Added: 5 years ago
From: 1butterflykiss
Views: 51,415
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  • i have alopecia, and had it since i was 10, im 18 now and barely starting a wig and hair topper at times :

  • Thanks for the video upload!

  • You Beautiful Inside and out and your spirit and courage is uplifting

  • OMG! I know you said we shouldn't be sad about the clips at the end but I kinda cried because when I saw the pics of you and your hair before it made me sad because you had long and beautiful hair and now it's gone and it isn't your fault some people need to realize that they are blessed that this didn't happen to them and my heart goes out to you and everybody else who has this or any kind of condition...

  • I too shaved my head since the hair was thining out so bad and found lace wigs which is what I wear now and luv them. Now I can whip my hair in any style I want!! lol We are strong and beautiful either way. Stay strong

  • @TheLadyoflace :) nice!

  • You are beautiful with or without hair! I am going through hair loss myself and I have been really stressed and ashamed of it. But watching your video really gave me courage to face it. Thank you!

  • I had alopecia in 3rd, 4th, and 5th grade and it was really tough, but now all of my hair is grown back. I absolutely love your strength!

  • denture out please

  • You are really great, to have the attitude you do. :D And you actually pull bald off.

  • She looks like she gives good head.

  • You are ow my inspiration lol. I am about to go to the doctor, I believe I have alopecia! Am I scared or worried... ummm nope! I already told the hubby, I would shave it and have different colored hair every week lol. I have a pretty good size bald spot on top of my head. It has gotten bigger from the time I had found it. I can almost not cover it anymore. So.. clippers here I come, but I do want to wait and see what the doc says first. Bless you for this video and your attitude. You are amazin!

  • It sure is an adventure and it really does suck. Just sucks away your self esteem and leaves not a lot left. Although it can strengthen the roots of your personality and you can grow from it.

  • Your confidence and acceptance of the condition is amazing. You stay positive no matter what, and I really admire your courage!

    You're super pretty!

  • eeww

  • @SlakjeJasper how rude and stupid your "eeww" not her aor anybody just you because you posted this nasty comment dont you have a heart what if it was you!?

  • @SlakjeJasper

    youre so ignorant and shallow. That condition can happen to anyone at anytime, that means you included. Youre so rude, people cant help what happens to them, Would you like it if something like that happens to you and someone says "Eww" to you too? I dont think so. Grow up

  • You're pretty even without your hair =)

  • You're pretty even without your hair =)

  • Aww you're an inspiration. I think i've got alopecia, my hair is falling out VERY MUCH without a good reason and i'm kind of scared.

  • This was very moving to watch. You are a very inspirational person and you look beautiful with or without hair. Much applause!

  • thank you

  • i have alopecia after like 4 years off loseing my hair they finally told me i have alopecia im 20 now which is horrible to me but ur amazing and i wish i could accept it as much as u do!!!!

  • i was just diagnosed with alopecia and your video has inspired me very much. thank you. I am also a magnet for rare conditions. just lucky i guess

  • you look beautiful with no hair! you really do!

  • You look sooo good w/o hair! Your cheekbones are amazing! Your attitude is inspiring, and I am so glad you posted this. Hope you are well!

  • your beautiful

  • I have alopecia for the second time now, and you give me so much hope :) thank you!

  • damn girl u workin that bald head...pink hair..brown hair n tottaly lookin like a hottie in that jacket!!!! god bless u and keep ur faith in God for he will have faith in u!!

  • u r sooo great!

  • Comment removed

  • You're my idol! and your look as sharp with or without hair; thanks for the clip :) You look great!

  • I was recently diagnosed with alopecia. I enjoyed your video and your spirit. You are beautiful and quite a character, I can so see you on SNL -- Go audition!

  • Thanks. Thanks so much for the compliment. :) Hmmmm SNL? I don't think I have what they are lookin for..lol

  • Your hair looks really nice! but I just think you should brush the bangs to the side, you know? It would look much better I think =)

  • I also have Alopecia.

