I just saw a family member and she broke her hand three days ago and was complaining to me that she couldnt go to work. I wanted to though her though the window its not like I could yell anything at her, becuse when i say anything about fybo it seems to go in one ear and out the other. Im so angry. I dont want to be angry so thank you for speaking out and yes greek yogert has been my only food friend for years!
My husband doesn't understand me when I'm having a flareup, he thinks it's all in my head,he just rolls his eyes at me. I feel bad that you seem to suffer alot worse than me. I have pain all the trigger points, but mine seems to last for a week, then it goes away, then another issue flares up, IBS, anxiety, lower back pain, TMJ, fatigue,headaches, sleep disorders, you name it, I got it, but it's like these symptoms all come and go, like a cycle constantly. Im glad I found your videos. God Bless~
I am supposes to be out with my friends having fun and doing the things I want to do.. I cant even get up more then half the time.. My dad thinks I am a lier.. WHO WOULD LIE ABOUT THIS!!!??? I want to go out and party and have fun but I cant and I get made fun of because of it.. not from my friends, but by my family.. It just makes it worse.
Help me help my mom understand plaese.. I am only 21 n I have had it since i was 17.. She tells me i dont move fast enough or that everyday is somethin different. She yells at me alot n that hurts me more. I also Diabetes (insulin dependent) d Restless arms n legs syndrom n Nerve Nurapathy. She tells me if i just get out n do things I will be better, But I cant even bring myself to do anythin cuz i hurts so bad to move.. Please email me back. I dk what to do, I just want my parents 2 understand
Thank you very much for sharing. I am no fellow sufferer, but I try to understand what you are going through. I find it scary to see how bad people are at showing some empathy. Stay strong.
I've seen alot of videos about living with fibromyalgia and urs out does everyones I t feels that I'm talking in ur video! I too have problems with my ears n nose but they keep saying I have swimmers ear but it don't feel like swimmers ear for the past 5 yrs now and I know what ur saying a new symptom comes up this month it's delay of my period for 2 months and heartburn major heartburn me thinking I'm pregnant but I'm not, and my joints feel like their pulling out of socket,I give you kudos t
Girl, you make so much sense, I just saw this, did not know you were out there trying to help us all. I felt forever that I was completely alone, I am sure you understand. Oh I could talk to ou forever, I am lucky because when someone else is here to make sure I do not fall and bust my butt, I can wash my hair still. Hair dryer?? NO WAY!!! If you feel like you are not cared for,please know that you are helping me if not a zillion other people. Thank you!! Another FL Girl!
@ellienc -- I Wish I coud save you from the 80 Dr's that were stupid, I wish I could make your family understand-- But I remember HIV in the 80's And now there so MANY resources and education-- I ONLY hope we can come together and get resources and for FM/ME/CFS/Lyme That are SICK and need help and Understanding!
I just listened to your video where you talk about growing up and periods and pain and heredity and all that and it was the same for me, exactly. Our ovaries are not normal our whole lives and we produce inadequate estrogens. It's the main source of all of these problems, I swear, the more I listen to you the more you sound exactly like me. I had to have a hyster due to excessive bleeding and it was all downhill from there. Please read Dr. Elizabeth Vliet's books. Please!!
I swear I had the tooth pain, the back, neck, leg, joint pain, everything. The FOG that made me give up driving. I couldn't sleep except to have nightmares, it effects everything. One in 10 women suffer from fluctuating or low estrodiol levels. And the pill alone doesn't fix this because there's too much progesterone in it. We need the estrodiol patch only. I'm on a .1 patch 2x week. No progesterone. I take spironlactone to block the bad adrogenic hormones, plus a very low dose mood stabilizer.
I also take mega doses of vitamin D because I had none in my system as well as no estrodiol when I was finally tested by Dr. V. She drew 23 vials for testing and we checked everything. So she prescribes me exactly what I need and nothing more. And we retest every 6 months and adjust. I got my whole life back! Just got back from Japan in fact for the vacation of my life. Please please look into it!!
