it causes other severe effects. I have been taking 50mg of Seroquel XR. It's a small amount but it seems to work for me. I had side effects in the beginning but nothing anymore. TD is actually a rare case for Seroquel. I'm sorry to see she got it.
suckbar69 1 year ago
@suckbar69 Yeah, Clozapine is scary. That's definitely a last resort for me, especially because I don't really have a psychotic disorder.
snowstormburning225 1 year ago
@lftcoco Actually, aytpicals have a fascinating mechanism of action. They antagonize both dopamine and serotonin receptors. Since serotonin can decrease levels of dopamine in the brain, blocking both receptors is thought to act as a sort of dopamine stablizer.
snowstormburning225 1 year ago
Comment removed
M1thotyn 1 year ago
@snowstormburning225 Anything that blocks dopamine in the brain causes these adverse reactions because the brain makes compensatory adaptations (E.G. morphological changes) in an attempt to fight the drugs effect and bring the brain back to its normal state. With neuroleptics it causes a increase in the density of dopamine receptors, an enlargement of the basal ganglia and shrinkage of the frontal lobes. Reserpine - a herb from india which decreases dopamine in the brain, also causes this.
M1thotyn 1 year ago
@snowstormburning225 Lastly, by saying that it's fascinating by working on two receptors is much like saying that Haldol should be just as fascinating when taken with an SSRI. That's really all it is. There are at least (with neuroscientists still discovering more) 150 trillion synapses and billions of neurons in the brain.
M1thotyn 1 year ago
As for the marijuana thing, thanks, but no thanks. :P Maybe I'll try it if all else fails, but I really don't want to deal with legal drama on top of everything else.
snowstormburning225 1 year ago
@snowstormburning225
Just so that you know, Marinol, Nabilone, and Sativex, are the pharmaceutical synthetic THC products. I can't attest to their effectivenes or safety compared to naturally occurring THC, but if your TD were to get worse they would be worth a shot and without legal hassle.
tropdars 1 year ago
I would have to agree with the fellow below recommending marijuana. I take it about 1-2 times a YEAR for acute abdominal pain and for that, it's extremely effective. Although I hear that it can be very effective for treating neurological problems.
tropdars 1 year ago
Hi I found your video while studying TD for my psychology final. Will your symptoms go away after discontinuing the medication or are you stuck with them for life? Your case kind of reminds me of that girl a while back who got the flu shot and then started experiencing convulsions and disrupted speech that completely went away when she walked backwards or ran.
tropdars 1 year ago
@tropdars Sometimes, TD is permanent and untreatable, sometimes it can be controlled or minimized with medication, and sometimes it goes away completely after the medication is ceased. It really depends on the individual. No one knows why someone gets permanent, life-long TD from a low dose of a mild AAP and why another can stay on high-dose Haldol for years without getting any EPS at all.
Thankfully, mine seems to be going away. :)
snowstormburning225 1 year ago
Hi Lydia, I developed TD in 2006 after 2 months of low dose Geodon.
GracieAnimas 1 year ago
That really sucks, Lydia! I'd be so frustrated!
HoS777 1 year ago