The Show Must Go On

[cuzilinda]

THANK YOU THANK YOU THANK YOU!!!!! 

[JustinCFPCDFA]

My twin brother was diagnosed at 18, I was diagnosed at 28. MS attacks people in the prime of their lives in their 20's and 30's. Most newly diagnosed don't look sick or disabled but they may be experiencing symptoms you could not possible fathom. This video shows some great examples of those easily recreated in a shopping mall. The cognitive and emotional barriers can never be recreated and are often deliberately hidden by the patient. Congratulations to Kristie for producing this video.

[LisaLeslieFitness]

This is absolutely the feeling. And it doesn't even begin to touch all the symptoms - depression, cognitive issues, fatigue. For Fatigue, I say stay up 36 hours, put weights all over your body and go grocery shopping on a Saturday morning. It is the symptom that affects me most. I found some relief with a supplement called Shakeology - healthy and kept me going without fatigue issues while I was waiting for insurance authorization on my provigil. Message me if you have MS and want info.

[TheMichaelaTV]

amazing video. im a huge fan of this. i will re-post. thanks

[PositiveAboutMS]

I love this video... It's not only fun to watch, but really is a good intro to Life with MS :) Well Done!

[ellaj35]

This is wonderful.. I have MS and this made me feel like I was looking at a video of things that happened to me.. and its true .. its time to let people know.. "slipping into the MS costume" is an ideal way to do this... I love the video...

[KlangARTen]

I saw this clip for the first time and my first reaction was: Yeah, that shows what MS happens to the patient. So, post it everywhere you have the chance, in your socialnetwork-world. I did it and I know it was not only for the first time.

Take care and enjoy your life

[AWDESIGNS8]

ITS BEEN 3 YEARS HOW ARE YOU DOING TODAY

[Thatsaragirl95]

Faggots

[belovedmcat]

I think is great! there are three people in my family with MS! but more than that watchign a video like this makes me understand things that i have felt in the past that actually were most likely symptoms! is there any update video? How are you doing?

[ms26babe]

Fantastic video and so true I get it all the time just because we look hood and hot doesn't mean we are ok !!! I get stared at when I park in disabled bay and walk !!!

[fanwuren]

I get it too. I have diabetes and people often say "you don't look diabetic".

This is a brilliant production. Sheamssociety. Your talent is obvious.

A possible cure or effective treatment seems to have been found. CCSVI Liberation.  If only the MS Societies of USA and Canada would open their minds and quit opposing, stalling, obfuscating... etc!

[herebutoverthere]

my dad cant walk gets hot then goes blind and has alot of pain he's numb all over when he wakes up it fills like his back is on fire and he is starting to have more symtoms oh well

[herebutoverthere]

@ksalernokent thanks

[tsarina55]

Kristie, your dream to be in the spotlight has come true in a most enlightened way!

This is such important work and will touch many hearts and minds. It's amusing and informative and, oh, so true.

Thank you! I am sharing this to spare me explaining the unexplainable.

Blessings on you....

[Vivianne766]

I have an advice.

Support CCSVI.

The authorities keep shutting down the doctors that are liberating the patients. This needs to stop. Help support Liberation Treatment for MS patients.

Great video.

[TheJojo1470]

this is wonderful, i posted it on my facebook and have sent the link to everyone that has ever doubted what i go through, OMG, thank you so much for this, the pain, the eyes, the unbalanced walking, the numbness, sometimes its hard to deal with, if only others could actually expierence the real thing for a day, but this is so close, an awesome video, thank you again

[brp4wheels]

Wonderful! Thank u

[nanigoogoo]

Wish more people understood...like spouses...

[curmudgeonine]

She presents this - and us - so well!

[thepasture]

BRAVO!!

[BrendaRaven1]

Kristi, what an amazing job you did helping people to see and experience some of what we live with everyday! Very professional!

[sagatarianfirechild]

Thank you so much for making this. This is exactly how I feel every day. People tell me I look fine. I never thought of having others experience my symptoms for themselves to understand it the way you did. This brought me tears of relief and a feeling like the examples that you had others experience resulted in their education. But the one thing they can't experience is our pain. Thank you thank you thank you!

[grannie4peace]

thank you for posting this. my daughter was just diagnosed with ms. everyone in america needs to know more of what it is all about!!!!!!

