Genetic testing before pregnancy is so, so important. If the child you may have is at risk of this because of your and your partners DNA then i think you would have to leave the guy, or at least i would. No man would make me want to put my child through this, heartbreaking.
@stewiessis10113 Sure feel free to do so as long as you give the proper credit. I am happy that this video continues to touch people and cause awareness. I feel with your project it can spread a little more.
hola qtal como estan....yo qiesiera saber si algun especialeista me podria ayudar a encontrar la enfermedad que tiene mi sobrinito,porq ya consultamos muchisimos especialistas y se iso muchisimos estudios y nadie puede darnos un diagnostico valedero que nos diga la enfermedad que tiene,porq ya no queremos perder otro niño porq su hemanito tenia los mismos sintomas de el y ya fallecio sin saber que tenia....
Whats with all the comments saying they should get tested. Bit tackless. Be a bit more simpathetic or dont comment at all. Tbh no one wants to know what they SHOULDVE done. They just want to know they're not alone, And there not<3
tay-sachs happens when a child is born w/out important enzymes to break down the fatty proteins in the brain so it builds up and it affects there seeing hearing and movement and there mental compasity its very sad the child usually dies at age 4 :( very sad to not live a full life like the rest of the world
apparently you were blessed to not have had child with tay sachs. My heart breaks for those who have had children with tay sachs. As did mine with my own child.
If you had a kid who died from this disease, I really do feel for you - but why search for taysach-related vidoes? Just to defend those who suffer from it? Come on. Listen to some music, go biking or something nice, don't fucking rehash shit.
Because hearing the belly laugh of a child with Tay Sachs, once again, brought joy to my heart. Its a different type of laugh and I hadnt realized that until having heard the same laugh from other children.
On another note, it's not appropriate to use such language against the heart-felt memories expressed in these correspondences.
I meant no offense - I can see how my words might've been taken.
I give you all the condolences a stranger can give, and must explain that the second half of my comment was meant to be just this: I've never felt the pain of losing a child but I imagine it's worse than guess I could make. If so, if I imagine what losing a child to taysachs would be like, I can't say that I'd spend time on related youtube vidoes. Memories stay with you, you don't need sad montages to relive them.
I agree with your advice. It's been many years since her death. I came across a child with a similar disorder and then looked up TS on the web and found the Youtube videos. I must admit, however, that it was actually wonderful seeing the images of the little ones and the love they evoked from their families. The laughter, I will never forget. Thank you for your thoughts. Ellen.
im searching informating about this deases im from panama and i was locking information for biology that i have to talk about it. you did a very good video that touch your heart the song the information you post excelent im going to say in my speech that i found a perfect video that show me what this deases is THAKS YOU i hope some one in the world can help this children i have a little brother but he has autism see you thanks...
its terrible and very unfortunate that this occurs but if the parents know better and if they test themselves to see if they're a carrier of the gene they should try and have kids with someone who doesnt carry that gene. also avoid all the sadness that comes with it. i know this is better said that done but thats rly the only way.
Why would they get themselfs tested for THIS disease? Out of ALL diseases, this one is VERY rare. Why would the parents see if they have the gene for this paticular one out of all the other diseases they could test for? I would like to know
fyi, its rare but if i knew i had the gene i would try not to get with someone who has it too hun. I dont think anyone wants their lil precious baby to die at such an early age. There ya go, and now you know.
Well, it has much more of a concentration in churches in small communities, since chances are at some point down the line you have been related. (THAT small communities/churches, not all)
Most people don't know about the disease and so they don't get tested. Within the Jewish community, Rabbis now know to ask that testing be performed.
Statistically, given a group of 7 couples, 1 will be J-J (J for Jewish and N for non-Jewish), 3 will be J-N and 3 will be N-N. So, given the fact that the disease is only typically spoken of in Judiasm, many couples don't realize that they, too, have a risk of carrying the disease.
