Help! My father is a 79 year old man with chronic orthostasis with a complex history: falls, hemodialysis and severe depression to name the worst. Our Gp, surgeon (who drained blood from his brain last month) nephrologist are all "stumped". Who can help us in southern california? I am afraid we are losing him. Signed, burning out daughter
Pls anyone help that can.....my 35 yr old son, who ran 6 miles a day and ate organic, vegan, etc.....was struck down 6 months ago with an illness no one can explain. He is deep in depression. His bp and heart rate skyrocket upon standing. He has spikes constantly. HIs resting heart rate and bp are too low upon laying down for any bp meds. they tried the lowest dosage of bp medication available and his bp dropped to 80/40 and he passed out while his hr alternated between high and low.
I hope that Dr. Rowe is testing for Lyme disease. So many infected patients have POTS because of Lyme and coinfections. I wish our leading POTS doctor would have given us the choice for proper Lyme testing. My son has lost years of his teenage life due to undiagnosed Lyme. There is a connection to POTS and Lyme. Obviously, not in every case.
My daughter saw Dr. Rowe yesterday and I want to publicly say this doctor is unlike any I have everv been too. Our appointment was 3pm and we left at 6:45. He was extremely thorough and investigated every avenue with my dauhgter. He is very knowledgeable and he really "gets POTS". He made some great suggestions and explained how. I feel very confident he will find what is wrong with my daughter.. There should be mroe doctors like Dr.Rowe.
This is good info but in my case even after having a positive tilt table test, I have received conflicting diagnoses from doctors. I don't think that the teen that he mentioned has CFS or he would not have suddenly gotten better so quickly.
I am pleased you are educating CFS patients about POTS. POTS has only been in the mainstream medical literature since 1993, and you can prove that it does exist with Tilt Table Test. This is useful I think for people with CFS.
@shweber1 : abdominal binders can be found in the USA by Rx...or am sure eBay may have some new ones NWT, New With Tags....some people wear 2 pairs, one first placed tightly on the abdomen.. the second one goes over the first one and both can work together to help be more effective.
Help! My father is a 79 year old man with chronic orthostasis with a complex history: falls, hemodialysis and severe depression to name the worst. Our Gp, surgeon (who drained blood from his brain last month) nephrologist are all "stumped". Who can help us in southern california? I am afraid we are losing him. Signed, burning out daughter
connermcnutt94 1 month ago
Pls anyone help that can.....my 35 yr old son, who ran 6 miles a day and ate organic, vegan, etc.....was struck down 6 months ago with an illness no one can explain. He is deep in depression. His bp and heart rate skyrocket upon standing. He has spikes constantly. HIs resting heart rate and bp are too low upon laying down for any bp meds. they tried the lowest dosage of bp medication available and his bp dropped to 80/40 and he passed out while his hr alternated between high and low.
collint27 1 month ago
I hope that Dr. Rowe is testing for Lyme disease. So many infected patients have POTS because of Lyme and coinfections. I wish our leading POTS doctor would have given us the choice for proper Lyme testing. My son has lost years of his teenage life due to undiagnosed Lyme. There is a connection to POTS and Lyme. Obviously, not in every case.
ktdommer 1 year ago
My daughter saw Dr. Rowe yesterday and I want to publicly say this doctor is unlike any I have everv been too. Our appointment was 3pm and we left at 6:45. He was extremely thorough and investigated every avenue with my dauhgter. He is very knowledgeable and he really "gets POTS". He made some great suggestions and explained how. I feel very confident he will find what is wrong with my daughter.. There should be mroe doctors like Dr.Rowe.
mprado1958 1 year ago
This is good info but in my case even after having a positive tilt table test, I have received conflicting diagnoses from doctors. I don't think that the teen that he mentioned has CFS or he would not have suddenly gotten better so quickly.
Sherrisouth 1 year ago
I am pleased you are educating CFS patients about POTS. POTS has only been in the mainstream medical literature since 1993, and you can prove that it does exist with Tilt Table Test. This is useful I think for people with CFS.
potsinfo 1 year ago
Dr Rowe, Thanks so much for all this information! You have helped immensely.
retrogirl22 1 year ago
This explains my health problems pretty well, but I do not have CFS, just OI and POTS.
718mom 1 year ago
@datagirl122 same.
AlmaLuna1 1 year ago
stomach binders - where can you get them? We have been looking at back braces (look similar) for EDS issues, but the stays poked too much.
shweber1 1 year ago
@shweber1 : abdominal binders can be found in the USA by Rx...or am sure eBay may have some new ones NWT, New With Tags....some people wear 2 pairs, one first placed tightly on the abdomen.. the second one goes over the first one and both can work together to help be more effective.
DysautonomiaMD 1 year ago
Is there a way to print individual slides? This is very, very interesting. My 18 year old daughter has EDS, CFS and POTS.
shweber1 1 year ago