Madison's Story: Living with Cystic Fibrosis 2008

[22Eminemlover]

Poor baby. No child should have to go through this. I hope they find a cure for you soon princess <3

[ditalydo]

I made a video that is on the front page of my channel called 'ditalydo' that is of my nine year OLD WITH C/F SHE OIS VERY EXCITED TO FIND THAT THERE ARE OTHERS ON HERE WITH HER DISEASE SHE HAS NEVER KNOWN ANYONE WITH IT SO PLZ SUBSCRIBE TO ME SO SHE CAN CONVERSE WITH YOU ALL OR AT LEAST ENJOY YOUR VIDEOS THANK YOU...DEANNA AND SADIE

[jcbangl]

i have cystic fibrosis and i'm 20 years old.. i have the pseudamonus bacteria and i just got over pnemonia.. up until a couple months ago my cf never effected my lungs, just my digestive system and i developed diabetes.. i'm also in liver failure.. i have one of the very rarest type of cf.. hope ur daughter is doing well.. good luck,

[DJLava85]

@SarahJean1976 You are so bitter. I am 25 years old with CF. How can you not be "reminded" of it at the end of the day unless you aren't doing any treatments at all and are "forgetting about it". Do you really even have CF? That little girl would be proud to have this video, it's a part of her LIFE and a way to show people what CF really does to me and the rest of those who TRULY have it! Go seek therapy and stop denying your CF...embrace it.

[ashleync2003]

@DJLava85 I knew after our first attempt to do some outreach and educate people that just saying what she went through wasnt enough. We had to show people then they listened. Madison knows what shes went through and at five she has a clear understanding of what she goes through now. We learn about things as they come. I promised I would always be honest with her and help her understand what was happening. Her baby brother has failed 2 sweat tests and she has been right there telling him what...

[ashleync2003]

@DJLava85 she went through and how hard it was sometimes but how she pulled through it. I teach her to see and understand negative things, and how to always pull something positive out. God chose her as he choses everyone... and he knew that she was going to be a fighter. I just want people to see and understand that CF needs recognition, and MAdison's Hope allows her to feel like she is connected to others through her fight and her desire to help others I do what I do for all CF angels & family

[ashleync2003]

@DJLava85 and DJ I appreciate you standing up... This was not meant to depress my child.. She deals with that already and until I started to explain to her that she wasnt wierd of different.. That God took extra time on her and knew how strong she would be and how special she is, she hated CF. Now it is a way of life for her. She sat with me and helped pick out pictures and told me what she didnt like about the journey thus far and what she did like. She is proud of her video because it

[ashleync2003]

@ashleync2003 got peoples attention and people learned... Through her struggles, accomplishments and words... he smile.. they learned... A community was educated and its not just about money its also about educating people... Thank you all for the comments! I will be posting more videos soon! Hope you will come back and see thema nd see where shes at now! God bless you all!

[kewlkatt123]

"Great" doctor you had! Great video!!! :)

[pradanurse]

Great Video, I hope it was therapeutic for you. Even though I know your daily life is challenging. Love helps you through it all

[rjaceto]

Your video is so beautiful! Our daughter Bridget was born in July of 2008. She was diagnosed with CF at 17 days old. She say's "Hi Madison". She does not know anyone else with CF and likes to see kids on you tube that are her age and do the same treatments. We will pray for Madison to stay healthy! Bridget's Brigade walks May 15 and 16, we are determined to help everyone with CF!

[emobabii199]

my best friend died from it at the age of 19

[ilovenalts3]

What a sweet little girl! I just want to give her a big hug xxxx

[nessalu]

God Bless her.

[trelozombie]

sad...........................­

[SarahJean1976]

I have to say that I HATE videos like this... I am almost 33 years old and I BEAT CF everyday... I do NOT look at CF as this horrible thing and I certainly do not talk about how it is killing me everyday... because it is NOT!!!

There was so much happiness and beauty in that little girls smile and you can see the life GLOWING in her... yet she is being used as a promotional montument of saddness and death... Imagine for one minute Maddie were to watch this??? How do you think she would feel???

[gribae]

Then why are you searching and watching videos about it and then posting you hate things like this?

If you battle it every day, then surely you'd be more sympathetic to the cause and why people actually post these. Or if (and I say IF) you battle it every day, wouldn't the last thing you would do during the day be to do something other than be reminded of it?

And before you say I am insensitive or a prick or any crap like that, I've had personal experience with CF and know what it can do.

[SarahJean1976]

Well I obviously am not going to call you insensitive or a prick... I don't need to... I will say, your message made no sense to me... "wouldn't the last thing you would do during the day be to do something other than be reminded of it?" HUH? I had this link sent to me and that is why I commented on it, I assure you I do not go searching for sad videos like this...

All I am saying is that I disagree with videos like this only because I wonder how the children would feel if they watched it...

[SarahJean1976]

and PS. If you read my response you will see I said "I BEAT it everyday"... which has been my attitude since the day I can remember... I appreciate you questioning my CF like I would appreciate a kick in the face, but if it makes you feel better... go right on ahead...

As a journalist, you would think you would have done a little more research and you would know that I indeed do have CF...

Good luck on your walk across Australlia!!!

[DJLava85]

It is amazing the things people don't know about CF. They think it is just a breathing problem.but it is so much more.medication galore.a vest or hands that pound your chest each morning noon and night...nebulizers and antibiotics intestinal troubles, liver failure and problems, lung infections, bacteria, and fungi and more, malnutrition,diabetes,organ failure..and so much more is CF.trying to explain the disease is tough because there is so little for people to educate themselves on.

[faithsmommy2]

I will keep your daughter in my prayers! I know how you feel. My brother was diagnosed with CF when he was a baby. Some of the things she is going to go through will be very hard and heartbreaking, but just know, she is a strong little girl and she can face anything this world can throw at her!! I wish you and your family the best!

[S888999333]

lovely video..it also shows how rubbish the american health system is and complete lack of support for people with CF...keep strong/...i have CF..aged 42

[liljulie06]

Keep being strong for your little girl! I have CF as well and im 21, i've been through more than enough treatments and hospital stays. I am currently trying to get rid of pseudomus(spelling) right now with tobi twice a day. As I got older i got a lot healthier only these past couple years have been hard spent a lot of time in the hospital and also had a baby boy who was a miracle. People with CF know how to fight :)

[villilja]

Hi !

Thank´s for a great cf-video. I have cf myself and live in Sweden, Europe. I am 36 years of age and did a doublelungtransplant in 1995. I also have a sister with cf. She have a child by her own and she feels fine.

Take care. P.s Is it Celien Dion singing amzeing grace ?

/Villilja

[LuLuLeMoNismylife]

she is os adroable

im starting a fight cf and cancer fund even thought im 13 to help everyone b/c one of my friends sister has cf and this video also opened up my heart 2 start a help fight cf and cancer fund

[HjayAndLuu12]

We have been "chosen" to change the perception of life of people around us. We have been chosen as we are strong enough to bear this disease for the well of teaching people we meet in their life. We change their life, we make them strong as we become an inspiring example for them.

If you get a chance please watch my video it is called Cystic Fibrosis- A little bit longer. A little hope can go a long away.

One day not to far way we (all the cf people) WILL know what it is like to Breath easy :)

[HjayAndLuu12]

I have cf and i am 15 years old I know what you mean at 00:48 hospital is like a secoud home to me!

Your little girl is adorable.

However do anyone notice how we people with CF are lucky?

[Moodyzblu]

What an incredible little girl .. I hope they can someday find a cure for this terrible illness.

[AllSaintsAngel]

aaaw

poor angel

she's adorable