Girl....we need to talk! Seriously, it sounds like we both could use eachother's support. My mom is a nightmare too and we don't talk. I am so sorry about your sister and brother. :( The pain and fatigue is excruciating and I've been plowing through only to be comatose when I had time off. Kept hitting brick walls, and fear I have hit one this time that I will never recover from. No one will understand this, but us.
OMG you gave me the answer to my teeth pain.that is so painful.I I don't have insurance but need so much to go to dentist.nerve pain is the worst ever.bless your heart.
I have had Fibromyalgia for over 10 years and I feel exactly the same as you do. I have had a lot of sensitivities with light, can't concentrate well nor communicate what I'm saying to another person all too well. I understand the teeth issues. I have a lot of videos on my Fibromyalgia issues and battles with it.
I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure for this horrific disease after 15 years of failed treatments. I understand this illness completely from the inside and back out again. Symptoms are often mistaken as a cause and what can help does not cure. Please, do not give up and keep going. See my You Tube video "Curing Chronic Fibromyalgia - Choosing What Works" and my best wishes to you all!!!
it is amazing how much me and you have in common , i went through exact thing as a child with my legs and my mom tole me same thing , my daughter also now is 30 and i had her young and she now has fibromyalgia , it is horrible to live with ,I just spent three nights in the hospital and got out today , it was my intestines they decided not to work and i had not moved in over 7 days and the drs act like you are crazy cause your pain, im with you i have had this since i was a child as well. :(
Thanks for sharing! I've had Fibro for about 4 years. I'm getting worse. I hope you're feeling better today. I know how you feel! I understand your pain. So sorry to hear about your sister and brother. I'll check out your other blogs.
Question- Do we ever heal from this? Has it happened?
I have trigeminal nerve pain and have for many years. Actually you cannot even touch the left side of my face or it will trigger it and set off the pain which nothing helps. I take seizure medication daily to help control it. Man it sucks. I can't really give you much advice of how to stop it, other than this anti-seizure medication it does help. Anyway God Bless you.
Hi Michelle; Thank you for doing your videos, you are very honest about the pain that you are suffering..I was recently diagnosed with Fibro, although I think I have had it for at least 18yrs..But never had the "flare ups" like now.. My mom suffers as well.I hope that you find relief ,and that a cure is not far away..Hugs
Hi Michele I emailed you a message please reply soon Listening to you gives me strength to carry on every day . Ive often considerd to end it all. People and family dont get it. they still expect us to grin and bear it and nothing is wrong with you. hope to hear from you and anyone else who needs to talk about pain and fibro. thankyou marguerita.
The eardrum burst hurts like hell. I can't tellyou how many times I've had tubes put in my ear. I have someting on my kidnets and I am a SLE patient. My meds stopped working and I may need Oxycodone I think that's called Morphine.
I understand your frustrations, with everyone having the answer! I wanna scream! & we can't get attention and raise awareness for the life of me.........me and my friends sure do try with any energy we have! I wanna scream and slap people! HELLO WE R HERE! WE R REALLY SICK & WE R NOT JUST A ANNOYANCE TO U AND SOCIETY!
I want to talk to you, i am alot like you but i have no choice i push myself to work evey day cause i have no mate and no choice , Iam very isolated with this , I am a massage therapist and i work from home and i am not like your freind who did nto understand this condition cause i have suffered with it now for over 20 yrs , you are a beautiful woman such as myself and i wish to talk with you to possably inspire each other,, Vlucidity
@vlucidity Michelle, when I was a little girl, I used to keep my mother up half the night, just screaming and crying because the severity of the pain I was experiencing in my legs would keep me awake. I begged my mother to fix it, get me to a doctor, something, anything, just make it stop. My mom said, its just growing pains, so stop your crying and go to sleep. I still have those leg pains, sometimes in order to keep the pain down, I have to keep repositioning my legs.
