So, if my mom dont have the CF, but my daddy have? Then Im also going to have it? Or? I need some Info here! I hope i get more than 45 years old? Shiiiit... Oh Jesus Crist.....amen. But, i dont do like exercises in any way, or having mask on, or Breæking troubled, then i asume, i dont have the disease? Or?
My one year old son has CF its the hardest thing we r going threw now! I LOVE HIM MORE THEN LIFE AND WANT TO KEEP HIM SAFE! HAS A LUNG INFECTION BUT WE R STAYING POSITIVE DAY BY DAY! THE SONG IS SUPER REALLY LIKE TO KNOW WHO IT IS?
My one year old son has CF its the hardest thing we r going threw now! I LOVE HIM MORE THEN LIFE AND WANT TO KEEP HIM SAFE! HAS A LUNG INFECTION BUT WE R STAYING POSITIVE DAY BY DAY!
@wariofox1 man i am 15 with cystic fibrosis and its just not that bad at least in my condition the doctor when i was born said that i was going to die and yeah so what? now i am 15 with great life and my condition is pretty good dont ever judge from how horrible this isease sounds and if you do your treatment and your excersises every day and right you are gonna be good but of caurse there are ppl who lived their whole life in the hospital but never think of this just keep fight
@wariofox1 yeah its not the best that could happen to someone but if you think i am going to die in early age then yes you are gonna...always be strong,death is something that we can't avoid even by a disease like CF or for normal reasons while you grow up and please do me a favor apreciate your life and dont start smoking or anything like this we "dream to have your lives" without any serious health problems anyway i hope your cousin will be alright
Lord I just pray that you would protect, comfort, guide, and provide all the people that are suffering from Cystic Fibroses. I also pray for the people that aren't suffering, that you would give them a heart for these people and people with other diseases. That is my prayer for the people on earth. =')
OMG this is so sad...it didnt seem soo bad until it said imagine breathing thru a coffee straw evry second of ur life.thats deep.i looked this up cuz i absolutely LOVE emily's army. the brothers of the band have a cousin named emily with this disease and she is 15.they named the band after her & play at charitys to raise money for her.I feel so bad for all of u that have friends and family that have died from this. Is CF really common??
Heya, im a person from ireland with CF and were doing a facebook event to raise awarness of Cystic Fibrosis and also to get a Guinness World Record, if ye all could join and spread the word it would be great. just type into facebook "make cystic fibrosis aware by trying to break a world record". All support would be very greatful
I have something.In Champaign,Illinois,CarleHospital was takingTooLong in the treatment,so I went to CristieClinic and BAM,FIRST visit after scheduling appointment/visit,they put a camera-tube down my throat and found a small lump.Fifteen years ago.It has not changed.Its still there.The constant clearing got SO severe once I puched my shower door and shattered the glass all over.I dont smoke,no caffine,hardly drink..I am very tired of it. Its painful bc I just had abdomonal majorSurgery.
Recent medical discoveries suggest that cystic fibrosis symptoms (thick mucus etc.) develop only on conditions of cell hypoxia (low oxygenation). You can get these studies if you search for "cystic fibrosis oxygen cells". Medical evidence also suggests that cystic fibrosis is reversible if you know how to breathe for maximum body oxygenation 24/7.
@valetdabess you either have it or you don't. there's no cure so we have to get the hell over it. i was diagnosed at 7 months old. you most likely don't have it.
My girlfriend suffors from CF.. She copes with it fine, she's a fighter.. I just worry about the future, I don't want to lose her at a young age.. I hope that by the time there will be better treatments..
I have cystic fibrosis and i was diagnosed withit when i was four now i am 13. i am grateful with how helthy i am with it but the only problems is my mental health... oh well. but this was a good video and it gives the basics of what we go through. a few times i have had attacks but im okay :)
what is this song? i really like it. and oh my gosh that is so sad! I'm studying for a science test, and I just wanted to learn about this in something really quick, and this is...wow. I couldn't imagine a life like that. :(
I saw this video tonight for the first time in my med surg class. It really had such a great impact on me and my class. this video summed up this disease and really put it in such a humanistic perspective for others to understand the severity of this disease.
this video means alot to me being a 14 year old kid who has cystic fibrosis and made fun of because of it it also affects your stomach the juices go up faster in some patients and the food doesnt get to ur stomach making you skinny and small anyways good work
Hey everyone, I'm prescribed 240 80mg Oxycontin's and 180 2mg Xanax bars a month for my cystic fibrosis and am willing to help anybody out who is in pain and needs some meds for cheap but can't afford a doctor/medicine for whatever reason. I get them covered by my insurance but in the past have had to pay for it myself and know how expensive they can be! I have a lot leftover which I'm not using and would love to help a fellow pain patient out so send me a message if interested. Thanks....
Ive got CF and its a fucking pain in the ass but im helping cf teams to help better everyone coz my brother had a horrible and slow death coz of cf and I dont want myself or any1 else 2 go out like that
My Sister Has CF, It Is Painful And Stressing To See Her Like That. But We I Know She Is Strong, And I Will Always Stand By Her. Correction, WE Will Always Stand By Her. :) I LOVE YOU CASSIE. Always And Forever.
people with any deadly disease should look up the song live like you were dying and do just that live life to the fullest R.I.P uncle jerry (he didnt die with cf he died with liver failure) change cf from cyctic fibroasis to cure found and @papstbenni god is real and he sometimes does things you cant understand and god loves you no matter what so please at least try to love him and in the ending god might cure you
people with any deadly disease should look up the song live like you were dying and do just that live life to the fullest R.I.P uncle jerry (he didnt die with cf he died with liver failure) change cf from cyctic fibroasis to cure found
@TheDangerCollins yeah right, keep on dreaming. so god treats everybody the same, huh? then he must hate us all pretty much. don't know bout you, but for me it's no fun to live with this crap. and if you think that this is not a reason to hate a probably not existing person for giving you this shit, well then good for you, but leave me alone with your stupid god!
