I have had tyroid problems for 7 years now and because i didnt have health insurance I couldnt get a doctor to take me seriously. I got my native american roll number which entitles me to healthcare at the IHS facilities and started to try to get something figured out a year ago.... just last week they decided to take it out...... AFTER 7 YEARS..... nodule on the right is greater than 6 CM and nodule on the left is 1.09 CM.... i look like i swallowed a LEMON! no surgery date yet... soon though!
@jackaaaaay I feel for you. Wow your nodules are HUGE. I HAVE insurance and could not get anyone to take me seriously. So I literally told all the docs to eff off, they were fired, found another who would listen, and discovered I have a rare form of it and have to have my thyroid and part of lymph nodes removed. I'm scared but also tired of choking and being in pain all the time, so looking forward to it. Best of luck to you!
I hear getting medical care outside of the states is the best. I don't have hyperthyroidism and I was told the next step is doing a biopsy and it's frustrating waiting around for answers ... I pray all turns around for you and hopefully you will find your passion for life again.
so i finally found the ANSWER to so many things i've been experiencing! but i'm gonna be in this state of unhealth for at least another month BECAUSE THE HEALTH SYSTEM IN UNITED STATES SUCKS BIG MONKEY BALLS SO I WILL BARELY BE DIAGNOSED IN ABOUT A WEEK AFTER STARTED TO SEE DOCTORS ALMOST 2 MONTHS AGO!
@eco4lyf808 My family might go for winter break. I'd love to get all my motivation back after regaining good health way down south by the beautiful country side of mexico
but anyway i wanted to check if i was prediabetic. so blood tested healthy in everything, but they noticed my thyroid was underactive. i can't really explain all of my feelings about knowing my condition once and for all. i've struggled SO MUCH. YOU CAN'T IMAGINE!!! for years i've been struggling. i feel like a zombie now, and i feel like i've known all along but no one else could possibly understand, and i feel like it's too late, but as i always have, i try so hard to overcome all of this
the health care in the states is a bi.tch. thyroid diseases are a b.itch!! i'm in the very begenning processes, but i've had these really shitty symptoms and depression for a very long time. the way i found out was by miracle. no matter what i told ANYONE about the issues i've been having, even to myself it was hard to believe there could be anything possibly wrong in my health. i thought what was happening to me, was life.............
I had surgery 3 months after being diagnosed the doctors completely misdiagnosed me I was only 19 at the time it was awful.. I completely get it .. I had to get my thyroid removed all in one shot .. the entire thing .. I am still going through the motions a year later .. I totally get it.
I know how you feel. It sucks to not have a thyroid. I never feel like I've had a good night's sleep, I ache all over and feel depressed and brain-fogged.
hey I was recently diagnosed with thyroid cancer and i am getting appointments with surgery to get it removed the whole thyroid. I have a question as to since they already know I have cancer would I have to go through that iodine treatment?
As soon as I saw your face I knew exactly what you are going thru. I too had two surgeries. June 14 and 24...the 2nd because they found cancer. Had RAI in August. No one understands what we are going thru unless they are living it or watched/ing someone going thru this....have Thyroid Disease is being a "Silent Sufferer" we suffer in silence.
@DJRenee Amen, and after they went in, it wasn't my Thyroid at all, but the mass had attached itself to the nerve and was pressing against the thyroid, causing a great deal of pain. It was my larynx, voice box and vocal cords, and it went wild from there, all after having my tonsils taken out
ooshkey, I definitely know how you feel. I've only seen doctors in the states & so many of them just DO NOT know what they're talking about. I was on Levothyroxin (synthroid) for about 2-3 years & I still suffered from low thyroid symptoms. They raised my dose to 125mcg & that felt like it was going to kill my heart because they jumped my dosage too quick. I just eventually just gave on the meds for about months & my thyroid levels dropped to 10.4 & they're supposed to be around a 2.
