I'm 13 years old and I have PWS Im one of thw smartest kid born With PWS. Please help me i dont know what to do My parents and family is not very good of making sure the food is locked up. Im at 250 and trying to excerise but everytime when I try I always gain please help I dont want to die
I'm not sure if I can help. I have little experience with PWS. The only thing I can think of to ask them to please lock up the food and to hide the key (keeping it on themselves like in your mom's bra might be a good idea). Ask them to minimize the amount of junk food they buy. Finally, stay out of the house when possible, go to the library, go to the park, etc. if you have a counselor or someone else you talk to, let them know, maybe they will join you when you speak to your parents.
Thanks for the video...My son has P.W.S he will be 2 in June. He is a wonderful little boy to be around! I luv my handsome lil man! Thanks again for the video!!!
It amazes me how there are some idiots who search for videos like these, just to put stupid comments. I hope the ppl that wrote ugly comments go to hell.
cont.....i've set up a web page to enable people to make a donation online & I would be so honoured if you would let me post your video up onto the webpage, as it really does show true Prader-Willi Beauty.
your video is so beautiful. My 3 year old son Jacob has PWS and I'm trying to raise money for the PWS Association here in the UK, by taking part in a sponsored 10-day trek in Costa Rica.
unfortunatly though the people in the documentary is typical for those ages... my sister is 35 and she is so much like and has the same behaviors and obesity some as those seen on the video. It is good as a child to get early intervention before your beautiful child is out of control and on death's door. I just saw it and it was very educational and yes sad. it is reality.
Beautiful :)
opsusan 1 year ago
Prodder willy syndrome
blahdob 2 years ago
My son has P.W.S he is 2 years old.
Beatiful children!!
medodonny 2 years ago
Beautiful kiddos, beautiful song!
Christycat35 2 years ago
defintly he has prader -wili syndrome because i have it
56785439 2 years ago
I'm 13 years old and I have PWS Im one of thw smartest kid born With PWS. Please help me i dont know what to do My parents and family is not very good of making sure the food is locked up. Im at 250 and trying to excerise but everytime when I try I always gain please help I dont want to die
56785439 2 years ago
I'm not sure if I can help. I have little experience with PWS. The only thing I can think of to ask them to please lock up the food and to hide the key (keeping it on themselves like in your mom's bra might be a good idea). Ask them to minimize the amount of junk food they buy. Finally, stay out of the house when possible, go to the library, go to the park, etc. if you have a counselor or someone else you talk to, let them know, maybe they will join you when you speak to your parents.
perlamondriguez 2 years ago 2
This has been flagged as spam show
your mom suffers from something called prodher with my willy syndrome but for some reason she really enjoys it
iwasnt76 2 years ago
Thanks for the video...My son has P.W.S he will be 2 in June. He is a wonderful little boy to be around! I luv my handsome lil man! Thanks again for the video!!!
praderwillimomof1 2 years ago 3
It amazes me how there are some idiots who search for videos like these, just to put stupid comments. I hope the ppl that wrote ugly comments go to hell.
k3ll0v3s3li 2 years ago 4
everytime I watch this it is so beautiful it brings me to tears.
beaks2lee 3 years ago
My nephew was just diagnosed with PWS, he turned a week old Monday. Thank you so much for the video.
annale84 3 years ago
It's on me sheet!!!
interloper79 3 years ago
This comment has received too many negative votes show
Retards are awesome!!!
tekubus 3 years ago
you toad... go crawl back under the rock you came out from under.
vknopf 3 years ago 4
Yes they are my favorite animals!! hahahaha
choforito4000 3 years ago
This comment has received too many negative votes show
yeah especially the agressive ones,imagine if you had an army of 100 PWS!
smileoutastyle 3 years ago
I wont be offended if you say no, but ive sent you a private mail, with the link to the page.
Many thanks
fizwizpop 3 years ago
cont.....i've set up a web page to enable people to make a donation online & I would be so honoured if you would let me post your video up onto the webpage, as it really does show true Prader-Willi Beauty.
fizwizpop 3 years ago
your video is so beautiful. My 3 year old son Jacob has PWS and I'm trying to raise money for the PWS Association here in the UK, by taking part in a sponsored 10-day trek in Costa Rica.
fizwizpop 3 years ago
thank you so much for shareing! my baby girl stormy also has pws...bless all our angels, kim
squattybody1 3 years ago
After Reading the comments on PWS: Can't stop eating. This was a lovely turn around. Thank you for the post
thesoccerone27 3 years ago
unfortunatly though the people in the documentary is typical for those ages... my sister is 35 and she is so much like and has the same behaviors and obesity some as those seen on the video. It is good as a child to get early intervention before your beautiful child is out of control and on death's door. I just saw it and it was very educational and yes sad. it is reality.
laurieZirk 3 years ago
What a great video! Our Sebastian is 19 months old & has Prader-Willi syndrome too.. he is such a beautiful boy!
Thanks for sharing.
CINDY
moscoso71706 3 years ago
Thank you very much for that video.
These children are all so wonderful and lovely.
Bless them.
Love Veronika
waldbummel 4 years ago