RSD/CRPS Video Diary #2- Swelling, colour change, etc in right leg

[Bisondoof]

@emmazoey2 I've been suggested the spine treatment too; I went to a PPRC in Waltham masechusets and that helped my arm but after that it spread to my legs.

[nationalsfc01]

Heeey, Im 14 and I am completely cured of RSD(:

I was diagnosed after my second ankle surgery and I tried nerve blocks,pain meds,spinal stimulaters and even comas.

It all made it even worse until I went to this treatment called INTERX it saved my life...literally. It started in my foot then moved to my whole ankle and foot and it was a pain of 9 out of 10 all the time. Please everyone just give this interx a try! I know it will help you! They have cured EVERY patient they have had! It's pain fr

[emmazoey2]

I understand your pain and frustration. I have RSD (CRPS) too and can't stand my life, or lack thereof. I am frustrated with doctors that don't really listen. The latest being pushed on me is a spinal cord stimulator, and I know my body would reject that. He changed my meds and I'm worse than before. I can only walk with crutches; how about you?

[manjushri2]

CRPS

abc.net.au/catalyst/stories/26­21515.htm

[mascot426]

@manjushri2 my right , and also my mouth, lips, [face] head, neck, shoulders, chest ect. I never know what to expect from 1 day 2 the next, complex is right !!!It is very frustrating, and makes you feel like a freak, having to wear a jumper, or long sleeves in middle of summer !!Nobody but us sufferers know what it's like.And it's certainly not in our head, pain is a feeling , not a thought. Love to you all

[emmazoey2]

@mascot426 I always have to wear long pants, so I know what you mean. I think I have it in my face too. How does you CRPS act there? Sending love to you too!

[mascot426]

@emmazoey2 Yes it started in my left arm, its now right around behind my shoulders in my mouth . head, face, and rightg arm, i have to wear long sleeve tops most of the time, and sometimes cant go outside,and feel like i have eaten chillies, and yes color change, temp change too, loss of strength. Love XXX

[isthisthecure4rsds]

I think I accidentally found a cure for RSDS! Visit my new blog and find out what takes away the pain, doesn't cause side effects and may cure it! I live pain free when I use it...and it's nutrition based. See blog is under my username "isthisthecure4rsds" on w o r d p r e s s dot com.

[isthisthecure4rsds]

I think I accidentally found a cure for RSDS! Visit my new blog and find out what takes away the pain, doesn't cause side effects and may cure it! I live pain free when I use it...and it's nutrition based. See blog is called "isthisthecure4rsds" and it's on wordpress. com.

[009sportsbabe009]

i have this too i was in a horrible atv accident and have it in my whole lft leg from toes to hip and in my ribs back and shoulders and my leg is so much more swollen and discloerd and i cant move it and i cant walk :(

[katesRSD2000]

In reply to TheChromeStallion- I know smoking is no good for me. I have quit for long periods at a time since getting my RSD (for roughly 6-12 months each time) but it's my constant struggle and lately I haven't been able to kick it, as much as I'd like to.

Mentally, I find it helps me deal with the pain, but I know that physically, it's making me worse.

Thanks for the kind comments. I wish you all the best of luck with your RSD journeys, too. xx

[mychallauren]

you poor girl, I totally understand how you feel, I havr two lil ones 4 and 1! It breaks my heart when I can'r play with them or do the things they want because of my pain! I will pray for you & If you have aby tricks to help with the kids, I am open to anything at this point!

[TheChromeStallion]

If doctors and people were more educated on this illness it would make things a lot easier for us who suffer from this. Most times people are treated very badly because of the ignorance of others, driving good poeple into depresion and even suicide in some cases. It is good that there are now a few foundations out there promoting the causes & the symptoms of this syndrome to educate people & doctors to help understand & treat this illness. Good luck to you & don't give up on life. I haven't ;)

[TheChromeStallion]

I hope you can find a way to lower your pain some. Sorry to hear your are going thru this pain. Most people can't tell how much this condition disables one from doing the things we used to do & don't understand, but we who suffer the condition can understand each other very well. I started w CRPS when I was 28 years old. At 1st people & doctors looked at me like if I was making things up, or like if I was lazy or wanted attention. But now that I'm in a power-wheelchair they know how bad it is.

[TheChromeStallion]

Hi. I don't mean to preach but smokes are worse for your bones combined with the CRPS condition. I had to quit.

I've been suffering CRPS for almost 5 years now, combined with DJD/Osteoarthitis/Post Traumatic/Degenerative Arthrosis, etc. My CRPS is on both of my feet, ankles & legs. Sometimes my right arm hurts & swells up, but it goes away eventually, thanks God. But in my legs, ankles & feet is permanent w the pain & swelling & it never goes away. I was put on Methadone but it dont help much

[katesRSD2000]

I'm going on 9 years, with it starting in my right hand and arm then spreading to my right leg and foot 3 years ago. Sorry to hear you're dealing with this, too.

[patzarellina]

How long have you had rsd?

I've had it 5 1/2 years....