Spina Bifida. Tia our inspiration

[artesana001]

What a beautiful little girl. God bless her!! I too have spina bifida. I was very hard on my parents when I was born but they had lots of faith in God and knew that I would be ok. My parents were told that I would never walk, talk or live a normal life. Guess what... I walk, I speak 2 different languages fluently and I am married to a wonder ful man and I have a son. Anything and everything is posible if you just believe!! God bless!!

[RobSmith123456]

Some people get it, most don't. Fighting to survive day by day is nothing to sneeze at. Getting her to develop upper body strenght is critical.

[kamo9224]

oh my gosh. Tia is so adorible. I am 20 years old and have spina bifida. I have started a motivational speaking ministry to help children with SB. I would love to talk more with you and see how Tia is doing! kamo9224@gmail.com!

[kentuckygirl92]

amazing video! my twin brother was diagnosed with spina bifida but he died after birth. hope everything goes well with your little girl. i really liked your video. it touched me so much. :)

[cakalangricarica]

she's an angel... and you are a very strong mom... *hug*

[beeshabee]

I am 5 months pregnant and my baby boy was just diagnosed with spina bifida. I am waiting to find out details and I have to see a Pediatric neurologist.

Thank you for posting this video!

[blegacie]

my name is Bruce I was born with the same thing...... I was able to get out of the wheelchair when i was 4yrs. old..... I'm also paralized from waist down.... That was in 1963.... I'm now 47.... Up until 2 yrs. ago i could still walk..... So what i,m saying getting her upperbody strenght as soon as possible she will be able to walk. She will need alot of encourgement but if i can do it she can too.... God Bless and good luck!!!!!!!!!!!!!!

[RickXL]

sorry, i did not introduce myself...my name is isabel and i posted under my brothers name...RickXL...

[RickXL]

God bless your daughter...I to was born with spina bifida and also have a shunt....I will be 21 this feb...I am trulely a miracle and so is your daughter...I am a walker but I have to wear leg braces on both of my legs...I live my life to the fullest and wish your daughter nothing but happyness in her life, because people like us are strong and we prove that we can overcome anything....

[k9pcrepair]

@RobSmith123456 Listen im a normal person, i hate the way that sounds im sorry if that upsets anyone, but robsmith, you may have been thru alot, but you have no heart!!! this person posted this video i bet you anything not for ppl to act the way you do...you know what, you will have your day, when the good lord calls for you, thats when you will deal with your actions! if your not going to say anything good...STAY THE FUCK OFF YOU TUBE YOU BASTARD!!!!!!!!! To everyone else, sorry for the lang...

[elainebarrie]

@RobSmith123456 I really hope that you are not implying that I should have terminated my child.

My daughter has a great quality of life and lives it to the full she makes an impact with peope she meets and does not wallow in sympathy with regards to her condition because we do not allow her to.

If you have problems with regards to your life and feel that you are just existing instead of living then maybe you should seek some sort of counselling or guidence from a professional.

[RobSmith123456]

Am a SB patient, anything but abortion is cruelty... Sorry to hurt your sensibilities but SB ain't anything that resemble a "life". Been fighting just to stay alive all of my life.Tired of it.

[ReddClown]

@RobSmith123456

Well my sister has gone through 12, 13 August 4th, years of the pain of not walking, with autism too. She did get a shunt like the young girl here and though she cant walk, she has had so many oppourtunities in her life. I am her twin, and her undergoing so many surgerys (more to come..) causes a lot of pain. Now she's being bullied harshly and its gotten so bad where we cant tell her what they're calling her means. They deserve to be around people who love them, no matter what.

[subcribingmachine]

I was almost born with Spina Bifida, but something happened and I was born without it. As far as I know, I'm the only one. This is truly inspirational.

[MrBubblez305]

God Bless you and your family

[almasolis21]

shes beautiful!!! i have a 2 year old girl, with spina bifida and hydrocephalus...

[marinasvoice]

my best friend has spina bifida & hydrocephalus too, she'll be 17 this december, she's been through soo much in her life, she is a true inspiration. I'm 2 years older than her & she's MY idol. She's like a little sister to me. She constantly reminds me when i'm having a bad day or just feeling bad about myself that things could be worse, she gives me the push I need to get back up & try again when I've fallen. I couldn't imagine my life without her.