    You go girl!

  • thanks!

    *kisses*

  • Seriously she's wearing a wig. Everytime she scratches her head, I can see it move. Seems like you're pretty ashamed of it...

  • I am wearing a wig..

  • I have had Alopecia Areata for 20 years. I am proud of you. You go girlfriend! I like the positive attitude.

  • Thanks! :)

    *kisses*

  • I just got diagnosed and I'm considering wearing a wig. I'm a senior in high school and I started noticing what was wrong my freshman year. So this vid helps. You look gorgeous .

  • So brave!! Shoot some of that bravery this way please. One day I will be brave enough to do this!

  • You're beautiful, hair or no hair.

  • So sweet. Thank you!

  • Courageous 2 shave off so much hair, You could have worn a short MO HAWK!

    I haven't had any hair since 19 years of age, 33 years ago.

    What's a Girl TO DO?

    You're great....and yes..inspire with more of those beautiful clips..of the before and after.You Look Amazin BALD.

    I have gone without a wig since 1982 and My son loves it..thinks it's so "Cool"

  • why do you talk like a valley girl. you may have made good points and i do admire you for being brave with shaving your head, but why must you talk like you are not educated! Talk like an adult! PLEASE!

  • Dont take this personaliy but your stupid!

    What the hell ?

    I have Alopecia I was born with it atleast you havent had it for 14 years and still countin.

    Super man had alopecia?

    Well Yeahh.

    Just be glad it hasent been that bad.

    Well welcome too hell.

    I have had it for awhile and people make fun of me becuase i dont fit in so much.

    Like my hairs not all good and pretty like theres.

    I have a "mullet" as a stupid kid said but its not though its my hair diease.

  • you look like michael jackson...

  • wow i was just about to say that

  • you fix your bangs to much it's annoying!!

    But i'm sorry to hear that you have alopecia.

  • always remeber i am not  my hair

  • xOOO you would totalyy look like Micheal Jackson if you took the wig off!

  • Hey, your beautiful the way you are. If you wanna act like your young, then go right ahead. We all have a kid in us. Anybody who says to act your age doesn't even know how they feel to be young again. My dad don't have Alopecia, he's just bald. lol...Though I never heard of women being bald before. Thats new to me.

  • umm a makeup artist would do better for your eyebrows but ur kinda stupid to think that you get them tatooed

  • i cant care less... i mean haha were all gonna die sooner or later =D

    i mean u might be 20 summit but im 15 =( mines juss started i got 2 patches so far ones 5cm in diameter and the other is bout 2 =P

    hehe but hamd im okaiis bout it juss doing a lot of searching wondering wot it is =S

    ...just joined the club!! haha @ below ;)

  • has anyone asked u if u had cancer people always ask me its real annoying

  • Welcome to the club~

    I've got it too

  • mee to 9 years now~

  • Uncomfortable, It took 3 months of treatment until my hair was full again. It started off very fine (like baby hair) and snow white but does get back to normal. Keep us posted and let others know

  • Let me know pls what treatment you've had. It doesnt seem so easy to find the cure for that. I've been looking for something that really works and nothing has worked so far!!

  • Nothing work because they haven't got anything that work really good. I've got Alopecia since 10 years. Try to accept it...maybe your will grow on his own...

  • Hi I also had Alopecia up till about 2 yrs ago, I feel I have to share my cure with you and hope it works for you like it did for me, all I ask is that you share this with as many sufferers as possible so that we help the trauma that we went thru, Please do yourself a favour and see a chiropractor and let him treat your T9 which by the way does caus hair loss. The normal practioner doesnt know this as that is not their field. I still see my chiro at least once a month or when my back is feeling

  • :) thank you

  • i think your wearin a wig but looks cute

  • omg i started crying

    its so sad but ur so brave

  • you really have a good point life isnt always good

  • you´re so brave!

    I admire you!!

    Thanks for the video!

