My Day Out with narcolepsy Part 3

[fackinsaxy]

how did you stay awake during the interview? and does coffee help at all?

[Deathnique]

You're my hero man.

[issylunar001]

he seems like a very lovely man, sad he has tis promblem but he can;t help that

[geostigma123]

There are many testimonials of people using Medical Marijuana (sativa strain to help stay awake, and Indica strain to give a deep quality sleep at night, since many narcoleptic people are having trouble getting the quality sleep at night)

[mikesomething]

shouldnt the carer walk down the stairs in front of him ?

might save his life

[CaliforniaFarmGirl]

I have hashimoto's hypothyroid and I had the same feelings before I was diagnosed (I still struggle with them even though I have a diagnosis)-I'm lazy, stupid, a slob. I don't fall asleep like you, but I'm weak and tired day in, day out. Good for you getting out and about-it's inspiring.

[terrorsquadlith]

wow i wasnt expecting that fall at 1:40. i thought he said he could feel the sleep approaching and it took at least 30 seconds to fall asleep

[guitarralaraja]

first time i saw one prso with narcolepsy i could not beleive what i was seeing.

Its good to have a good person like the girl in the video that helps you.

greetings from chile.

[Sorenich]

I couldn't imagine having something like this. What you are living through makes you a strong man. I wish you luck, and maybe there will be a cure one day. And it hurt to see you suddenly fall asleep during your interview part ;___;

[QuiteSimpley]

What about using adrenaline, would it make a short term difference?

[daud8472]

I've never tried it sorry...

[playcj2007]

My son (7) was just diagnosed with narcolepsy with cataplexy. I am very grateful for your barvery. I am so worried about him, and to know that your ok and you have found a way to cope with your condition brings me hope for my son. Thank you so much for posing this video. Your a real inspiration.

[Kye35]

His carer does a great job, I admire her a lot, thank god for people her, wonderful human being.

[klyfly1]

I'll giving my sons Drs and Shrinks this information maybe they'll finely get it and other family members who also don't get it....... Thanks

[daud8472]

Thanks for your comments, they mean a lot to know some people are finding them helpful.

[klyfly1]

their more than useful..... a survival guide

[turbosuo111]

I am so glad you posted this. I have narcolepsy but I didn't get a diagnosis until recently. Everyone, especially my mom thought that I was just a really lazy person. After the diagnosis she felt horribly guilty for thinking that. I think seeing that other people felt that way about you until your diagnosis might have helped her a little. She will always feel a little guilty I guess, that's a mom for you, but any little bit is worth a great deal to me.

[bradory]

I also suffer from narcolepesy and cataplexy. My symptoms are greatly reduced by the medications I take regularly, enough so that I'm able to lead a "normal" life. Are you able to take medicine to help with the symptoms?

[daud8472]

I am on meds but there is no way they stop my narcolepsy or cataplexy. But my life is a lot better for taking them. Thanks for your text.

[hedge1992]

at 1:40 you fell asleep (presumably from cataplexy, becuase you had a smirk on your face) but you finished the words you were saying. was it just because you weren't asleep yet or do you sometimes 'automatically' finish the words that are formed in your brain?

[daud8472]

Hi and thanks for writing in. At the 1:40 mark I was crashing because of cataplexy, because I was feeling excited by a thought. I managed to finish my words because I was still awake.  I don't finish my words automatically.

[daud8472]

There are two sides to most narcoleptic people, one is always feeling tired, but cataplexy is where emotions play a part and when I would collapse. Falling asleep anywhere and anytime isn't always a cataplexy attack, but just a sleep attack.

[jenren87]

These videos are really good because a lot of people, including myself, would think that with narcolepsy the person just falls asleep for no reason all the time - what i mean is, i didn't know emotions were a trigger. Very strange. If you are interested there is a programme on channel 4 on Thursday at, i think its 9pm called "ninety naps a day" and its about a woman who suffers from narcolespsy or some sort of sleep disorder.