[merdija]

i had a baby with spina bifida and hydrocephalus too but he died 4 minutes after the birth because the doctors told me that i have to go to a early birth because the baby would die with that diacnose i was shooked when i watched this if i left him only live he would be maybe like this girl i was crying the whole time

[bieberlover7896]

im soo sry my brother has sb andd every day i help him walk i feel soo bad for everyone and ur daughter is soo pretty!! and one more thing whts hydrocephaluse???

[elainebarrie]

@bieberlover7896 Hydrocephalus is a build up of fluid in the brain, due to the ventricles becoming blocked, when this happens the drs usually put in a shunt to bypass the blockage and drain the fluid.

[lovemonkey9809]

thats so sad i feel so bad how old is she now

[elainebarrie]

@lovemonkey9809 Tia is nearly 6 now, she is a happy soul who is sooo cheeky.

[sheenagh100]

so good, and powerful, shes a cutie:) thanks for sharing

[blobby1972]

I would just like to send a message to all young people with SB I am 38 years old I lived a normal life to the age of 30 but I lived badly drinking eating and being lazy I am now in a wheelchair my back could no longer hold my weight so PLEASE stay strong fit and live healthy and there is no reason why you all can't live a very happy long life.I wish i had

[ItzALuvHateThing]

oh shes so cute! im 33 weeks pregnant and my daughter has spina bifida (L3). i was fairly upset when i found out, more so because im going to be a single mother, but seeing other precious children with it too and seeing the hope in there eyes, gives me hope, relief and thanks. :]

[teresa6692]

I am grown now 39 years old but I have spina befita as well. It left me paralyzed from my waist down. She is such an inspiration. Thank you for posting this.

[TheJessefan123]

heyi havw spina bifida and im 12 years old she is soo cute

[jcallseven]

this one will look at you and judge you and when she does youll shit bricks

[July71189]

she is so cute

[donaghec]

Great video! What a beautiful little girl. Thanks for making such a great video!

[MSkudlarczyk2008]

She is SO amazeing! She is So ADORABLE! This made me cry because she is the most adorable angel!

[LizLands]

I have spina bifida, but I have a very mild form. I can walk and feel (except when my feet go numb every once in awhile from poor circulation)... but I went to a spina bifida camp when I was a teen and a friend of mine was a danger in her wheelchair! I can remember having to hold the handle bars to let the poor boy (yes, it was always a boy... well, volunteer or counselor, but a male) get away. lol just thought I'd share that. Her nickname was (and still is, as far as I know) Hell on Wheels.

[UglySean]

When my wife had minor surgery I too took pictures of her back - if only to show her what everyone else saw. An adorable girl you have, for sure. HOWEVER - I hate to nit pick but I feel I must. Talk to your doctor. Get her eyes checked. My daughter's eyes weren't in half as poor a condition but we saw the need, and pestered people (many of who wouldn't listen) but the doctor referred us to an opthamologist. A matter of minutes into the appointment he diagnosed her as farsighted. (see next msg)

[UglySean]

She was 9 months old at the time. Wrote a prescription, we got her a tiny pair of eyeglasses before the week was out. Honest, we could see the change in her. As for Tia, even if the doctor says she doesn't need them, it's better than her needing them - and nobody asked. I'm glad we persisted for our daughter. Nowadays I don't think you can be too young for glasses if you need them.

[elainebarrie]

Tia is under an eye specialist and has been for a while, she didn't need glasses before but they are carrying out tests next month as it looks like she may need them soon.

[UglySean]

Oh good. Sorry to be rude and presumptuous but you wouldn't believe how many kids I come across who might benefit from glasses, and others who used to look at us dumbfounded "How did you know she needed glasses?" (as a baby) and "how to they test her?" Well they do and our logic was that if the doctor decided her eyes were "fine" then we'd take his word for it and go home.

[polarisnuke]

HOLY COW!!! What a wonderful video! And one of the cutest little redheads I've ever laid eyes on! (I'm a sucker for redheads) Please tell Tia hello and I love her witch costume!

[althaushexe]

She's a dear little girl. How is she doing now?

PS The photo showing Tia rîding the donkey is so cute.

[donaghec]

Thank you for making sucha wonderful video. She's a beautiful little girl.

