turner's syndrome

[TheDrillteamgirl]

You should never hate your life. I have just been diagnosed with the disease and have to undergo hormone treatments starting soon. I am nearly 16 and I have just been diagnosed with TS. Don't give up!There is always someone out there that loves you and will care for you. Do not listen to the people who mock you. They don't understand what your going through.Stay strong!

[CearyAuryn]

I am a normal woman in my early twenties but I barely pass for a 15 year old... I feel for those who look young, but I will never know what it is like to deal with the judgment of those who look down at people with Turner's Syndrome... I do feel your pain and wish you happiness in life because you are important!

[npaprika1]

Good video, informative and captured gyst of the disease

[kayhay213]

i feel ya im 11 years old and have a body of like 7 year old no one will date me no one likes me eaither

[MrKitten55]

i have turner syndrome as well and i'm always laughed at and mocked :(

[danbroom]

This video is about awareness, and shouldn't be taken as an argument for or against abortion. Good luck to anyone with Turner's Syndrome: this video answers questions that a lot of people would feel too uncomfortable to ask.

[layola2004]

@Talkingpie100 kill it like an insect? wtf?? what kind a person are you? how come they didn't kill you then?? There's absolutly no excuse for some one to have an obortation!!! hey! when there's nothing to be done and the baby dies... what can you do you know... it woulb be understadable if their was no place you can live the child, NO IS FORCING no one to keep it just let the baby live!!! Just hot they let us live ... when we grow up then we can decide what to do with our lives!

[docritch]

I have Turners and am working on my doctorate. I am trying to find out how many turners women have gone on to get their doctorate

[xXxScrattiexXx]

i got TS and didn't find out till i was 16 (2 months before my 17th birthday). Kinda sucks... but yeah life goes on, I'm glad that i got my medicine now. I always say; don't worry, be happy.

[layola2004]

i have this and the only diference between us and a normal women is that we can't have babies and nobody imagines how sad is that. but we are normal.

[blacknight19853]

my gf has TS and she is 19 5 foot 0 and i love her to death only thing she has is height and may not have children but that's ok because i would not trade her for anyone in this world even if she cant have children there is always a shimmer of hope and if not we can adopt or find other ways she is to special to let go over something that wasn't her fault thx for the video :)

[Timbrock1000]

What a SELFISH thing it is for a mother who is pregnant with a baby that likely has TS to abort it! Just because a child has an abnormality is NO excuess to murder it. I have a very good friend (Girlfriend?) who has TS and she is a productive, successfull woman with a Masters Degree and working for her Doctorate. Anyone who participates in aborting a baby simply because it has an abnormality deserves to be SHOT!!!! (Kudos to Scott Roeder!)

[DizzyDerwish]

@Timbrock1000

In China that measure is mandatory. They believe the person would be a burden on the society. They also terminate full-term babies... they look at it as late contraception, not kidding. I absolutely agree with you.

Abortion clinics must be bulldozed.

[keepingitreal15]

@Timbrock1000 I totally think something is deeply mentally wrong with u tim u r so hypocritical tim U give zan a bible verse and than turn around and say that anyone who aborts a TS baby should be shot wow how very christian of you!!!!! This is why so many people hate religion because of fakes like you trying to push ur beliefs on everyone else. Zan admitted to hating her life maybe instead of thinking it's so selfish that they abort realize that their thinking of the future kids life!!!!!!!!

[Timbrock1000]

@keepingitreal15 Actually,theres nothing hypocritical at all about killing an abortionist. It's a justifiable means of protecting the innocent (unborn) by stopping the perpetrater (abortionist). If someone were to go on a playground and start stabbing the kids there, then a passerby who happened to have a gun shot the knifeman, the shooter would be held as a hero for stopping the knifeman from endangering the kids. It's a justifiable use of deadly force for the protection of the innocent.

[DAVIDAMORSE1701]

@Timbrock1000 Abortion is not murder, however, killing the doctor is murder. The government has no right to use its power to interfere in the bedrooms and doctors offices of people.

[Timbrock1000]

@DAVIDAMORSE Actually, since abortion kills a baby (albeit unborn), it ends a human life thus it IS murder. If some nutcase went to a playground and started stabbing the kids there, then a passerby who had a gun shot the knifeman, the shooter would be held as a hero for stopping the knifeman. Same with killing a abortionist (murderer). If a woman wanted plastic surgery or such, thats fine, her body, BUT abortion kills an innocent. Theres no differance in killing a baby after birth as before.