As of right now she is recovering better than expected. She is feeling good and looking good and, most importantly, breathing great! She is so happy to breathe again. Her wish came true!
my 6 month old daughter has cf, i worry about her every minute of every day. thank god we caught it early & she's doing marvelously but there are those that are not so fortunate. a dear friends' little boy died last week because of complications of cf..it made my realize just how quickly someone with this condition can go from fairly healthy to in the hospital to dead in a matter of hours..i like to think of cf as a "condition" NOT a disease people hear the word disease & react badly...
My prayers and thoughts to all those with CF. I'm dating someone who's adopted brother has CF. He's only five and it kills me that he can't run and play with the rest of the children. He's my buddy, and a great kid... I just wish there was something I could do for him. I love his sister, but he's as much family as she is.
@xiRaZoR its sort of like when your body produces too much mucus, causing lung problums, ans blocking the pancreus. i have CF and only a few of my friends know. you cant usually tell from the way someone looks
My dad passed away in October with CF, at the age of 35 - I really loved him & I respect him, he was the best daddy in the world & losing your dad at 13 isn't easy but he told me he was going to be ok & he always kept strong, I think all the sufferers of this awful disease should stay strong like my Dad & live life to the full xxxxxxxxxx
My dad passed away in October with CF, at the age of 35 - I really loved him & I respect him, he was the best daddy in the world & losing your dad at 13 isn't easy but he told me he was going to be ok & he always kept strong, I think all the sufferers of this awful disease should stay strong like my Dad & live life to the full xxxxxxxxxx
i have Cystic Fibrosis it is so hard but i try hard to live a life full of advuntures. even tho i am only 11 i am so scared of death. many ppl have died from this disease it is just to hard to believe that this is the reason that they r dieing . just cuz of mucus . but crying about it isnt gonna help me live .
iv been living with Cystic Fibrosis since i was born im now 11 i hope i dont die but i cant jus sit down and cry about it my whole life i gotta live life and have good times or when i die it would be a waste of a good time just w8ing for u to come do it :(
I'm 13 and have CF sucks but I have to live with it and diabetes.but the way I see it is if you lay down and cry you think it's gonna go away?Live life to the fullest no matter what cus it's the only one your gonna get so people out there with CF or anything else follow your dreems and don't let anyone stop you
@DeathNoteMello1 i have it too and i agree with you even though i just had surgery a week ago but ur right u cant stop it and theres plenty of people who have it alot worse than CF like HIV and stuff like that.
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
feel so sorry for sufferers of this awful disease... i am 52 now and CF of the pancreas when i was a baby... my dear mother R.I.P. Never gave up on me despite every doctor, specialists, saying i had no chance.. With great faith she brought me to see Padre Pio in Italy.. and soon after all symptoms disappeared.. no more feeding through my heel.. i could eat.. i know this is little consultation to others but they say faith can move mountains.. God bless. from Ireland..
@fairhillnorrie I'm seeing a girl at the moment with CF in her lungs not sure about her pancreas but is there anything i should look out for in terms of helping her through the day and preventing it from getting worse. The big problem is though is that she smokes. greetings from Wexford :D
@IRELANDISMYCOUNTRY i wish i could help but i cant.. smoking is making things 100 times worse... keep the faith... i will pray to padre pio for her... but she must to. god bless.
I'm living with CF, too. Actually, both me and my twin sister have it. It does get tiring. Constantly coughing, doing treatments, taking pills... ugh. But I'm well aware that my life could be MUCH worse. And I'm eighteen, so who knows? Maybe they'll find the cure in our lifetime... we can hope. :)
i hope they find a cure soon, i cant stand the coughing and treatments and pills anymore. Ugh. They're getting close with the meds, and trying to work on a cure. Oh and by the way, its not that bad, you just have to do all your meds and treatments and exercise, and you'll be good. I know thats how I get through it!
Ya your right CF does suck but god gave it to us for a reason. We have to keep fighting and waiting on the cure thats soon to come. Im 22 years old right now and im living my life to the fullest and not letting CF hold me back. If any of you CFer's need any advise about anything at all feel free to contact me. I hope you all are doing great and taking your meds!! You all are stronger than you even know!
what song is used in the video it sounds like a very good song and im just wondering whats it is called if anyone could tell me that would be nice thank you
i just like to say to all the people that have CF, it must be a difficult every single day that you go through and i just want to say that i wish you all good luck in your life
My cousins little girl Jodie has Cystic Fibrosis. Jodie suffers badly with chest infections/Asthma that does tend to close the lungs up and make it very difficult to breath. But every case is different!
i know this girl who has cystic fibrosis shes 14 now goin on 15 but when she was 10 she had to get a heart and lung transplant and when she went back to school a girl bullied her and kicked her in the stomache and if you type in kayley keir on google you will hear her story... she lives over the road from me now... poor peopel i always wanted to know what happens when you get it... nice vid xx helps me alot xx
@420BurnaBlunt I'm 35 yrs old with CF, and one thing I always remember is a quote from the Lung Association: "When you can't breathe, nothing else matters." So true. Fortunately I'm pretty healthy right now - I can still play ice hockey twice weekly, but my lungs are slowly getting worse. Might be talking about double-lung transplant around 40, but I'd consider reaching 40 an accomplishment itself. Most important things are a positive attitude, and the love of family & friends. Oh, and Hope!