@spaceanduniverse27 hang in there, hopefully you will find the right doctor. I love my surgeon, and now going through this I had to have a team of specialist, so now I see a larynx specialist, ent specialist, pulmonary specialist and my surgeon. Its been a real ordeal
@spaceanduniverse27 This shit is hell on two feet....I wish they would make more awareness of it....more people continue to suffer than those whose medicine actually works on the 1st or 2nd try....
ooshkey, I definitely know how you feel. I've only seen doctors in the states & so many of them just DO NOT know what they're talking about. I was on Levothyroxin (synthroid) for about 2-3 years & I still suffered from low thyroid symptoms. They raised my dose to 125mcg & that felt like it was going to kill my heart because they jumped my dosage too quick. I just eventually just gave on the meds for about months & my thyroid levels dropped to 10.4 & they're supposed to be around a 2.
Yea...in Germany everything went "quick" because they were working to SAVE your life (Thankfully)....Now they are working on your LOWEST and HIGHEST count for Synthroid, to find your "base". But then you self medicate....so I hope it works out. I'm sure it will--might just take a little more time. Good Luck. Luckily you were part of the group that found it early.
Hi, I'm nervous because I get my first biopsy on Tuesday and I'm wondering what's going to happen and my results. I have a goiter and multiple fluid filled cyst on the left lobe. I have checked out your videos and I feel the same way with the waiting....I've been seeing the dr once a week since I've found out.
Thank you for these videos. I was just diagnosed this past Thursday, and I think it just finally hit me, when I started searching on the internet about treatment options and what would be best for me. All of a sudden I am feeling down and hopefully, when I see my Surgeon this Thursday to discuss treatment options, I wanted to do some research on my own. I have watched all your videos and you have relieved my fears to a degree, but I am still up in the air about the whole situation. Take Care
@msneter1 I actually didn't know I had cancer until after my first surgery. When a biopsy was done on April 2008, the results came out as inconclusive, which resulted in my first surgery also in Apr 08. Once the nodule was taken out & further analysed, the cancer was discovered. This resulted in my second surgery in July 2008. It took a while for the results to come back, which is why there's a big gap between the 1st & 2nd surgery
FLUORIDE IS WHAT DAMAGES YOU IMMUNE SYSTEM AND Manages YOUR THYROID IT ALSO BLOCKS IODINE UPTAKE ......... GET THE FLUORIDE OUT OF YOUR WATER just google The Effects Of Fluoride On
hello, based on your experiences would you recommend the radioactive iodine treatment or the surgery? I have hyperthyroidism and my doctor they only thing he say is to the radioactive iodine treatment. I will like to know what you think.
@angelik227 well, I had surgery first, then I had the radioactive iodine treatment done. The reason I had surgery was because of the biopsy results. The nodule in my thyroid was inconclusive. Hence, surgery determined that I had cancer. I later had the treatment to kill off any thyroid cells in my body that could possibly have cancer. I hope this all makes sense. :)
Where you originally hyper thyroid or hypo thyroid? The surgery has worked for some but not all people.
I was officially diagnosed when i was 14 (I probably had it a lot longer than that but i was diagnosed when i was 14, and i am 21 this year). My doctor never gave me the option of surgery and i never knew of it until I had done my iodine treatment and i have to take synthyroid for the rest of my life.
You are exactly right about the cloudiness in your head. I am experiencing the same things after my thyroid surgery a year ago. I use to be so sharp when thinking and expressing my thoughts now it suck that I cant get the words out and I sometimes say the wrong things. I have additional complications with my surgery because a nerve was cut and now my right vocal fold is permanently paralyzed which has affected the quality of my voice.
Thanks for posting. I just underwent my second surgery (completion) to remove the rest of my thyroid. My surgeon didn't want to remove the entire gland because he was hoping the test results from the first operation was benign. Unfortunately, that wasn't the case. When I went to get the radiation, there was too much thyroid tissue left, so a second surgery was needed. I now have to wait until April to get the radioactive iodine treatment. I'm praying I won't have too many issues adjusting
Thank you for your videos! I have been diagnosed with Graves Disease 3 wks ago & see an Endo this Monday the 28th of Feb. This may seem fast but my regular dr. thought the lump was scar tissue built up from a cervical disk removal & titanium fusion I had in 05. I asked her back in the fall of 09 btw. Anyway... thank u for your honesty & ur story! I am going to ask a million ?'s on Monday & ur vids helped me ease the fear & anxiety of what is yet to come.