I am so increadibly sorry that you lost 2 siblings. You must be in a world of emotional pain. I can only imagine! None of my family understand or have FMS. They think I am trying to get attention. It's been conically 10yrs but more like 15+yrs. Same world of pain, iscolation & frustration. Have Glandular F. & Measles @ same time over & over. Very painful! Thinking of you. Hope your pain eases for even a little while. Best wishes Michelle.
i completely believe you and know how hard it is, although I am not as extremely ill as you are.
What really frustrates me is that when i see my friends, certain family members, etc they say I look good & look better... what they don't realise is that I am only seeing them because I am having a 'good' day. Which is why I see people so little now, as I have to conserve my energy for a while to even hope to have a good day. I know people are trying to be nice but they just don't get it...
Hey M...you have a right to be mad...I was for 5 yrs( have this since '97)....looked like an old hag from the pain all over my face people sad I looked furious when I was'nt...you are right on no one gets it...they look at you like wtf when you say I can't even use the remote even you partners who live with you everyday can not seem to remeber that we are sick ...some times I wish I was green so there would be something for people to see ! Thanks for your vids and take care...!
YES at getting mad at loved ones... when they aren't being LOVING ones; instead they're almost using your illness to smack you down. 'Life with FMS' feels like what it sounds like: a jail sentence.
Fermented Cabbage Juice. I mentioned this in another one of your videos. It might be worth a try. It will help your digestion if anything. It does have an ingredient that is found in Sam-e also. I have Ankylosing spondylitis.
Hey there... have the same thing in my teeth... for 2 months now.... I do have one abcess and taking antibotics now.. but... wha.. the pain is horrible... and your right.. you cant eat much...
I am alone alot too... I have a great hubby.. but Im still alone .. kinda.. he does his own thing...
this is a horrible illness.. as all of us who have it.. I really am glad you do these vidoes... hang in there hun.. Im in the fight with you...
With "Healthcare" If you are not with A PAIN MANAGEMENT SPECIALIST, Do so, An injection can block the Trigenimal nerve. Or your local emergency room. AND Others think we just want OXY! True pain disorder patients DO NOT GET HIGH OR ADDICTED!
Your videos are always awesome & right on the money. I have been successfully minimizing my worst symptoms using herbs but am still not well enough to return to the workforce. Controlling my symptoms costs a small fortune every month, leaving my already limited finances completely tapped out. I do my best to keep a cheerful demeanor because I hate sympathy. The one thing I have little control over is the sleep disorder. I hate not getting the rest I need & waking up to a panic attack. Bless you!
@mcertonio I understand how it is, believe me. I used to socially enjoy the holidays - now I sit at home in my pajamas battling fatigue, pain, and all the other symptoms, and just hope my friends don't completely forget about me. Hope your holidays are great and that we can all look forward to a better time in the year to come! THANK YOU for putting yourself out there and speaking on behalf of all of us Fibro folks!
Sounds hellish. =( One of these days I'll have to make a fibromyalgia video. There really can't ever be enough. It's morbidly comforting to hear that you're not alone, even though I wish I was alone just so that nobody else had to have it! D:
@loserella55 -- You said A key WORD! You are in pain and still worried about others, I Beieve research would (IF ANY EXISTED) Would find people with FIBRO HELL are more compassionate & understanding. When I look at A crusifiction
(YES Many died that way other than JESUS) My pain
THAT never leaves my body for 1 moment, Are Wrists (Joint) Ankles, left spear though upper stomache, skull/head. Pain where Dr's SAID there should not be any. At least
I've just found your videos. I have m.e and fibro too.
your videos are fantastic, keep up the good work raising the awareness of m.e and fibro x
wildali100 1 day ago
I just saw a family member and she broke her hand three days ago and was complaining to me that she couldnt go to work. I wanted to though her though the window its not like I could yell anything at her, becuse when i say anything about fybo it seems to go in one ear and out the other. Im so angry. I dont want to be angry so thank you for speaking out and yes greek yogert has been my only food friend for years!