The carrier status is actually the same for all Mediterranean people - that means Italians, too. The Catholic Church has a different view on abortion and preventing pregnancy and so TS is not spoken of openly in the Church. Judaism, however, does not have the same views. Even in Orthodoxy, even if one were using a matchmaker (no comments, please, it's a big world), TS is handled by not approving a potential marriage if both individuals are carriers.
It's not a simple test. It takes a week to get the results and its only ONE wrong sequence in the genetic code. Plus, It's a reccessive trait, so both parents have to have it and it's unlikely to begin with. Yes it's sad, but blaming the parents who dont always get correct results is just wrong. Instead of saying what other people should do, maybe you should donate or help the cause.
@KairiAngel000 I'm not blaming the parents for anything, I'm just saying it's not a horrible idea. When I decide to have a child someday, the first thing I'll do is make sure the father and I aren't both carriers of such genetic diseases. And before you jump to conclusions, I DO donate to the NTSAD, as well as to other causes, such as St. Jude's Children's Research, MD Association, and most frequently the MS Society because my father suffers from it. etc.
I know it's not a bad idea, but a lot of parents do and the Tay Sachs one is very hard to find and in the case of my mom's friend, she was negative for it and it wasn't her fault. Also I didn't "jump" to conclusions. I was just saying thats a more productive way of helping things when your an adult. Plus, the parent owns this channel and that comment could have offended them. I'm not saying it will. I am just telling you.
@WhiteLionness Tay Sachs was started from the consumption of kosher-cruel slaughtered animals. As more Jews marry non-Jews, the end of the human race will happen. Adolph Hitler knew this; now you understand the Holocaust. And the Tucson Massacre aimed at CongressJewess Tay Sachs Gabrielle Giffords? She has an astronaut husband -- you think the extraterrestrials, who are total vegans, want Tay Sachs spreading through the universe? That's why the ET's voted Hitler as King of the Universe.
There will NEVER be a cure for this disease as long as the human cells function as they do, which makes this very sad. This is a genetic disease in which the lysosomal enzyme degrading gangliosides doesn't work or miss/nonfunctional a mannose 6 phosphate group. this cause the lysosome to become packed with undigested gangliosides which will build up in the cell, cause the cell to die, and since nerve cells doesnt replicate, the result is retardation, blindness and eventually death. Very sad!
Genetic testing before pregnancy is so, so important. If the child you may have is at risk of this because of your and your partners DNA then i think you would have to leave the guy, or at least i would. No man would make me want to put my child through this, heartbreaking.
daggerheart03 1 week ago
I am in medical school and learning about this now. It was a tear inducing video and makes me want to do my best to help treat my patients.
Legionnaire18 1 month ago
Song? please need it immediatley for biology
Smooveastouchvideo12 3 months ago
@Smooveastouchvideo12 In the Arms of an Angel by Sarah McLaughlin
goodfella91 3 months ago
@goodfella91 This an awseome video and i cried all through it..
May i please use this for mt bio class?
stewiessis10113 3 months ago
@stewiessis10113 Sure feel free to do so as long as you give the proper credit. I am happy that this video continues to touch people and cause awareness. I feel with your project it can spread a little more.
goodfella91 3 months ago
This has been flagged as spam show
y si me pueden ayudar aki les dejo mi correo ...lucyfranco25@hotmail.com
25luciafranco 6 months ago
hola qtal como estan....yo qiesiera saber si algun especialeista me podria ayudar a encontrar la enfermedad que tiene mi sobrinito,porq ya consultamos muchisimos especialistas y se iso muchisimos estudios y nadie puede darnos un diagnostico valedero que nos diga la enfermedad que tiene,porq ya no queremos perder otro niño porq su hemanito tenia los mismos sintomas de el y ya fallecio sin saber que tenia....