Thank you for posting these. I was diagnosed with metastatic papillary thyroid cancer on Jan 21, 2011 and had my thyroid and several lymph nodes removed on the right side of my neck on Feb 2nd. I have my I-131 treatment on March 13th. I am trying to get through my last semester in college and all I do is sleep. I have the same frustrations with doctors and referral problems with my insurance. I'm glad you said it's shitty, because it is. Period. We can be positive but also real. xoxo
Wow thanks for the post! I was positive that I wasn't feeling normal and I kept insisting that they raise my dosage because I always felt tired, I couldn't concentrate, and I always felt like I had chains that were weighing me down. Nobody knows how much of a burden it is to be tired unless you experience it. They did raise my dose 2 months ago from 150 to 175 and I feel great! It does not make me feel hyper at all, but it's just a relief to feel normal! Good luck with your dosage!
hey ty for the honest vids. i have had Graves since '92 got radiated and have been Hypo ever since. I had to comment because I was just irritated by the same dr run around just to get to my endo even tho. he was the one that diagnosed me 19 yrs ago, so go figure. During the last 2 decades of this ordeal. Ive seen drs that know nothing and some that think they know everything. After awhile you realize you end up knowing more than they do about your problem. Your family is your best help.
Thank you so much for your update. I have Graves and was diagnosed in November 2010. It has been hell on earth for me and my husband. We had just gotten married in August 2010 so we hadn't had a chance to enjoy being married. The doctor situation is the same in Canada however, what I find here is that if anything happens and you need to see a doctor no one will help you .. they all see "Graves Disease" on your chart and tell you to see your endo.
Thank you for the video. I almost die every week from a thyroid storm and the doctors say it's all in my head whenever they take my blood. At least I had enough time to write my final wishes. I'm 26 and I'm going to die from heart failure while my doctors drive mercedes. I feel your frustration. Everyone suspects me of using cocaine because of my symptoms and when my head gets really dumb and I sound drunk, nobody believes me when I say I'm close. I must want attention. Smile, you're pretty.
Thank you so much for making all these videos! I have had ultrasounds and a CT which showed I have three nodules - 3.9cm, 1.4cm and 1.6cm. My endocrinologist is sending me for a biopsy in December, and I'm really scared for it. I know if you can go through two surgeries and RAI then I can at least get a biopsy! Thanks for making it a little less scary.
I am going through that Drs don't know they always want to use a Nurse practicioners, they don't want to see the patients, and when they see you they see you in a hurry, I am upset because what you say is right, I hate this,
Really appreciate your videos. Started with problems and in June had 2 surgeries to remove the thyroid. Have since been going through the stuff of thyroid cancer. My doctor put me on the low iodine diet for 8 weeks. He said the longer the better so I know what it's like to want a Burger King Whopper. Then I watch your video about how the taste buds change. My doc doesn't want me to resume normal diet for 6 days after the RAI which is about the time my taste buds will be affected. Thanks!
That sounds about how health care in the states works. It's dumb and annoying. It's almost like making money from office visits is more important than just getting directly to the problem and really helping people who need it. I am also facing the option of thyroid surgery. They want to remove half my thyroid and then if there's cancer, they will remove the rest of it. I'm just starting down this road also. Enjoy your posts!
i live in upstate ny, check with your insurance and see if you actually need a referral, with you being military, its hard to believe. its nice to connect with someone who went through what i'm facing. i start my diet on jan. 6 and came across your video, thanks for being brave enough to put it out there!
My sister in law JUST had hers removed today, and she has been dealing with it for 3 years. She had 15 nodulars, a goiter and her thyroid numbers were real high which affected her blood pressure and heart. we live in Canada. So its a waiting game, she has had 2 biopsies and both negative..but it got to the point of her laying on her back she could not breath. Scary!!!
ooshkey, I need to re-write my last msg. Sorry I was in a bad place. U r so down to earth & loveable. I am so sorry u r going thru such frustration at the moment. I hope things change soon. U've been thru so much & deserve for things to look up. v. soon. Thinking of u (code upyrz) not real name. Until next time. Big hugz !