rayaalove 1 month ago in playlist More videos from mcertonio
My husband doesn't understand me when I'm having a flareup, he thinks it's all in my head,he just rolls his eyes at me. I feel bad that you seem to suffer alot worse than me. I have pain all the trigger points, but mine seems to last for a week, then it goes away, then another issue flares up, IBS, anxiety, lower back pain, TMJ, fatigue,headaches, sleep disorders, you name it, I got it, but it's like these symptoms all come and go, like a cycle constantly. Im glad I found your videos. God Bless~
MessiahJesusLives 1 month ago
I am supposes to be out with my friends having fun and doing the things I want to do.. I cant even get up more then half the time.. My dad thinks I am a lier.. WHO WOULD LIE ABOUT THIS!!!??? I want to go out and party and have fun but I cant and I get made fun of because of it.. not from my friends, but by my family.. It just makes it worse.
MissDenverbaby 2 months ago
Help me help my mom understand plaese.. I am only 21 n I have had it since i was 17.. She tells me i dont move fast enough or that everyday is somethin different. She yells at me alot n that hurts me more. I also Diabetes (insulin dependent) d Restless arms n legs syndrom n Nerve Nurapathy. She tells me if i just get out n do things I will be better, But I cant even bring myself to do anythin cuz i hurts so bad to move.. Please email me back. I dk what to do, I just want my parents 2 understand
MissDenverbaby 2 months ago
You stay strong and hold on. God is love. love is the answer.
"how do you know your life and earth mission aren't complete yet? You're still here.":)
telemetry9 6 months ago
Can I ask you - do you have fasciculations in any of your body? Just had all neuro tests but only positive for fasciculations.
I'm a guy - so i'm desperate for answers to pain and fatigue.
telemetry9 6 months ago
Thank you very much for sharing. I am no fellow sufferer, but I try to understand what you are going through. I find it scary to see how bad people are at showing some empathy. Stay strong.
Bionuker 7 months ago 2
@Bionuker Thank You, Iwish more people would try to understand.
mcertonio 2 months ago
I've seen alot of videos about living with fibromyalgia and urs out does everyones I t feels that I'm talking in ur video! I too have problems with my ears n nose but they keep saying I have swimmers ear but it don't feel like swimmers ear for the past 5 yrs now and I know what ur saying a new symptom comes up this month it's delay of my period for 2 months and heartburn major heartburn me thinking I'm pregnant but I'm not, and my joints feel like their pulling out of socket,I give you kudos t
spbrendasp 11 months ago
I to was told by my dentist Fybromalgia causes the pain
Silvergail1969 1 year ago
Marijuana, legal or not, WORKS FOR FIBRO. PAIN. The hell with Opiate pills!
stalzz 1 year ago
Marijuana, legal or not, WORKS FOR FIBRO. PAIN.
stalzz 1 year ago
I'm with you 100%! I am a fellow sufferer.
stalzz 1 year ago
Girl, you make so much sense, I just saw this, did not know you were out there trying to help us all. I felt forever that I was completely alone, I am sure you understand. Oh I could talk to ou forever, I am lucky because when someone else is here to make sure I do not fall and bust my butt, I can wash my hair still. Hair dryer?? NO WAY!!! If you feel like you are not cared for,please know that you are helping me if not a zillion other people. Thank you!! Another FL Girl!
ellienc 1 year ago
@ellienc -- I Wish I coud save you from the 80 Dr's that were stupid, I wish I could make your family understand-- But I remember HIV in the 80's And now there so MANY resources and education-- I ONLY hope we can come together and get resources and for FM/ME/CFS/Lyme That are SICK and need help and Understanding!
mcertonio 2 months ago
I just listened to your video where you talk about growing up and periods and pain and heredity and all that and it was the same for me, exactly. Our ovaries are not normal our whole lives and we produce inadequate estrogens. It's the main source of all of these problems, I swear, the more I listen to you the more you sound exactly like me. I had to have a hyster due to excessive bleeding and it was all downhill from there. Please read Dr. Elizabeth Vliet's books. Please!!