25luciafranco 6 months ago
I will dedicate my life to this... They need a cure
emoelmo1419 8 months ago
Whats with all the comments saying they should get tested. Bit tackless. Be a bit more simpathetic or dont comment at all. Tbh no one wants to know what they SHOULDVE done. They just want to know they're not alone, And there not<3
Imachickyaknoe 9 months ago
There have been children who've lived longer than 5 years that have tay-sachs.
azerskater 11 months ago
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Jewish inbreeding = Tay sachs.
Vary the gene pool and you'll be find jews kthxbai
IAMSOUP 1 year ago
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I used to have Tay-Sachs. It was a hoot.
m415mike 1 year ago
tay-sachs happens when a child is born w/out important enzymes to break down the fatty proteins in the brain so it builds up and it affects there seeing hearing and movement and there mental compasity its very sad the child usually dies at age 4 :( very sad to not live a full life like the rest of the world
ShellyLatley 2 years ago
this puts life in perspective. wow
J7V 2 years ago
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gay video
xXBlinDXx12 2 years ago
apparently you were blessed to not have had child with tay sachs. My heart breaks for those who have had children with tay sachs. As did mine with my own child.
ellenslove 2 years ago
If you had a kid who died from this disease, I really do feel for you - but why search for taysach-related vidoes? Just to defend those who suffer from it? Come on. Listen to some music, go biking or something nice, don't fucking rehash shit.
Drratburn 2 years ago
Because hearing the belly laugh of a child with Tay Sachs, once again, brought joy to my heart. Its a different type of laugh and I hadnt realized that until having heard the same laugh from other children.
On another note, it's not appropriate to use such language against the heart-felt memories expressed in these correspondences.
Are you a physician?
ellenslove 2 years ago
I meant no offense - I can see how my words might've been taken.
I give you all the condolences a stranger can give, and must explain that the second half of my comment was meant to be just this: I've never felt the pain of losing a child but I imagine it's worse than guess I could make. If so, if I imagine what losing a child to taysachs would be like, I can't say that I'd spend time on related youtube vidoes. Memories stay with you, you don't need sad montages to relive them.
IMO.
Drratburn 2 years ago
I agree with your advice. It's been many years since her death. I came across a child with a similar disorder and then looked up TS on the web and found the Youtube videos. I must admit, however, that it was actually wonderful seeing the images of the little ones and the love they evoked from their families. The laughter, I will never forget. Thank you for your thoughts. Ellen.
ellenslove 2 years ago
some children with tay-sachs live way longer then 5 yrs watch medicaldud's videos he has that and many other things too
BrightLySinging4GOD 2 years ago
there are 3 forms of tays sach infintile juvenile and late onset in infintile tays sach they very rarly live to the age of 5
sams6910 2 years ago
im searching informating about this deases im from panama and i was locking information for biology that i have to talk about it. you did a very good video that touch your heart the song the information you post excelent im going to say in my speech that i found a perfect video that show me what this deases is THAKS YOU i hope some one in the world can help this children i have a little brother but he has autism see you thanks...
att carlos novoa
claytonflow 2 years ago
this really pulls at your heart
texasnanax44 2 years ago
im doing this as a homework assignment ._.
fma111929 3 years ago
Me too... :/ It's sad...*sniffle*
ChristsButterfly 3 years ago
its terrible and very unfortunate that this occurs but if the parents know better and if they test themselves to see if they're a carrier of the gene they should try and have kids with someone who doesnt carry that gene. also avoid all the sadness that comes with it. i know this is better said that done but thats rly the only way.
xXDyingDarknessXx 3 years ago
Why would they get themselfs tested for THIS disease? Out of ALL diseases, this one is VERY rare. Why would the parents see if they have the gene for this paticular one out of all the other diseases they could test for? I would like to know
amber556587 2 years ago
fyi, its rare but if i knew i had the gene i would try not to get with someone who has it too hun. I dont think anyone wants their lil precious baby to die at such an early age. There ya go, and now you know.
xXDyingDarknessXx 2 years ago 3
Well, it has much more of a concentration in churches in small communities, since chances are at some point down the line you have been related. (THAT small communities/churches, not all)
It's sad D :
13animelover13 2 years ago
Comment removed
WhiteLionness 2 years ago 4
Most people don't know about the disease and so they don't get tested. Within the Jewish community, Rabbis now know to ask that testing be performed.