Dear ooshkey, u may not understand but i hang out for your comments.... u r more like me than others. I am at the begining of this frustrating ordeal of going to drs & getting tests & not getting another appointment for 2 mths etc. I am in pain & am tearing my hair out. Think u r great. All the best! p.s don't want to put my name out there due to family....wish I could.
hey ooshkey;) im in the same boat.,but mine is not normal that they know of i had the surg about a month and half ago,not happy with the scar ,voice box was damaged,went back to ent and he said it will come back thankgod so slow progress.sweety i hope you get better and i get the same thing with the drs in my state and thats ga so i know its crazy.itll get better tho trust.glad to see a new vid;) ur not alone im gonna message ya
So sorry you're having a hard time with the thyroid / synthroid. I take 200 daily and so far I'm fine. I really hope you feel better soon, and thanks for posting the video. As a thyroid cancer survivor myself, you're in my thoughts.
@johnbolony I have a benign lump on my right thyroid but my doctor reckons I should have the lump and right thyroid removed but can opt not to + keep an eye on things. My thyroid works fine + I am worried that removing half of it will cause other problems of it's own. I am worried that taking thyroxine will not prevent hypothyroidism + I will end up depressed, sluggish, weight gain etc etc. May I ask how your medication affects you - positives and negatives? Not sure what decision to take.
First of all you are in the military they should treat you ASAP just because of that... bless your heart. So sorry you are having to deal with this honey.. you are such a sweet person I wish you the best!!
hey ooshkey ..nice to hear from ya on yt ...yup its a problem alright....and here in Canada things are not much better as you said on one of your vid ..it gets no "street cred"...so hang in there ...hopefully once the meds get tweaked..it will help some what..i am also coping with the same thing from my friend ..she was up all night and this is happening a lot to her (she had her surgery in June)..so you are not alone..here if you need to talk ever..
Let me be the first to say that you're one amazing person hun. Yes the health care sucks in America ( I know from experience ). Always know that we care about you and your health. Keep your head up high. And I hope things get better for you very soon. Love always, Stacey
I have had tyroid problems for 7 years now and because i didnt have health insurance I couldnt get a doctor to take me seriously. I got my native american roll number which entitles me to healthcare at the IHS facilities and started to try to get something figured out a year ago.... just last week they decided to take it out...... AFTER 7 YEARS..... nodule on the right is greater than 6 CM and nodule on the left is 1.09 CM.... i look like i swallowed a LEMON! no surgery date yet... soon though!
jackaaaaay 1 week ago
@jackaaaaay I feel for you. Wow your nodules are HUGE. I HAVE insurance and could not get anyone to take me seriously. So I literally told all the docs to eff off, they were fired, found another who would listen, and discovered I have a rare form of it and have to have my thyroid and part of lymph nodes removed. I'm scared but also tired of choking and being in pain all the time, so looking forward to it. Best of luck to you!
lucidity4 2 days ago
I hear getting medical care outside of the states is the best. I don't have hyperthyroidism and I was told the next step is doing a biopsy and it's frustrating waiting around for answers ... I pray all turns around for you and hopefully you will find your passion for life again.
LadiiNdea 1 week ago
so i finally found the ANSWER to so many things i've been experiencing! but i'm gonna be in this state of unhealth for at least another month BECAUSE THE HEALTH SYSTEM IN UNITED STATES SUCKS BIG MONKEY BALLS SO I WILL BARELY BE DIAGNOSED IN ABOUT A WEEK AFTER STARTED TO SEE DOCTORS ALMOST 2 MONTHS AGO!
eco4lyf808 2 months ago
@eco4lyf808 I think i'll go to Mexico...
eco4lyf808 2 months ago
@eco4lyf808 My family might go for winter break. I'd love to get all my motivation back after regaining good health way down south by the beautiful country side of mexico
eco4lyf808 2 months ago
but anyway i wanted to check if i was prediabetic. so blood tested healthy in everything, but they noticed my thyroid was underactive. i can't really explain all of my feelings about knowing my condition once and for all. i've struggled SO MUCH. YOU CAN'T IMAGINE!!! for years i've been struggling. i feel like a zombie now, and i feel like i've known all along but no one else could possibly understand, and i feel like it's too late, but as i always have, i try so hard to overcome all of this
eco4lyf808 2 months ago
the health care in the states is a bi.tch. thyroid diseases are a b.itch!! i'm in the very begenning processes, but i've had these really shitty symptoms and depression for a very long time. the way i found out was by miracle. no matter what i told ANYONE about the issues i've been having, even to myself it was hard to believe there could be anything possibly wrong in my health. i thought what was happening to me, was life.............