[DAVIDAMORSE1701]

@Timbrock1000 Right, it IS the womans' body, her decision. Its not a baby until born. Will the government raise the child? Does the government confine all pregnant women until they give birth? We are not a dictatorship, but a democratic republic. Abortion may not be what you consider a right but it IS legal under law and not murder. Would you also refuse abortion to a woman who would die giving birth?

[Timbrock1000]

@DAVIDAMORSE1701 If it were something that ONLY affected the woman such as a tattoo, plastic surgery, etc, there wouldn't be an issue. However, the fact that a child is not yet born is no excuse to allow killing it. It's nothing more than infanticide. I will say though that the ONLY time abortion should be permitted is in the RARE cases of rape, incest, etc. or if the pregnancy endangers the woman's life. I don't see any point in us having an extended debate here. I feel I made my point.

[DAVIDAMORSE1701]

@Timbrock1000 I also made some points. How would you coontrol women to prevent, safe, legal and rare abortions? The limits you support I do too. Sadly, rape is not rare, and hard to define. Laws recently proposed tried to redefine rape to make it difficult to prove. And would let hospitals refuse and let women die.

Will the government raise the child? Does the government confine all pregnant women until they give birth? We are not a dictatorship, but a democratic republic.

[DAVIDAMORSE1701]

@Timbrock1000 The unborn has no life independent of the woman. Where such a case exists the dominate one makes the decision. Her right to decide is superior to the unborn, which would not survide outside the womb. If she does not want the child and does not want to raise it, than there is no alternative without government confinement. How much government interference would you support? Women died during illegal abortions before Roe v Wade made it legal.

[DAVIDAMORSE1701]

@Timbrock1000 There are proposed state laws that will allow abortions to be refused even if the women would die. This would be murder.

[DAVIDAMORSE1701]

@keepingitreal15 You are sick. You can have a good life with a disability. I was born with CP and use a wheelchair. But I have had a very happy life. I am now 43. It is the right of every woman to decide when to give birth, but having a child with a disability should only be one factor.

[keepingitreal15]

@Timbrock1000 It's hard for most moms to abort a baby and if I was pregnant with a kid that was going to have a syndrome or disorder I'd abort it I'm not saying everyone should but I want my future kids to have the best quality of life anyone can have I don't want them to be steril or short or have medical problems if that makes me selfish than I guess I will be but u my friend are a idiot cuz some could aurgue that having babies like that is more selfish.

[giligara30492]

@Timbrock1000

Actually, 99% of babies with TS undergo spontaneous (natural) abortion. Only 1% actually live.

(Taken from "The Developing Human: Clinically Oriented Embryology" by Keith L. Moore, et al., Page 459, 9th edition)

[ririta89]

Hi! My name is Rita and my sister has TS.

She can not accept her self. I want to help her, but it's so hard. :(

Here in Hungary arn't any TS association like in US or Germany..., but I think it would be good here also. I think it would give power and hope for this girls...

My mom and i want to make here an association too. But the beginning is so hard. Coud somebody give me any idea? thx (sorry for my english)

[mbergerie]

@ririta89

Get in contact with the endocrinology department of the hospital in your area and tell them about your idea. They can contact other families or women with TS for you. Your sister should talk with other women with TS and realize that her life will be as normal as she want it to be, it depend on her...

[elenajuliamatei]

Hello.

My name is Elena. I am a mother of 6 years old beautiful and lovely daughter Julia. My daughter has a genetic disease - Turner syndrome. She need to has a hormone therapy. I tried to get help from government many times but my country do not help people with this disease. I need to ask all of you for help for Julia. please help her.. I have account on moneybookers: elena(dot)julia(dot)matei(at)g­mail(dot)com. Thanks all of you who read about my daughter, wish her all best and pray for her

[mbergerie]

@elenajuliamatei Elena go with the pharmaceuticals they have often a compassionate program for people who can't afford the growth hormone.

[razielrocks]

My bestest friend has Turner Syndrome.

But she is like a sister, and I it is physically visible that she has it, but I don't really take much notice.

=)

She acts normal like everyone else.

