CCSVI & MS - The day after the open forum..MOD

[derekdadey1]

Call CCSVI Clinic; (404)461-9560 to schedule your screening today in Fargo, ND or email us at apply@ccsviclinic.ca. Yes, get screened within the US. No waiting….find out more at ccsviclinic.ca

[notapplicable66]

I recently noticed when I quit taking vitamin D regularly like I have been during the last few years that I just didn't feel right and I noticed I was more aware of my MS and the symptoms that I carry with me daily.

[notapplicable66]

It's not surprising that the "anti-CCSVI groups", (is what I call them), would resort to false numbers to support their other misleading treatments or methods.

[notapplicable66]

Another thing ponder......If CCSVI is caused from twisted or clogged veins leading from the brain to the heart where the blood is not flowing properly and too much blood stays in the brain. (Which becomes toxic.) Then that would mean not enough blood is flowing or circulating back to the heart. Then that should mean that every person with CCSVI must have a weak heart or have some sort of heart problem. I know that my heart isn't normal. And that was even before I was diagnosed with MS.

[irishbear76]

@notapplicable66

You are right. It would cause the blood to thicken waiting to get pumped through the body. The blood would thicken possible causing some cardiomyopathy.

This also happens with sleep apnea which makes me think I know where the 10% wihout CCSVI but MS are coming from. Of course, I have no means to do any clinical trials but I have some staggering anecdotal evidence from talking to people across the world.

God bless, brother, and keep turning over stones.

[notapplicable66]

Things to ponder....They say 25% of people with CCSVI do not have MS. My answer to that is, I believe that these 25% with CCSVI their immune system is not as strong or as overactive as the people with CCSVI who have MS. They say only 55% of people of people who have been diagnosed with MS have CCSVI. So what about the other 45% who don't? My answer to that is, do you know how many people who have been misdiagnosed with MS? A lot of different illnesses mimic MS symptoms.

[irishbear76]

@notapplicable66

These numbers are rubbish. Dr. Zivadinav admitted that the Buffalo Study did not use the proper technique. That is the problem with the numbers. EVERY person who has used the Zamboni protocol (catheter-led interventional venogram)

The REAL NUMBER is closer to 90% of MS'ers have CCSVI. (THe 10% I would like to have sleep studied but one thing at a time :)

The participants had CDMS. Clinically defined no chance for misdiagnosis.

[kkkkkkatherine]

Thank you Mark for all your videos, research...!

Just because MS Patients may need Angioplasty this debate arises! Stenting IS NOT a NEW uncharted territory....

Renal Dialysis Patients GET Angioplasty of Veins and Arteries...no big deal!

Why can't MS pts with stenosis of Jugulars,etc GET Liberation Treatment!!

Please research...

radiologyinfo --- angioplasty

I have renewed hope to approach Local ITs --

[irishbear76]

@kkkkkkatherine

I mostly wish that a stent was developed specifically for the iJ and AZY veins instead of using stents designed for arteries.

The actual procedure of placing stents and doing angioplasty is well established and safe as any other invasive procedure.

[notapplicable66]

Doctors knew for years that people with MS have too much iron in their brains. And for some strange reason they didn't think this was important. So it makes sense that there is something wrong in people with MS with blood drainage. Kinda like having a plugged up sink. Gee I wonder what would happen if you left your sink all plugged up. It would make a nice bacterial cesspool would it not? Imagine that going on in your brain. What do you think your immune system is going to do??? Attack!

[notapplicable66]

So many neurologists don't want to get on the CCSVI ban wagon because it would explain MS being a rather simple and not a complicated disease. It would also show them as being incompetent for having overlooked this for so many years.

[fridayfc]

What was your perspective on the wanker at the forum with the 'comment not a question' arguement? Zamboni handled his response well but the jerk wanted to come at him again. What was that all about?

[irishbear76]

@fridayfc

It was a guy from Wayne State University in Detroit.