    :D

  • YOUR FACE IS CREEPY

  • Your an ass

  • thats pretty mean

  • It was good to see Butterflykiss dealing with her Alopecia in a healthy manner - losing hair is NOT the end of the world.

    However, I was surprised to see her shave her head - totally unnecessary. I deal with hundreds of Alopecia clients and for Butterfly, I would have recommended a partial hair system. It's much more comfortable and much better looking than a full wig.

    If you have Alopecia - don't think you need to shave your head. Check around first and look into the alternatives.

  • Hmm Im male and have only small areas bald. I would probably shave my head since its not that big deal for a guy to be bald, but the problem is that the areas have like thinner skin so the skin sometimes breaks and forms small scabs ( so even if i shaved my head you would see the spots). Have you seen this before?

  • Use the Gillette Mach 3 shaver for your head. This should give you a close shave without cutting your skin.

  • I agree, people with alopecia should look at all of their choices and make a careful decision about what to do about it, but for some people, shaving your head is the best option. I've had the disease for 17 years, I wore a wig for half a year, and I got hormone treatments for 5 years. Now I've decided that shaving my head is the way to go. It's a personal choice, and what may seem like the wrong choice to one person may be right for another.

  • alot of ppl n mi life dnt kno about mi spots i hide them with a hat and its hard kus in only 19 ive lost modeling gigs and now jobs because of it and it fees lik the worst ever this video is helping me thru it wit an okay attitude thanx

  • you have a great additude with that!

    p.s... cute jacket :)

  • i used to have it when i was 4-9 im 13 now and its gone. i just hope it doesnt come back!

  • u rock

  • I have alopecia also i was wearing wigs for 4 years then it finally came back now its all gone again even my eyebrows and leg hair.

  • This is fairly normal. Alopecia can come and go as long as the root hasn't "closed". It's difficult to determine the cause but it's often stress related.

  • I congratulate you. You have displayed a very positive attitude towards your condition. Although I am bald by choice I have been through my own live changing experience, and I can certainly empathize.

    I do find the negative comments youve received to be rather irritating. Some people are just so juvenile.

    Take care.

    David

  • what r symptoms like does ur hair fall out in strands or clumps

  • it just falls out in small to moderate sized clumps, it may feel tingly while falling out, it usually falls out overnight

  • i have alopecia too! my hair grew back though =] IHOPE URS DOES TOO it will trust me

  • You are still BEAUTIFUL, thanks for this video I showed my boyfriend whom we`ve been caring for 3 hairless spot and I was giving him hope where there is none but with your clip it was alot easier for me to let him know. He opt for shaving to. thanks again.  God bless!

  • why 16 minutes of shit that bull shit .

  • can someone tell me how u can get alopecia?

    cus i really have great hair(thick blond long nice hair!)

    i don't wanna get it!

  • your still pretty without hair ^-^

  • at first i thought it was going to be a pointless video. i feel better listening to this. thank you so much. im in high school and its pretty nerve wrecking to have people stare from time to time. importantly i learned from you to not let this silly condition control me

  • omg december 16 is my birthday!!!

  • XD ur bithday is a really lucky day!!!XD

  • i love your jacket. your not alone 2 of my mates have it

  • youre a good person ^_^

  • I really cannot believe the stupidity of some people. It really shows how educated they are. I was diagnosed with Alopecia Areata when I was 11 years old. I am 19 now. I have never lost all of my hair, but have had some rather large spots that couldnt be covered up. I was spot free for more than a year and recently noticed a large bald patch and a smaller bald spot around May of this year. In school I was constantly getting called "Baldy", even up until I graduated in 2007.

  • people called me that to!!! but when my hair grew back they all wanted to be my friend

  • McKenna0VolcomSurfer theirs something wrong with you this lady is putting here self out their and your about to say some shit like that to somebody who cant help whats happening to them.

    1butterflykiss I feel for you. I love the way your dealing with this and your an inspiration to all people with alopecia.

