What a brave young boy. Brings back all the memories of when I was a child too and I know how hard it is, but he keeps smiling. Best of luck in the future :)
What a brave young boy. Brings back all the memories of when I was a child too and I know how hard it is, but he keeps smiling. Best of luck in the future :)
I am new to Perthes. I have a 3 1/2 year old son who was just diagnosed with this. We are taking the watch and see method every 3 months with xrays. What are the chances of his bone healing on its own without surgery? Most of what I see online is where the children end up with surgery sooner or later. Any thoughts are very appreciated. Still reading and learning about Perthes. Thanks, Shannon
This viedo was great! I had perthes from 10 till I was 20. I was doing great but it come back and got me. I am 32 now and last nov I had to have my left hip replace. My right hip is still doing well. I do have to say tho the hip replacement is great! I love it. Not as bad as I thought it would be. Thy have so many new ways to treat perthes now that I think that kids now Will have a Wonderful out come. Thanks for the video.
God Bless you for sharing this!! My son Hayden, 7, was diagnosed in March 09, has been using crutches. We are now trying to decide the next step with our doc telling us surgery, but the specialist at Children's in Boston to go with petriecasts. I am so at a crossroad here. We have one more appt. w/another doc this Thrsday and will have to decide then. It is hard to see your son like this but he adjusts to it all so well. Thanks~ and remember, if God brings you to it, He'll bring you through it!
Garrett is unbelievable! He never complains. The biggest struggle is his range of motion. He has had surgery and petri casts three times in the last nine months. We go back in two weeks and pretty sure they will need to do it again. His doc at Shriner's said he is the first kid he has had to do it on three times and will continue to do it if needed. That was his attempt to motivate garrett to settle down. Garrett's reply was that he "wanted pink casts next time!" Silly boy.
My son is 10, was diagnosed St Patrick's Day 2008. He also goes to Shriner's in Chicago. Do you see Dr. Altiok? He is wonderful! My son had one pink cast (for the boys to sign) and one green cast (for the girls to sign). The best to you! That ROM is so very important!! and sometimes difficult for the parents and the child to keep up the work to maintain it!
We do see Dr. Altiok and he is great!. I ran into an older child with Perthes when Garrett was there for a week long of physical therapy at the hospital. Maybe that was you guys. Did you recently come back from another country? Garrett has now had three surgeries for ROM but it is a constant struggle. Not only is he active, he sleeps, eats & breaths sports & plays with his 10-year-old brother and friends. We just recently returned to Shriner's a few weeks ago & his ROM is only 30% : (.
so many awful memories, 5 when it first was treated, and now at 34 the pain is back again ; not supposed to have a hip replacement until around 45....got stairs in my house, live alone, ain't gonna be pretty, lucky I got private health insurance nothing but the best this time....
Calvé-Legg-Perthes Is hi up on the list of Shitty deseases .... 34 years Diagnsted when 7 I walked on crutches for 3 yerars som of the time with a thied up fot I have to swimm 1000m 3-4 times a week to keep it going and a lot of pain....
I'm what you may call a legg-perthes survivor, I was diagnosed when I was 4 yrs old in 1984, now i'm 29 yrs old and turned out just fine, I practiced several sports during high-school, and have had a pretty normal life, any questions you may have feel free. Best wishes to Garrett.
The dr just told us that my 5 year daughter has (LCPD) I dont know what to expect I feel very sad because she is so active and she's been limping for a while about 6 months and I feel so bad, Any suggestions? we just found out last week she has her 2nd appt 8/3/09 . I would appreciate any help with this thanks
Well depends on where you are in the diagnosis process. Depending on what x-rays the Dr has taken of your duaghter's leg. So there might be some more tests to run to see in what stage the perthes is at. After this he will discuss treatment options, usually he will begin with a series of casts, You might want to look up some info about braces and surgery. In my particular case the Dr applied all three treatments, casts, braces and surgery, but always remember every pacient is different.
You might also want to look at support groups in order to get some help and info on new treatments so you can have the most updated info, I've found several in Yahoo! Groups. The mos important thing is to make sure your daughter knows you're there for her, I know how you feel and it might be hard to see her go from active to be restrained by casts, but if you're a little creative it won't be so hard on her. Focus on games where she doesn't have to run and ask teachers at school for support.
My favorite toy became LEGO and my G. I. Joes so you have to work from there and try to make due with what you have. Again I know its hard but ty to always keep in mind, that for your daughter to have a normal life in the future where she can walk and run and play, your family will have to make some sacrifices the next couple of years, and take my word for it they're worth it. Hope I was of some help.
It's nice to be reminded that this gets better for them. Just some bumps in the road. :)) I am going to start stocking up on LEGOS!! Thanks! I am also going to homeschool my son this year. First for me, mother of 4 and first time for my son. I am now putting him in a bubble!!! I want him with me durig these next few months, all the time.
Hang in there Garrett stay strong:)
eastman979 7 months ago
This has been flagged as spam show
What a brave young boy. Brings back all the memories of when I was a child too and I know how hard it is, but he keeps smiling. Best of luck in the future :)
ninabound 8 months ago
What a brave young boy. Brings back all the memories of when I was a child too and I know how hard it is, but he keeps smiling. Best of luck in the future :)
ninabound 8 months ago
poor kid hes somewat lucky he got a hot nurse!
i h8 perthese i went thruogh it
thelonster08 1 year ago
poor kid
thelonster08 1 year ago
I am new to Perthes. I have a 3 1/2 year old son who was just diagnosed with this. We are taking the watch and see method every 3 months with xrays. What are the chances of his bone healing on its own without surgery? Most of what I see online is where the children end up with surgery sooner or later. Any thoughts are very appreciated. Still reading and learning about Perthes. Thanks, Shannon
shannonmcooley 1 year ago
Great Garrett !