[MrFsanto]

Thank you I know how it feels when people say the same thing over and over "You don't look like you have it" but they don't feel the pain that some of have to deal with on a daily basis

[pr1tv]

Thank you Deb, I was dx 2006 and I am sooo tired of hearing people telling me that (I don't look like I have MS and Oh you look so good). I had forgot how to accept a compliment, thank you never left my lips, because feeling like shhht trumped how I looked! I will definitely pay it forward, thank you again for this video:~)

[1DebbieD1]

I was diagnosed with MS back in 1992. I can not thank you enough for making a video on what alot of us go thru every day. I am going to be doing a report on MS for my Med class at Heald College. I would really like to have permission to show this video as part of my presentation. Would that be ok? Please email me to let me know. Thank you!... Deb

[pinkypegasus]

Very well done, add typing to the list of probs. That said, as a person going on 4 yrs being Dx with the dis-ease and having had a grandmother who had it as well, I must put my opinion in here. A cure will never be found. The NMSS does great at educating people, but there is too much $ to be made in treating symptoms. I was basically laughed at when I suggested that the organization fund research for non drug treatments and ways to help the body to heal itself (i.e. diet and exercise).

[mesecevakcY]

This is really great video and you did it so god. You described exactly how I feel and also that comment about MS and inside looks. It can annoy sometimes. It's a disease like any else.

[apcall]

Kristie.....thank you....thank you so much for doing this.....I have turned many of my friends and family on to this video, as I have MS and lets others know what it is like, especially the gentlemen buttoning his shirt with the mitts on, that me for sure, and now I have a quick way of explaining to people what it is like....good luck with your MS....

[PurposedD]

Just found the link to your video on: MS World.. Thank U so much for putting a picture to how MS Patients feel.

I was dx on Dec.16th,2008 fastly approaching the 1 yr anniversary... and, I must say.. it has been a heck of a year.. I'm learning to honor me 1st.. how I'm feeling and to be real with my fam & friends.. Again thank U will definitely be posting this on my FB Page.

Blessings,

PurposedD

[leetwid]

My daughter has MS and I thought I knew how she feels. But after watching this video, which she has on her Facebook page, I realized that I don't. Now, I'm going to add it to mine so more people can see it. Thanks for making this video...it helps all us "outsiders" to understand.

[UMITEBIQ01]

Your film stopped me in my tracks. What an inspired look from the inside out. To show us that you don't take it off brings light to all. My sister is living with MS, and I've posted this to my page, Thank you~

[Godsgrace12345]

Loved this video finally a video to show exactly what we feel everyday,every minute,every second...we dont get to take it off!!

[Shifraeliezar]

I LOVED your video; you are speaking FOR me! I am living with MS since 1986 and if I had a dollar, like you said, for times people said I look so good - I'd be rich! Thanks for making this video! XO

[snaphu]

Thank you so much.. an amazing video and well needed!

[luvinterpol77]

Great Video!! ALso brought me to tears, it's hard for people to understand what I go through. I sometimes just stop. Thank you for this great video.

[mstricia70]

I just posted this to my facebook. If I had a penny for every time I heard 'but you don't look sick' I'd be a very rich woman! Well done, Kristie - God bless you!

[lawandakjr]

Thank you! When I carry my two year old, not only do I have a flipper and high heel but the belt keeps getting tighter and tighter. Maybe seeing this, some people will see that I'm not making it up!

[Caspersmom09]

Thank you so much for doing this!! I get so tired of people saying you look so good, when you just want someone to knock you out because you hurt so bad!!. People often think I"m using my MS to keep from doing things, maybe this will make them understand. Thanks again!!

[OSA503]

Good job!

Down with "but you look SO good"

[ksalernokent]

It makes me very proud to see that my short film has been viewed by 36,902 people! Thanks for all your positive comments and feedback. When I created this film it was my goal to make the INVISIBLE...VISIBLE so people without MS can understand what we face. Thanks for watching and stay tuned for more! Blessings~Kristie Salerno Kent

[colemann92]

This video hit the nail on the head...I HATE it when people say I look good, are the doctors sure, blah blah blah, my balance, my vision, my pain, people can't see it and kind of have that nod like they are just agreeing with you to humour you...I really like this and will show it to anyone who will watch....THANK YOU SO MUCH FOR THIS!!!!!!!!!!!!!!

