I just saw a video of a NINE year old who died of this disease. What was even more tragic, was that a neighbor TAUNTED her and her family before she died.
I believe Karma will be her undoing as well. Speaking about being undone by Karma for making fun of people with this disease, I wonder what will happen to those who tried to make a joke about Huntington's on Youtube, where the guy acts like he has the disease, breaks up with his girlfriend to date a girl with the disease. It's pretty warped. I asked them if they are trying to make people believe in hell by making something like that.
my mum has huntingtons, she is only in the early stages but some symptoms have started to show she is on trial medication to help suppress them I hope every night that they work and help her really live her life, and one day might help me and my two sisters if we have the gene
Why is @toomuchyonke a number one comment . What a wicked thing to say you have no idea what you are talking about . Im glad to be alive even if i have gene . I can still life a full live . I HAVE THE RIGHT TO LIFE . Just becoues my dad has the gene it dosent mean i do and if i dont im free and so is the rast of my family forever when its gone its gone . EVERY BABY HAS A 50/50 RISK AND A RIGHT TO LIFE . look at the facts before you say such things
@saigondaisy I'm not even sure what you're talking about, but I can only assume it's my comment above about people being responsible and getting tested before having children. I do know exactly what I'm talking about, b/c I did get tested & I do have the disease and I did get fixed so I can't have babies and I already have a baby through donor sperm and another on the way.
it's clear to you've completely missed the point of that comment, which was that to me it's reckless to try to have children, knowing you're at risk of having the disease but w/o having done the due diligence of getting tested and knowing for sure. & if you do know for sure, and still choose to have children biological children of your own, it's simply a negligent game you've chosen to play with that child's life. & just damned selfish & immature, too.
@toomuchyonke Just thought i should give you the best news of my life i got my results on monday and thank the lord im hd free . Ever thought the gene should have come from my dad .
Just did a research project using this video in my Occupational Therapy class at Eastern Michigan University. Thank you for providing the documentary and I sincerely hope and pray that a cure is found soon.
my aunt and grandma died from this disease. watching my aunt die was the hardest thing i have ever done. she was 35 when she passed away..my dad doesnt carry the gene so neither him or I can get it...
I created a dramatic short film with integrated dance that was inspired by Carol Carr, called Near Silence. It recently won the Best Short Fiction Film Award at the 2011 Vancouver Women in Film Festival. The trailer is on my Youtube channel and you can message me for a private online viewing.
After watching this video, and looking at how they move and how the disease takes live AT THE SAME TIME people move, I believe and conclude that when people with this disease move, it is the intentional moving of the person that appears to accelerate the disease. I guess, doctors should conduct research on people with this disease and have them move as little as they can to see if that slows down the disease or stops it.
@goldturtwig you dont die from the disease itself you die from complications due to the disease but not the disease itself, my mother has it and everytime she sees her neurologists thats part of what they say and sorry for you loss this disease is really a horrible thing
honestly, isn't it kind of selfish for this woman to risk putting her children through this same debilitating disease?! there are so many other ways to be able to give the gift of life and experience parenthood (i.e. IVF, adoption, fostering, etc.). an opinion...
What the fuck is it with every fucking video on huntings with a bunch of House MD fanatics finding it funny to tell these obviously fucking large lies. Seriuosly fuck off, its a fucking real deal theres no way you would be admit such a fucking huge thing on something as opensource on the fucking internet.
My Mother has Huntington's and I am happy to have lived the life I have so far. I wouldn't for a minute have wished my mother not had me even if it means a future with a 50% chance of developing this disease. Every day is a blessing.
God bless those afflicted with HD and their caregivers. I hope they find a cure during my lifetime. I have lived with HD in my family and understand the toll it takes on everyone involved. I do not have children but decided to get tested so that I could prepare for my future. I am negative. I was lucky. God speed for a cure.
@blhoten Asking god to bless them? So god didn't prevent them from having the damn disease in the first place, what makes you think he gives a damn now? Ever think he might not even be there at all?
i can't blame the people who chooses there child not to be tested with this disease. From childhood he's/she's going to take the feeling of being deteriorated and die in the age of 40 except if the parents will help the child understand, accept it and leave with it and I hope people would not just laugh at it...It's the disease that you don't choose to have.
I am at risk. I don't have any kids. I am pro-testing to find out if I have HD, especially if and when I start thinking about making kids. I agree that throwing logic and caution to the wind is irresponsible. My mom thought if she prayed really hard to not have HD, then it would be true. Probably 95% of the reason I don't like snake-handler fundamentalist wackos... though I love my mom dearly.
Some of this people that don't feel the need to get tested shouldn't complaint about their children being sick...because that's the path they chose to go in when deciding not to get tested. Fear let to another life being torture!!!
I LOVE U, JACEY! I Love, hope, and PRAYERS FOR YOU, ALWAYS! TOOK ME ABOUT 45 MINUTES TO POST THIS SIMPLE MESSAGE1 Not doing so well today, but, "THIS TOO SHALL PASS!" lOVE YOU, SWEET JACEY! tRICIA In nj!
@Ritterrit Prayer don't work because there's not a piece of evidence of a god. Not a well intentioned one, anyway. But, whatever makes you feel better.
sorry for the horrible comments that I write about people affected by Huntington's disease, I pray you all that I hurt mostly family and friends of people in the video of me forgive. I acted out of immaturity, I do not like what I write, I myself am suffering from a chronic inherited disease, I have a lot of feelings for other people sick. So we share more or less the same difficulties and suffering, forgive me. Know that in my heart I wish health and happiness to all.
i think that if a person knows they may have a chance of having it, should consider the chances of whether their children may inherit it and whether they could live with themselves knowing their child would be deprived of a real life.
i think that if a person knows they may have a chance of having or pasing it on, should consider the chances of whether their children may inherit it and whether they could live with themselves knowing they have it, depriving them of a real life.
@456ddttd and you really think that hd people at risk or have the gene dont go through mental and emotional turmoil with what you said, you feel we are that shallow? and i take great offence at your "DEPRIVING THEM OF A REAL LIFE"..i know you prob not trying to cause offence but your words are thoughtsless...
i just came across tis video and i feel sorry for those inflicted with this disease and god bless them .. for everyone who is living well , we should learn to treasure our lives ..
In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
That a good statement relative to wanting researchers to see this video so they can relate to HD effecting real people. Much of research is done on fruit flies, mice other small animals. Not to diminish the significant of this research. However, I think sometime researchers are removed from being empathetic to the plight of real people suffering. Thank you Chris. Its time the research community start observing real people to expedite cures.
@alz123alz I understand your point, but as a student in psychological research, you have to understand that studies on humans are very hard to conduct. First for rare diseases like these, it's hard to get a large sample of patients who give us their consent. Secondly, we really care about them and don't want to hurt them. So we have to make sure that the tests we want to do on them will not worsen their state or hurt them.
If you have the gene for this disease it is IRRESPONSIBLE to have children. It is like having children when you are HIV+. Why do it? I would just kill myself once I began showing symptoms...
@ellesbelles77 Elles no it isn't. If you have this disease adopt rather than give a lucky child a 50% chance of becoming demented and paralyzed by the time they are 40. Don't be so dumb.
@TickleMehNancy Ever heard of PGD? Look it up and do your research before calling someone dumb. You can still safely have a child without adopting or passing on the disease. Dont YOU be so dumb. and Yes it is a stupid comment you made.
@ellesbelles77 Oh shut the fuck up cunt puss. Parents have a 50% chance of passing the gene on. Your tape worm must have traveled to your brain you shit fuck.
@TickleMehNancy This is not true. Each child of an affected parent has a 50% chance of inheriting the defective gene. My older brother, my sister and myself have all been Predictive tested and found not to carry the defective gene.