i am 14 and i suffer from Cystic Fibrosis.. i have hurd it delays puberty , i was just wondering how long is the delay . i mean i am 14 and probibly just hit 5ft , i have pubes .. not many though .. no armpit hair what so ever sorry if i have gone into too much detail but i really want to know this question . How Long Is The Delay ? thanks
really depends on the person and their mutation. i have cf also. i wasnt much behind anyone i knew, just in height i was slow. 5'5" @ 20 y/o...stopped there
there is a delay for some but not others idk u might just be slow or from cf no offense in any way i got it 2 but i think it delays it like a year ot 2
Creon, thats how we gain weight, i have CF, and i'm pretty heathly, plus, tbf, it doesn't seem that bad once you get used to it, i mean i'd love to be cured but i think that something would be missing.
the girl i kow is still very sick and shes nearly 15 got a heart and lung tranplant and got called deformed and everything when she went back to school... type kayley keir on google and you will find out her story and she still smiles even though she went through alot of suffering xx
@p7811fx "Starve" is inaccurate. "Malabsorption" is a better term. CF'ers (of which I am one) have trouble absorbing particularly fats & oils. To fix this, we take enzymes (taken from pigs, although they could be synthetic now?) that help digest the food we eat, since enzymes are produced in the pancreas, but are blocked from being released. The enzymes aren't fully effective, so we have to compensate by eating more, which is why body weight's an issue.
I was diagnosed at 13 months old. I am now 40 years old. I just want to tell the young kids and teens to keep that "fighting spirit". I found out from my CF center that there is over 100 different genes that causes CF. I have the Delta F508 (the worse ones to have). If anyone needs advice, support, or just ask questions, please feel free to reply back.
I too have CF. I am 13 and i am lucky to have survived a lung infection that nearly killed me. My friend heather, she had CF and she died in may. She was 18. I miss her so very much...You dont see much people with CF. People who dont have it dont know what we are going through and the times we deal with that are dangerous. I just hope they will find a cure very soon.
This is too my beautiful Kelly. She unfortuantly suffured with Cystic Fibrosis, all her 18th life, you wouldn't know how much pain she was in. She hid it all her life. She was deffinatly the prettiest girl by far, she smiled everyday knowing she had a short life too live, but she lived too the full. She was told she wouldn't make it, but she was a hero and made extra months. She was able too celabrate her 18th. Rest in peace angel. Sleep tight, im always with you. I love you princess x
My dad has this illness. The doctors didn't know he had it until he was 30. Hard to believe right? When a lot of CF patients don't make it past their teens, early 20's. My dad's now 46 we've been very lucky.
My bestfriend that i have known basically my entire lifee has this. Were only in high school. And right now he also just got diagnosed with diabetes... So he has cf and diabetes. Idk what is happeningg
i thought this video was heartbreaking because i have CF and docters have been wrong for so many years until last year i got my sweat test and it came out negative at first then i went back the next day and it came out 100% positive. I use to be sick alot,and every other year i would end up in the hospital and doctors said it was not CF...but they were wrong. But im extremley healthy and nothing holds me back. =]
yea well it's not contagious! acting like we're monsters or something Lol! but yea the camp is great i'm scheduled to go june 8th i think... why? do you have cf?
lol ik CF isnt contagious! its just that people with cf usually aren't allowed to be near each other since u can spread bacteria that way or something. thats what my parents and doctors say so ive never been allowed to go to any cf camps or anything (and yes i have cf. lol)
sorry i know its not contagious but u need to do some research and read about cross contamination my lil bro couldnt go on one of his school excursions cause there was another kid with cf and it would have made them both very very very sik, ur by far not monsters and its great u can interact with others, but not everyone can. i wish u the all the best and do not mean to offend.
just because you are 11 does not mean you wont live much longer.
I have CF i'll be 20 this year nd my lung function is up to 70%.. you have to keep yourself fit nd stay strong, negative thinking wont help you.
I also have bipolar, anxiety, OCD, tourettes liver disease, and possible diabetes nd pancreatic failure but i wake up every day looking forward to still BEING here. . live each day as it comes don't stress just keep healthy nd you'll be fine. .
it looks painful
awesomepenguin12 1 week ago
Could do without the unfit music.
CookieGMB 2 weeks ago
SONG: Guardian Angel by Red Jumpsuit Apparatus. Like so people can see
Adeel1432 3 weeks ago
I have cystic fibrosis and its sometthin that noone wants !!
paighton1300 3 weeks ago
So Then I am carrying the disease on me?
MrWonnabee 1 month ago
So, if my mom dont have the CF, but my daddy have? Then Im also going to have it? Or? I need some Info here! I hope i get more than 45 years old? Shiiiit... Oh Jesus Crist.....amen. But, i dont do like exercises in any way, or having mask on, or Breæking troubled, then i asume, i dont have the disease? Or?
MrWonnabee 1 month ago
I just wanted to get a little info on what killed my brother, could have done without the stupid blaring music.
iwinofcourse 1 month ago
what is this song?
MultiDancer1999 2 months ago
My one year old son has CF its the hardest thing we r going threw now! I LOVE HIM MORE THEN LIFE AND WANT TO KEEP HIM SAFE! HAS A LUNG INFECTION BUT WE R STAYING POSITIVE DAY BY DAY! THE SONG IS SUPER REALLY LIKE TO KNOW WHO IT IS?
MultiChrisjess 3 months ago
My one year old son has CF its the hardest thing we r going threw now! I LOVE HIM MORE THEN LIFE AND WANT TO KEEP HIM SAFE! HAS A LUNG INFECTION BUT WE R STAYING POSITIVE DAY BY DAY!
MultiChrisjess 3 months ago
Comment removed
neoniceshatter22 3 months ago
Name of the song?