europanya 1 year ago
I swear I had the tooth pain, the back, neck, leg, joint pain, everything. The FOG that made me give up driving. I couldn't sleep except to have nightmares, it effects everything. One in 10 women suffer from fluctuating or low estrodiol levels. And the pill alone doesn't fix this because there's too much progesterone in it. We need the estrodiol patch only. I'm on a .1 patch 2x week. No progesterone. I take spironlactone to block the bad adrogenic hormones, plus a very low dose mood stabilizer.
europanya 1 year ago
I also take mega doses of vitamin D because I had none in my system as well as no estrodiol when I was finally tested by Dr. V. She drew 23 vials for testing and we checked everything. So she prescribes me exactly what I need and nothing more. And we retest every 6 months and adjust. I got my whole life back! Just got back from Japan in fact for the vacation of my life. Please please look into it!!
europanya 1 year ago
Girl....we need to talk! Seriously, it sounds like we both could use eachother's support. My mom is a nightmare too and we don't talk. I am so sorry about your sister and brother. :( The pain and fatigue is excruciating and I've been plowing through only to be comatose when I had time off. Kept hitting brick walls, and fear I have hit one this time that I will never recover from. No one will understand this, but us.
dawntenor 1 year ago
@dawntenor Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
Michelle,bless ur heart,Hun.I am a mom,gramma.always pretty quiet and loving.the kind everyone walks all over.I love your gumption. Keep going! Maddy
mad4paws 1 year ago
@mad4paws Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
OMG you gave me the answer to my teeth pain.that is so painful.I I don't have insurance but need so much to go to dentist.nerve pain is the worst ever.bless your heart.
mad4paws 1 year ago
I have had Fibromyalgia for over 10 years and I feel exactly the same as you do. I have had a lot of sensitivities with light, can't concentrate well nor communicate what I'm saying to another person all too well. I understand the teeth issues. I have a lot of videos on my Fibromyalgia issues and battles with it.
mahoganydreamz 1 year ago
@mahoganydreamz Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
This has been flagged as spam show
I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure for this horrific disease after 15 years of failed treatments. I understand this illness completely from the inside and back out again. Symptoms are often mistaken as a cause and what can help does not cure. Please, do not give up and keep going. See my You Tube video "Curing Chronic Fibromyalgia - Choosing What Works" and my best wishes to you all!!!
ValerieLumley 1 year ago
it is amazing how much me and you have in common , i went through exact thing as a child with my legs and my mom tole me same thing , my daughter also now is 30 and i had her young and she now has fibromyalgia , it is horrible to live with ,I just spent three nights in the hospital and got out today , it was my intestines they decided not to work and i had not moved in over 7 days and the drs act like you are crazy cause your pain, im with you i have had this since i was a child as well. :(
vlucidity 1 year ago
@vlucidity Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
Thanks for sharing! I've had Fibro for about 4 years. I'm getting worse. I hope you're feeling better today. I know how you feel! I understand your pain. So sorry to hear about your sister and brother. I'll check out your other blogs.
Question- Do we ever heal from this? Has it happened?
Do take care and hang in there! Sincerely, Nat
MrsNatc 1 year ago
@MrsNatc Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
I have trigeminal nerve pain and have for many years. Actually you cannot even touch the left side of my face or it will trigger it and set off the pain which nothing helps. I take seizure medication daily to help control it. Man it sucks. I can't really give you much advice of how to stop it, other than this anti-seizure medication it does help. Anyway God Bless you.