He was basically arguing with Zamboni about his the iron deposits in CCSVI.

The guy from Wayne State was saying that Zamboni's interpretation was wrong. Zamboni explained how his interpretation of the iron deposits are correct and why. Basically, the guy was challenging Zamboni because he does not interpret the iron deposition to be anything extraordinary while Zamboni is convinced it is.

[LucianoFV13]

Search Walk for CCSVI

[laurenvparrott]

Hey Mark! Thanks for your video! I also watched the open forum - you're so right about Dr. Zamboni!

All my best to you and your family - I hope your wife is doing well!

Lauren :)

xoxo

[haiqin]

I love how you do all the footwork in researching things. I like your videos so much. I think you've got a pretty good head on your shoulders, and I end up being fairly knowledgeable after just watching a few minutes on your YouTube channel.

I knew more than my neurologist about the new meds, thanks to you. And he had never HEARD of CCSVI ... or was he just pretending? ;)

[tazscott14]

Hi Mark, Thanks for the video. You made some really good points. Why isn't the Liberation Procedure looked at in this way, if a person's veins show some abnormalities, why can't they just be corrected? I don't know what to think or believe from the medical profession. I have heard so many times that there is no drug for SP and PP MS, but yet I am still on Avonex. I was just recently told that I have SP MS. What are we to believe?

[irishbear76]

@tazscott14

Many people with SPMS continue to take the CRAB drugs; however, the efficacy these drugs show is in the relapsing remitting MS subjects.

The real solution I see to MS is to be liberated, PERIOD.'

Keeping this from the people is like keeping a baby from it's mother's breast.

It is just plain WRONG.

[tazscott14]

@irishbear76 So true Mark. The real question is- What are the true reasons that they want to keep this from us? Is ti that they feel that they are the professionals and have all the answers or is it for the money? I think they have known for years and this was not supposed to come out. They need to forget the past and look toward the future. I for one am ready to forget, but the forgiving will take a very long time.

[irishbear76]

@tazscott14

I share your suspicion the longer I watch this thing play out.

Of course, I have always been a bit of a conspiracy theorist anyway :)

[omexmc80]

Thnak you brother.. you did a great job..

Omar

[irishbear76]

@omexmc80

Mucho gracias, hombre!!!

[33rojrsr]

Keep going Mark ! Thank you.

Rick.

[irishbear76]

@33rojrsr

I do very much APPRECIATE your support.

Thanks!!!

[SRainbolt]

Best video so far *TWO THUMBS WAY UP!* hehe

[irishbear76]

@SRainbolt

Thanks.

Just reflecting on some of my perceptions from the meeting.

I really enjoyed seeing this talked about, though!!!

[auntoni51]

I want to say that this video is point on, my friend.....You have so clearly gotten out the message about all the negativity being received about ccsvi and the liberation procedure.....this makes people in the medical community have to wake up and see this isnt going away and is such a positive step in the right direction for us all...GOD bless you!!

[irishbear76]

@auntoni51

Thanks for being one person in the world who doesn't think I talk too much :)

God bless you too.

Warm regards,

Mark

[donotconcede]

Thanks Mark :)

[irishbear76]

@donotconcede

No problemo.

[kezzcass]

Hey Mark, I don't know how they can do placebo procedures by not blowing up the balloon (you know if they blow it up - ouch!!!) How can they not inflate it without you knowing?? It is a hard thing eh, to have a narrowing, have the wire inserted and not balloon a stenosis - seems like such a wasted opportunity! Great vid, Kerri x

[irishbear76]

@kezzcass

Yeah. Seems kind of absurd, but the only way I can think of doing "blind" intervention would be inserting the catheter without inflating the balloon.