EllsMadd 3 months ago
I hate this diseasse.I know u cant help it but I have a 1 year old cousion with it and yeah.horrible just horrible.
wariofox1 4 months ago
@wariofox1 man i am 15 with cystic fibrosis and its just not that bad at least in my condition the doctor when i was born said that i was going to die and yeah so what? now i am 15 with great life and my condition is pretty good dont ever judge from how horrible this isease sounds and if you do your treatment and your excersises every day and right you are gonna be good but of caurse there are ppl who lived their whole life in the hospital but never think of this just keep fight
cukGRAFFITISTREET 1 month ago
@cukGRAFFITISTREET wow thats amazing i just hate the thought of the disease
wariofox1 1 month ago
@wariofox1 yeah its not the best that could happen to someone but if you think i am going to die in early age then yes you are gonna...always be strong,death is something that we can't avoid even by a disease like CF or for normal reasons while you grow up and please do me a favor apreciate your life and dont start smoking or anything like this we "dream to have your lives" without any serious health problems anyway i hope your cousin will be alright
cukGRAFFITISTREET 1 month ago
Lord I just pray that you would protect, comfort, guide, and provide all the people that are suffering from Cystic Fibroses. I also pray for the people that aren't suffering, that you would give them a heart for these people and people with other diseases. That is my prayer for the people on earth. =')
Jaysonvd 4 months ago
What's this song called?
Partyinchicka 4 months ago in playlist Partyinchicka's Favorited Videos
My cousin passed away in November:'(
Partyinchicka 4 months ago in playlist Partyinchicka's Favorited Videos
OMG this is so sad...it didnt seem soo bad until it said imagine breathing thru a coffee straw evry second of ur life.thats deep.i looked this up cuz i absolutely LOVE emily's army. the brothers of the band have a cousin named emily with this disease and she is 15.they named the band after her & play at charitys to raise money for her.I feel so bad for all of u that have friends and family that have died from this. Is CF really common??
crazyandbeautifulz 5 months ago
may God be with you always! God bless you! I hope you get well! :)
secret4csshk 5 months ago
Heya, im a person from ireland with CF and were doing a facebook event to raise awarness of Cystic Fibrosis and also to get a Guinness World Record, if ye all could join and spread the word it would be great. just type into facebook "make cystic fibrosis aware by trying to break a world record". All support would be very greatful
zackyv08 7 months ago
CYSTIC FIBROSIS IS A PUSSY.
What a faggot. lol
1moe7 7 months ago
I have something.In Champaign,Illinois,CarleHospital was takingTooLong in the treatment,so I went to CristieClinic and BAM,FIRST visit after scheduling appointment/visit,they put a camera-tube down my throat and found a small lump.Fifteen years ago.It has not changed.Its still there.The constant clearing got SO severe once I puched my shower door and shattered the glass all over.I dont smoke,no caffine,hardly drink..I am very tired of it. Its painful bc I just had abdomonal majorSurgery.
vocaltalent1 7 months ago
Recent medical discoveries suggest that cystic fibrosis symptoms (thick mucus etc.) develop only on conditions of cell hypoxia (low oxygenation). You can get these studies if you search for "cystic fibrosis oxygen cells". Medical evidence also suggests that cystic fibrosis is reversible if you know how to breathe for maximum body oxygenation 24/7.
artour2006 7 months ago
Thank You. I Have CF and I hate it. I ABSOLUTELY HATE IT!!!
sporemaster32111 8 months ago
my friend just died she had this. ive known her since elementary school she was just 13 years old
mistisugar 8 months ago
@mistisugar She died FROM this, or other causes but had this? God Bless, if I may say.
vocaltalent1 7 months ago
my friend just died she had this. ive known her since elementary school
mistisugar 8 months ago
i'm so tired of it. cf pisses me off. it'd be cool if lots of people would give it more attention but NOOOO "it's all about cancer!"
1moe7 8 months ago
i thought i had a fast metabolism, maybe i just have CF O.o
valetdabess 8 months ago
@valetdabess you either have it or you don't. there's no cure so we have to get the hell over it. i was diagnosed at 7 months old. you most likely don't have it.
1moe7 8 months ago
This has been flagged as spam show
@1moe7 Yeah SHOW HIM!!!!
sporemaster32111 8 months ago
My cousin died from cystic fibrosis, i Miss him so much -3..
JordonCassy420Xx 9 months ago
EVERYONE MUST HELP MY GOOD FRIEND TAYLOR ROSS!please message me on youtube for information. THANK YOU!! .
xselenatuberx09 9 months ago
My girlfriend suffors from CF.. She copes with it fine, she's a fighter.. I just worry about the future, I don't want to lose her at a young age.. I hope that by the time there will be better treatments..
AbdoriasysGuitargod 9 months ago
what is the song called???? =D
CarolineEmilie4 9 months ago
I have CF and Im awesome. PERIOD.
Wildbillrocks 10 months ago
This song is amazing and to who ever dont know it its
Your guardian angel by the red jumpsuit apparatus
TheDangerCollins 10 months ago 3
my new girlfriend has cf this really helps me understand it a lot more
thank you
jord1293 10 months ago
I have cystic fibrosis and i was diagnosed withit when i was four now i am 13. i am grateful with how helthy i am with it but the only problems is my mental health... oh well. but this was a good video and it gives the basics of what we go through. a few times i have had attacks but im okay :)
PROSTR01 10 months ago
what is this song? i really like it. and oh my gosh that is so sad! I'm studying for a science test, and I just wanted to learn about this in something really quick, and this is...wow. I couldn't imagine a life like that. :(
PianoGirlStrikwerda 11 months ago
my two brothers have this disease :(
MaddisonMerrill 11 months ago
I have this disease =(
Tigergir7 11 months ago
This has been flagged as spam show
RNpedia.com to know more about this..