[MISFITMISSYFASHION]

Omg!!! I'm so happy to see a video that shows others what we go through!!!!! Thank you!!!

[SarahSoulFood]

Great video!

[candor1982]

I'm also with RRMS, even my own family think that i tell a lie when i tell them i do not feel fine! or i'm tired.

[ms26babe]

That is such a fab video lots of tears but so true - i have started my video as i looks so normal, laugh and joke and when people ask why i have a walking stick they dont believe me i have ms!!!

[narco33gal]

I love this girl!!! She does so well and I've showed this to so many so maybe they will understand how I feel.

[teslagirlM]

I LOVE this woman! So well done! I relate to all of it. 5 stars! I am sending this vid to everyone I know!

Marlo

MS'er extraordinaire

[queenBe867]

I have to say this made me laugh and cry. Whenever I have a relapse i call the way i walk the MS shuffle, and when i saw people tripping over themselves i could laugh because that is what I experience...It made me cry when the lady in the Airport started crying because it is so true nobody realizes what it is like to live with MS. I'm a freshman in college and often people see my MS as an excuse to park close to my dorm and skip class..

Thank you so much for this!

[rachelah1973]

Thank you for making this video. It explains MS in a lot better way than I can, even though I have MS! Yes, the invisible symptoms, no one can understand till having experienced them. I've posted this to my Facebook to share further. Thank you Kristie, this is a brilliant video.

[Almademonia]

Lo vi.. me rei y llore.. Muy interesante.. tengo ms.. desde mayo 08 y nada como esto..para demostrar lo que se siente adentro.. esos sintomas invisibles..que pocos ven.. pero que tu sientes tanto.. Thanksssssssssssssssss! Kristie Amazing JOB!!!

[toady10]

I can totally relate to this because I have MS too and people figure just because I can without an aide devise, it can't be possible well guess what it is.

[k3hw]

Wow, what a great video! It gives people a better perspective on the disease! Great job!

[urnoteye]

i was searchin for the show must go on by Nirvana the british band of 60's......not these!!!!!! this is tripe.......bouzouki rock & roll ....is my mousaka.

[singer85]

I have MS and as a singer it is so hard to sing in flippers and may Godd bless this lady for her courage i was waiting to

Die until now

Thank you

Kelly

[v3rnondotcom]

Any chance that this and the other videos will have open captioned versions posted so that the Deaf can watch it??

[tinacontino]

Gosh, The first time we saw this was at the Tour of Champions event, our daughter Ashley was diagnosed at the age of 15 (she is now 17) and this would be great to show all her teammates from her volleyball team along with her high school,,,,any chance of a copy being able to be sent to us??? It would be greatly appreciated.

Tina

[sajosiebird]

Bravo. If only more people could understand how we feel. I think I am going to use this to help my kids understand how I feel.

Thank You

[ytammam08]

Wow, loved it..!!!

I have MS and one problem I definetly have is that ppl never understand what's going on..!

[blake7xx]

MS SUCKS!

[hnoelles99]

Awesome video, it shows other people just a part of what we go through on a daily basis. I saw this at my MS Support Group meeting a few months ago and it made me cry. I plan to post this on my myspace and show all my friends as well. Thank you to Kristie and the MS Society for making this!

[mbethdavis]

I saw this today @ the National MS Women against MS luncheon in D.C...loved it ! and Kristie! I will send it to everyone I know!

a fellow MSer

[raclmtsu]

I first saw this at the M.S. Society's tour of champions in Jan. Most of us watching had M.S. We laughed (esp. at "you look so good") and cried. I used this link on my M.S. Walk fundraising emails. I've had M.S. for 18 years but my husband and my son had no idea just what it felt like for me until they watched your video. Thank you Kristy!

[kocickasmom]

Very well done! That is the best I've seen since the print ad showing the barbed wire wrapped around the feet.

[pmqklq]

WOW this was amaizing to wathch. I am crying as I watch this. I hve am MS and I am a guy. You talk about when you found out, it took the words out of my mout. I can not express in words how deeply this video touched me. THANK YOU so much.

[leseth143]

That was GREAT! I'm an occupational therapist and have provided similar awareness events for stroke patients in the past, it was great to see it done for me! I have MS and I must say your words, action, and examples were perfect! Thank you for doing it, you are such and inspiration and a wonderful role model!