The funny thing is...they could anesthetize the control and the actual group; however, this would cause more risk (due to reaction to anesthesia) And the safety would be lost. How would one even blind someone to having a balloon inflated IN THEIR BODY LOL

[kezzcass]

@irishbear76 In my case, I was told you have to be awake because it is important for you to be able to tell them if the pressure in the balloon is too much to take. They can then deflate it and inflate it again to gently stretch the vein. Anyway my opinion is they wouldn't do a blind test on other forms of interventional treatment - if there is something wrong it seems unethical to see it in a venogram and not treat it.

[irishbear76]

@kezzcass

I know it is absurd right?

They just need to do the damn procedure!!!!!

They are not hurting anyone from doing it ,but they are assuredly doing major damage by not doing it by letting people slip into deeper and deeper into disability.

I am SO FRUSTRATED KERRI.

God bless you and please pray for me to get my temper under control :)

[codefellow]

@irishbear76

As I see it, lets suppose I have something wrong with my veins but I have no symptoms that can definitely be linked to the problem with my veins. In that case, surgery to fix the "problem" would be unnecessary and therefore unethical. Unfortunately, at this point, any problems one is having can be linked to MS without being linked to CCSVI. Don;t get me wrong, I believe in CCSVI and I am sure it will be proven soon. But I do understand the doctor's caution.

[irishbear76]

@codefellow

Improper drainage of the cerebral veins is a major problem.

Let's say your appendix is inflammed, but it has not burst or caused symptoms.

Would you not advocate for the removal of this unnecessary veriform appendix?

The risk of having it rupture in the future and possibly cause perotinitis. The appendix can be inflammed for a long period of time, but it never ends well.

If you see a problem, fix it.

Take a proactive stance with CCSVI is all I ask :)

[vbeachy]

Yep...Yep and Yep, Mark. You nailed it...as usual!

[irishbear76]

@vbeachy

Thanks Vern.

I am always assured when you approve. Your opinion means a lot to me.

Mark

[vbeachy]

@irishbear76

Thanks Mark...I am humbled. Your research and knowledge make mine look pedestrian in comparison. Keep up the good work!

[qualisarx]

I reaaly liked your video! I decided against the liberation proceedure in Buffalo. I am heppy with my decsion and the attention this has caused. I concur about the holographic Universe as you are well as you are aware of how bio-feedback works as well.

[irishbear76]

@qualisarx

Good to hear from a like-minded person.

Keep truckin' brother.

[MSVlogSupport]

Great way to break it all down Mark. Thank you

[irishbear76]

@MSVlogSupport

Thank YOU for watching.

Take care Andrea.

[MsGirlOnline]

Your video was way shorter then mine lol!

Thanks for this, i was looking forward to your take on it!

Take Care, God Bless

Maria

[irishbear76]

@MsGirlOnline

ahhh..BUT your video was better.

You ran down the entire conference and I agreed with everything you said.

I will be adding some annotations so try and watch this vid again in a day or two.

Thanks for visiting.

MaRK

[Fidlo22]

Every time I watch your vds it's giving me some kind of a strength, thank you. The link doesn't seem to be working:(

[irishbear76]

@Fidlo22

I have to say what you wrote has given ME strength. Sometimes I wonder why I do this and every once in a while someone writes something like you did.

God bless you.

Mark

[Fidlo22]

@irishbear76 Well.... for people like me who tend to only feel sorry for themselves and think every day that: " I have MS...why me....I'll be disabled one day" to see a person like you, who have this strength within, who fights, who doesn't give up. Thank you very much and keep posting vids:)

[irishbear76]

@Fidlo22

I fixed the link. It works now. Thanks for pointing that out.

[thepasture]

great thoughts. I like your perspective on placebos.

[irishbear76]

@thepasture

Years of reading on the subject and working in the health field have revealed one thing to me.

The most powerful medicine is a persons WILL to be better and positive attitude.

It works for many, not all.

There is some research to point this out, but things are so subjective it is hard to analyse data on the healing powers of the mind.

[ChaozFear]

god bless you :O)