rnpedia 1 year ago
This is the best description of CF I've come across.
shandifox 1 year ago
I saw this video tonight for the first time in my med surg class. It really had such a great impact on me and my class. this video summed up this disease and really put it in such a humanistic perspective for others to understand the severity of this disease.
akassimatis1978 1 year ago
this video means alot to me being a 14 year old kid who has cystic fibrosis and made fun of because of it it also affects your stomach the juices go up faster in some patients and the food doesnt get to ur stomach making you skinny and small anyways good work
homescillyzebrazinc 1 year ago
Hey everyone, I'm prescribed 240 80mg Oxycontin's and 180 2mg Xanax bars a month for my cystic fibrosis and am willing to help anybody out who is in pain and needs some meds for cheap but can't afford a doctor/medicine for whatever reason. I get them covered by my insurance but in the past have had to pay for it myself and know how expensive they can be! I have a lot leftover which I'm not using and would love to help a fellow pain patient out so send me a message if interested. Thanks....
Georgie2500 1 year ago
Ive got CF and its a fucking pain in the ass but im helping cf teams to help better everyone coz my brother had a horrible and slow death coz of cf and I dont want myself or any1 else 2 go out like that
ldkclarke 1 year ago
luv this presentation what i the songs called??????????please i really need it cauze im gonna do a documentary on this disease
sugarush4eva 1 year ago
My Sister Has CF, It Is Painful And Stressing To See Her Like That. But We I Know She Is Strong, And I Will Always Stand By Her. Correction, WE Will Always Stand By Her. :) I LOVE YOU CASSIE. Always And Forever.
TheSmartCookiee 1 year ago
sorry made one mistake . i meant i know she is strong
TheSmartCookiee 1 year ago
people with any deadly disease should look up the song live like you were dying and do just that live life to the fullest R.I.P uncle jerry (he didnt die with cf he died with liver failure) change cf from cyctic fibroasis to cure found and @papstbenni god is real and he sometimes does things you cant understand and god loves you no matter what so please at least try to love him and in the ending god might cure you
taylorchavis1 1 year ago
people with any deadly disease should look up the song live like you were dying and do just that live life to the fullest R.I.P uncle jerry (he didnt die with cf he died with liver failure) change cf from cyctic fibroasis to cure found
taylorchavis1 1 year ago
if there is a god, what i not believe, i despise that bastard for giving me this shit!
papstbenni 1 year ago
There is a God and he gave it to you and myself for a reason dont bash CF or God theres reasons to everything you just have to figure them out
TheDangerCollins 10 months ago
@TheDangerCollins yeah right, keep on dreaming. so god treats everybody the same, huh? then he must hate us all pretty much. don't know bout you, but for me it's no fun to live with this crap. and if you think that this is not a reason to hate a probably not existing person for giving you this shit, well then good for you, but leave me alone with your stupid god!
papstbenni 10 months ago
@TheDangerCollins i hope you're joking
1moe7 8 months ago
I am 13 and i have CF. It is an awful disease and i hate it but I'm still hyper and live life to the fullest:)
Tigergir7 1 year ago
nobody should have that will it be sad if yor family members have it or one of your bffs have it to or you sad
my prayer to god
jesus please let us dont have that keep everybody safe.
amen
JulieMae4901 1 year ago
On September 16, 2010, our friend Alyssa recieved a double lung transplant!!!
stoelby 1 year ago
@stoelby Gratz!! to her! :] How Was it, And How Much Did It Help?
stickman330 1 year ago
As of right now she is recovering better than expected. She is feeling good and looking good and, most importantly, breathing great! She is so happy to breathe again. Her wish came true!
stoelby 1 year ago 5
@stoelby thats brilliant news! i hope she will be fully recovered if possible, fingers crossed for her. she is a very brave girl :)
stickman330 1 year ago
my 6 month old daughter has cf, i worry about her every minute of every day. thank god we caught it early & she's doing marvelously but there are those that are not so fortunate. a dear friends' little boy died last week because of complications of cf..it made my realize just how quickly someone with this condition can go from fairly healthy to in the hospital to dead in a matter of hours..i like to think of cf as a "condition" NOT a disease people hear the word disease & react badly...
silvala1 1 year ago
This has been flagged as spam show
im 16 with cf:) here is my story. 65pinkroses.blogspot.com/
hellokittylove31394 1 year ago
Progress is being made.
bonnarj7 1 year ago
What a terrible disease...
amazingdany 1 year ago
Rip mum x :(
XTheVampierDiariesX 1 year ago
My mom has CF and has 4kids and is 45! She's had a full filling life and wants o give hope to all that have it, stay strong :)
bailsy295 1 year ago
My prayers and thoughts to all those with CF. I'm dating someone who's adopted brother has CF. He's only five and it kills me that he can't run and play with the rest of the children. He's my buddy, and a great kid... I just wish there was something I could do for him. I love his sister, but he's as much family as she is.
PRSpl4yer 1 year ago
Message to all CFs': Follow your dreams, live life to the fullest. God Bless you <3
savedbygracexoxo 1 year ago
DeathNoteMello1 My friend has the same condition!
123LnMshow 1 year ago
anyone tell me the song please.
Kellard18 1 year ago
@Kellard18 The Red Jumpsuit Apparaturs- Guardian Angel
Sk8erbakerskater 1 year ago
I'm 18 and have cf... this video made me cry...cf is horrible and i hope they cure it soon.
Kellard18 1 year ago
its not like breathing through a coffee straw every second of ur life if u take care of urself and dont risk ur life by not takin the meds
crazyatomicbear 1 year ago
My older brother passed away in 2006, he was 19 when he passed.