My father is a veritable vegetable, yet we cannot blame him, or my mother for having us when, in the early seventies, research was inconclusive and my father inherited it from his mother. In the 50's, research was non-exisistant. Walk a mile in someones shoes!
@TickleMehNancy that is exactly what my gf's dad did when this disease started showing....i hate him for it...you dont know what that did to her....yes it is irresponsible to have children when you know you have that sort of disease, but im thankful for the angel i have in my life, because of a man with this disease...
May the good Lord Jesus Christ rebuke this disease from the life of those people.
I pray that all of those people who are suffering form this diseases and those who have a genetic possibility of inheriting it, be free from Huntington.
I also pray that may God open our mind as the search for the cure progresses.
@makseba78 lol your good lord jesus is responsible. Hardly a good lord. Why would he listen to you when he didn't listen to the people in the depths of this disease?
@makseba78 You Christians are so fucking stupid. If a loving God existed or gave a shit the disease wouldn't exist in the first place. Stop spreading your imperalist, slavemaking, devilish religion on people.
@Bravesfan4500 why put others hope down? even if God doesnt exist, he has created hope for so many...you are the worst kind of person...you feel conviction so you condemn others faith? if there are people trying to give others hope, why debate that? you make me sick....and yes, im a stupid christian...
@cLcnumber31 I am agnostic and don't usually put other people's faith down unless it is way over the top like people on here talking about god. God won't help these people just because you ask. God should have helped them by not giving it to them in the first place! Duh! If God exists which 'it' may but not the way humans think.
People with religion are delusional. People who think they know everything because of science have 5 puzzle pieces to a trillion piece puzzle.
@cLcnumber31 Humans just can't admit they don't know. They can't accept that. So they make up stuff and come to conclusions so they can sleep better at night. That is fine but don't bother me with it.
May the good Lord Jesus Christ rebuke this disease from the life of those people.
I pray that all of those people who are suffering form this diseases and those who have a genetic possibility of inheriting it, be free from Huntington.
I also pray that may God open our mind as the search for the cure progresses.
if you know you have Huntington's why would you have a kid why not adopt a baby instead so your child wont half to suffer from Huntington's when they get older
We shouldn't be so hard on Msnoone. There is no right or wrong here. I too have the gene in my family but as of today at 38 have not been tested yet although I'm starting to see signs. This is one of the worst diseases in history. If I knew I had it I do not think I would plan to have children because I would never want my child to grow up with out me or have to go through not knowing, every jerk, memory loss, depression wondering if this is it. Congrats on ur baby and l and will pray for both
@MsNooneinparticular Doctors do NOT encourage people with HD to have sons. Maybe the answer to this problem will be found in preimplantation genetic diagnosis... I live in a place where thalassemia is extremely frequent: if procreation for this people was illegal then i wouldn't have a girlfriend. Remember that even normal people can have sons with HD.
I understand what you think, but the problem is ethically impossible to solve, at least till humanity will be able to use PGD in the right way.
ive have hd 44 repeat ms nooneinparticular and know that the disseas only wil go away if you try things on people whit hd and for you msnooneinparticular also you have an repeat that can go up ive you are going to get children dan you wil be greatfull that other people where guinnypigs like every disseas is delt whit
MsNoone- In order to raise children to be healthy, responsible & well round adults you need attributes to foster love, patience, & discipline. PLEASE don't have any kids MsNO ONE because you do NOT have any of these. My daughter at the ripe age of 14 said once- "Mom, we need to take tests to drive and be a certain age to drink alcohol, to vote, & serve our country- Why isn't there a test for people who want to have kids? Some parents are not too smart." You Ms NO ONE - are one of them !
My father had HD and had 5 children. Only one of us ended up positive. Thank goodness, my mother and father wanted to give me life. I am grateful for every day I am alive and though maybe not all the people in this world I know are as grateful, I hope and expect most are.
@vickihmatthews M yheart goes to your family. We have had HD in our family for generations. Despite being gene negative myself, HD does not simply disappear. Enjoy each day and appreciate everything in it- that is my mantra. Huntington disease taught me that.
Lack of empathy? How about having a sense of empathy for the CHILDREN, who live their entire lives fearing a horrific illness they can do nothing to prevent? To bring a child into this world knowing that he or she could inherit Huntington's is just cruel. Children have no say-so in the matter, and adults--ALL adults--should think long and hard before procreating for their own selfish needs, especially when there are millions of kids who need loving parents in the world.
My grandfather died of Huntington's Disease. My father and uncle do not have the disorder, and of course, I will not develop the disorder. Luckily for me a 2nd yr medical student with a Master of Science and 3 bachelor degrees, my grandfather did have kids! You must understand how many genetic disorders exist. Gene mutations cause or contribute to diseases such as diabetes, heart disease, high blood pressure, cancer, obesity, Alzheimer's, etc. Experimental drugs are being tested for HD.
@toomuchyonke can't get around the fact that it's still fucking irresponsible to have kids if you have this disease, why are you insulting this guy? fucking stupid
@toomuchyonke I think the way she put it was stupid, but her point behind it had real value. People, like me, with genetic disorders sHOULD be made to think VERY carefully before a 25-50% chance they pass it on to a new, innocent person. We don't have any 2right" to have children, and there are 1000s of unwanted, uncared for children we can provide a loving home for. It's a tricky moral situation, but I knew for sure that I couldn't live with the guilt if I passed on what I have to my children.
@MsNooneinparticular Okk that's messed up, and first of all you wouldn't really know that you have the disease unless you go and see if you have the gene...geesh ignorant people these days
MsNoone- In order to raise children to be healthy, responsible & well round adults you need attributes to foster love, patience, & discipline. PLEASE don't have any kids MsNO ONE because you do NOT have any of these. My daughter at the ripe age of 14 said once- "Mom, we need to take tests to drive and be a certain age to drink alcohol, to vote, & serve our country- Why isn't there a test for people who want to have kids? Some parents are not too smart." You Ms NO ONE - are one of them !
You really should do a little more research before posting such a stupid comment. My grandfather died of Huntington's Disease. My father and uncle do not have the disorder, and of course, I will not develop the disorder. Luckily, my grandfather did have kids! You must understand how many genetic disorders exist. Gene mutations cause or contribute to diseases such as diabetes, heart disease, high blood pressure, cancer, obesity, Alzheimer's, etc. Experimental drugs are being tested for HD.
My grandfather died of Huntington's Disease. My father and uncle do not have the disorder, and of course, I will not develop the disorder. Luckily for me a 2nd yr medical student with a Master of Science and 3 bachelor degrees, my grandfather did have kids! You must understand how many genetic disorders exist. Gene mutations cause or contribute to diseases such as diabetes, heart disease, high blood pressure, cancer, obesity, Alzheimer's, etc. Experimental drugs are being tested for HD.
@MsNooneinparticular I had 2 children and we did not know that their dad had the disease until my children where already married and had children. No one in my husbands family had it and out of 10 brothers and sisters my husband is the only one who has it..Just pray for urself that u r not toched by this terrible disease. Though maybe if u or someone in ur family had u would be a kinder more thoughtful person... For now ur just a HATER!!!!
This comment has received too many negative votesshow
I feel contempt for those that have compassion for all who are weak and sick,
I love the people of the past, I take care of the people of today responsible for the prolongation of the disease on the earth, you are responsible for pollution to humanity.
@toomuchyonke I think people need to be more responsible and get tested and if that person's does have children well that should be considered as not caring for the child because now we know there is a chance of ending a life in such suffering...So I do think we need to put the pity aside and USE OUR BRAINS!
