Added: 4 years ago
From: Rigadiaz
Views: 21,896
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  • People hear you, man, even when you have passed on.

  • You are on absolute inspiration to everyone. You make other people feel ashamed! 

  • God bless you Rafael! You are an inspiration to so many people.

  • RIP, THANKS FOR THE INSPIRATION.

  • Hi Rafael,

    I accidentally found your video and could not stop watching it.

    You are such amazing, beautiful, and strong guy. As you said, you want many people to know about you and I live in Tokyo, Japan.

    I also read one comment which says you past away....I was very shocked and sad yet your amazing videos will survive here on You tube. You left amazing gift to many people in this beautiful earth.

    Thank you very much and god bless.

  • Comment removed

  • What an amazing young man.. He should be an inspiration to the handicapped and able-bodied alike. After seeing him and others with SMA, I think we should all complain a little less and embrace life a little more. RIP Rigadiaz.

  • God Bless you Refael. R.I.P

  • God Bless you Rafael. R.I.P

  • you are my rolemodle dude i love you rip and god bless you

  • More power to you brother.

  • You are a beautiful person! Thank you for making this video.

  • Thank you for making this video Rigadiaz!

  • Keep positive ppl, thoughts and comments in your heart and mind.

  • I have SMA II as well, and I'm starting to panic because I'm turning 24 next month and the life expectancy (as I've been told) for SMA patients was 30...I'm so glad to see you here at 36, it gives me a lot more hope!

  • It's sad that he passed away last year, but don't let it discourage you. I am 46 with SMA and I am still alive.

  • All my best for you, there is hope, just don't give up.

  • I am a disabled person your videos are

    great. God Bless You

    one day I am starting a group of disabled wheelchair users, blind, deaf persons who are true advocats who will get ADA laws passed in all states with lawyers fees paid and $10,000. per vilation and no limit on law Suites for truly disabled folks

    many places are not accessible 19 years after ADA. Another thing end Medicaid funding to nursing homes and fund care in ones own home, this must end to end instutionization of the disabled.

  • R.I.P. Rafael god bless you

  • God BLESS you, Rigadiaz! You are a TRUE inspiration!!! Feel the love we are sending YOU!!! :)

  • Keep doing your videos man, God bless you bro

  • I am glad you found me, Ralfie! You are an inspiration! I look forward to your point of view and your take on life..I believe you will be enlightening...Peace Love and Light New Friend

    Crystal

  • great start to your series. you sound very intelligent and outspoken. i am very much looking forward to watching more of your videos and hearing more of your thoughts and also knowing more about your life.

  • Legend mate, i have SMA too

  • Hey Raf! I am so glad that I have found you hear on youtube. My name is Tyler, I am 33 years old and have been a quadriplegic for five years. I look forward to watching your videos and making comments on them.

  • I like your point that everyone is the same! Some people ARE uglyer then us. You gave me so much hope! THNAK YOU!

  • Rafael, my friend Trocchia told me about your presentation.

    Congratulations my friend,

    Sefardisafran (Luis M Mendes)

    Hoboken NJ

  • oh and if you have any advice for me, pleaseeeeee! i welcome it :)

  • Rigadiaz, you have truely gave me hope. i have a 11 month old son with type 1. it is a very different life style then what i was expecting when we had him. but any ways thank you for posting these videos, i think it is one of your many ways u help people.

  • wow ur a very brave soul and its so cool that u put up wit wat u do! bravo!!!

  • Comment removed

  • I don't think that all people that look at you, think you are ulgy, there looking because you look different to us, and they wonder why? Its not cuz your ulgy, not at all.

    It's just a learning thing with us human. Good luck. And god bless you.

  • thanks champion!!!!

  • Wonderful video! God Bless!

  • that part about the people looking at you and how they even look uglier half the time made me laugh

  • What games do you play, Rigadiaz?

  • Hi my name is Kalena I am 27 years old I am married and have fice wonderful children. I am also disabled but I have a heart condition. I like your video. You sound very sweet if you have face book you can add me and we can chat. I would love to get to know you as a friend. Send me a mail on here and let me know if you wanna be facebook pals.

    God Bless Kalena

  • thank you sooo much am subbing as well as invite if you like...Zoom Zoom=)=)

  • hi, i have sma also if u ever wanna chat =]

  • "Some of you are uglier than we are". You made me laugh.