  • yes !! your not alone

    i have alopecia too :)

  • your not alone

  • yeah i have it except there bald spts i had at 9 or 10 and and at 14 now im 15

  • I have alopecia for 30y. (I loose 20%) of my hair arox. twice on year. Personally I observ and belive that some stress, frustration starting and generate that reaction. But skin and hair on this place is sensivite for it, and "waiting" for new ...stress.

    Your video is great, you are beatiful lady with deep personality, you have great dougter and familly. I belive that everything will be ok. Future belongs for You!

  • Look up trichotillomania...

  • I would love to get this exept only body hair LOL.

    great vid ur awsome <3

  • Are you a meth addict?

  • I love how you discuss Alopecia. My niece is just starting to lose her hair. She's 20 years old. Yet to be confirmed with Alopecia. But that is what is suspected. Her beautiful thick hair is now thin and she has 3 rather big bald spots in the back of her head . I'm going to send her a link to your video. I hope she can 1 day have your positive out look. To me you are an insperation. I hope she can find insperation in your video. PS: Your beautiful!

  • ohhh my gosh you are an amayzing women and you such a great outlook on life your an insparation ahh

  • U look like Michael Jackson -____-

    lol :D

  • my prayers are with you and i hope you can get your hair as thick as it used to be. good luck... and you look great with and without hair!

  • it is where your body attacks ur hair folitucles where it causes you to lose ur hair

    Aimee

  • I really just want to thank you :) Got Alopecia RIGHT when school ended (funny how that works :P) and usually I've been telling myself: "Oh yeah, it could be a lot worse..." But hearing someone else talk about it really made a difference. :D Made me giggle once or twice, too. But yeah, thanks.

  • I was having a pretty bad day so when I came home from work I went on youtube and randomly came across your video. You are very funny woman and I admired how you discussed your condition so light heartedly. Your video was very inspirational and helped me grasp the fact that there is more to life than appearance and dwelling on things that can consumer your mind and just make you worry. Thanks so much for your words, and keep being your funny, vibrant self!

  • hair lks nice x

  • You are such a cutie pie. Thanks for sharing. Where were you 5 years ago when this happened to me? LOL I just came out of the "Alopecian Closet", and I am finally at peace with it.

  • My hair is thinning & I am a 30 yr old male. I am afraid to lose my hair and become bald. right now i am taking finasteride to control the hormone (DHT) in my body. also, i am using a shampoo that has selenium sulfide(heald & shoulders), and another shampoo which is T-Gel (2% tar) i use them alternately. also, i tam taking oil of oregano orally adding them to my drink..i add 2 drops of oregano oil becuz it is anti-fungal,anti-bacterial, anti yeast.i also put essential oils on my scalp&massage it

  • i'm 15.

    i have one bald spot....

    it's like a silver dollar...

    do i have alopecia?

  • go to your dermatologist so that she/he can tell if you have it.

  • Ow :'( I'm soooo sorry!

    But, omg, you are beautiful wit and without hair!

  • You are beautiful with or without hair... remember that God knows everything he does... I also have this alopecia!!!

  • You are brave and absolutely beautiful, with and without hair. Thanks for making this video, you rock :-)

  • frickin' santa XD

  • im so sorry ='[

  • i admire your positive attitude

    still pretty with or without hair :)

  • in response to JimmyFloyd2, i'm pretty sure everyone with this disease is as grateful as anyone else to not have cancer.

    Just because it's not cancer you're not allowed to complain? I'm sure you complain about headaches or whatever. Show some respect, this disease isn't life threatening but it causes a lot of psychological damage.

  • i notice those who have this sickness where ALOT of makeup..........which makes them look more DRAG than anything.........you're gorgeous just natural gurl......kia kaha...

  • I have this sickness, and I don't wear lots of makeup...but I do wear lots of different wigs and weaves.

  • Awesome smile and great outlook. I am a 39 year old male and am losing my hair. Of course for a guy you sort of expect it but still, it's a reminder of things to come! Keep up the great message!