eco4lyf808 2 months ago
I had surgery 3 months after being diagnosed the doctors completely misdiagnosed me I was only 19 at the time it was awful.. I completely get it .. I had to get my thyroid removed all in one shot .. the entire thing .. I am still going through the motions a year later .. I totally get it.
BrittanyHughes1123 2 months ago
I know how you feel. It sucks to not have a thyroid. I never feel like I've had a good night's sleep, I ache all over and feel depressed and brain-fogged.
tamrakat 3 months ago
seems like this cancer is "Trending"....i don't trust these doctors!
YoBootyStinks 3 months ago
hey I was recently diagnosed with thyroid cancer and i am getting appointments with surgery to get it removed the whole thyroid. I have a question as to since they already know I have cancer would I have to go through that iodine treatment?
shirleyJBC 4 months ago
i will be praying for you...i know how you feel...hang on there sister.
AREUJESUSREADY7 4 months ago
As soon as I saw your face I knew exactly what you are going thru. I too had two surgeries. June 14 and 24...the 2nd because they found cancer. Had RAI in August. No one understands what we are going thru unless they are living it or watched/ing someone going thru this....have Thyroid Disease is being a "Silent Sufferer" we suffer in silence.
DJRenee 4 months ago
@DJRenee Amen, and after they went in, it wasn't my Thyroid at all, but the mass had attached itself to the nerve and was pressing against the thyroid, causing a great deal of pain. It was my larynx, voice box and vocal cords, and it went wild from there, all after having my tonsils taken out
Tbflirtin 4 months ago
ooshkey, I definitely know how you feel. I've only seen doctors in the states & so many of them just DO NOT know what they're talking about. I was on Levothyroxin (synthroid) for about 2-3 years & I still suffered from low thyroid symptoms. They raised my dose to 125mcg & that felt like it was going to kill my heart because they jumped my dosage too quick. I just eventually just gave on the meds for about months & my thyroid levels dropped to 10.4 & they're supposed to be around a 2.
spaceanduniverse27 5 months ago
@spaceanduniverse27 hang in there, hopefully you will find the right doctor. I love my surgeon, and now going through this I had to have a team of specialist, so now I see a larynx specialist, ent specialist, pulmonary specialist and my surgeon. Its been a real ordeal
Tbflirtin 4 months ago
@spaceanduniverse27 This shit is hell on two feet....I wish they would make more awareness of it....more people continue to suffer than those whose medicine actually works on the 1st or 2nd try....
DJRenee 4 months ago
ooshkey, I definitely know how you feel. I've only seen doctors in the states & so many of them just DO NOT know what they're talking about. I was on Levothyroxin (synthroid) for about 2-3 years & I still suffered from low thyroid symptoms. They raised my dose to 125mcg & that felt like it was going to kill my heart because they jumped my dosage too quick. I just eventually just gave on the meds for about months & my thyroid levels dropped to 10.4 & they're supposed to be around a 2.
spaceanduniverse27 5 months ago
THAT LOOKS LIKE MY OLD CAT IN THE BACKGROUND!
theshowoflife1 5 months ago
Yea...in Germany everything went "quick" because they were working to SAVE your life (Thankfully)....Now they are working on your LOWEST and HIGHEST count for Synthroid, to find your "base". But then you self medicate....so I hope it works out. I'm sure it will--might just take a little more time. Good Luck. Luckily you were part of the group that found it early.
XRayCam 6 months ago
Hi, I'm nervous because I get my first biopsy on Tuesday and I'm wondering what's going to happen and my results. I have a goiter and multiple fluid filled cyst on the left lobe. I have checked out your videos and I feel the same way with the waiting....I've been seeing the dr once a week since I've found out.