[leseth143]

That was GREAT! I'm an occupational therapist and have provided similar awareness events for stroke patients in the past, it was great to see it done for me! I have MS and I must say your words, action, and examples were perfect! Thank you for doing it, you are such and inspiration and a wonderful role model!

[0bovine]

What great visuals - even if someone doesn't put on the props, just using them as verbal examples of what stuff feels like will be helpful.

[theemusicmama]

Thank you Kristie for showing how hidden the symptoms of MS can be to people and sharing yourself living with it. I too have been musical all my life and try not to let MS steal my dreams which are now focusing on my talented daughter rather than myself.I feel the flippers, the belt, and the visual difficulties too.You're beautiful and talented so keep marching forward it helps all of us cope! God bless you and again thank you for sharing!!!!

[mrthr0pic]

wow, i have never been able to describe exactly how it feels, what you did with the high heels and flippers, the tightening belt...that was great! what a great way to open some peoples eyes, ms, when it is under control is impossible to detect on someone, but we still feel the symptoms everyday...good luck to you, and your health. i hope you can find a good drug, that helps keep your ms under control like i have! God bless!

[mark61ms]

GREAT FILM!! You really hit the nail on the head. Keeping do this! I have posted this to my blog. I have linked your video, so that more people can see your Great work!! Thank you so much for all your grat talents. BIG HUG! with a BIG SMILE!

[joyindigo]

good work! look out for a thetahealing practitioner... maybe there is a possibility to help you to recover! good luck!

[btsyshsbnd]

brava Kristie. You've put into words and actions things I haven't been able to articulate. I sat down and watched this with my two daughters. At the end one looked at me and said, "You're tougher then I thought Dad." The other said, "I didn't know it was that hard." then "I'll mow the lawn this year."

[UCMSGrand]

I probably should not have. However I laughed because I saw myself in those flippers. I was wonder if I was the only one feeling the rush of society coming up on me. Throwing my hands up like whoa whoa, and driving is a real life trip in it self especially on the highway. Stay in tube! Stay Inspired! Yes you are Beautiful. I am MS Grand you are MS Beautiful in the Atl. Holler at me!

[berkdc2008]

Kristie - Thank you so much. Yes, yes, yes, all of this is quite accurate, & I'm still drying the tears. It's a challenge! One suggestion -- try cinching some steel mesh gloves around those hands next time.

[IamMSRuthie]

Kristie - I could not have described this better myself. What an awesome video. It truly describes my symptoms completely. Thanks for making this available to others who do not have MS like us. (o:

[yogadeb52]

Kristie - thank you for this video. I learned so much is such a short time! I have a student in my yoga class that I will share this with, so that she can share it with her family to inform them of her experience. Experiential learning is so powerful.

[menziesgal]

Kristie- You should be applauded for your efforts in helping spread awareness of MS. I am 27, and was diagnosed with MS at age 23. So many elements of the "MS costume" were great representations, I can't wait to share it with my friends & family. Thank you for what you shared- you are very brave. I share your hope for a cure.

[siftcomark]

Thank you for sharing this story. What a great way to teach others what it is like to have MS. I have heard it all before, " You look so good!", "Are you sure you have MS?", "What do you mean your feeling tired, just a few more hours.". Keep up the good work!

[madeubner]

Kristie, that was great! I will have to send this link to my friends and family.

[jilljustine]

Wonderful Kristie- YOU GO GIRL!!

Thank you for making this and giving people a sample of our everyday life!!

I CAN'T WAIT for the ENCORE!

have a wonderful pain free- balanced day- love and BIG hugs- Jill

[nmedina65]

This video is such an eye opening... i do not have MS but my sister in law Elizabeth Garcia does and now when she describes what she's feeling I'll have an idea...through ur video...continue ur fight..we will find a cure.

[fadednegative1]

This is wonderful! Thank you so much for posting this. I myself do not have MS, but my mother does. Thank you for helping me to understand what my mother goes through.

[tmjneedy]

I loved it Kristie! You did a super job demonstrating what MS feels like. It'd be even more realistic if they had to put on all the stuff and then have to FTP--Flee To Pee! :) I've been diagnosed for 30 years and every time someone says "but you look so good" I want to put a pie in their face!

Keep up the good work!