  • I lost my hair as a 13 year old boy. I did not take it well at all!

    I admire you.You have fantastic dignity and courage and you still look fantastic!

  • koolzzzzzzzzzzzzzzzzzzzzzzzzzz­zzzzzzzzzzzzzzzzzzzzzzzzzzzzzz­zzzzzzzzzzzzzzzzzzzzzzzzzzzzz.

    not rly....lolz, no sryyy.

    im just stupid rite now.

    i have alopecia too!

  • Is that permernt?

  • Nah, it grows back like normal.

  • i think your beauiful, and so brave, keep that smile going for the equally beautiful daughter of yours.

  • you're awesome!

  • really?? have u got msn skategirl 3578?

    write soon please!

  • a lot of people have alopecia.. my sister has got it too... and she is 12..

  • lmao!

    i have it and im 12 too

    (cipo18)

  • holi shite!

    i have alopecia too!

  • Try to use Aloe Vera concentrated gel, I saw on internet that's good for alopecia areata. Sure you must keep you actual treatment, just adding the ALoe Vera.

  • i think you're great! actually i just found a bald spot today just outta the blue. actually my brother pointed it out.. im really worried but seeing your video reminds me to be strong and face this problem. ;) thanks

  • i think you're funny and great.

  • I've just been diagnosed, I feel like I'm in hell I'm 28 & I too have been through the ringer. Seems stupid how freaked out I am. I cannot shave my hair I wish I was sweet about it....I'm not

  • you are a very beautiful bald-headed lady. you have absolutely nothing to be ashamed of. you are daring and unique!

  • YOU ARE STILL SEXY, HAIR OR NO HAIR.

  • Hope you are doing ok, had no idea you had problems with your teeth as well, bless you, you seem like such a nice lady! (hot too!)

  • wow this made me cry, you are so strong, keep the faith (((hugs)))

  • big mess

  • mess?

  • You're awsome!

    I make an essay about alopecia.

    Can I ask you some questions about it through mail?

    X

  • Yes. Of course! It will be my pleasure.

    *kisses*

    Therese

  • sexy lady!!

  • Thanks. :)

    *kisses*

    Therese

  • Who cares about hair, you should keep shaving your head, you look great! I had an ex-girlfriend who shaved her head, she looked almost as good as u!

  • Oh yeah, your married, keep forgeting

  • lol...Thank You.

    *kisses8

    Therese

  • GOOD FOR YOU! u have reely good attitude about this whole thing! people should look up to u

    btw, ure reely pretty! and ure personality makes u even more pretty and all the people who think u look like michael jackson or whatever...they dont have the strength that u have

  • thank you for taking the time to watch this video...I know its long but I didn't really know how to shorten it and get my message from.

    Thanks for the sweet compliments.

    *kisses*

    Therese

  • Wow your quality. I had alopecia and with the same positive attitude you have helped me get through my nightmare. But within a year or so my hair came back thick and fast. I believe its because i accepted it and moved on. I didnt dwell on it all the time. Your a very positive person and genuine person. I hope your hair comes back. Thanks for sharing your story :-)

  • Mine is back too now. I shaved it all even for the last time on the 8th. Thanks so much for sharing. :) Mine would be a year in Dec.

    *kisses*

    Therese

  • Thats great news, im so happy for you. I went to the barbers yesterday to have a number 1 all over. It felt great because I chose to have it short not because i had too lol Alopecia was a really good thing for me, i learned alot about life and people etc. I bet it did the same for you :-) Take care Therese

  • It most certainly did! Thats great that you took control of it too.

    *kisses*

    therese

  • you're gorgeous!!

  • Thanks. :)

    *kisses*

    Therese

  • Great video. Great humour, you have been dealing with this so great! Thanks for being so open :)

  • Thank you for watching the video!

    *kisses*

    Therese

  • You are an inspiration! Thank you so much for sharing your strength with us.

  • I'm really impressed - what a beautiful video about a strong personality! ^^ Of course you looked great with hair, but you look even b