Statistically, given a group of 7 couples, 1 will be J-J (J for Jewish and N for non-Jewish), 3 will be J-N and 3 will be N-N. So, given the fact that the disease is only typically spoken of in Judiasm, many couples don't realize that they, too, have a risk of carrying the disease.
ellenslove 2 years ago
The carrier status is actually the same for all Mediterranean people - that means Italians, too. The Catholic Church has a different view on abortion and preventing pregnancy and so TS is not spoken of openly in the Church. Judaism, however, does not have the same views. Even in Orthodoxy, even if one were using a matchmaker (no comments, please, it's a big world), TS is handled by not approving a potential marriage if both individuals are carriers.
ellenslove 2 years ago
The costs of testing for lots of diseases is prohibitive. However, there has been significant progress made in this area in the past 6 months.
ellenslove 2 years ago
It's not a simple test. It takes a week to get the results and its only ONE wrong sequence in the genetic code. Plus, It's a reccessive trait, so both parents have to have it and it's unlikely to begin with. Yes it's sad, but blaming the parents who dont always get correct results is just wrong. Instead of saying what other people should do, maybe you should donate or help the cause.
KairiAngel000 1 year ago
@KairiAngel000 I'm not blaming the parents for anything, I'm just saying it's not a horrible idea. When I decide to have a child someday, the first thing I'll do is make sure the father and I aren't both carriers of such genetic diseases. And before you jump to conclusions, I DO donate to the NTSAD, as well as to other causes, such as St. Jude's Children's Research, MD Association, and most frequently the MS Society because my father suffers from it. etc.
WhiteLionness 1 year ago
I know it's not a bad idea, but a lot of parents do and the Tay Sachs one is very hard to find and in the case of my mom's friend, she was negative for it and it wasn't her fault. Also I didn't "jump" to conclusions. I was just saying thats a more productive way of helping things when your an adult. Plus, the parent owns this channel and that comment could have offended them. I'm not saying it will. I am just telling you.
KairiAngel000 1 year ago
This has been flagged as spam show
@WhiteLionness Tay Sachs was started from the consumption of kosher-cruel slaughtered animals. As more Jews marry non-Jews, the end of the human race will happen. Adolph Hitler knew this; now you understand the Holocaust. And the Tucson Massacre aimed at CongressJewess Tay Sachs Gabrielle Giffords? She has an astronaut husband -- you think the extraterrestrials, who are total vegans, want Tay Sachs spreading through the universe? That's why the ET's voted Hitler as King of the Universe.
redfordforpresident 7 months ago
@WhiteLionness
lauracigolinigulesu 4 months ago
@WhiteLionness read notes from a dragon mom
sometimes tests don't show the disease
lauracigolinigulesu 4 months ago
There will NEVER be a cure for this disease as long as the human cells function as they do, which makes this very sad. This is a genetic disease in which the lysosomal enzyme degrading gangliosides doesn't work or miss/nonfunctional a mannose 6 phosphate group. this cause the lysosome to become packed with undigested gangliosides which will build up in the cell, cause the cell to die, and since nerve cells doesnt replicate, the result is retardation, blindness and eventually death. Very sad!
strek0655 3 years ago
This is a terrible disease I'm balling my eyes out as i type
xoxozashleyzno1fanxo 3 years ago
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boner
picklemancan 3 years ago
:( awful and terribly unfortunate disease...
sjs2011 3 years ago
my cousin has this disease :(
QuarterFreak 3 years ago
I'm so sorry to hear that :( It's cruel to take a life when it's so young and so full of potential.
Hopefully one day they'll find a cure.
acheese9 3 years ago