SisterSunnshine 1 year ago
@SisterSunnshine DID NOT HELP ME! Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
Hi Michelle; Thank you for doing your videos, you are very honest about the pain that you are suffering..I was recently diagnosed with Fibro, although I think I have had it for at least 18yrs..But never had the "flare ups" like now.. My mom suffers as well.I hope that you find relief ,and that a cure is not far away..Hugs
tiredofbeingsick 1 year ago
@tiredofbeingsick Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
Hi Michele I emailed you a message please reply soon Listening to you gives me strength to carry on every day . Ive often considerd to end it all. People and family dont get it. they still expect us to grin and bear it and nothing is wrong with you. hope to hear from you and anyone else who needs to talk about pain and fibro. thankyou marguerita.
travers83 1 year ago
@travers83 Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
The eardrum burst hurts like hell. I can't tellyou how many times I've had tubes put in my ear. I have someting on my kidnets and I am a SLE patient. My meds stopped working and I may need Oxycodone I think that's called Morphine.
chocara1 1 year ago
@chocara1 Yes-- Pain Management IS THE RIGHT THING TO DO--When you are in pain.
Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
I understand your frustrations, with everyone having the answer! I wanna scream! & we can't get attention and raise awareness for the life of me.........me and my friends sure do try with any energy we have! I wanna scream and slap people! HELLO WE R HERE! WE R REALLY SICK & WE R NOT JUST A ANNOYANCE TO U AND SOCIETY!
ironbith 1 year ago
@ironbith Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
I want to talk to you, i am alot like you but i have no choice i push myself to work evey day cause i have no mate and no choice , Iam very isolated with this , I am a massage therapist and i work from home and i am not like your freind who did nto understand this condition cause i have suffered with it now for over 20 yrs , you are a beautiful woman such as myself and i wish to talk with you to possably inspire each other,, Vlucidity
vlucidity 1 year ago
@vlucidity I am just out of bed with NEW pain, Trigenimal nerve.
Teeth feel like they are chisled out of your mouth, ear ache
Air hurts, No eating, Sinus hurts, AND mental stupidity.
AND my insurance stopped paying for meds so i went thru detox!
FUN RIGHT! Its time to fight back! The Dentist & Endodontist
Both said they Have FIBRO patients, YEAH RIGHT!
Endo said "See the gray in my hair?" I got out of the reclined chair
Threw off the BIB & SAID GRAY DOES not excuse STUPIDITY!
DR
mcertonio 1 year ago
@vlucidity Michelle, when I was a little girl, I used to keep my mother up half the night, just screaming and crying because the severity of the pain I was experiencing in my legs would keep me awake. I begged my mother to fix it, get me to a doctor, something, anything, just make it stop. My mom said, its just growing pains, so stop your crying and go to sleep. I still have those leg pains, sometimes in order to keep the pain down, I have to keep repositioning my legs.
tamra1975 1 year ago
@vlucidity Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
Hi michelle, you are refreshing to listen to.
I am so increadibly sorry that you lost 2 siblings. You must be in a world of emotional pain. I can only imagine! None of my family understand or have FMS. They think I am trying to get attention. It's been conically 10yrs but more like 15+yrs. Same world of pain, iscolation & frustration. Have Glandular F. & Measles @ same time over & over. Very painful! Thinking of you. Hope your pain eases for even a little while. Best wishes Michelle.
Tashieblue 1 year ago
Comment removed
VisionQuest2012 1 year ago
i completely believe you and know how hard it is, although I am not as extremely ill as you are.
What really frustrates me is that when i see my friends, certain family members, etc they say I look good & look better... what they don't realise is that I am only seeing them because I am having a 'good' day. Which is why I see people so little now, as I have to conserve my energy for a while to even hope to have a good day. I know people are trying to be nice but they just don't get it...
happysad321 2 years ago
I really appreciate the fact that you are so incredibly real! Hang in there. You are NOT alone...
chlancas 2 years ago
Hey M...you have a right to be mad...I was for 5 yrs( have this since '97)....looked like an old hag from the pain all over my face people sad I looked furious when I was'nt...you are right on no one gets it...they look at you like wtf when you say I can't even use the remote even you partners who live with you everyday can not seem to remeber that we are sick ...some times I wish I was green so there would be something for people to see ! Thanks for your vids and take care...!
alonealotta 2 years ago
I like you humor AND we must try to keep THAT part of us.