@anapao89 u garante i wont feel pain? how do u mean?,HIV is a fraud Gallo got done for fraud the government protects it from the media?? do your research read the scientific papers ?its peoples belief in the government and fraudulent scientists which brainwash people in to their beliefs what cause people to feel pain???
@anapao89, while your point is heard it is heartless and ignornant. By your theory myself and my three sisters wouldn't be alive. There are MANY diseases out there and people suffer every day, who has the right to say only "healthy" people deserve to live. I thank God everyday that my Mother was who she was REGARDLESS of the Huntington Gene, I thank her for my life. God bless you
After watching this video, and looking at how they move and how the disease takes live AT THE SAME TIME people move, I believe and conclude that when people with this disease move, it is the intentional moving of the person that appears to accelerate the disease. I guess, doctors should conduct research on people with this disease and have them move as little as they can to see if that slows down the disease or stops it.
@welwitcha2000 your time is coming when you will be at the mercy of others when you will be too sick or weak. I hope you find that contempt for yourself then peice of shit
@welwitcha2000 I wouldn't refer to it as these people "polluting" the environment, but humans can be extremely irresponsible some don't get tested (I'm talking in general not only hd) and start having kids that will suffer from the disease they carry. Personally, if I know my children can have some sort of disease like this, that has no cure, I wouldn't have children! Now you can adopt, and instead of continuing the disease you help those that need a home!
@anapao89 - I see your point, BUT my mom knew she was at risk and decided to make me and my two sisters anyway. I am a brilliant scientist (it's a fact - not trying to brag here) and it may damn well be true that I have pieced together not only a way to significantly slow progression of HD symptoms through natural food additions and exclusins (boosting endo-cannabinoid system) but also this may relate directly to root cause for why Western society is now so fat, dumb, ADHD, bipolar, etc...
@dmgoedde That's the funny thing (sarcasm) about this, that u might have a perfectly healthy child. And good for u that u found a way, that works for you, of slowing the symptoms. However, children have to become strong against this and not count the days to when symptoms start kicking in, which not all will be like that. And I don't believe there is an excuse to put those that did not have a choice to this kind of suffering. You should make the diet public for others with hd
@dmgoedde My Mother has Huntington's and I am happy to have lived the life I have so far. I wouldn't for a minute have wished my mother not had me even if it means a future with a 50% chance of developing this disease. Every day is a blessing.
@welwitcha2000 - you add nothing. You are a sick person. Please get some help. I, on the other hand, am an at-risk person for Huntington's and have always had insatiable thrist for all knowledge. My chem PhD helps me understand things a bit deeper. Might be that modulation of the endo-cannabinoid system ('human' marijuana) through proper additon of Omega-3's and exclusion of MSG, alcohol, and sugar + exercise could significantly delay progression of symptoms. Take that - you human waste.
A murder is a murder. What's wrong with you people? Anybody could cry and show remorse - doesn't give you the license to kill just cause you can be all sorry afterwards. She ended the lives of two human beings which God created though they were inflicted with a disease. It's a sin to kill even if you're desperate. I hope she will receive justice though.
@msearthstone no sorry mate, unless you actually know what this disease does then you can't in anyway justify that statement. My auntie has 6 children, 5 of which were born with HC, 3 of them died before they reached 30, and she will outlive the other two. it is a degenerative disease of the body but it leaves the mind intact, so you're a prisoner in your own body. They knew it was coming, and asked their mum to end their lives if things got too hard, not only because they didn't want to be...
@msearthstone a burden, but because they would have known for 20 or so years of their lives, what it was like to have been normal. towards the end they couldn't stand, talk, see, hear, eat, bath, or even go to the toilet themselves. but they still had a fully functioning mind like you or I. What a disgusting situation. If you had to watch your OWN child go through that, knowing that they don't want to carry on living, then as a loving parent you wouldn't want their suffering to continue.
@msearthstone i do not in anyway think she should have been charged with murder, manslaughter at the very most, the very most. Until cures for these types of diseases are found, then i truly believe euthanasia, should they express their wish to be 'put to sleep' before their deterioration is the right course of action. It's not up to god in this case my friend it's up to the individuals concerned and their parents.
@msearthstone the reason this poor poor lady is crying, is because, she knows that she did what she had to do to end the suffering of her OWN children, and that since this is a disease not at all known to the mainstream, that she will, in spite of doing what was right, suffer the consequences.
She wasn't desperate or selfish mate. She was a loving caring mother, who couldn't bare to see her OWN children suffer any longer. she deserves love, sympathy and rest, not condemnation and imprisonment.
A murder is a murder. What's wrong with you people? Anybody could cry and show remorse - doesn't give you the license to kill just cause you can be all sorry afterwards. She ended the lives of two human beings which God created though they were inflicted with a disease. It's a sin to kill even if you're desperate. I hope she will receive justice though.
@msearthstone not every murder is the same. if a murder is a murder then any soldier who has ever killed someone in war should be in jail. Any one who has killed someone in self defense should be in jail. Not all murders are the same.
And she killed her two sons who she stuck by for years... they weren't two random people, they were boys that she loved and cared for. relieving them from their pain was probably the hardest thing she ever had to do
God, that's so irresponsible to have a child and to not even get the embryo tested with full knowledge of your family history. They were saying forty years ago that there could be a cure in the next generation, too, but look how well that turned out. Drug testing is a long and rarely successful process-- it could take fifteen years for a discovery to make it to the market. And besides, the pyschogical damage she is knowingly inflicting upon her child is just horrendous.
That women convicted of murder showed true remorse. That women should never have been convicted. The emotions coming out of her is the most sincere and serious I have ever seen come out from a convicted murderer. Most murderers don't give a shit about anyone but themselves. That women deserves to be not guilty. She showed utter remorse and extreme emotion for what she did. The women has my respect for that. Poor poor women you would have to cry for her. She never murdered for hate
First, thank God for everything. My heart is with you and your family in such suffering is something that really breaks the heart. But hope remains in God.
That he will compensate you for all of this in paradise. .... Mohammed from Saudi Arabia
I hate my life because my mom has it my nana has it. my parents are getting a divorce, my grampa(who i never met) was a drunk and abusive. my dad hates me and i cant live with my mom because of the disease.
@Blondie1973pdb And it gets successively more aggressive through generations. A lot of patients, even without the juvenile form, experience syptoms in their 20s.
@Blondie1973pdb she might realize that, but age runs in the family. If her parents had it at 40, she'll have it at somwhere around 40, and so will her kids
I,m A Care taker of a woman with huningtons,it is very Devastating!! my girl is in her Last Stages,of the Disease!! She,s only 38 years old!! Thank you!! for getting yhe information out to the world!!
Thank you for this info. I have HD and we live in Sherbrooke Quebec. Any ideas on how to start a support group would be welcome. The Quebec HD society do not know of anyone affected in our town of 150,000 residents. How can we find out if there is a need?
i know that what im going to write may be inappropriate but i couldnt have a child if i was sure to have this disease or any similar one. i know that everyone needs hope and stuff but i couldnt do this to my child
not inappropriate at all. everyone has a right to who they are and what they want for their child. I would totally agree. I would not bring a human life into this world knowing if the child had deformities.
Well guess what ????sometimes you don't know. Somtimes thats what God gives you and the real right thing to do is accept it and love the child anyways.
Hi Dina. You're correct to bring up CAG repeats; however I do feel the need to clarify.
The extent to which CAG repeats (not its presence) is used as a diagnostic to determine likelihood/onset of Huntington's.
The jerky movements are caused specifically by the gene encoding for abnormal huntingtin protein. The function of normal Huntingtin protein is still not entirely understood, though it is speculated it has a protective role against apoptosis (cell suicide).
my heart is out to all the family and friends of whom suffer this terrible disease, stay strong and charish the time of this fragile precious life we have.
my mother has had this disease for over 18 years and it is a terrible way to live. She is hanging on in a rehab center and I got the genetic testing and do not have it but my brother refuses to take the test.....