[gefgal]

i'm 21 weeks pregnant and one of my twins have been diagnosed with TS - your comments were helpful. thank you

[bebrezzey]

@gefgal  Just because she has it doesn't mean there be be a lot wrong with her. I am 11 and i have ts. I am just short. I give myself injections to help. You get use to them about a month into them!! Best of luck!!

[malchiorr67]

wow im so sorry for you people... You have my blessings and my sympathy. God bless.

[frodolover58]

zanuxiite, I understand how you feel. I was not diagnosed with TS until I was 16 ( I never had the benefit of growth hormones) and on top of being so short/young looking, I was obese (I have lost 100 lbs) and need hearing aids. But I am now 24 yrs old, married to the love of my life, and am enrolling in grad school to become a licensed therapist. I know it's easier said than done but don't give up, and learn to love those who love you!

[zanuxiite]

I have turner's syndrome. I hate my life so much. I am small and all peoples are laughing about me. I am 15 years old but I look like how 10 or 9 years old girl. I hate that I need to inject medication every evening. It so much hurts!! When I say ''I am 15 years old peoples are looking at me and they say that I am liar. I wanna kill those peoples. I hate peoples who are laughing about peoples who are small!!!!!!

[k0urtneyrohm]

i know how u fell i went trought it to i kinda went on a strike on it and never took it i was just lucky the injections worked fast im almost 20 right now but im as short as a fresmen and was was called every name in the book about bein short i still cant wait till im 21 and go to the bar and show my id and the cops will be called because they will think its a fake lol

[artilistic]

yeah i know what you mean im sixteen and pretty short but i dont have turners syndrome that i know of at least and i dont take any medicine

[HiyaKatiee]

I'm 15 and people make fun of me because i'm small too =/

[bebrezzey]

@HiyaKatiee Me too

[icpcuk]

sorry to hear about it, apart from hormone treatment did you have any surgery as documents in this video?

[bebrezzey]

@zanuxiite People say i look like i am 4,5,6,7. I am really 11. I hate when people call me short. I am getting to the part just want to be home schooled. And stay inside. Only my best friend Gabby understand me. I can talk to her about everything!!

[mbergerie]

@zanuxiite

Hi, My name is Maria, I have a 10 years old girl with TS. I just want to tell you that height is not all, I'm 1.80 mts and people used to laugh at me because I was very tall and they call me names. With time I learned to accept and love myself. Instead of feeling bad and sorry for yourself dear zanuxiite, see the bright side of having the opportunity to be in this world and work to reach your goals, good luck!!!

[miodragtv]

@zanuxiite that is really really sad.You must be stronger!

[Timbrock1000]

@zanuxiite Hey, I have a friend (Possibly girlfriend?) who has TS. Ok, she's rather short, has a few issues she has to deal with. BUT, she has gained a Masters Degree, working on a doctorate, and has a very normal life. The fact you have this doesn't mean you're less of a girl (soo to be woman). I believe what the Bible says when it say "you are fearfully and wonderfully made". (Psalm 139:14)

[Wrieghn]

@zanuxiite I know the feeling, im 18 and i look like im 14 im also quite petite, but trust me when your old and everyone else looks ancient you will be happy you don't...well that's what mum tells me. Also when people make fun of you they just want your reaction, just shrug it off, they are dickheads and don't deserve to be acknowledged.

[erikaaaaify1]

@zanuxiite ME TO,BUT I DON'T HATE MY LIFE

[erikaaaaify1]

@zanuxiite mE TO BUT I DON'T HATE MY LIFE.

[TheSnowyice]

@zanuxiite Wow that really sucks. I'm a 16 year old ftm and I know if I came out at school I'd be made fun of a lot. I can hide my real self and be perfectly fine, but you can't hide your physical characteristics. Sorry that has to be really hard. It's sad that there are cruel people out there that feel the need to put down others and discriminate to hide their own pathetic insecurities.

[keepingitreal15]

@zanuxiite No offense but u can't get mad if ppl don't believe u at 1st about ur age u look a lot younger than u actually are it happens to me a lot too and I don't even suffer from turners yeah I know how annoying it can be when u have to constantly show ID and stuff but look at it this way one day we'll all be dead and when that happens what happened in life won't matter much anyway.