Thanks for the video.
My little Stefano (3y and half) is just beginning his fight against Perthes!
And he will win! Bye from Italy
€
tonnotonnotonno 2 years ago
This viedo was great! I had perthes from 10 till I was 20. I was doing great but it come back and got me. I am 32 now and last nov I had to have my left hip replace. My right hip is still doing well. I do have to say tho the hip replacement is great! I love it. Not as bad as I thought it would be. Thy have so many new ways to treat perthes now that I think that kids now Will have a Wonderful out come. Thanks for the video.
laplata507 2 years ago
God Bless you for sharing this!! My son Hayden, 7, was diagnosed in March 09, has been using crutches. We are now trying to decide the next step with our doc telling us surgery, but the specialist at Children's in Boston to go with petriecasts. I am so at a crossroad here. We have one more appt. w/another doc this Thrsday and will have to decide then. It is hard to see your son like this but he adjusts to it all so well. Thanks~ and remember, if God brings you to it, He'll bring you through it!
jenniferdaigle13 2 years ago
Garrett is unbelievable! He never complains. The biggest struggle is his range of motion. He has had surgery and petri casts three times in the last nine months. We go back in two weeks and pretty sure they will need to do it again. His doc at Shriner's said he is the first kid he has had to do it on three times and will continue to do it if needed. That was his attempt to motivate garrett to settle down. Garrett's reply was that he "wanted pink casts next time!" Silly boy.
tbuske1 2 years ago
My son is 10, was diagnosed St Patrick's Day 2008. He also goes to Shriner's in Chicago. Do you see Dr. Altiok? He is wonderful! My son had one pink cast (for the boys to sign) and one green cast (for the girls to sign). The best to you! That ROM is so very important!! and sometimes difficult for the parents and the child to keep up the work to maintain it!
frykmom3 2 years ago
We do see Dr. Altiok and he is great!. I ran into an older child with Perthes when Garrett was there for a week long of physical therapy at the hospital. Maybe that was you guys. Did you recently come back from another country? Garrett has now had three surgeries for ROM but it is a constant struggle. Not only is he active, he sleeps, eats & breaths sports & plays with his 10-year-old brother and friends. We just recently returned to Shriner's a few weeks ago & his ROM is only 30% : (.
tbuske1 2 years ago
Comment removed
frykmom3 2 years ago
i have it but i got pins in september 2008 in sick kids tronto thank god i am getting beetter i know what your going thourght
coloradorocks3 2 years ago
Just found out my 5 year old daughter has this I feel so bad and I dont know the outcome!!! it just breaks my hearth
wendyandwarren 2 years ago
so many awful memories, 5 when it first was treated, and now at 34 the pain is back again ; not supposed to have a hip replacement until around 45....got stairs in my house, live alone, ain't gonna be pretty, lucky I got private health insurance nothing but the best this time....
pw510577w 2 years ago
keep on fighting Garrett
125sox 2 years ago
Hi
Calvé-Legg-Perthes Is hi up on the list of Shitty deseases .... 34 years Diagnsted when 7 I walked on crutches for 3 yerars som of the time with a thied up fot I have to swimm 1000m 3-4 times a week to keep it going and a lot of pain....
haraldseide 2 years ago
It takes an Athlete to overcome this disease,and as far as I can see GARRETT 's got what It takes ! Keep up the GOOD WORK ! Mr.HAND" THE CASTMAN".
KUNTA2U 2 years ago
I'm what you may call a legg-perthes survivor, I was diagnosed when I was 4 yrs old in 1984, now i'm 29 yrs old and turned out just fine, I practiced several sports during high-school, and have had a pretty normal life, any questions you may have feel free. Best wishes to Garrett.
jmperez49 2 years ago
The dr just told us that my 5 year daughter has (LCPD) I dont know what to expect I feel very sad because she is so active and she's been limping for a while about 6 months and I feel so bad, Any suggestions? we just found out last week she has her 2nd appt 8/3/09 . I would appreciate any help with this thanks
wendyandwarren 2 years ago
Well depends on where you are in the diagnosis process. Depending on what x-rays the Dr has taken of your duaghter's leg. So there might be some more tests to run to see in what stage the perthes is at. After this he will discuss treatment options, usually he will begin with a series of casts, You might want to look up some info about braces and surgery. In my particular case the Dr applied all three treatments, casts, braces and surgery, but always remember every pacient is different.
jmperez49 2 years ago
You might also want to look at support groups in order to get some help and info on new treatments so you can have the most updated info, I've found several in Yahoo! Groups. The mos important thing is to make sure your daughter knows you're there for her, I know how you feel and it might be hard to see her go from active to be restrained by casts, but if you're a little creative it won't be so hard on her. Focus on games where she doesn't have to run and ask teachers at school for support.
jmperez49 2 years ago
My favorite toy became LEGO and my G. I. Joes so you have to work from there and try to make due with what you have. Again I know its hard but ty to always keep in mind, that for your daughter to have a normal life in the future where she can walk and run and play, your family will have to make some sacrifices the next couple of years, and take my word for it they're worth it. Hope I was of some help.
jmperez49 2 years ago
It's nice to be reminded that this gets better for them. Just some bumps in the road. :)) I am going to start stocking up on LEGOS!! Thanks! I am also going to homeschool my son this year. First for me, mother of 4 and first time for my son. I am now putting him in a bubble!!! I want him with me durig these next few months, all the time.
jenniferdaigle13 2 years ago
Great video, Garrett is a trooper! Our son Hendrix has Leggs-Perthes too...we have done one casting so far...
1funkymunkey 2 years ago