I have a kidney from my sister for 8 years now. I want to be a positive thankful person. Some days I can be but my depression has gotten out of control. I'm debating suicide right now. No one can help me, not therapist, not family, not friends. God help me. My life as turned out as a failures life would, I wanted a family of my own so bad and doctors told me I can't have children. I'm watching all my siblings and friends along with celebrities having babies and it's the hardest thing on my heart
Very good video! I am also kidney transplant but I'm a total of 48 pills a day for varies things due to issues from kidney failure and the kidney transplant I have a total of 15 bottles of pills. Prograf I am taking 11 pills total every day and I'm on Myfortic 4 pills total every day and 4 mg grams of steroids every day. My transplant was in 08 but still my pull dosage is high my creatine is 1.4 sometimes it is 1.3. Be blessed and take care.
Bringing back old memories for me .. I was transplanted 21 years ago and stil going strong! Google: Transplant To Handplant fo more info. God Bless You.
I got my transplant in 2009 and I take more medication than that shown. Because I have Lupus also. Those Anti-Rejection medicine is so expensive, but I rather pay for that than being on dialysis any day.
@ilovenoy thats how I lost my kidneys also by lupus. I had my first transplant in 1991 when I was 18 and it lasted 14 and a half years. I had my second one in 2006 and am doing very well but has anyone had any problems with prograf giving them panic attacks.
I should point out that this was _right_ after the transplant and that after a year I was on 4 pills in the morning and 4 in the evening AND that the dosage was much lower.
i am a fourth semester nursing student and we r to discuss transplant this evening in class...my heart goes out to all of you who commented, and to the genteleman who shared this video (it's part of our lecture a Sacramento City College). I would just like to say to "NickJonasMyHotLoVer" stay ebullient and don't let those feelings get you down. I am a JW, and I know that Jehovah will soon take away ALL sickness and death, Christ died for us to have the same privelege Adam and Eve used to have
I would leave out the stool softener if I were you, it can be very dangerous. There's a video on my channel showing the negative repercussions of stool softener, check it out.
I remember this... I had a kidney transplant in 2001, then a cancer in 2007. Chemotherapy was used for cancer, forcing me to stop taking my kidney rejection medicine. I no longer take any sort of anti-rejection medicine, and my kidney has been healthier than it has ever been post cancer treatment.
Doctors now want me to go back on medicine, however, but I know my body and kidney are healthier without medicine. The side effects of long term immunosupression scare me
u take lot of madicine man.... i had my transplant this yr in feb. and i m on prograf, myfortic, prednisone and pantaprezol....
its been over six months for me..... but still now and then i feel pain in my stomach where the new kidney is..... is it normal?
i m really worried abt getting an infection..... coz of these immonsupresants ..... now its swine flu..... god i don t wanna pick up no nasty sheet nomore....
i had my kidney transplant last july 29 2009,im in the hospital for almost 3 weeks because my creatinine is always in 1.7 to 1.9,still im not sure if that's ok but i'd rather take a lots a medicine than dialysis,anyways hope my new kidney will work well,thanx!
Your medicine should taper off after 6-9 months out until you reach a maintenance dose. As your dosage comes down, so will your Creatinine because the immunosuppressants are nephrotoxic.
anti rejection drugs here in our country philippines...is very expensive...most dialysis patients here would rather choose not to go on transplant operation because of the high cost of these medicines.....i take neoral 100mg...imuran replacement for cell cept , prednisone and vascor for my hypertension....i im on my 10th year now....GODis really great..praises back to HIM..i am 49 now...and enjoying life.
I was first on dialysis when I was 16. Then Kidney transplant. Then dialysis again when I was 27. Peritoneal Dialysis and then Hemo Dialysis .. this time around dialysis total for 6 1/2 years then kidney transplant in 2007! You are right, I counted 30 pills I took a day right after transplant (I am rounding off because I don't remember exactly anymore). Still take quite a bit and found out I am allergic to Tacrolimus!