[layola2004]

@zanuxiite i have turner's syndrome to and i only care about my self because if nobody cares abot me why should i care about them or what ther say if the're never going to be their for me... if they don't sopport me

[sh00ter1990]

@zanuxiite Most people are just silly. Life must be hard for you and i hope that you will find things which makes u happy. Give a fuck about people laugh at you!!!

[tuesday2998]

@zanuxiite that sucks

[TheNightmad]

@zanuxiite hey dude...people are allways finding somthings for laughing....thy are not important at all...u can laugh to thm too...who knows?! maby they are abnormal in fact...

yes of cours they are not normal with those ugly laugh!!!

[lmlm301]

any body knows how we can get an "XXX" ovum ??? any help plz !!

[lmlm301]

I can't believe how much stupid I am, it is easy . i got the answer , it is bcz of a double non-disjunction that takes place in both meiosis I and II. thus we end up with 4 cells: 2 null cells ( bcz of the non-disjunction happened in meiosis I) , a third cell with "X" genotype and a forth cell with "XXX" genotype .

[LymanBN]

I have Turner Syndrome also and looking for others with it to talk to.

[6pimpette9]

16 weeks preg and had a CVS and Amnio done and i found out my baby has Turners Syndrome

[TlGBC]

me no rikee

[paolita033]

umm bien buenhh .. tengo q exponer sobre eso ..

[essyle]

thanx u so much i'm doing a bio project on turner's i need this info

[fabrivassa]

thanks to this i got a 7/10 in biology at school

[gemmalovessinging92]

By the way, it is found in every 1 in 2500 girls not 10, 000 i should know as i have TS

[tllnc]

I am a wowan with TS, found out when I was 5 yrs old. My symptoms are not as aggressive as some people, I'm 5 ft tall about 110 lbs. If I didn't tell people they wouldn't even know. I have to take HRT(estrogen) due to lack of proper female hormones and my overies being removed. My Dr. is going to kill me b/c I havent taken it, lol!

[didels123]

hi i also have ts u should seriously take the pills as it could lead to brittle bone disease but im sure u know this anyway please take it if u missed a few days ok but no longer !!

[tllnc]

Thanks, I really need to get back on track.

[angeltears6478]

Hey. My class is researching chromosomal diseases and I happen to have TS as my topic. I was wondering if you could give me some information on what it's like to live with it, and some symptoms you have.

[giligara30492]

There are no real symptoms, only you have short stature (Higher statures for TS are between 4 7 and 5 0) and you fail to go through normal feminine puberty if you don't enter into a hormone replacement therapy. First, they would start you off with growth hormone, but then they would switch you to estrogen and progesterone. There is no real chance of pregnancy if you don't use a donated egg cell.

[jerseygardengirl]

That is not exactly true. Im 12 and have turners Syndrome and i went though puberty and i didn't go into hormone replacement therapy. im short but im already 4'8 and still growing.

[peaceandparty]

similar story for me......

i am xxy

and no one would think it

and i went off of my testosterone since being on youtube...the last 22 months.....

but have just taken it again the last week

how do you feel emotionally!?are mood swings in your life!?do you feel happy with being you?i am with you in spirit and want this coming across in a non sneaking way....i am just curious...:)...thx!

[suzannealle]

Hi I have ts and have known from a baby.. I didn't really affect me whilst at school although bit annoying being called shorty all the time. I am now 24 and find it is affecting me more as i am happily married but wanting children but have to go through treatment for it.

[Yemenjapan]

God saves

[cham608]

You can get babys? But not from your Dna, right?

[suzannealle]

Yes women with turners syndrome can have baby's using another ladys embryo, so this would not have ur dna but would have all connections with blood.

[gemmalovessinging92]

not from our DNA no.

We have to have a DONATED egg.

Meaning the child wont fully be ours but it will grow inside us and use our partners sperm like a normal pregnancy.

[chiquis1959]

Alguien pudiera decirme si en México exite alguna organización no gubernamental, para el apoyo a padres y familaires, con el fin de ayudar a las niñas y jovencitas con este síndrome?