I'm lucky, the gene was not transfered to my father so I don't have it as well. I know all to well how quickly this disease takes over a person. 15 years ago my grandmother knew my name, 5 years later she is in a nursing home calling me Kelly and unable to stop bodily functions. She passed in 2006 probably being one of the oldest survivors of the disease. I am in school now and I will join research in curing this disease. My uncle was unlucky.
i so agree with Chris im 15 and im studying huntingtons and it seeems hard for someone to go through people need to stop laughing and acually relise that, that person might need help with something they dont no that, that person could die of a neurodegenerative genetic disorder. more people need to be wary of this and other diseases too.
Toomuchyonke. Your mind is full of Yonke. If you MUST have another child Adopt. Otherwise you just being selfish and gambleing with the future of your children just because someome told you it might work.. Go ahead a hurt yourself instead of your unborn children.
Usually pneumonia is proves fatal for many people with HD. The chorea causes difficulty swallowing and this can lead to aspiration of consumed food. Also heart disease and malnutrition are common in HD.
Most of my friends are dying of this disease, Its a hard thing to understand yet it is something that they cannot run from but to face off. it makes life unfair, because these are beautiful people who end up in the worst case scenario of themselves. But I still believe that there will be a cure, its the only way for me to see that they die so that others will live ... GOD BLESS all of you dudes
My mom just recently turned 44 and she has had huntingtons for 10 years. It's just devastating for everyone in the family, I'm 18 and my younger sister is only 16, life has been unbearable for us growing up. i remember when I was little my mom told me that she began seeing symptoms in herself when she was only 20. sometimes, when I think about it, i can also see the early stages of symptoms in myself, but I'm scared to get tested.
Donna don't write shit like that
XXBUTCHERXx69 14 hours ago
I hate the time when it is difficult knowing what to say
I hate the test that told you yes and for me no way
I hate the thing they call disease and even hate the day
I should be glad but somehow mad I don't know what to say
I should be happy that i will not ever go this way
i should be but I'm not because my sister will some day
I love you Liz I wish I could take away your Huntington's and your fear
but all i can do is love you and be thankful your still here
love Donna Hamm
donnahamm67 1 week ago
I just saw a video of a NINE year old who died of this disease. What was even more tragic, was that a neighbor TAUNTED her and her family before she died.
DragonDriver100 2 weeks ago
@DragonDriver100 i've seen that too, it's and older video. Karma came back around though and that woman got trolled to shit by everyone around her
toomuchyonke 2 weeks ago 3
@toomuchyonke
I believe Karma will be her undoing as well. Speaking about being undone by Karma for making fun of people with this disease, I wonder what will happen to those who tried to make a joke about Huntington's on Youtube, where the guy acts like he has the disease, breaks up with his girlfriend to date a girl with the disease. It's pretty warped. I asked them if they are trying to make people believe in hell by making something like that.
DragonDriver100 2 weeks ago
God I hate watching this stuff knowing my family's got this
CasualGarbage 2 weeks ago
my mum has huntingtons, she is only in the early stages but some symptoms have started to show she is on trial medication to help suppress them I hope every night that they work and help her really live her life, and one day might help me and my two sisters if we have the gene
coop1791 3 weeks ago
@windmillsea113 my dad has hungingtons too..
FatBabiesWithAids 1 month ago
my dad has huntingtons :(.. lifes hard
FatBabiesWithAids 1 month ago
240p should be banned
philipo089 1 month ago
Why is @toomuchyonke a number one comment . What a wicked thing to say you have no idea what you are talking about . Im glad to be alive even if i have gene . I can still life a full live . I HAVE THE RIGHT TO LIFE . Just becoues my dad has the gene it dosent mean i do and if i dont im free and so is the rast of my family forever when its gone its gone . EVERY BABY HAS A 50/50 RISK AND A RIGHT TO LIFE . look at the facts before you say such things
saigondaisy 1 month ago
@saigondaisy I'm not even sure what you're talking about, but I can only assume it's my comment above about people being responsible and getting tested before having children. I do know exactly what I'm talking about, b/c I did get tested & I do have the disease and I did get fixed so I can't have babies and I already have a baby through donor sperm and another on the way.
toomuchyonke 1 month ago 4
it's clear to you've completely missed the point of that comment, which was that to me it's reckless to try to have children, knowing you're at risk of having the disease but w/o having done the due diligence of getting tested and knowing for sure. & if you do know for sure, and still choose to have children biological children of your own, it's simply a negligent game you've chosen to play with that child's life. & just damned selfish & immature, too.
toomuchyonke 1 month ago 4
@toomuchyonke Just thought i should give you the best news of my life i got my results on monday and thank the lord im hd free . Ever thought the gene should have come from my dad .
saigondaisy 1 month ago
@saigondaisy Congratulations! I can imagine the weight that's lifted from your shoulders!
toomuchyonke 1 month ago
My father is in early stages still but i know its going to be so hard,:(
windmillsea113 2 months ago
Is it wrong to be angry with that woman for deciding to have a child? It seems somewhat irresponsible to me.
FriendlyFantom 2 months ago
Just did a research project using this video in my Occupational Therapy class at Eastern Michigan University. Thank you for providing the documentary and I sincerely hope and pray that a cure is found soon.
smootsprint 3 months ago
@smootsprint I also attend EMU!
roomsonfire 3 months ago
wow this is tragic this is one good reason for stem cell research.
LetArtsLive 3 months ago
Back in medieval times they probably thought the people with Huntington's disease were being possessed
BabysFace 3 months ago
I am so sorry for all those who suffer from this disease. :(
lovethatcat2 4 months ago
...
DeathofmeIknow 6 months ago
my aunt and grandma died from this disease. watching my aunt die was the hardest thing i have ever done. she was 35 when she passed away..my dad doesnt carry the gene so neither him or I can get it...
chorus88singer99 6 months ago
I created a dramatic short film with integrated dance that was inspired by Carol Carr, called Near Silence. It recently won the Best Short Fiction Film Award at the 2011 Vancouver Women in Film Festival. The trailer is on my Youtube channel and you can message me for a private online viewing.
anadelarafilm 8 months ago
watch the first documentary about huntington disease in portuguese made in brazil, we're looking for channels to show it.
see on my profille, the " convivendo com a doença de huntington" video
wilsonhighlander 8 months ago
After watching this video, and looking at how they move and how the disease takes live AT THE SAME TIME people move, I believe and conclude that when people with this disease move, it is the intentional moving of the person that appears to accelerate the disease. I guess, doctors should conduct research on people with this disease and have them move as little as they can to see if that slows down the disease or stops it.
MAGNATEENTERPRISES 8 months ago
This is heartbreaking :'(
HowToDs 9 months ago
50/50 huh? I don't know anybody that had/has the disease, whose kids didn't also get the disease.
Randy and Andy used to kick some ass back in the day! Their brother Jimmy Scott did too. All rest in peace!
khakain 9 months ago
my grandma just died from this last night. she was unable to talk or walk for 25 years.
goldturtwig 9 months ago
@goldturtwig you dont die from the disease itself you die from complications due to the disease but not the disease itself, my mother has it and everytime she sees her neurologists thats part of what they say and sorry for you loss this disease is really a horrible thing
robertdeboor 9 months ago
I can't imagine how soul-destroying it must be to see somebody you love going through this.