ChiDirtySouthGul 6 months ago
Thank you for these videos. I was just diagnosed this past Thursday, and I think it just finally hit me, when I started searching on the internet about treatment options and what would be best for me. All of a sudden I am feeling down and hopefully, when I see my Surgeon this Thursday to discuss treatment options, I wanted to do some research on my own. I have watched all your videos and you have relieved my fears to a degree, but I am still up in the air about the whole situation. Take Care
Tbflirtin 6 months ago
@Tbflirtin do you have hyper or hypo thyroid? there are a few different treatments
kathysofierce 5 months ago in playlist Informative Videos
Thanks for posting your experience. It sure has helped me more than speaking with the "so called healthcare experts".......
gatuvela143 7 months ago
did you have a big nodule? i have a tiny one. can you still get cancer with a tiny one?
pinkvioletlove 8 months ago
I was diagnosed with thyroid cancer a month ago and I wanted to know, how long after your diagnosis did you have surgery?
msneter1 9 months ago
@msneter1 I actually didn't know I had cancer until after my first surgery. When a biopsy was done on April 2008, the results came out as inconclusive, which resulted in my first surgery also in Apr 08. Once the nodule was taken out & further analysed, the cancer was discovered. This resulted in my second surgery in July 2008. It took a while for the results to come back, which is why there's a big gap between the 1st & 2nd surgery
ooshkey 9 months ago
This has been flagged as spam show
FLUORIDE IS WHAT DAMAGES YOU IMMUNE SYSTEM AND Manages YOUR THYROID IT ALSO BLOCKS IODINE UPTAKE ......... GET THE FLUORIDE OUT OF YOUR WATER just google The Effects Of Fluoride On
The Thyroid Gland
PatriotRadioMilitia 10 months ago
hello, based on your experiences would you recommend the radioactive iodine treatment or the surgery? I have hyperthyroidism and my doctor they only thing he say is to the radioactive iodine treatment. I will like to know what you think.
Thanks
angelik227 10 months ago
@angelik227 well, I had surgery first, then I had the radioactive iodine treatment done. The reason I had surgery was because of the biopsy results. The nodule in my thyroid was inconclusive. Hence, surgery determined that I had cancer. I later had the treatment to kill off any thyroid cells in my body that could possibly have cancer. I hope this all makes sense. :)
ooshkey 10 months ago
Where you originally hyper thyroid or hypo thyroid? The surgery has worked for some but not all people.
I was officially diagnosed when i was 14 (I probably had it a lot longer than that but i was diagnosed when i was 14, and i am 21 this year). My doctor never gave me the option of surgery and i never knew of it until I had done my iodine treatment and i have to take synthyroid for the rest of my life.
kathysofierce 5 months ago in playlist Informative Videos
You are exactly right about the cloudiness in your head. I am experiencing the same things after my thyroid surgery a year ago. I use to be so sharp when thinking and expressing my thoughts now it suck that I cant get the words out and I sometimes say the wrong things. I have additional complications with my surgery because a nerve was cut and now my right vocal fold is permanently paralyzed which has affected the quality of my voice.
Thanks for your vid post, they have been helpful.
dmarie505 10 months ago
Thanks for posting. I just underwent my second surgery (completion) to remove the rest of my thyroid. My surgeon didn't want to remove the entire gland because he was hoping the test results from the first operation was benign. Unfortunately, that wasn't the case. When I went to get the radiation, there was too much thyroid tissue left, so a second surgery was needed. I now have to wait until April to get the radioactive iodine treatment. I'm praying I won't have too many issues adjusting
red1970 1 year ago
Thank you for your videos! I have been diagnosed with Graves Disease 3 wks ago & see an Endo this Monday the 28th of Feb. This may seem fast but my regular dr. thought the lump was scar tissue built up from a cervical disk removal & titanium fusion I had in 05. I asked her back in the fall of 09 btw. Anyway... thank u for your honesty & ur story! I am going to ask a million ?'s on Monday & ur vids helped me ease the fear & anxiety of what is yet to come.
PreciousDeals3 1 year ago
Thank you for this!! What you said about thyroid cancer being the good cancer was spot on!