I get so angry with the side Ads, That say CURE, INSULT.
Face book me or email, i have A project in mind AND I like yours (mind)
FIBRO HELL MICHELLE
mcertonio 2 years ago
@alonealotta
YES at getting mad at loved ones... when they aren't being LOVING ones; instead they're almost using your illness to smack you down. 'Life with FMS' feels like what it sounds like: a jail sentence.
ysabellabravetalk 1 year ago
@ysabellabravetalk yeah...it kinda is...but we learn to deal...just have to tell people off sometimes...hahaha=)
alonealotta 1 year ago
Fermented Cabbage Juice. I mentioned this in another one of your videos. It might be worth a try. It will help your digestion if anything. It does have an ingredient that is found in Sam-e also. I have Ankylosing spondylitis.
VisionQuest2012 2 years ago
Hey there... have the same thing in my teeth... for 2 months now.... I do have one abcess and taking antibotics now.. but... wha.. the pain is horrible... and your right.. you cant eat much...
I am alone alot too... I have a great hubby.. but Im still alone .. kinda.. he does his own thing...
this is a horrible illness.. as all of us who have it.. I really am glad you do these vidoes... hang in there hun.. Im in the fight with you...
ps. I was a singer too... but.. got sick..uhg.:(
ladytrish51 2 years ago
@ladytrish51 --- watch out for antibotics, They may be part of this illness, The only food I eat (right Now is Greek yogurt)
Please help your system with Yogurt or Ingredients. It helps
does not cure. We should write music, I need A partner!
mcertonio 2 years ago
After MUCH research AND ONE MORE BAD EXPERIENCE
With "Healthcare" If you are not with A PAIN MANAGEMENT SPECIALIST, Do so, An injection can block the Trigenimal nerve. Or your local emergency room. AND Others think we just want OXY! True pain disorder patients DO NOT GET HIGH OR ADDICTED!
mcertonio 2 years ago
Your videos are always awesome & right on the money. I have been successfully minimizing my worst symptoms using herbs but am still not well enough to return to the workforce. Controlling my symptoms costs a small fortune every month, leaving my already limited finances completely tapped out. I do my best to keep a cheerful demeanor because I hate sympathy. The one thing I have little control over is the sleep disorder. I hate not getting the rest I need & waking up to a panic attack. Bless you!
Euterperocks 2 years ago 3
@Euterperocks YOU HELP ME HANG ON! Everytime I try to Return to work AND I TRY! It takes A month to recover.
Sympathy, I need to look up the word BeCAUSE Sympathy
Does not mean UNDERSTANDING!
mcertonio 2 years ago
@Euterperocks Thank YOU! I am so sorry I have been out of touch! I am doing A video now-- Too catch up.
mcertonio 2 months ago
@mcertonio I understand how it is, believe me. I used to socially enjoy the holidays - now I sit at home in my pajamas battling fatigue, pain, and all the other symptoms, and just hope my friends don't completely forget about me. Hope your holidays are great and that we can all look forward to a better time in the year to come! THANK YOU for putting yourself out there and speaking on behalf of all of us Fibro folks!
Euterperocks 2 months ago
Sounds hellish. =( One of these days I'll have to make a fibromyalgia video. There really can't ever be enough. It's morbidly comforting to hear that you're not alone, even though I wish I was alone just so that nobody else had to have it! D:
loserella55 2 years ago
@loserella55 -- You said A key WORD! You are in pain and still worried about others, I Beieve research would (IF ANY EXISTED) Would find people with FIBRO HELL are more compassionate & understanding. When I look at A crusifiction
(YES Many died that way other than JESUS) My pain
THAT never leaves my body for 1 moment, Are Wrists (Joint) Ankles, left spear though upper stomache, skull/head. Pain where Dr's SAID there should not be any. At least
it started that way 20 years ago, NOW - OUCH
mcertonio 2 years ago