AngloAm 9 months ago
Quite touching.
cornnutsmaj7 9 months ago
honestly, isn't it kind of selfish for this woman to risk putting her children through this same debilitating disease?! there are so many other ways to be able to give the gift of life and experience parenthood (i.e. IVF, adoption, fostering, etc.). an opinion...
fejlar027 9 months ago 2
Comment removed
fejlar027 9 months ago
To each their own x2thay:)
macinport1 9 months ago
What the fuck is it with every fucking video on huntings with a bunch of House MD fanatics finding it funny to tell these obviously fucking large lies. Seriuosly fuck off, its a fucking real deal theres no way you would be admit such a fucking huge thing on something as opensource on the fucking internet.
Trollz0Be0Trollin 10 months ago
My Mother has Huntington's and I am happy to have lived the life I have so far. I wouldn't for a minute have wished my mother not had me even if it means a future with a 50% chance of developing this disease. Every day is a blessing.
macinport1 10 months ago
@macinport1 I'll see how much of a blessing you will find it should you turn out to have huntington's.
x2thay 9 months ago
God bless those afflicted with HD and their caregivers. I hope they find a cure during my lifetime. I have lived with HD in my family and understand the toll it takes on everyone involved. I do not have children but decided to get tested so that I could prepare for my future. I am negative. I was lucky. God speed for a cure.
blhoten 10 months ago
@blhoten Asking god to bless them? So god didn't prevent them from having the damn disease in the first place, what makes you think he gives a damn now? Ever think he might not even be there at all?
x2thay 9 months ago
i can't blame the people who chooses there child not to be tested with this disease. From childhood he's/she's going to take the feeling of being deteriorated and die in the age of 40 except if the parents will help the child understand, accept it and leave with it and I hope people would not just laugh at it...It's the disease that you don't choose to have.
ladyangel341 10 months ago
I am at risk. I don't have any kids. I am pro-testing to find out if I have HD, especially if and when I start thinking about making kids. I agree that throwing logic and caution to the wind is irresponsible. My mom thought if she prayed really hard to not have HD, then it would be true. Probably 95% of the reason I don't like snake-handler fundamentalist wackos... though I love my mom dearly.
dmgoedde 11 months ago
Some of this people that don't feel the need to get tested shouldn't complaint about their children being sick...because that's the path they chose to go in when deciding not to get tested. Fear let to another life being torture!!!
anapao89 11 months ago
I LOVE U, JACEY! I Love, hope, and PRAYERS FOR YOU, ALWAYS! TOOK ME ABOUT 45 MINUTES TO POST THIS SIMPLE MESSAGE1 Not doing so well today, but, "THIS TOO SHALL PASS!" lOVE YOU, SWEET JACEY! tRICIA In nj!
Ritterrit 11 months ago
@Ritterrit Prayer don't work because there's not a piece of evidence of a god. Not a well intentioned one, anyway. But, whatever makes you feel better.
x2thay 9 months ago
why on earth would anyone with even half a brain want to have children when they know they have this terrible disease?
I thought they would be so horrified by this disease, they would be afraid to have children for fear of passing this on to yet another generation.
Have they no common sense, don't they care about the probable fate of their children?
This disease could be wiped out if these idiots would stop having children when they know they are carrying this!
sheilach1 1 year ago
@sheilach1 yea just kill your baby, makes sense.
rencrespoo 11 months ago
@sheilach1
rosaleenohalloran 11 months ago
I can't even imagine the pain of that poor woman
hurricaneivan117 1 year ago
remember i am welwitsha2000 sorry again peace everybody. thanks.
bilallore 1 year ago
sorry for the horrible comments that I write about people affected by Huntington's disease, I pray you all that I hurt mostly family and friends of people in the video of me forgive. I acted out of immaturity, I do not like what I write, I myself am suffering from a chronic inherited disease, I have a lot of feelings for other people sick. So we share more or less the same difficulties and suffering, forgive me. Know that in my heart I wish health and happiness to all.
bilallore 1 year ago
This has been flagged as spam show
i think that if a person knows they may have a chance of having it, should consider the chances of whether their children may inherit it and whether they could live with themselves knowing their child would be deprived of a real life.
456ddttd 1 year ago
i think that if a person knows they may have a chance of having or pasing it on, should consider the chances of whether their children may inherit it and whether they could live with themselves knowing they have it, depriving them of a real life.
456ddttd 1 year ago
@456ddttd and you really think that hd people at risk or have the gene dont go through mental and emotional turmoil with what you said, you feel we are that shallow? and i take great offence at your "DEPRIVING THEM OF A REAL LIFE"..i know you prob not trying to cause offence but your words are thoughtsless...
braveharty 1 year ago
what is the link with Dementia
mememeo4 1 year ago
This has been flagged as spam show
This loving mother loved her children so much she did not want to see them suffer.
mememeo4 1 year ago
Comment removed
mememeo4 1 year ago
this loving mother loved her children so much she did not want to see them suffer.
mememeo4 1 year ago
@reshad1
i understand now how it must feel like for the mother and the sufferers. god bless them...
msearthstone 1 year ago
i just came across tis video and i feel sorry for those inflicted with this disease and god bless them .. for everyone who is living well , we should learn to treasure our lives ..
alienfreaklol 1 year ago
In addition to funding research for a cure, the government and insurance companies should provide free In-Vitro Fertilization (IVF) with Pre-Genetic Diagnosis (PGD) testing to exclude embryos with the HD gene to anyone at-risk for HD who wants it. Even those who don't want to know if they have HD can have kids that will never get the disease or be able to pass on the gene. HD could be eradicated in one generation, saving the government billions in future long term healthcare for HD patients.
swhitt21 1 year ago
That a good statement relative to wanting researchers to see this video so they can relate to HD effecting real people. Much of research is done on fruit flies, mice other small animals. Not to diminish the significant of this research. However, I think sometime researchers are removed from being empathetic to the plight of real people suffering. Thank you Chris. Its time the research community start observing real people to expedite cures.
alz123alz 1 year ago
@alz123alz I understand your point, but as a student in psychological research, you have to understand that studies on humans are very hard to conduct. First for rare diseases like these, it's hard to get a large sample of patients who give us their consent. Secondly, we really care about them and don't want to hurt them. So we have to make sure that the tests we want to do on them will not worsen their state or hurt them.
letsgo33 1 year ago
If you have the gene for this disease it is IRRESPONSIBLE to have children. It is like having children when you are HIV+. Why do it? I would just kill myself once I began showing symptoms...
TickleMehNancy 1 year ago
@TickleMehNancy You make me sick. What a shallow, closed minded, ridiculous comment to make.
ellesbelles77 1 year ago
@ellesbelles77 Elles no it isn't. If you have this disease adopt rather than give a lucky child a 50% chance of becoming demented and paralyzed by the time they are 40. Don't be so dumb.
TickleMehNancy 1 year ago
@TickleMehNancy Ever heard of PGD? Look it up and do your research before calling someone dumb. You can still safely have a child without adopting or passing on the disease. Dont YOU be so dumb. and Yes it is a stupid comment you made.
ellesbelles77 1 year ago
@ellesbelles77 Oh shut the fuck up cunt puss. Parents have a 50% chance of passing the gene on. Your tape worm must have traveled to your brain you shit fuck.
TickleMehNancy 1 year ago
@TickleMehNancy This is not true. Each child of an affected parent has a 50% chance of inheriting the defective gene. My older brother, my sister and myself have all been Predictive tested and found not to carry the defective gene.
My father is a veritable vegetable, yet we cannot blame him, or my mother for having us when, in the early seventies, research was inconclusive and my father inherited it from his mother. In the 50's, research was non-exisistant. Walk a mile in someones shoes!
TheShanmar 1 year ago 6
@TheShanmar Obviously I am talking about now you stupid cunt get a clue.