Moonjade1907 1 year ago
Thank you for posting these. I was diagnosed with metastatic papillary thyroid cancer on Jan 21, 2011 and had my thyroid and several lymph nodes removed on the right side of my neck on Feb 2nd. I have my I-131 treatment on March 13th. I am trying to get through my last semester in college and all I do is sleep. I have the same frustrations with doctors and referral problems with my insurance. I'm glad you said it's shitty, because it is. Period. We can be positive but also real. xoxo
dionysis6 1 year ago
Wow thanks for the post! I was positive that I wasn't feeling normal and I kept insisting that they raise my dosage because I always felt tired, I couldn't concentrate, and I always felt like I had chains that were weighing me down. Nobody knows how much of a burden it is to be tired unless you experience it. They did raise my dose 2 months ago from 150 to 175 and I feel great! It does not make me feel hyper at all, but it's just a relief to feel normal! Good luck with your dosage!
SupaGirl68 1 year ago
I always feel like I'm choking all the time after my surgery of a double
thyroid removal due to cancer I just feel like myself anymore always depressed and with drawn I seem to always be moody
elliewee100 1 year ago
Yes, that's American healthcare :(
silentobservor 1 year ago
hey ty for the honest vids. i have had Graves since '92 got radiated and have been Hypo ever since. I had to comment because I was just irritated by the same dr run around just to get to my endo even tho. he was the one that diagnosed me 19 yrs ago, so go figure. During the last 2 decades of this ordeal. Ive seen drs that know nothing and some that think they know everything. After awhile you realize you end up knowing more than they do about your problem. Your family is your best help.
nprbiz 1 year ago
Thank you so much for your update. I have Graves and was diagnosed in November 2010. It has been hell on earth for me and my husband. We had just gotten married in August 2010 so we hadn't had a chance to enjoy being married. The doctor situation is the same in Canada however, what I find here is that if anything happens and you need to see a doctor no one will help you .. they all see "Graves Disease" on your chart and tell you to see your endo.
Gryphyn3 1 year ago
@Gryphyn3: Have you tried a naturopathic approach?
4chango 6 months ago
Thank you for the video. I almost die every week from a thyroid storm and the doctors say it's all in my head whenever they take my blood. At least I had enough time to write my final wishes. I'm 26 and I'm going to die from heart failure while my doctors drive mercedes. I feel your frustration. Everyone suspects me of using cocaine because of my symptoms and when my head gets really dumb and I sound drunk, nobody believes me when I say I'm close. I must want attention. Smile, you're pretty.
handymancuso 1 year ago
thank u so much for the video
s0blessed13 1 year ago
Thank you so much for making all these videos! I have had ultrasounds and a CT which showed I have three nodules - 3.9cm, 1.4cm and 1.6cm. My endocrinologist is sending me for a biopsy in December, and I'm really scared for it. I know if you can go through two surgeries and RAI then I can at least get a biopsy! Thanks for making it a little less scary.
sabrieth 1 year ago
@sabrieth I am due to see endocrinologist in a few weeks. I have 2 main large nodules 5.3cm and 4.7 cm. My thyroid gland is 7.7cm and 6.5cm.
love83forever 1 year ago
Comment removed
mvaleriati 1 year ago
I am going through that Drs don't know they always want to use a Nurse practicioners, they don't want to see the patients, and when they see you they see you in a hurry, I am upset because what you say is right, I hate this,
venus26tx 1 year ago
Really appreciate your videos. Started with problems and in June had 2 surgeries to remove the thyroid. Have since been going through the stuff of thyroid cancer. My doctor put me on the low iodine diet for 8 weeks. He said the longer the better so I know what it's like to want a Burger King Whopper. Then I watch your video about how the taste buds change. My doc doesn't want me to resume normal diet for 6 days after the RAI which is about the time my taste buds will be affected. Thanks!
TheDuffstuff 1 year ago
God bless you! My wife has thyroid cancer and we are hoping for the best. Thank you so much for your very informative videos- they really helped us.