I've dropped some of the pills and will drop a few more in 6 months. I'm thinking about switching from Tacrolimus to Cyclosporine (even though I'll be taking a small dose of prednisone as well).
I'm really sorry that you had to have a kidney transplant so young but I'm also glad that you're doing so well now.
that really sucks!!but i guess thats what we have to go through, if we want to live another day.i am gonna get a kidney transplant probably in december and i wanna ask you.what do i need to look for while in cirgury?? how many days did you have to stay in the hospital after the cirgury??and how long is it take to go "back to normal" as far as......you know.... living your new life.
I made a video about the surgery and the recovery (see my other videos). It has been two months and I'm going to follow up with another video (stay tuned).
I had a kidney transplant 2 years ago, I was in the hospital for 5 days after. I was up and doing semi-normal things in about 1 week and then perfectly normal within 2-3 weeks. I was 21 when I had my surgery. Hope this helps!
I subbed to you. You won my heart. We're on the same dose of prograf! Ok... Your pill case is WAY too cool...
How are you handling the Cellcept. It was really hard on me, so I take Myfortic (a coated version of Cellcept). Zantac doesn't help me at all. I take Nexium for it. Do you like the Valganciclovir?
I'm happy to meet you, and I look forward to more videos. How are you feeling now?
I am very fortunate that I haven't had any adverse reactions to the medicine. Some of them will thin my hair (more) which I'm not looking forward to personally, but I haven't had any problems, although I do have "the shakes" (my hands tremble as if I've just come off a roller coaster... blindfolded... with a loose seatbelt -- actually, it isn't that bad but it is noticeable to people.)
My father now take only CellCept and Prograf 0,5 and Prograf 1,0..
But, I would like to know...I remember that my father in the months following the kidney transplant, took a medicine which was against Aids..do you take it too or not?
Well, i don't remember if it is true or not...because are almost ten years that he had transplantation..so..as you can imagine my memories are very shortest...:)
No, I don't have to take any Anti-HIV drug, but I do take Valcyte (Valganciclovir) which is an anti-CMV/anti-viral (see wikipedia for Cytomegalovirus and valcyte).
But nothing explicitly for HIV... your father was probably on the equivalent of ValCyte.
Yes, I am of Italian descent. I believe my Great-Grandfather came from North of Venice, but I really don't know.
And if you are going to ask, I don't speak any Italian *yet*. That will be the language I study when I retire -- I think it will sound better when I have a mature, gravelly voice.
I have a kidney from my sister for 8 years now. I want to be a positive thankful person. Some days I can be but my depression has gotten out of control. I'm debating suicide right now. No one can help me, not therapist, not family, not friends. God help me. My life as turned out as a failures life would, I wanted a family of my own so bad and doctors told me I can't have children. I'm watching all my siblings and friends along with celebrities having babies and it's the hardest thing on my heart
whareweruin92 2 weeks ago
Very good video! I am also kidney transplant but I'm a total of 48 pills a day for varies things due to issues from kidney failure and the kidney transplant I have a total of 15 bottles of pills. Prograf I am taking 11 pills total every day and I'm on Myfortic 4 pills total every day and 4 mg grams of steroids every day. My transplant was in 08 but still my pull dosage is high my creatine is 1.4 sometimes it is 1.3. Be blessed and take care.
ainthavinnodrama 8 months ago
Seeing this video reminds me how lucky i am to have an identical twin brother. Thanks to him I don't have to take any of the drugs.
MrMCD191 9 months ago
Bringing back old memories for me .. I was transplanted 21 years ago and stil going strong! Google: Transplant To Handplant fo more info. God Bless You.
vertman69 1 year ago
Good video. I'm on tacrolimus and prednisolone as well.
birdman3120 1 year ago
I got my transplant in 2009 and I take more medication than that shown. Because I have Lupus also. Those Anti-Rejection medicine is so expensive, but I rather pay for that than being on dialysis any day.
ilovenoy 1 year ago
@ilovenoy so how r u feeling now. and what medicines u r taking now and how much, Have you done Anti ds DN, after kidney transplant.