TickleMehNancy 1 year ago
@TickleMehNancy that is exactly what my gf's dad did when this disease started showing....i hate him for it...you dont know what that did to her....yes it is irresponsible to have children when you know you have that sort of disease, but im thankful for the angel i have in my life, because of a man with this disease...
cLcnumber31 1 year ago
@TickleMehNancy wind your neck in you mug and go smoke your crack pipe and leave people alone
braveharty 1 year ago
@braveharty go gag on your dad's cock and choke on the throw up you garbage.
TickleMehNancy 1 year ago
May the good Lord Jesus Christ rebuke this disease from the life of those people.
I pray that all of those people who are suffering form this diseases and those who have a genetic possibility of inheriting it, be free from Huntington.
I also pray that may God open our mind as the search for the cure progresses.
makseba78 1 year ago
@makseba78 lol your good lord jesus is responsible. Hardly a good lord. Why would he listen to you when he didn't listen to the people in the depths of this disease?
TickleMehNancy 1 year ago
@makseba78 You Christians are so fucking stupid. If a loving God existed or gave a shit the disease wouldn't exist in the first place. Stop spreading your imperalist, slavemaking, devilish religion on people.
Bravesfan4500 1 year ago
@Bravesfan4500 why put others hope down? even if God doesnt exist, he has created hope for so many...you are the worst kind of person...you feel conviction so you condemn others faith? if there are people trying to give others hope, why debate that? you make me sick....and yes, im a stupid christian...
cLcnumber31 1 year ago
@cLcnumber31 I am agnostic and don't usually put other people's faith down unless it is way over the top like people on here talking about god. God won't help these people just because you ask. God should have helped them by not giving it to them in the first place! Duh! If God exists which 'it' may but not the way humans think.
People with religion are delusional. People who think they know everything because of science have 5 puzzle pieces to a trillion piece puzzle.
TickleMehNancy 1 year ago
@cLcnumber31 Humans just can't admit they don't know. They can't accept that. So they make up stuff and come to conclusions so they can sleep better at night. That is fine but don't bother me with it.
TickleMehNancy 1 year ago
May the good Lord Jesus Christ rebuke this disease from the life of those people.
I pray that all of those people who are suffering form this diseases and those who have a genetic possibility of inheriting it, be free from Huntington.
I also pray that may God open our mind as the search for the cure progresses.
makseba78 1 year ago
i found it out from scrubs!
robsmith000 1 year ago
thanks for posting this, i have huntington's in my family, though I fortunately have escaped. This should spread awareness
RobipodSupreme 1 year ago
if you know you have Huntington's why would you have a kid why not adopt a baby instead so your child wont half to suffer from Huntington's when they get older
daftskull13 1 year ago
We shouldn't be so hard on Msnoone. There is no right or wrong here. I too have the gene in my family but as of today at 38 have not been tested yet although I'm starting to see signs. This is one of the worst diseases in history. If I knew I had it I do not think I would plan to have children because I would never want my child to grow up with out me or have to go through not knowing, every jerk, memory loss, depression wondering if this is it. Congrats on ur baby and l and will pray for both
TheMystical1972 1 year ago
@MsNooneinparticular Doctors do NOT encourage people with HD to have sons. Maybe the answer to this problem will be found in preimplantation genetic diagnosis... I live in a place where thalassemia is extremely frequent: if procreation for this people was illegal then i wouldn't have a girlfriend. Remember that even normal people can have sons with HD.
I understand what you think, but the problem is ethically impossible to solve, at least till humanity will be able to use PGD in the right way.
MauroMattana 1 year ago
ive have hd 44 repeat ms nooneinparticular and know that the disseas only wil go away if you try things on people whit hd and for you msnooneinparticular also you have an repeat that can go up ive you are going to get children dan you wil be greatfull that other people where guinnypigs like every disseas is delt whit
debollivenl 1 year ago
MsNoone- In order to raise children to be healthy, responsible & well round adults you need attributes to foster love, patience, & discipline. PLEASE don't have any kids MsNO ONE because you do NOT have any of these. My daughter at the ripe age of 14 said once- "Mom, we need to take tests to drive and be a certain age to drink alcohol, to vote, & serve our country- Why isn't there a test for people who want to have kids? Some parents are not too smart." You Ms NO ONE - are one of them !
Ciniris 1 year ago
My father had HD and had 5 children. Only one of us ended up positive. Thank goodness, my mother and father wanted to give me life. I am grateful for every day I am alive and though maybe not all the people in this world I know are as grateful, I hope and expect most are.
vickihmatthews 1 year ago
@vickihmatthews M yheart goes to your family. We have had HD in our family for generations. Despite being gene negative myself, HD does not simply disappear. Enjoy each day and appreciate everything in it- that is my mantra. Huntington disease taught me that.
Ciniris 1 year ago
Lack of empathy? How about having a sense of empathy for the CHILDREN, who live their entire lives fearing a horrific illness they can do nothing to prevent? To bring a child into this world knowing that he or she could inherit Huntington's is just cruel. Children have no say-so in the matter, and adults--ALL adults--should think long and hard before procreating for their own selfish needs, especially when there are millions of kids who need loving parents in the world.
MsNooneinparticular 1 year ago
This has been flagged as spam show
My grandfather died of Huntington's Disease. My father and uncle do not have the disorder, and of course, I will not develop the disorder. Luckily for me a 2nd yr medical student with a Master of Science and 3 bachelor degrees, my grandfather did have kids! You must understand how many genetic disorders exist. Gene mutations cause or contribute to diseases such as diabetes, heart disease, high blood pressure, cancer, obesity, Alzheimer's, etc. Experimental drugs are being tested for HD.
amydianerice 1 year ago
This has been flagged as spam show
With what we know now, it should be illegal for people with this disease or gene to reproduce. A crime against nature.
MsNooneinparticular 1 year ago
@MsNooneinparticular maybe we shouldn't let you procreate ms crime-against-humanity - so that you can prolong your complete lack of empathy
toomuchyonke 1 year ago 19
Comment removed
Sardrith 1 year ago
This has been flagged as spam show
@toomuchyonke can't get around the fact that it's still fucking irresponsible to have kids if you have this disease, why are you insulting this guy? fucking stupid
Sardrith 1 year ago
@toomuchyonke I think the way she put it was stupid, but her point behind it had real value. People, like me, with genetic disorders sHOULD be made to think VERY carefully before a 25-50% chance they pass it on to a new, innocent person. We don't have any 2right" to have children, and there are 1000s of unwanted, uncared for children we can provide a loving home for. It's a tricky moral situation, but I knew for sure that I couldn't live with the guilt if I passed on what I have to my children.
Rumpelstiltskinsky 1 year ago 2
@MsNooneinparticular Okk that's messed up, and first of all you wouldn't really know that you have the disease unless you go and see if you have the gene...geesh ignorant people these days
Sandra1126 1 year ago
MsNoone- In order to raise children to be healthy, responsible & well round adults you need attributes to foster love, patience, & discipline. PLEASE don't have any kids MsNO ONE because you do NOT have any of these. My daughter at the ripe age of 14 said once- "Mom, we need to take tests to drive and be a certain age to drink alcohol, to vote, & serve our country- Why isn't there a test for people who want to have kids? Some parents are not too smart." You Ms NO ONE - are one of them !
