@bullbrooke that so awsome i made most of this from my head sometimes i get it from the net cause i need correct infomation im going to be doing more soon too thanks for your comment
@bullbrooke yeh i agree it dose show stuff that can be bad i olny have one main site i go to i have friends on fb with nf so many amazing people we just want to be heard i really dont talk about nf as much but i do as much as im willing to veery so often i will post a video up of friends on fb with it and they love to spead awareness
I have NF 1 I was diagnosed at 4 years old. I am the only one in my family that has it.. I would like to add you to my facebook.. :)
12Missmimmy12 4 months ago
i just visited the genetics Center of WA they told me heaps of stuff about NF that i didn't know about :)
bullbrooke 6 months ago
@bullbrooke that so awsome i made most of this from my head sometimes i get it from the net cause i need correct infomation im going to be doing more soon too thanks for your comment
hayleypetamarrs 6 months ago
@hayleypetamarrs the doctor told me to stay away from the internet, because it may scare you and it always shows the bad stuff about NF. :)
bullbrooke 6 months ago
@bullbrooke yeh i agree it dose show stuff that can be bad i olny have one main site i go to i have friends on fb with nf so many amazing people we just want to be heard i really dont talk about nf as much but i do as much as im willing to veery so often i will post a video up of friends on fb with it and they love to spead awareness
hayleypetamarrs 6 months ago