He was going to be the first one in our family to graduate High school, he had couple weeks left until he had to get hospitalized.
SuperKittyPancake 1 year ago
My best friend is 11 and he has CF. He was expected to die at age 5. Yet he is still with us.
wasd591 1 year ago
is cystic fibrosis when u have difficulty breathing..? can you tell a person has it form the looks? r.i.p everyone who has died form it.
xiRaZoR 1 year ago
@xiRaZoR its sort of like when your body produces too much mucus, causing lung problums, ans blocking the pancreus. i have CF and only a few of my friends know. you cant usually tell from the way someone looks
TomAndJerry87 1 year ago
My dad passed away in October with CF, at the age of 35 - I really loved him & I respect him, he was the best daddy in the world & losing your dad at 13 isn't easy but he told me he was going to be ok & he always kept strong, I think all the sufferers of this awful disease should stay strong like my Dad & live life to the full xxxxxxxxxx
Hope a cure is found soon x.
nfxo 1 year ago
@nfxo Im 18 and have cf, sorry about you loosing your dad at such a young age i lost my mother at age 12 i know how growing up with one parent is.
Kellard18 1 year ago
My dad passed away in October with CF, at the age of 35 - I really loved him & I respect him, he was the best daddy in the world & losing your dad at 13 isn't easy but he told me he was going to be ok & he always kept strong, I think all the sufferers of this awful disease should stay strong like my Dad & live life to the full xxxxxxxxxx
nfxo 1 year ago
i have Cystic Fibrosis it is so hard but i try hard to live a life full of advuntures. even tho i am only 11 i am so scared of death. many ppl have died from this disease it is just to hard to believe that this is the reason that they r dieing . just cuz of mucus . but crying about it isnt gonna help me live .
chicagal12349 1 year ago
Hope you never lose that optimistic "spirit"... Prosper and inspire ppl with a heartmoving example of how we should face "life"
saudim46 1 year ago
stay strong
dann1091 1 year ago
@chicagal12349 stay strong! i hope there is a cure for it very soon :)!
interraciallove 1 year ago
iv been living with Cystic Fibrosis since i was born im now 11 i hope i dont die but i cant jus sit down and cry about it my whole life i gotta live life and have good times or when i die it would be a waste of a good time just w8ing for u to come do it :(
chicagal12349 1 year ago
i have it iv to do a neb and phizo twicea day
lopo7675 1 year ago
I'm 13 and have CF sucks but I have to live with it and diabetes.but the way I see it is if you lay down and cry you think it's gonna go away?Live life to the fullest no matter what cus it's the only one your gonna get so people out there with CF or anything else follow your dreems and don't let anyone stop you
DeathNoteMello1 2 years ago 43
@DeathNoteMello1 i have it too and i agree with you even though i just had surgery a week ago but ur right u cant stop it and theres plenty of people who have it alot worse than CF like HIV and stuff like that.
crazyatomicbear 1 year ago
@crazyatomicbear Aww.What did you have surgery?I had brain surgery back in 2008.
DeathNoteMello1 1 year ago
@DeathNoteMello1 oh ya i had my pollips out the the 6th time on may 17th it went rele good but ya it doesnt ruin my life or anything
crazyatomicbear 1 year ago
@crazyatomicbear Glad it went good.
DeathNoteMello1 1 year ago
@DeathNoteMello1 I am 13 with cf also, You pretty much inspired me.
marinna205 1 year ago
@marinna205 Glad I could help.
DeathNoteMello1 1 year ago
@DeathNoteMello1
God bless your heart <3
good luck =D
CarolineEmilie4 9 months ago
@CarolineEmilie4 Thanks
DeathNoteMello1 9 months ago
I have CFRD (cf related diabetes) and am looking for a tablet instead of insulin - do you have any suggestions? I would be very thankfull if you helped me! - I'm 14
wasupitswill 2 years ago 2
feel so sorry for sufferers of this awful disease... i am 52 now and CF of the pancreas when i was a baby... my dear mother R.I.P. Never gave up on me despite every doctor, specialists, saying i had no chance.. With great faith she brought me to see Padre Pio in Italy.. and soon after all symptoms disappeared.. no more feeding through my heel.. i could eat.. i know this is little consultation to others but they say faith can move mountains.. God bless. from Ireland..
fairhillnorrie 2 years ago 15
@fairhillnorrie I'm seeing a girl at the moment with CF in her lungs not sure about her pancreas but is there anything i should look out for in terms of helping her through the day and preventing it from getting worse. The big problem is though is that she smokes. greetings from Wexford :D
IRELANDISMYCOUNTRY 1 year ago
@IRELANDISMYCOUNTRY i wish i could help but i cant.. smoking is making things 100 times worse... keep the faith... i will pray to padre pio for her... but she must to. god bless.
fairhillnorrie 1 year ago
I'm living with CF, too. Actually, both me and my twin sister have it. It does get tiring. Constantly coughing, doing treatments, taking pills... ugh. But I'm well aware that my life could be MUCH worse. And I'm eighteen, so who knows? Maybe they'll find the cure in our lifetime... we can hope. :)
Abbytater 2 years ago 3
I am living with CF and it is horrible but i am also one of the rare types with this disase so i know just how bad it is and can get
Loveableteen17 2 years ago
*sigh* this didnt tell me the explanation of the build up of the mucus didnt even talk about the Cl- nor the Na+ that causes it within the cell
THURGOODa 2 years ago
thanks for doing my homework :D
but serious that is a horrible disease =\
karan169 2 years ago
@karan169 yeah it is i have it...