Ciniris 1 year ago
Comment removed
amydianerice 1 year ago
This has been flagged as spam show
You really should do a little more research before posting such a stupid comment. My grandfather died of Huntington's Disease. My father and uncle do not have the disorder, and of course, I will not develop the disorder. Luckily, my grandfather did have kids! You must understand how many genetic disorders exist. Gene mutations cause or contribute to diseases such as diabetes, heart disease, high blood pressure, cancer, obesity, Alzheimer's, etc. Experimental drugs are being tested for HD.
amydianerice 1 year ago
My grandfather died of Huntington's Disease. My father and uncle do not have the disorder, and of course, I will not develop the disorder. Luckily for me a 2nd yr medical student with a Master of Science and 3 bachelor degrees, my grandfather did have kids! You must understand how many genetic disorders exist. Gene mutations cause or contribute to diseases such as diabetes, heart disease, high blood pressure, cancer, obesity, Alzheimer's, etc. Experimental drugs are being tested for HD.
amydianerice 1 year ago
@MsNooneinparticular I had 2 children and we did not know that their dad had the disease until my children where already married and had children. No one in my husbands family had it and out of 10 brothers and sisters my husband is the only one who has it..Just pray for urself that u r not toched by this terrible disease. Though maybe if u or someone in ur family had u would be a kinder more thoughtful person... For now ur just a HATER!!!!
Bostonma1960 1 year ago
@MsNooneinparticular You unempathetic,merciless,fascist little peice of shit. lets starts by eliminating you from the gene pool.
PALLADINARC 1 year ago
my son died 2005 trust me I know too well the pain. bless you for this video.
Nonya63 1 year ago
This comment has received too many negative votes show
I feel contempt for those that have compassion for all who are weak and sick,
I love the people of the past, I take care of the people of today responsible for the prolongation of the disease on the earth, you are responsible for pollution to humanity.
welwitcha2000 1 year ago
@welwitcha2000 well now, aren't you just a bucket of love, mr moral high-road?
take your hate somewhere else, troll
toomuchyonke 1 year ago 17
@toomuchyonke I think people need to be more responsible and get tested and if that person's does have children well that should be considered as not caring for the child because now we know there is a chance of ending a life in such suffering...So I do think we need to put the pity aside and USE OUR BRAINS!
anapao89 11 months ago 4
This has been flagged as spam show
@anapao89 u garante i wont feel pain? how do u mean?,HIV is a fraud Gallo got done for fraud the government protects it from the media?? do your research read the scientific papers ?its peoples belief in the government and fraudulent scientists which brainwash people in to their beliefs what cause people to feel pain???
530BigBen 2 months ago
@anapao89, while your point is heard it is heartless and ignornant. By your theory myself and my three sisters wouldn't be alive. There are MANY diseases out there and people suffer every day, who has the right to say only "healthy" people deserve to live. I thank God everyday that my Mother was who she was REGARDLESS of the Huntington Gene, I thank her for my life. God bless you
jbates2003 2 months ago
After watching this video, and looking at how they move and how the disease takes live AT THE SAME TIME people move, I believe and conclude that when people with this disease move, it is the intentional moving of the person that appears to accelerate the disease. I guess, doctors should conduct research on people with this disease and have them move as little as they can to see if that slows down the disease or stops it.
MAGNATEENTERPRISES 8 months ago
@welwitcha2000 Hopefully you'll die a slow death you sorry motherfucker!
DrugstoreCFH 1 year ago
@welwitcha2000 your time is coming when you will be at the mercy of others when you will be too sick or weak. I hope you find that contempt for yourself then peice of shit
PALLADINARC 1 year ago
@welwitcha2000 Whats your problem!!
gfaden 1 year ago
@welwitcha2000 I wouldn't refer to it as these people "polluting" the environment, but humans can be extremely irresponsible some don't get tested (I'm talking in general not only hd) and start having kids that will suffer from the disease they carry. Personally, if I know my children can have some sort of disease like this, that has no cure, I wouldn't have children! Now you can adopt, and instead of continuing the disease you help those that need a home!
anapao89 11 months ago
@anapao89 - I see your point, BUT my mom knew she was at risk and decided to make me and my two sisters anyway. I am a brilliant scientist (it's a fact - not trying to brag here) and it may damn well be true that I have pieced together not only a way to significantly slow progression of HD symptoms through natural food additions and exclusins (boosting endo-cannabinoid system) but also this may relate directly to root cause for why Western society is now so fat, dumb, ADHD, bipolar, etc...
dmgoedde 11 months ago
@dmgoedde That's the funny thing (sarcasm) about this, that u might have a perfectly healthy child. And good for u that u found a way, that works for you, of slowing the symptoms. However, children have to become strong against this and not count the days to when symptoms start kicking in, which not all will be like that. And I don't believe there is an excuse to put those that did not have a choice to this kind of suffering. You should make the diet public for others with hd
anapao89 11 months ago
This has been flagged as spam show
@dmgoedde My Mother has Huntington's and I am happy to have lived the life I have so far. I wouldn't for a minute have wished my mother not had me even if it means a future with a 50% chance of developing this disease. Every day is a blessing.
macinport1 10 months ago
@welwitcha2000 - you add nothing. You are a sick person. Please get some help. I, on the other hand, am an at-risk person for Huntington's and have always had insatiable thrist for all knowledge. My chem PhD helps me understand things a bit deeper. Might be that modulation of the endo-cannabinoid system ('human' marijuana) through proper additon of Omega-3's and exclusion of MSG, alcohol, and sugar + exercise could significantly delay progression of symptoms. Take that - you human waste.
dmgoedde 11 months ago
oh no! chris will be showing symptoms by now!
XDCaptainAwesomeXD 1 year ago
@AncutaMerkel
A murder is a murder. What's wrong with you people? Anybody could cry and show remorse - doesn't give you the license to kill just cause you can be all sorry afterwards. She ended the lives of two human beings which God created though they were inflicted with a disease. It's a sin to kill even if you're desperate. I hope she will receive justice though.
msearthstone 1 year ago
@msearthstone no sorry mate, unless you actually know what this disease does then you can't in anyway justify that statement. My auntie has 6 children, 5 of which were born with HC, 3 of them died before they reached 30, and she will outlive the other two. it is a degenerative disease of the body but it leaves the mind intact, so you're a prisoner in your own body. They knew it was coming, and asked their mum to end their lives if things got too hard, not only because they didn't want to be...
reshad1 1 year ago
@msearthstone a burden, but because they would have known for 20 or so years of their lives, what it was like to have been normal. towards the end they couldn't stand, talk, see, hear, eat, bath, or even go to the toilet themselves. but they still had a fully functioning mind like you or I. What a disgusting situation. If you had to watch your OWN child go through that, knowing that they don't want to carry on living, then as a loving parent you wouldn't want their suffering to continue.
reshad1 1 year ago
@msearthstone i do not in anyway think she should have been charged with murder, manslaughter at the very most, the very most. Until cures for these types of diseases are found, then i truly believe euthanasia, should they express their wish to be 'put to sleep' before their deterioration is the right course of action. It's not up to god in this case my friend it's up to the individuals concerned and their parents.
reshad1 1 year ago
@msearthstone the reason this poor poor lady is crying, is because, she knows that she did what she had to do to end the suffering of her OWN children, and that since this is a disease not at all known to the mainstream, that she will, in spite of doing what was right, suffer the consequences.
She wasn't desperate or selfish mate. She was a loving caring mother, who couldn't bare to see her OWN children suffer any longer. she deserves love, sympathy and rest, not condemnation and imprisonment.
reshad1 1 year ago
A murder is a murder. What's wrong with you people? Anybody could cry and show remorse - doesn't give you the license to kill just cause you can be all sorry afterwards. She ended the lives of two human beings which God created though they were inflicted with a disease. It's a sin to kill even if you're desperate. I hope she will receive justice though.
msearthstone 1 year ago
@msearthstone not every murder is the same. if a murder is a murder then any soldier who has ever killed someone in war should be in jail. Any one who has killed someone in self defense should be in jail. Not all murders are the same.