Is your SLE is in control now?.
mfarooqkk 8 months ago
@ilovenoy thats how I lost my kidneys also by lupus. I had my first transplant in 1991 when I was 18 and it lasted 14 and a half years. I had my second one in 2006 and am doing very well but has anyone had any problems with prograf giving them panic attacks.
stodd32 2 months ago
I should point out that this was _right_ after the transplant and that after a year I was on 4 pills in the morning and 4 in the evening AND that the dosage was much lower.
damondanieli 1 year ago
if that's not a case for socialized health care i don't know what is.
trippyay 1 year ago
i am a fourth semester nursing student and we r to discuss transplant this evening in class...my heart goes out to all of you who commented, and to the genteleman who shared this video (it's part of our lecture a Sacramento City College). I would just like to say to "NickJonasMyHotLoVer" stay ebullient and don't let those feelings get you down. I am a JW, and I know that Jehovah will soon take away ALL sickness and death, Christ died for us to have the same privelege Adam and Eve used to have
sxftwndrwmn 1 year ago
I would leave out the stool softener if I were you, it can be very dangerous. There's a video on my channel showing the negative repercussions of stool softener, check it out.
BoogersBehold 1 year ago
i have had a kidney transplant for 5 years now and now only take cellcept, prograph and asprin as well...
xemarie88x 2 years ago
OMG don't tell me i need 2 take that much medecine :S
i already taking 100 medecine in 1 week ;:/
Pleaseee why does this happen 2 me
NickJonasMyHoTLoVeR 2 years ago
It has been over a year and my medicine dosage is much lower now. I require 4 pills in the morning and the evening.
As for why it happened to you: you did nothing wrong, that's just the way things are sometimes.
damondanieli 2 years ago
I remember this... I had a kidney transplant in 2001, then a cancer in 2007. Chemotherapy was used for cancer, forcing me to stop taking my kidney rejection medicine. I no longer take any sort of anti-rejection medicine, and my kidney has been healthier than it has ever been post cancer treatment.
Doctors now want me to go back on medicine, however, but I know my body and kidney are healthier without medicine. The side effects of long term immunosupression scare me
tristan2440 2 years ago
good tip with the tape. I hope to get a kidney from dad next year, On "D" for a 12months now, HD then PD.
sic04250f 2 years ago
u take lot of madicine man.... i had my transplant this yr in feb. and i m on prograf, myfortic, prednisone and pantaprezol....
its been over six months for me..... but still now and then i feel pain in my stomach where the new kidney is..... is it normal?
i m really worried abt getting an infection..... coz of these immonsupresants ..... now its swine flu..... god i don t wanna pick up no nasty sheet nomore....
mahiwaaay 2 years ago
i had my kidney transplant last july 29 2009,im in the hospital for almost 3 weeks because my creatinine is always in 1.7 to 1.9,still im not sure if that's ok but i'd rather take a lots a medicine than dialysis,anyways hope my new kidney will work well,thanx!
naphoy21 2 years ago
Congratulations on the new kidney Naphoy21.
Your medicine should taper off after 6-9 months out until you reach a maintenance dose. As your dosage comes down, so will your Creatinine because the immunosuppressants are nephrotoxic.
damondanieli 2 years ago
@naphoy21 That is a very good level, your luck.
Paracuarogto1 1 year ago
anti rejection drugs here in our country philippines...is very expensive...most dialysis patients here would rather choose not to go on transplant operation because of the high cost of these medicines.....i take neoral 100mg...imuran replacement for cell cept , prednisone and vascor for my hypertension....i im on my 10th year now....GODis really great..praises back to HIM..i am 49 now...and enjoying life.
morninggirls 2 years ago
I was first on dialysis when I was 16. Then Kidney transplant. Then dialysis again when I was 27. Peritoneal Dialysis and then Hemo Dialysis .. this time around dialysis total for 6 1/2 years then kidney transplant in 2007! You are right, I counted 30 pills I took a day right after transplant (I am rounding off because I don't remember exactly anymore). Still take quite a bit and found out I am allergic to Tacrolimus!
angieskidney 2 years ago
I have 2 transpIants. I was on dialysis for 5 years before i got my 1st transplant at
12, and i got my 2nd one when i was 15. I'm 18 now. and i still have both of them.