Tina from the real Washington-Washington State

[PeterJLicari]

WOW! This says it all! I LOVE the fact that you showed 'them' what it was like to sort of have this illness. As a person who has MS, I often feel the same way! I have even written a book on my discovery and how I eventually learned to accept this and even sort of "Thrive" with it. It is called "Multiple Sclerosis: A Blessing in Disguise". I applaud you and what you are doing!

Be well and Happy!

Sincerely,

Peter J. Licari

[zilkerpark]

Hey there Kristie,

You have made the most incredible video here. I look forward to seeing more! Encore! Encore! :)

Regards,

Rick Kent

Living With MS since August '02

[7mumfred7]

Beautiful video Kristie - may I suggest searching in youtube for "laurenvparrott" - she is another young lady with MS, and she has had benefits in restoring balance after only 2 infusions of Tysabri.

Please keep up the good work, all MS-er youtubers.

[ProCastMe]

My husband just watched your video and the two of us are amazed at how you have captured what its like to have MS. Thank you and I look forward in passing on this valuable information.

Bravo! Diagnosed in 1996

[sumoons2]

Thank you so much for posting this. I have MS and it is really hard to explain sx to my kids, husband, family, and friends, your video says it all. Now maybe they won't just think that i'm clumsy all the time.

[Moesgal]

The most brilliant display of MS I have ever seen!! AWESOME VIDEO!!

[wyomingsmiles]

Very nice. Great job informing what it is like having MS!

[jesterspace]

As someone with MS (Diagnosed since 2003), I have gone from appearing fine to paraplegia (paralyzed from the waist down) and now just a cane.. Kudos on a brilliant video.

[IYQ42]

I have MS and its soooo true! I have been diagnoised for going on 14 years! Your dreams don't have to end! I just bought my own house!! Lets find a cure!!

[lucylin1999]

Thank you so much for posting this wonderful video. I find it so difficult how to explain how it feels for me inside my MS body and you said it all for me. I have all the symptoms you describe and a few more, but now I can send this to my friends and they might be able to understand a little more clearly what it is like for us. Thank you again and again.

[itasara]

Great video! Bravo. There are two of us in my immediate family who (unexpectantly) developed MS. At least most of my life I had no idea I had MS. I hope your video helps many people understand MS. I do work hard to look good and hopefully the two of us will stay on the benign side of MS.

[ElizaPS]

Two family members have MS, this clip is very good. Sending it to everyone. Thank you!

[kimraz71]

thank you so much for doing this video, I have MS, and I showed this to my husband and I am passing it on,bravo for doing this ;)

kimraz71

[minaird]

I love the clip! I will definetly send this to people I know. I hear a lot of the same comments. If only people knew.

Sylvia

[ksalernokent]

I'm glad you enjoyed my film! It's good to know we are not in this alone. People really want to try to understand what we face and they want to help.

[agntspecK]

Kristie- Wow! You are so awesome! This can really help get the word out and help people to understand what we experience each day! Thank you for sharing and I wish you the best of luck with everything you do in the future. Always remember you have MS...it never has you! Keep on dreaming! -Kellie

[eskolkin]

Hey, I have stage 4 metastatic cancer and have been through surgeries, radiation, and chemotherapy. People also tell me how good I look...it's better than telling me that I look like crap! I would have liked you to talk about the injections, pills and their side effects, too!

[kdomanski1]

Awesome Job! You are amazing. Your hard work paid off. Thanks for speading the news. Wishing you much success on your future dreams.

Karen

[tkalakis]

Thank you Kristie, another home run! NOW can I say I knew you when.......Love you and what your doing.

Ted

[mightymusemusic]

Superb!!!! Superb!!! People really "get it!" Great job!

[blinggroup]

BRAVO my friend! I'm giving you a standing (but wobbly) ovation!! So proud of you! Now where are my flippers?! Oh yeah, I'm already wearing them! Jackie Bertone

[Desinie]

Great job, Kristie!! Thank youuuuuuuuu!

[ShelleRM611]

That was a great video. I am going to show this to my family and friends.

[ProudIrishMomma]

This is incredibly informative.

[hollyhuber]

I loved this video! What a great way to explain MS.

[zoters]

This is so awesome! I am planning on doing a documentary on this....so, cool to watch someone do what i will do. Very thought out and well done. BUT YOU LOOK SO GOOD has been in my life for ten years! Beautiful job!