MontageGlobal 2 years ago
lol(not he video is lol this persons comment :( )
chicagal12349 1 year ago
i hope they find a cure soon, i cant stand the coughing and treatments and pills anymore. Ugh. They're getting close with the meds, and trying to work on a cure. Oh and by the way, its not that bad, you just have to do all your meds and treatments and exercise, and you'll be good. I know thats how I get through it!
twilightobsesser98 2 years ago
Ya your right CF does suck but god gave it to us for a reason. We have to keep fighting and waiting on the cure thats soon to come. Im 22 years old right now and im living my life to the fullest and not letting CF hold me back. If any of you CFer's need any advise about anything at all feel free to contact me. I hope you all are doing great and taking your meds!! You all are stronger than you even know!
Ryan
RyRuk11 2 years ago 2
Cystic Fibrosis SUCKS!!!! CF SHOULD BURN IN HELL FOR ETERNITY!!!!!!!!!!
DHurley21 2 years ago 2
cheers to u darbeast.
thats the attitude "checkattitude" good luck.
nallynails i wish u and ur family all the best.
love u bruiser, ur my inspiration even though im 7 years older u are wat keeps me going xoxoxoxo
The1rach1 2 years ago
Whats the music here does anyone know?
Officer107 2 years ago
the bands name is> the red jumpsuit apparatus > and i think the songs name is guardian angel....saw ur comment,lol
candygirlcc 2 years ago
Thank you soo much! I need to do a project for this, and this has perfect information. Hope it's reliable. (:
anatete1 2 years ago
My friend has CF... and i think he's the most courageous guy in the world...
dujo44 2 years ago
thank you very much :D
darbeast 2 years ago
The song is called Guardian Angel by the Red Jumpsuit Apparatus.
btown2941 2 years ago
what song is used in the video it sounds like a very good song and im just wondering whats it is called if anyone could tell me that would be nice thank you
darbeast 2 years ago
i just like to say to all the people that have CF, it must be a difficult every single day that you go through and i just want to say that i wish you all good luck in your life
darbeast 2 years ago
I got CF, sucks a lot sometimes...
But hell, gotta keep fighting my fellow CF-ers! XD
We'll kick this disease to the curb. ;)
CheckAttitude 2 years ago
my older sister has it and she is actually is on life support waiting for a new pair and may god help her
nallynails 2 years ago
My cousins little girl Jodie has Cystic Fibrosis. Jodie suffers badly with chest infections/Asthma that does tend to close the lungs up and make it very difficult to breath. But every case is different!
ButterflyLullabyLtd 2 years ago
OMG GIV ME A BREAK UR NOT BREATHING THROUGH A COFFEE STRAW THTS NOT WUT ITS LIKE AT ALL
U BREATHE NORMAL IF U TAKE UR MEDS R I HATE DESE VIDS LIKE THIS THT RNT TRUE no offense =)
tardyduck17 2 years ago
i know this girl who has cystic fibrosis shes 14 now goin on 15 but when she was 10 she had to get a heart and lung transplant and when she went back to school a girl bullied her and kicked her in the stomache and if you type in kayley keir on google you will hear her story... she lives over the road from me now... poor peopel i always wanted to know what happens when you get it... nice vid xx helps me alot xx
HappyPrincess1 2 years ago
it doesnt affect ur heart
tardyduck17 2 years ago
Watch, "Help Save My Life - Cystic Fibrosis"
1091Floyd21 2 years ago
Today one of our teachers told us something about this.. It really shocked me.,,
SPNstuff82 2 years ago
thanks for your comment we all would thank you for it
at the end we survive everyday by taking various drugs doing physiotherapy which takes up to half an hour to 2 hours for some
mackenma10 2 years ago
goodluck all of you with CF. breathing is the most enjoyable part of living
420BurnaBlunt 2 years ago
I hear the average live expectancy is between 20 & 40 yerars.
1091Floyd21 2 years ago
its not true i take meds right
tardyduck17 2 years ago
You should know, right?
1091Floyd21 2 years ago
@420BurnaBlunt I'm 35 yrs old with CF, and one thing I always remember is a quote from the Lung Association: "When you can't breathe, nothing else matters." So true. Fortunately I'm pretty healthy right now - I can still play ice hockey twice weekly, but my lungs are slowly getting worse. Might be talking about double-lung transplant around 40, but I'd consider reaching 40 an accomplishment itself. Most important things are a positive attitude, and the love of family & friends. Oh, and Hope!
jdallen75 1 year ago
@jdallen75 I agree, God bless you brother
420BurnaBlunt 1 year ago
Nice video Mr.Stoelb and btw this is one of your students and i'm joining Alyssa's Angels
Catzluvn95 2 years ago
i have cystic fybrosis i'm twelve years old and about 5''4 and slowly dieing please donate to the cause.
jellyman18 2 years ago
i am 14 and i suffer from Cystic Fibrosis.. i have hurd it delays puberty , i was just wondering how long is the delay . i mean i am 14 and probibly just hit 5ft , i have pubes .. not many though .. no armpit hair what so ever sorry if i have gone into too much detail but i really want to know this question . How Long Is The Delay ? thanks
theboxinman 2 years ago
really depends on the person and their mutation. i have cf also. i wasnt much behind anyone i knew, just in height i was slow. 5'5" @ 20 y/o...stopped there
yz250ftony 2 years ago
there is a delay for some but not others idk u might just be slow or from cf no offense in any way i got it 2 but i think it delays it like a year ot 2
tardyduck17 2 years ago
i have cf and it is true what it says.its a real nightmare
pineappleman1000 2 years ago
Google: Lung Transplant Bradenton, and you'll find an inspiring story about a CFer who had a double lung transplant.
mikey3182 2 years ago
So if you starve no matter how much you eat, how do you survive without starving?