[donaghec]

What a beautiful little girl. She truley is an inspiration. MY son Noah was born with spina bifida. He is turning one on March 11. He amazes me every day!

[sweetwheels16]

they don't know exactly what causes spina bifida.Spina Bifida is a disability not an illness. Im 29yrs old and I have Spina Bifida. It limits things I can do but I always find a way around my limits and do it my way. Seeing this video proves that you are only limited if you believe you cant do something. I have many friends with Spina Bifida and most don't live at home anymore we live a "normal" life. Probably not to an able body's standard but we do what is possible for us.

[UglySean]

Indeed. An illness, by my definition is something that you either catch or get somehow, and with treatment will go away. Of course SB is present at birth and there for life.

II have two ex girlfriends with SB. Both quite sexy. One is married, I assume happily. The other left me for a guy who was abusive and she eventually divorced him. But I had moved on since then.

[HannahMontana120Kayl]

This is such a precious little girl. I was also born with this but not so many problems. I am 16 now and doing well hope you have a good future ahead of the little girl.

[Southerngrace1984]

WOW she is absolutely gorgeous and she looks like such a happy girl.

[FridaMans]

She's beautiful. My best friend have spina bifida and she's paralysed waist and down. We do a lot of things together, dancing, playing tabletennis, go to concerts and stuff like that. And it shows that only because you're sitting in a wheelchair does'nt mean you can't have fun! And thinking like that always gives me a smile on my lips =)

[lookyouabigailkriby]

wot Spina Bifida

[elainebarrie]

Spina Bifida is a Neural Tube Defect which affects the development of the spine, It is where the spine does not develop properly when the baby is inside the mother. As a result some babies have big holes in their backs like Tia but others only have small holes or cysts or just a amount of hair or dimples growing around the affected area.

[lookyouabigailkriby]

i got perthes diease

[beaniebasham1984]

I know exactly what a child with spina bifia has to go through.I am a 24 yr old female and I have Spina Biida but back then no1 knew I had it until I was born and now the know exactly what causes it and what can hopefully prevent it from happening.

[KiernanKate]

Actually, I'm not aware of anyone knowing EXACTLY what causes Spina Bifida. It's been studied and proven, that adding extra folic acid to your diet, before during and after pregnancy can reduce your chance of having a child with Spina Bifida, but can't prevent. Lack of folic acid isn't the exact cause either.

Oh and yea, I'm 23 and have Spina Bifida in the lumbar sacral part of my spine.

[UglySean]

Of course, folic acid is old news even though they re-hash the concept now and then. I knew about it since the mid-1980s and I'm sure it wasn't a new idea then. I'm 41 with hydrocephalus only. I'm far from perfect but I try to manage. My wife has diabetes, our daughter has neither (but we all wear glasses).

[armenianply]

i wish all people could understand us people the ones who live with this. if anyone would like to help me get a televised event for spina bifida only please let me know.

[Kimmieprincess94]

What a beautiful little girl! I have SB too and I used to be harmful with my wheelchair also. I "accidentally" ran over my brothers toe one time and we were laughing.

[TheJerryChannel]

My son, now 9 years old have the same illness. We just came out of the hospital a week ago because of a shunt malfunction.

My family went bankcrupt because of his illness but who cares when your son's life is on the line.

Your video is giving me hope and inspiration.

[Americangirl787]

What a beautiful little girl.

[alexndenzel]

Hi Your daugther is really beautiful my daughter Odessa had SB Myemecingole also she passed at 5 months..Your video brought tears to my eyes ...God Bless your family

[smyserfamily]

Your daughter is beautiful!!! Our son has SB too, and the journey seems so familar! Happy Mothers Day!

[brsjjj]

GREAT video!!!! I have Spina bifida, too, and I remember doing exactly the same when I was younger (I'm 25 now) - racing around in my little wheelchair and shouting: "Out of my way". Well, and if the people around me didn't jump "out of my way" - bad for them! ;-)

Thank you so much for posting this video, your daughter is sooooooooooooo cute, I had tears coming to my eyes.

[elainebarrie]

Thanks, she's also a bit dangerous in her wheelchair as she tends to aim for people who are in her way, if they don't move they get sore toes.

[biffieboy]

Fantastic, I bet Tia's an inspiration to all who meet her and a wee ray of sunshine too!