    Hi, I'm really happy I'd be able to hear your opinions and other things. I will be subscribing.

  • Just cam across Your channe, will be checking it out  Have a great weekend ;0)

    Roberta

  • God bless you and thank you for making this video so person can talk more abou SMA I had a baby with SMA too.You are so lucky because you have 36 years

  • Thanks for the share Babieisis,

    I will be looking out for more videos .

    Zulu.

  • God bless you man, you speak the truth about the people who do not understand about the handicapped, thank you for subscribing to my vids and I will make sure to subscribe to you.

  • You are amazing and I luv ya already! <3

    You are very special and hope to hear more about you! :)

  • ur great spirit lifter

    GOD BLESS :)

  • Hey buddy, I will be making a TV Channel for all of these videos on my News Site.

    You are awesome. :)

  • im really happy you made this video. now i can get to watch all of your videos and get to know you better. thanks for making this video!

  • you are a cool guy - thanks for sharing your thoughts. I have similar dreams.

  • keep up your dream. it will happen, i promise. ur a really nice guy and have a strong spirit.

    GOD BLESS YOU.

    :)

  • ur so cool i look up to you . and i know you !! thats ur dream!

  • Hey there! I love this video! You're an inspiration.  I came to YouTube feeling sad today. I have FMS and was having a bad day. It is amazing how insignificant my problems seem compared to those of others like yourself. Thanks for making me feel better!

    Love & Hugs,

    Kali

  • I am so happy to make you feel better. Hope you like my other videos

  • i love this video

  • ciao Rafael :) you rock!

    hugs from italy

  • hei watsup?...

  • hey what's up how are you?

  • God bless you!

  • God bless you! Never lose your spirit! :)

  • Hi there. I am here as a friend if you will have me. You are a beautiful person...

    Hugs,

    CHRISTINA

  • big up xxx

  • HEY RAFAEL!God bless u!and hope all is well!^_^ take care!

    with love,Josie

  • Thank you Babieisis2 for the great share

  • Hi Rafael,

    I am very glad to know you and your great encourage for life. God bless you always and keep youe sweet personality and wonderful motivation.

  • Hi Rafael

    You are a living icon of courage my friend. God bless and keep you !!!

    Thank you Babieisis2 for the great share. He is truly an inspiration.

    michael

  • ur so sweet

    u roc!

    btw i'm so subcribin'

    luv ya, Naomi

  • hola ralfie como estas, my name is luis. and i noe wut life with that disease is about. my 3 of my cousins have the same thing u do. people laugh n make fun of em everydae. n i tell em to keep they heads up.. ill make sure i show em this video because i noe u would b a inspiration to them. god bless u .

  • ralphie awesome man,we will get to you know brotha....you keep it real...you are just like us...everyone is equal regardless...ahahaha and LMAO at you talking trash on ugly people hahaa what video games do you play ralphie?

  • Hi Rafael,

    You are a courageous spirit and I'm very honored to have met you here on Youtube. I'm very, very impressed with your determination to share your thoughts and feelings. It's so basic to human nature to communicate and feel visible! You are very visible!

    I see this was posted in July of 2007. I'll have to see where you've taken this venture with youtube up til now.

    I send you energetic gifts of love and healing. May all your dreams be fulfilled.

    Hugs,

    Diana

  • hey ralfie whats up, ive already seen about a dozen of your vids, because of babieisis, she watches your vids a lot, you are truly talented, funny and very blunt, and I like that. keep doing your thing, stay blessed.

  • Wow! I think you're really cool! I've seen many stories of kids with SMA but not many adults. I'll enjoy all of your videos, I'm sure. Thank you for posting this. Do you have type I or II?

  • You are such a beautiful person, I will be looking out for all your vids, stay sweet and God bless you

  • Hi! I am a 16 year old girl who lives in sweden. I have also Spinal Muscular Atrophy, type 2. I like your video very much, keep it that way! If you want to, please answer. I would be very happy if you did. //Emma

  • YEAYA technology is awesome!

    ur vids are cool man.

    mucho respect.

  • good video man keep at it

  • Hey man, this is great! I'm glad you can do this kind of thing and we can gain some insight. Stay cool!

