Matt's MS - What it's Like Living With Multiple Sclerosis Part 2

[antiquesman2606]

Hope it goes well for you – I know all about the MS pain and the lack of mobility

[sleekcartim]

you had to mention pain (sigh) was trying to block that out... I have nerve pain in hands / forearms, foot. typing this is painful, i feel it in my fingertips, have to keep switching hands driving, cuz my hands / forearms fall asleep, tingle turns into pain & hurts like hell. sorry for unloading. Just got disability lawyer, her mother died with MS (random connection) theres no way i can work with these issues. I suggest you get on disability, there are lots of advantages to get documented early

[mattalleng1990]

@sleekcartim I applied for disability a while ago, got denied and (cant think of the word_ contested, objected, something something something, I tried again so now Im just waiting. I have an attorney as well. Maybe since yours has a connection to MS they will work harder to help you?

[sleekcartim]

@mattalleng1990 im sure your lawyer has told you it's difficult to get on disability with MS. Mine doesnt have high hopes for me, untill im practically in a wheelchair. you have a diagnosis, so ur better off (lucky? you). Social security is under great pressure, with bad economy & all, republican influence has created a very conservative atmosphere with regard to granting disability. she will try harder than most of her cases, cuz she knows this hell intimately. at least im getting state $

[mattalleng1990]

@sleekcartim Yeah I know, damn republicans and all their money. If a republican makes it into office this coming election Ill be damned.

[TubeTrollster]

I wanted to ask you about yer cold sensitivity that you say you have in this video...I have the same thing...I can't stand like grocery stores or being outside when it's below like 70F and a/c that is too strong. I also have fatigue and muscle soreness that I get. I've never had a diagnosis, just thyroid checks about a zillion times that are always normal. What test did they base your diagnosis on, or was it based on symptoms? Thanks for any info. Yer really cute btw ;)

[mattalleng1990]

@TubeTrollster Well here is where it get;s tricky.... I actually like Most MS patients I have a heat intolerance so I LOVE low temperatures. I want to move somewhere that snows. Its only when a cold object TOUCHES my skin like metal, glass, or cold water splashing on my skin. Its the shock of it that hurts but once I submerge myself in say a cold bath I get used to it and it feels good. REALLY odd....

My diagnosis was based off a positive spinal tap and a supporting MRI.

[TheVillain365]

hey matt, how are ya! yeah definitely, that would be awsome, please do send facebook, always good to have people to chat with about this kind of thing.

[mattalleng1990]

@TheVillain365 actually woke up feeling horrible;e. Vision s bad, balance is bad, can't type to well, ugh, I was hoping to find a job this month but looks like Im stuck on disability, i don't know we will see how the next few days go. click on my blog link right below this video and on the right side column scroll down and click the facebok l9go and it will take you to my page.

[TheVillain365]

excellent vid, thank you. im currently in limbo, not that fun, im getting all the symtoms at once it seems, your advice is helpful

[mattalleng1990]

@TheVillain365 Thanks but sorry to hear your in limbo, the waiting game is the WORST when it comes toi MS.... Hit me up anytime. I can send you my blog and facebook info if you want.

[2klx2]

why are you videoing this? did something happen to you ? postramatic stress sindrum ? srry just askin

[mattalleng1990]

@2klx2 Umm.... I don't know how to answer this question lol... The title itself should explain to you why I am filming this. Also my blog and yeah everything is pretty self explanatory.... I'm guessing you DON'T have MS or know anyone who does haha....

[BrandensAtom]

Hey Matt, great video. I'm wondering if you ever experience severe brain fog andif so, how long does it last usually?

[mattalleng1990]

@BrandensAtom I am not tottally familar with that symptom, brain fog? Can you elaborate? Ill research it tomorrow in case you dont get back to me by then, if its some kind of cognitive issue then probably yes, my memory is horrible and I loose my train of thought, in fact, I would say the train is no longer even on the tracks.... Ill look into it tomorrow and give you a detailed answer. mattsms.blogspot.com

[BrandensAtom]

@mattalleng1990 What I mean by brain fog is trouble thinking, head pressure and memory loss. I'm experiencing severe brain fog and I'm wondering if there's anybody out there like me? I woke up yesterday morning and couldn't move my hand muscles for 10 minutes. It's crazy, but it's great to know that at least someone out there has a positive outlook.

[mattalleng1990]

@BrandensAtom hmm well yes and no, I dont have any muscle issues but my memory has gone out the window and i have a hard time thinking, i loose my train of thought, forget what I'm doing or where I am going leaving me standing in the hallway confused... Its been getting worse so I was actually going to start researching that, Keep an eye on my blog because Ill post my findings soon.

[mattalleng1990]

lol oops! I am actually relapsing again so my typing is clumsy lol but thanks!

[mscavsfan]

I'm so happy for your progress!!.mental and physical!

(you may or may not have noticed you spelled living wrong)

keep it up!