Living with Multiple Sclerosis - 2 weeks after Tysabri

[angelusa73]

oh, Lauren, I just saw this video and I am sorry I am so late...as you know, Tysabri almost killed me so I was "busy" trying to get better...I feel for you, my dear, and your video helps me vbecause I have hope too...hope that I will getter better too and improve the damage that the derug caused me...you see, our stories are very different, but we both still go on and we are not giving up and we never wil...good luck to you, Lauren, and happy new year...we will figth forever...hugs,

Angela

[laurenvparrott]

@angelusa73 HI ANGELA!!!!! Oh my goodness this made my entire DAY! What a great start to the new year! I pray for you every day - I think about you all the time. I know we've had incredbly different experiences, but you have more strength than anyone I've ever known. I admire you so much and I respect you for so many reasons. I know that neither of us will ever give up and we will move on no matter what, and I feel so blessed to have you in my life!! I pray that we can meet one day! Tanti baci! 

[angelusa73]

@laurenvparrott I wish I could make your day anytime, cara Lauren. I can't do it often because I have trouble using the computer and I am quite slow doing things, but I don't give up and I am doing them anyway, just much slower :) I hope you are feeling well and that you and your family have had a very nice, happy holiday season and I hope that the new year will bring you all happiness, joy, luck, better health, love and lots of unforgettable moments that will make this new yearvery special

[laurenvparrott]

@angelusa73 Oh Angela, you make my day every time I hear from you, see your pictures, or watch new uploads!! I hope so much that your family had a happy and relaxing holiday season, and I hope the new year brings YOU happiness, joy, luck, better health, love and lots of unforgettable moments that will make this new yearvery special!!!!!! I will continue praying for you and thinking about you always!! xoxoxoxo

[perryhtc]

I'm sure you will recovered soon without the use of those expensive drug anymore.

[perryhtc]

Also, how many people know that too many vaccine contain Thimerosal (A mercury compound) as a preservative? 

[elkyana1]

hi i just turned 21 and ive been diagnosed with ms im starting treatment and the doctor say that if i have treatment i wont be having relapses mi first time that wasnt able to walk was when i was 19 because mi left leg and feet dint work i didnt feel or be able to move it in that time i didn't know that i had ms just until know , i dont know how effective treatment really is , so im scared, thanks for doing this you give me strength

[laurenvparrott]

@elkyana1 Hello! I had a relapse where I couldn't talk, too. I believe that treatment is incredibly important because it slows progression of the disease. Since there is not a cure, I feel that the best way to manage the disease is slow down the progression and not get worse...that is what medication does. I wish you the very best with everything!!

[fanwuren]

You are a lovely woman in every way. Very inspirational.

[laurenvparrott]

@fanwuren Thank you so much!

[Alexknobsob]

Your telling me, I had a bow arm that bounced around during an audition I had worked for years when I first had MS. 4 months hypnosis as well. No one knew except me. You are first to hear this! In the 80's there was little recognition of the emotional side to MS; I'm proud to know you.

[laurenvparrott]

Aww, thank you for saying that! You're an incredibly strong person and I'm so happy to know you!

[Alexknobsob]

It's awful when the skills we have dedicated our lives to is not supported by the people around us. So this for us is the stumbling block that is an opportunity to make a stepping-stone from.

[mombisquet]

My name is Kathy and I have had MS for 15 years I've been struggling with the losses I've experienced in the last few years since a number of relapses and the fact that anyone seeing me knows something is not right. Seeing your reaction in this video was so touching. I also feel upset that I now need help alot, but I am learning how to accept the help. I'm so happy you're walking better. Keep the videos coming. They're very inspirational.

[laurenvparrott]

Hi Kathy! Thank you for writing! You're very sweet and I wish you the best. It is hard to ask for help but I try to make the best of it. I'd rather laugh than cry! Please keep me posted! Good luck!

Lauren :)

[memama2]

My name is Louann, I have had M.S. over ten years. I saw your touching video on seeing your friends and that their reaction was so upsetting to you and for the hope you are feeling in getting better , yet it might not be visible to others.. I still am super cautious about this as it can create situations (like in church lobbies,Starbucks, ect.. where people will (out) me, to others who didn't know.Thank you for sharing your life about your illness. Louann Duffy

[laurenvparrott]

Hi Louann! I have become more cautious because it is so heartbreaking to deal with a situation like that. Thank you for writing to me - you made me feel much better!

[memama2]

Hi Lauren! I go to the MS center in Kirkland, WA. It began about 1 year ago. I have been in a magnet study (didn't change anything)and see Dr. James Bowen. My tremors have never been visible to others. I take Copaxone shots. Dr. Bowen said there are 70+ studies on new meds currently. A new pill will be available in 2-3 years. Where do you get treatment? Louann

[laurenvparrott]

Hi! A pill would be so great for treatment! I get my infusions at a hospital near my home. Please keep me posted on what you hear!!

[msajstall]

Lauren,

You are an inspiration. Can I say that between your 1 week and your 2 week tapings that I noticed substantially less tremors. I also have MS and I am on Tysabri also, I will be taking infusion # 6 on the 18th of this month. You really rock and you are a doing just fine.

[laurenvparrott]

Thank you so much! The tremors were the scariest part of my relapse and I really appreciate you saying that you noticed improvement! I wish you the best of luck and I hope you are doing so well with Tysabri!

[jermeal385]

don't  cry you are a pretty girl

[laurenvparrott]

You are so sweet! Thank you for the messages!

[fabsparky]

Lauren you are doing great and everyone with MS who is desperate for information and struggling with the decision whether to try tysabri or not appreciates your honesty and courage. My husband has ms and I look forward to further videos. DON'T LISTEN TO OTHER PEOPLE. TAKE CARE OF YOURSELF AND BELIEVE IN YOURSELF AND YOUR IMPROVEMENT.

Keep up the good work!!!

[7mumfred7]

fabsparky - I certainly know what you mean by "desperate for information", it has defined my life (sorry to be negative). Another youtuber sent me this info, and it may be a good place for you to look, it is the Multiple Sclerosis Resource Centre (MSRC), and there is a "Tysabri User Diaries" page, where the posters update progress (or not) and I think one poster is Canadian. I dont think youtube allows links, so hopefully you can find it and Best Wishes to you and your husband in 2008.

[laurenvparrott]

Thank you so much!

[7mumfred7]

Lauren...... you are great, courageous - and a word for your Dad, he is the same. Best for the Future.

[laurenvparrott]

Hey! Thank you so much for your message! I really appreciate your comments!