Sarcastic2009 3 years ago
wow you take lots of pills i had my kidney transplant when i was 14 im 23 now and i only take cyclosporine,prednisone,cellcept,and lisinopril
RuFiOPx 3 years ago
I've dropped some of the pills and will drop a few more in 6 months. I'm thinking about switching from Tacrolimus to Cyclosporine (even though I'll be taking a small dose of prednisone as well).
I'm really sorry that you had to have a kidney transplant so young but I'm also glad that you're doing so well now.
Good luck and good health.
damondanieli 3 years ago
that really sucks!!but i guess thats what we have to go through, if we want to live another day.i am gonna get a kidney transplant probably in december and i wanna ask you.what do i need to look for while in cirgury?? how many days did you have to stay in the hospital after the cirgury??and how long is it take to go "back to normal" as far as......you know.... living your new life.
octaviocu 3 years ago
Hi Octaviocu,
I'm sorry for the delay in responding.
I made a video about the surgery and the recovery (see my other videos). It has been two months and I'm going to follow up with another video (stay tuned).
damondanieli 3 years ago
I had a kidney transplant 2 years ago, I was in the hospital for 5 days after. I was up and doing semi-normal things in about 1 week and then perfectly normal within 2-3 weeks. I was 21 when I had my surgery. Hope this helps!
toddcritez123456 3 years ago
Thanks =) me tooooooooooooooo!! its been a week and im feeling better already.
achaelxoxoxo 3 years ago
im 19 just had a transplant from my mum and i feel greatttttttt :D goodbye dialysis!!
achaelxoxoxo 3 years ago
19 is too young to be on dialysis -- I'm so happy that you're off!
Take care.
damondanieli 3 years ago
I subbed to you. You won my heart. We're on the same dose of prograf! Ok... Your pill case is WAY too cool...
How are you handling the Cellcept. It was really hard on me, so I take Myfortic (a coated version of Cellcept). Zantac doesn't help me at all. I take Nexium for it. Do you like the Valganciclovir?
I'm happy to meet you, and I look forward to more videos. How are you feeling now?
ItalianStallionette 3 years ago
Hi Gina,
Thanks for subscribing to me.
I am very fortunate that I haven't had any adverse reactions to the medicine. Some of them will thin my hair (more) which I'm not looking forward to personally, but I haven't had any problems, although I do have "the shakes" (my hands tremble as if I've just come off a roller coaster... blindfolded... with a loose seatbelt -- actually, it isn't that bad but it is noticeable to people.)
damondanieli 3 years ago
My father now take only CellCept and Prograf 0,5 and Prograf 1,0..
But, I would like to know...I remember that my father in the months following the kidney transplant, took a medicine which was against Aids..do you take it too or not?
Well, i don't remember if it is true or not...because are almost ten years that he had transplantation..so..as you can imagine my memories are very shortest...:)
Nickmasies87 3 years ago
No, I don't have to take any Anti-HIV drug, but I do take Valcyte (Valganciclovir) which is an anti-CMV/anti-viral (see wikipedia for Cytomegalovirus and valcyte).
But nothing explicitly for HIV... your father was probably on the equivalent of ValCyte.
damondanieli 3 years ago
Probably it was an offuscated remember of myself (i know that there is another way to say in English..but i don't remember it)
Anyway...
I think that you are right it was an equivalent to ValCyte..
As I say before it 's almost ten year that he had transplants so..;)
By your surname I can Imagine that you are of Italian descents...do you know where your relatives came?
Nickmasies87 3 years ago
[This is the curse of third-generation Americans]
Yes, I am of Italian descent. I believe my Great-Grandfather came from North of Venice, but I really don't know.
And if you are going to ask, I don't speak any Italian *yet*. That will be the language I study when I retire -- I think it will sound better when I have a mature, gravelly voice.
damondanieli 3 years ago