Kianahawaii 1 year ago
That sounds about how health care in the states works. It's dumb and annoying. It's almost like making money from office visits is more important than just getting directly to the problem and really helping people who need it. I am also facing the option of thyroid surgery. They want to remove half my thyroid and then if there's cancer, they will remove the rest of it. I'm just starting down this road also. Enjoy your posts!
shlempae 1 year ago
sorry to hear, I have been very lucky that I have been having my Tx @ d VA hospital and everything is very simple and the surgery was expedited.
I wish you the best, I hope things gets better. I am 21 days away from my radioactive tx.
Take care!
anaivette64 2 years ago
i am having a similar problem. I had thyroid surgery in May09. The left side was removed.
Now I feel tired, weight gain, unmotived and have brain fogg.
My doctor did not put me on thyroxime.
AuntyM66 2 years ago
i live in upstate ny, check with your insurance and see if you actually need a referral, with you being military, its hard to believe. its nice to connect with someone who went through what i'm facing. i start my diet on jan. 6 and came across your video, thanks for being brave enough to put it out there!
coolbeanz427 2 years ago
Wow its great to see someone else having the same problems as me. I'm also thyca survivor of 2 years and I also take 150 daily. Hang in their girl..
kiwi2050 2 years ago
It is quick in Canada, we don't have problems.
wildnutria 2 years ago
My sister in law JUST had hers removed today, and she has been dealing with it for 3 years. She had 15 nodulars, a goiter and her thyroid numbers were real high which affected her blood pressure and heart. we live in Canada. So its a waiting game, she has had 2 biopsies and both negative..but it got to the point of her laying on her back she could not breath. Scary!!!
wunderbarmom 2 years ago
ooshkey, I need to re-write my last msg. Sorry I was in a bad place. U r so down to earth & loveable. I am so sorry u r going thru such frustration at the moment. I hope things change soon. U've been thru so much & deserve for things to look up. v. soon. Thinking of u (code upyrz) not real name. Until next time. Big hugz !
upyrz 2 years ago
Dear ooshkey, u may not understand but i hang out for your comments.... u r more like me than others. I am at the begining of this frustrating ordeal of going to drs & getting tests & not getting another appointment for 2 mths etc. I am in pain & am tearing my hair out. Think u r great. All the best! p.s don't want to put my name out there due to family....wish I could.
upyrz 2 years ago
hey ooshkey;) im in the same boat.,but mine is not normal that they know of i had the surg about a month and half ago,not happy with the scar ,voice box was damaged,went back to ent and he said it will come back thankgod so slow progress.sweety i hope you get better and i get the same thing with the drs in my state and thats ga so i know its crazy.itll get better tho trust.glad to see a new vid;) ur not alone im gonna message ya
missyf321 2 years ago
So sorry you're having a hard time with the thyroid / synthroid. I take 200 daily and so far I'm fine. I really hope you feel better soon, and thanks for posting the video. As a thyroid cancer survivor myself, you're in my thoughts.
johnbolony 2 years ago
@johnbolony I have a benign lump on my right thyroid but my doctor reckons I should have the lump and right thyroid removed but can opt not to + keep an eye on things. My thyroid works fine + I am worried that removing half of it will cause other problems of it's own. I am worried that taking thyroxine will not prevent hypothyroidism + I will end up depressed, sluggish, weight gain etc etc. May I ask how your medication affects you - positives and negatives? Not sure what decision to take.
mitralara 1 year ago
First of all you are in the military they should treat you ASAP just because of that... bless your heart. So sorry you are having to deal with this honey.. you are such a sweet person I wish you the best!!
CBVictoria 2 years ago
hey ooshkey ..nice to hear from ya on yt ...yup its a problem alright....and here in Canada things are not much better as you said on one of your vid ..it gets no "street cred"...so hang in there ...hopefully once the meds get tweaked..it will help some what..i am also coping with the same thing from my friend ..she was up all night and this is happening a lot to her (she had her surgery in June)..so you are not alone..here if you need to talk ever..
coffespewer 2 years ago
Let me be the first to say that you're one amazing person hun. Yes the health care sucks in America ( I know from experience ). Always know that we care about you and your health. Keep your head up high. And I hope things get better for you very soon. Love always, Stacey
slmcgowan2003 2 years ago