In the first part of the video you say that the formation of cistys is due to an increased of pressure because of an obstruction of the lumen. However, I was told that the most accepted theory is that product of PDK1 e PDK2 genes are coupled with polar cilias of tubular cells, which detect the flow direction and make cells understand not only where is up and down, but also right and left, so that cells can divided following the right direction, in policystic desease they divide randomly
i thought that females also carried the pkd gene, like a fifty fifty chance. i got adpkd from my father but my father got it from his mother and she also gave it to other four siblings of my father's. and my grandmother and one of her sisters got it as well from her mother.
I go diagnosed a few years back. My nephrologist said there's a treatment which is in final stages of testing, which can retard cyst growth. My cousin will be put on this once it's approved.
I'm 31 and just found out I have PKD, bit worrying what the future will bring, but like you said there may well be a cure in the next 20 years or so, fingers crossed!
I'm 16 and I also have PKD. I'm okay for now- I'm not on medication for my kidneys...but I fear that I will need dialysis when I'm in my 50s. Hopefully by then there will be some kind of cure!
Thank you for this education. If you, the viewer, are having to face dialysis, talk to your medical team about peritoneal dialysis. We talk with many patients who have lost their kidney function due to this disease and are traveling and living life to its fullest.
In the first part of the video you say that the formation of cistys is due to an increased of pressure because of an obstruction of the lumen. However, I was told that the most accepted theory is that product of PDK1 e PDK2 genes are coupled with polar cilias of tubular cells, which detect the flow direction and make cells understand not only where is up and down, but also right and left, so that cells can divided following the right direction, in policystic desease they divide randomly
diabsat 4 months ago
i thought that females also carried the pkd gene, like a fifty fifty chance. i got adpkd from my father but my father got it from his mother and she also gave it to other four siblings of my father's. and my grandmother and one of her sisters got it as well from her mother.
cbirdrocks 1 year ago
how do you know you got this disease
i tink i may have it
Ronniedasmoker 1 year ago
you need to go to a nefrologist and make a ultrasom
renatanmendes 1 year ago
I go diagnosed a few years back. My nephrologist said there's a treatment which is in final stages of testing, which can retard cyst growth. My cousin will be put on this once it's approved.
gene108 2 years ago
I'm 31 and just found out I have PKD, bit worrying what the future will bring, but like you said there may well be a cure in the next 20 years or so, fingers crossed!
robertfrost463 3 years ago
I'm 16 and I also have PKD. I'm okay for now- I'm not on medication for my kidneys...but I fear that I will need dialysis when I'm in my 50s. Hopefully by then there will be some kind of cure!
Williams82291 3 years ago
i am 16 too and i got diagnosed with pkd when i was 15. i feel fine but no one lets me live my life... its pretty messed up...
it runs in my family...
mAdHaTTer3392 3 years ago
thank you, my dad is about to face dialisis, this really helped me understand more about the disease
sophisdebest 3 years ago
how old is your dad if you dont mind me asking? i have this pkd.
78rossco 3 years ago
my dad is 50! my aunty has just had a kidney transplant and she is 52! she is ok now just touch wood my dad is going to be ok too!
blondefox83 3 years ago
Thanks for the quick reply im 30 so should have a good few years before dialysis !
78rossco 3 years ago
my dad is 50! my aunty has just had a kidney transplant and she is 52! she is ok now just touch wood my dad is going to be ok too!
"that blonde fox comment is me i was on my sisters login mistake lol!!""
sophisdebest 3 years ago
Interesting.
DebUSA 4 years ago
Thank you for this education. If you, the viewer, are having to face dialysis, talk to your medical team about peritoneal dialysis. We talk with many patients who have lost their kidney function due to this disease and are traveling and living life to its fullest.
patientspride 4 years ago