  • man your utube is great ,my friend has sma type 2 am going to show him your site so he can lasten to you,keep up the great work,your the best,Will UK

  • Ralphie,

    I am not home until Thursday evening. I am sorry that I missed your call but try to call me on Friday OK?

    Ashley

  • Wow.

  • respect!

  • Hi Rafael.

    We have seen your video and wish you well !!

    From Lisa and Rupert in Denmark

  • Hombre eres toda una inspiracion para la humanidad, espero que se cumpla tu sueño y que dios te bendiga.

  • i like the idea..i hope u get plenty viewers....i worked in a home for people with simular illnesses before..i know what u mean..it hurts me when ppl react the way the do to that

  • I agree with you... Internet has connected us, the physically challanged with a world wider...

  • You have a very nice engaging voice. I look forward to finding your other videos. This is the first one I've seen.

  • Eres una gran persona.

    Gran fuente de vida e inspiracion.

  • Wow! Your so cool! Keep moving foward and live your dream. SO what about your illness no people can say that you are weird. Be cool :) cuz U are cool

  • U ARE AWESOME!!!

    I HAVE A VERY VERY good friend with sma and u are an inspiration.. they told him that he wouldnt live pass 12 and now he has made it to the age of 15.. i cant wait to tell him about u.. I cant wait for the world to know u :-)

  • Thank you for speaking so candidly!!

    I'm an advocate for people with extensive physical disabilties, many of whom are not able to verbalize like you can. I go through hell trying to convey that the people I work with, my good friends, are PEOPLE; that they are thinking, feeling human beings whether they can or can't walk, speak, eat, or breathe on their own. Please continue expressing yourself, you can affect countless people and hopefully they will begin to understand!

  • Hi!

    I look forward to getting to know you and learning more about SMA!

  • wow my dad died of als witch is not 100% like this but your amazing and i respect you alot :)

  • Yo, nice vid, I like it, the idea of your life... keep it up! I subscribed ;-)

  • Hey Rigadiaz, My son had SMA. I am in Law Enforcement now. I so admire your courage. I look forward to watching your other videos. You are my role model sir.... I only hope I can live up to your standards...

  • I am physically disabled as well. Way to go Bro, I love what you said about people staring kick some ass. I know what you mean about living a normal life. I personally work at a restaurant, and a hospital. and one the other days of the week I go to school. I love having a busy life. I play tennis and swim as well. Keep up the good work I support what you are saying.

  • dude that sucks i wish i knew what it was like because this is so sad. just inspiring

  • Wow you're amazing!

  • Muy bueno, excellent. I have MS Progressive type. I know what yu say, hermano, be ell and survive.

    Sefardisafran

    Hoboken NJ

  • Rafael loved your video SMA is a bitch and we allknow it, I have MS very advanced so that means there are many like us we don't make enough RUIDO so ELLOS would listen!

    SefardiSafran

    Hoboken NJ

  • Keep rockin' Your message across the Net/World mate, I have SMA Type 3 and am damn pleased to see people like yourself/myself taking down the blinds of ignorance in which society holds to the disabled. And I LOVED the part about "no your Monitor is Fine I really do look like this" or something of the sort; very Hawking-esk humor... q^)

  • I look forward to learning more about you. See you soon.

  • Part 2 A person isn't who they are physically a person is defined by their soul! I can tell by how you express yourself and how you put your ideas together that you are a mature man. Even us regular people have a hard time getting the respect that is due to us. I agree with you that you deserve more respect and that you shouldn't be defined by your disability. All the best my friend. Let's keep in touch. Brad.

  • Part 1 Hi Rafael. I don't think you video taping yourself is in poor taste. I always thought of myself as spiritual and a caring person but it wasn't until Shira came into my life that I really understood what people are made of.

  • Hello my friend. I am Shira's father. You can see her video's online at youtube or visit her web site at asonginthisworld com you are an inspiration to all of us! I look forward to learning more about you. All the best. Brad.

  • Dude, i dont like the your porteying yourself here. Yea telling them what's up but you aint showing them what's up. Whta exactly is your goal? I fyour really want to show them who you really are then your gonna have to do just that.

  • "Some of you are uglier than we are." You made me giggle so hard! (Even though you aren't ugly, at all. :) )

    I look forward to your posts. I lost a net friend with SMA over the holidays, and I've always been curious as to what he went through.

  • i love broadway shows too

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