Stevens Johnson Syndrome Awareness www.sjsupport.org

[myjourney2004]

for some reason I can't see the video but I had it in 2004 and I think that we should all rally behind each other and go to congress because they are trying to blame this on us and I think it's all this stuff they mixing in the medication and every body is making money but we are the victims and it's unfair so if you have any suggestions I think we need to be compensated because all these drugs now is bad if you watch television they all will give you this including over the counter drugs . help

[VoyageIslam]

very informative, thank you. 

[TVCatholic]

Thanks for the upload! I will share it with others.

[nuvolabianca49]

thank you Julie for sharing your story I hope that many people are looking this video it's very important

[PropheticVoice7]

¤HUGS¤

[BonesRodriguez]

Thank you for making this video- I am one of the EXTREMELY lucky ones; I had it 30 years ago, and I thought it was kinda gone already. Since Manute Bol, I've been doing some research. I will now become FAR more supportive. Again- THANK YOU.

[Bccaundefined]

my fiancee developed it about three years ago. he was 17 at the time.. I saw first-hand how bad it is.. I think he's lucky that he doesnt had that much lasting effects.

thank you so much for putting out this video

[spunkyrachel]

Hello Julie!! So nice to see your beautiful face!! I often wondered what you looked like.. I hope your doing well. I too have SJS and when I came home from the hospital, I found your SJS foundation website and it gave me an idea of creating my own support group here on youtube, which you had posted my link on your site and for that I thank you very very much. I have been able to talk to many other victims like us and I didn't feel so alone. All the best to you Julie!!! Take care xoxo

[33orangeseeds]

As a SJS survivor, I thank Julie and her Mom Jean for all the work they do to promote awareness and education of

SJS.

For all that hear Julie or read this comment, please join in by telling others

about this life changing reaction to medication. It is often misdiagnosised

and time is critical in it's treatment.

Thank you,

33Orangeseeds

[33orangeseeds]

Julie,

Thank you for sharing your personal story and providing education for all who hear you.

Sincerely,

Orangeseeds33