p7811fx 2 years ago
Creon, thats how we gain weight, i have CF, and i'm pretty heathly, plus, tbf, it doesn't seem that bad once you get used to it, i mean i'd love to be cured but i think that something would be missing.
ellopenelo 2 years ago
the girl i kow is still very sick and shes nearly 15 got a heart and lung tranplant and got called deformed and everything when she went back to school... type kayley keir on google and you will find out her story and she still smiles even though she went through alot of suffering xx
HappyPrincess1 2 years ago
special medication to stop u starving
pineappleman1000 2 years ago
@p7811fx "Starve" is inaccurate. "Malabsorption" is a better term. CF'ers (of which I am one) have trouble absorbing particularly fats & oils. To fix this, we take enzymes (taken from pigs, although they could be synthetic now?) that help digest the food we eat, since enzymes are produced in the pancreas, but are blocked from being released. The enzymes aren't fully effective, so we have to compensate by eating more, which is why body weight's an issue.
jdallen75 1 year ago
I was diagnosed at 13 months old. I am now 40 years old. I just want to tell the young kids and teens to keep that "fighting spirit". I found out from my CF center that there is over 100 different genes that causes CF. I have the Delta F508 (the worse ones to have). If anyone needs advice, support, or just ask questions, please feel free to reply back.
agentxdx68 2 years ago 2
I too have CF. I am 13 and i am lucky to have survived a lung infection that nearly killed me. My friend heather, she had CF and she died in may. She was 18. I miss her so very much...You dont see much people with CF. People who dont have it dont know what we are going through and the times we deal with that are dangerous. I just hope they will find a cure very soon.
Horsegal143 2 years ago
i have cf i am 11 and i am on a pep mask
discojayjay 2 years ago 2
i have CF as well, i think im blessed to not ever be in the hospitol for more than two weeks at the age of 12
TomAndJerry87 2 years ago 2
Kelly Atkinson - Rest in peace
07/01/09 x
AmieLouise89 2 years ago 2
This is too my beautiful Kelly. She unfortuantly suffured with Cystic Fibrosis, all her 18th life, you wouldn't know how much pain she was in. She hid it all her life. She was deffinatly the prettiest girl by far, she smiled everyday knowing she had a short life too live, but she lived too the full. She was told she wouldn't make it, but she was a hero and made extra months. She was able too celabrate her 18th. Rest in peace angel. Sleep tight, im always with you. I love you princess x
AmieLouise89 2 years ago 2
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Allie9578 2 years ago
For people who want to know what the song is, its called 'Your Guardian Angel' by The Red Jumpsuit Apparatus.. Really good video well done.
Nadia557 2 years ago
My dad has this illness. The doctors didn't know he had it until he was 30. Hard to believe right? When a lot of CF patients don't make it past their teens, early 20's. My dad's now 46 we've been very lucky.
Twilighter1146 2 years ago
This video like made me cry.
My bestfriend that i have known basically my entire lifee has this. Were only in high school. And right now he also just got diagnosed with diabetes... So he has cf and diabetes. Idk what is happeningg
I hope my bestfriends ok!
melanie350 2 years ago
i thought this video was heartbreaking because i have CF and docters have been wrong for so many years until last year i got my sweat test and it came out negative at first then i went back the next day and it came out 100% positive. I use to be sick alot,and every other year i would end up in the hospital and doctors said it was not CF...but they were wrong. But im extremley healthy and nothing holds me back. =]
twilightobsesser98 2 years ago 2
why did god intend these things to happen?
sourlemons96 2 years ago 2
good question...
S888999333 2 years ago
please someone tell me what song this is
biggirl466 2 years ago
can someone please tell me who sings this song and what its called ? :) x
ChloeBabeyXx 2 years ago
your guardian angel by red jumpsuit apparatus
leebeedoo21 2 years ago
Us CFers also have very salty skin! lol just a lil fun fact :)
1moe7 2 years ago
i have cf, 13.
anybody here know of the sunny shores sea camp for CFers??
1moe7 2 years ago
i cant believe theres a camp for ppl with cf!! ive never even been allowed near anyone with cf cause of bacteria being spread and stuff.
emee65 2 years ago
yea well it's not contagious! acting like we're monsters or something Lol! but yea the camp is great i'm scheduled to go june 8th i think... why? do you have cf?
1moe7 2 years ago
lol ik CF isnt contagious! its just that people with cf usually aren't allowed to be near each other since u can spread bacteria that way or something. thats what my parents and doctors say so ive never been allowed to go to any cf camps or anything (and yes i have cf. lol)
emee65 2 years ago
I hope you get better<3
whisperfan82 2 years ago
This has been flagged as spam show
I hope you get better<3
whisperfan82 2 years ago
where is this cf camp? I have CF. My doctor has never told me about a camp for it.
penrod92 2 years ago
Vero beach, FL
1moe7 2 years ago
sorry i know its not contagious but u need to do some research and read about cross contamination my lil bro couldnt go on one of his school excursions cause there was another kid with cf and it would have made them both very very very sik, ur by far not monsters and its great u can interact with others, but not everyone can. i wish u the all the best and do not mean to offend.
The1rach1 2 years ago
agreed..how can a camp work? becos they r always worried of cross-infection betwen cf'ppl?
S888999333 2 years ago
i have cf too, im 14
nice video :)
emee65 2 years ago
just because you are 11 does not mean you wont live much longer.
I have CF i'll be 20 this year nd my lung function is up to 70%.. you have to keep yourself fit nd stay strong, negative thinking wont help you.
I also have bipolar, anxiety, OCD, tourettes liver disease, and possible diabetes nd pancreatic failure but i wake up every day looking forward to still BEING here. . live each day as it comes don't stress just keep healthy nd you'll be fine. .
mellydee89 2 years ago