And she killed her two sons who she stuck by for years... they weren't two random people, they were boys that she loved and cared for. relieving them from their pain was probably the hardest thing she ever had to do
sav0405 1 year ago
God, that's so irresponsible to have a child and to not even get the embryo tested with full knowledge of your family history. They were saying forty years ago that there could be a cure in the next generation, too, but look how well that turned out. Drug testing is a long and rarely successful process-- it could take fifteen years for a discovery to make it to the market. And besides, the pyschogical damage she is knowingly inflicting upon her child is just horrendous.
ahfafa6892 1 year ago
so sad
drmam17 1 year ago
Fuck the Law. Corrupt piece of shit
AncutaMerkel 1 year ago
That women convicted of murder showed true remorse. That women should never have been convicted. The emotions coming out of her is the most sincere and serious I have ever seen come out from a convicted murderer. Most murderers don't give a shit about anyone but themselves. That women deserves to be not guilty. She showed utter remorse and extreme emotion for what she did. The women has my respect for that. Poor poor women you would have to cry for her. She never murdered for hate
AncutaMerkel 1 year ago
@AncutaMerkel I totally agree. Anyone with half a heart should just call it third degree manslaughed and let her out on parole.
ahfafa6892 1 year ago
First, thank God for everything. My heart is with you and your family in such suffering is something that really breaks the heart. But hope remains in God.
That he will compensate you for all of this in paradise. .... Mohammed from Saudi Arabia
talak56 1 year ago
I hate my life because my mom has it my nana has it. my parents are getting a divorce, my grampa(who i never met) was a drunk and abusive. my dad hates me and i cant live with my mom because of the disease.
brett4875 1 year ago
I'm sorry dude, that's terrible.
ianborn 1 year ago
My aunt and grandfather both died of this disease, it's so horrible.
DelorienAz 1 year ago
Does the pregnant lady not realize that kids/teenagers can start with the juvenile form,it may not have 40 years!
Blondie1973pdb 1 year ago 3
@Blondie1973pdb And it gets successively more aggressive through generations. A lot of patients, even without the juvenile form, experience syptoms in their 20s.
ahfafa6892 1 year ago
@Blondie1973pdb she might realize that, but age runs in the family. If her parents had it at 40, she'll have it at somwhere around 40, and so will her kids
gfaden 1 year ago
I,m A Care taker of a woman with huningtons,it is very Devastating!! my girl is in her Last Stages,of the Disease!! She,s only 38 years old!! Thank you!! for getting yhe information out to the world!!
genie44420 1 year ago
Thank you for this info. I have HD and we live in Sherbrooke Quebec. Any ideas on how to start a support group would be welcome. The Quebec HD society do not know of anyone affected in our town of 150,000 residents. How can we find out if there is a need?
Cabeese 1 year ago
i am a care giver ( husband ) to a huntingtons patient.....i need chris to get in touch with me..people canada,, (AND ALL OVER THE WORLD)
also fights this horiffice disease
amberjadexxx 2 years ago
i wonder how he is now?
SWF90 2 years ago
i know that what im going to write may be inappropriate but i couldnt have a child if i was sure to have this disease or any similar one. i know that everyone needs hope and stuff but i couldnt do this to my child
fbuch123 2 years ago
not inappropriate at all. everyone has a right to who they are and what they want for their child. I would totally agree. I would not bring a human life into this world knowing if the child had deformities.
panhead88 2 years ago
Well guess what ????sometimes you don't know. Somtimes thats what God gives you and the real right thing to do is accept it and love the child anyways.
misswishstorm 2 years ago
sure you have a point. glad to hear other perspectives. nice singing btw :)
panhead88 2 years ago
you don't know if she loved the children or not... only God does.
icemanarc 2 years ago
fuck god
StarvingNiggers123 1 year ago
Comment removed
misswishstorm 2 years ago
CAG trinuclotide repeat cause (Caudate nucleus atrophy + ACH &GABA depletion thats why they can not control jerky movements .
dinamore2005 2 years ago
@dinamore2005
Hi Dina. You're correct to bring up CAG repeats; however I do feel the need to clarify.
The extent to which CAG repeats (not its presence) is used as a diagnostic to determine likelihood/onset of Huntington's.
The jerky movements are caused specifically by the gene encoding for abnormal huntingtin protein. The function of normal Huntingtin protein is still not entirely understood, though it is speculated it has a protective role against apoptosis (cell suicide).
Joe22c 2 years ago
my heart is out to all the family and friends of whom suffer this terrible disease, stay strong and charish the time of this fragile precious life we have.
anmariski 2 years ago
my mother has it, i have 50/50 chance of having it
hsspink24 2 years ago
my mother has had this disease for over 18 years and it is a terrible way to live. She is hanging on in a rehab center and I got the genetic testing and do not have it but my brother refuses to take the test.....
fattycheeks 2 years ago
do you know if you carry the gene yet?
hsspink24 2 years ago
I'm lucky, the gene was not transfered to my father so I don't have it as well. I know all to well how quickly this disease takes over a person. 15 years ago my grandmother knew my name, 5 years later she is in a nursing home calling me Kelly and unable to stop bodily functions. She passed in 2006 probably being one of the oldest survivors of the disease. I am in school now and I will join research in curing this disease. My uncle was unlucky.
jillianonfire 2 years ago
This breaks my heart!
I empathize for all who have the disease and those who love them!
happynurse63 2 years ago 7
My mother passed away from this.
WickedBoi 2 years ago
I am sorry!
I hope you are doing ok.
Peace & take care!
happynurse63 2 years ago
Thank you for your condolences. I am 24, and so far, so good, though I haven't been tested. It's expensive, and I'm a little afraid.
WickedBoi 2 years ago
@WickedBoi
How?
o0ozy 2 years ago
How what?
WickedBoi 2 years ago
I can't imagine how scary it would feel to know you will end up like that. Dang that's terrible.
Cherri3x3 2 years ago
i so agree with Chris im 15 and im studying huntingtons and it seeems hard for someone to go through people need to stop laughing and acually relise that, that person might need help with something they dont no that, that person could die of a neurodegenerative genetic disorder. more people need to be wary of this and other diseases too.
X0ellenandportia0X 2 years ago
Google is your friend...
toomuchyonke 2 years ago
Toomuchyonke. Your mind is full of Yonke. If you MUST have another child Adopt. Otherwise you just being selfish and gambleing with the future of your children just because someome told you it might work.. Go ahead a hurt yourself instead of your unborn children.
nelkster 2 years ago
i dont understand. the prevalence is 7 per million. how are there 250,000 in the u.s. with the disease?
cspj12 2 years ago
I get that these people lose the control over their body, but what exactly leads to death? Choke? Muscles??
GalooGameLady 2 years ago
@GalooGameLady
Usually pneumonia is proves fatal for many people with HD. The chorea causes difficulty swallowing and this can lead to aspiration of consumed food. Also heart disease and malnutrition are common in HD.
pkeetingphd 2 years ago
Most of my friends are dying of this disease, Its a hard thing to understand yet it is something that they cannot run from but to face off. it makes life unfair, because these are beautiful people who end up in the worst case scenario of themselves. But I still believe that there will be a cure, its the only way for me to see that they die so that others will live ... GOD BLESS all of you dudes
haljordanphil 2 years ago
My mom just recently turned 44 and she has had huntingtons for 10 years. It's just devastating for everyone in the family, I'm 18 and my younger sister is only 16, life has been unbearable for us growing up. i remember when I was little my mom told me that she began seeing symptoms in herself when she was only 20. sometimes, when I think about it, i can also see the early stages of symptoms in myself, but I'm scared to get tested.
1000nicoleo 2 years ago 9
@1000nicoleo don't give up hope get tested and if it is positive do all the things you've been afraid to do and enjoy life
XDCaptainAwesomeXD 1 year ago