[davepricewilliams]

The severity is often controlled by the level of 'mosaicism' which strangely is not mentioned at all in this presentation. Most 'pure' TS cases don't make it to birth. A newborn with TS will actually have SOME cells that are XX and some that are XO, with the majority being XX (this is due to the irregularity arising in the stage when an embryo is only 4 or 8 cells big and ONE cell undergoes non-disjunction). So when they're fully developed, the severity of symptoms is due to ratio of XX:XO

[delemere1985]

it depends on what that chromosome does. Very briefly, it is in control of estrogen and growth hormone.

I have no doubt that certain missing/malformed chromosomes WOULD cause severe psysical changes, xx just doesn't happen to be one of them because it is in control of hormones more than anything else.

I have t.s and this is what i've been lead to believe.

The severity of t.s also depends on how much of the chromosome is missing - I only have a tail missing of my x :-) so i'm quite lucky.

[tornados5]

yes...ur video really help us to do our science project....thanks..

[zivkamleo]

ur video really helped me out with my school project thnx

[Flohaug81]

Hi part of this vido shouldent be taken seriusly,I know as I have TS

[TatersChoice]

What part?

[SmartModelAntm]

my cousin has turner syndrome.

[Flohaug81]

Ok film but should had it end with "One day science and medesin will understand more about Turner syndrom"

Remember TS can`t be cured,but pepol can get help for the syntomps.

Not even TS girls know exatly what TS is completely.

[elrhia]

Hey Ive got TS (didnt find out til i was 10) and it hasnt affected me at all - i go to secondary school and have some gr8 m8s - ok im slightly smaller - im 13 and 4ft 9 but there are smaller in my year. It dont bother me at all.

[Shabacrazy]

My daughter has Turners and has had some of the problems like swollen feet prone to infections and the grown hormone shots, estrogen supplements, etc., but I want to encourage any mom who is reading this and terrified for their little girl. Mine is 19 now, lovely in every way and very capable and intelligent. God doesn´t make mistakes and He made her just like she is, and she is just fine!

[cutecheryl321]

I agree my 10yr old daughter is such a great child, she does not let having TS ruin her life,I was worried sick when she was 1st born, looking back why was i worried?????she's a brilliant person....

[LittleLulu62]

My daughter had not hit puberty by the age of 16 and she was tested for this...she did not have it and DID reach puberty when she was 17 and had her very first period. Reguardless, she was put on estrogen and developed very tiny breasts and grew a little bit. I'm just grateful my daughter is healthy! Bless anyone who has to go through this medical condition! :(

[swissgirlpower]

My word, magroves, i have ts too, and the videdo doesnt show how to live and grow up with ts! wery dry video also!!!!!

[sarahlouise1987]

I lost my daughter to turners syndrome when i was 4 months pregnant thanks for sharing this

[cutecheryl321]

It does NOT lead to a horrible mutation at all.....There is 1 missing X chromosome or it may be just partially missing

There are many conditions where thre is a missing or even extra chromosome, without them looking "mutated".

Turner syndrome girls/women in the main look like any other female and even good doctors often find it hard to diagnose...

[starstruckrhona]

There are many conditions where there is an extra chromosome,but TS is the ONLY full monosomy in humans.All the other monosomies are partial.

[ztrain69]

It's informative but dry. Some of the powerpoint diagrams are hard to read. And you can hear crows cawing in the background. Would have been better with some different audio or no audio.

Shaky video. Obviously no tripod.

[peaceandparty]

hello all tsers......i am an xxy person.......after seeing so many bad explanations of klinefelter syndrome....i will have to say...well done to whoever posted this up...it is certainly far from being excellent but as with my videos on intersex...so are mine far from perfect...together we will make a difference tho

[cutecheryl321]

my daughter is a TS girls her karyotype is XO (only 1 X chromosome instead of 2) As for bad information the worst i ever got was reading medical library books when she was born....Talk of reading utter cr@p. My daughter is nothing like the books at all (same for most TS girls/ladies)Also you often read that TS ladies are intersexed which is not the case at all.......

[magroves]

As someone who has Turner's Syndrome herself I found this video very unsatisfying.

I wrote a Livejournal about the side the video doesn't show, the human side of actually living and growing up with Turners, if anyone wants to know more.

My livejournal is aegeangoddess and the date I wrote it is 5/11/07 so go check it out - I am in a hurry and this thing won't post my link.

[cutecheryl321]

what would have made this better would have been using a more "real life" picture of a TS girl/woman not the standard text book picture of a woman who has recieved NON of the usual treatments