Living with Multiple Sclerosis - Tysabri Q&A

[flore20ani]

Hello Lauren, you can not imagine how much you inspired me to hope and to fight. You helped me understand that desperation is just another stone that I have to remove from my way. Just like you, now I am trying Tysabri and it is going well. You inspired me to create a blog about MS and mostly about fighting MS. I hope you don't mind if I recomend your videos on my blog but I think that as many people as possible should get your message.

[laurenvparrott]

@flore20ani Hello! I am SO HAPPY this helped you!! I really want you to have hope, and to fight this disease!! I think creating a blog is going to help you more than you ever thought it could!! Please feel free to use my videos!! You are so sweet! I wish you the very best!!

[speng01]

Thank you for the video. It helps my family so much. I hope your MS "goes away" or at least does not progress. Best luck to you.

[laurenvparrott]

@speng01 Oh I'm so glad! Thank you! I hope your MS does not progress! Wishing you the best!

[MsStayz]

Hi Lauren

Thank you so much for doing this. Im going to be going on Tysabri in a couple months and have been very nervous about it. I'm 33 and was dx'd 6 years ago. Your videos have made me excited about going on this drug rather than very anxious about it. It is nice to see some one else on the younger side with this disease. Anyone I have ever met with MS has been much older and usually further along. So thank you. I admire you for being able to "be out of the closet" so to speak.

[laurenvparrott]

I'm so glad this video helped you! I actuallt started making these videos to meet someone else my age who had MS. I wish you the best of luck and please keep in touch!

[snowthorne]

I was wondering how to find out the numbers on Ty. Meaning at what stage of infusion do people typically see results and at what stage did the PML come for those who got it? Can you get PML on your first infusion?

Thanks for your videos! they help alot.

Starting Ty on monday 4/6/09 ...fingers crossed.

[laurenvparrott]

Hello! I would look on Tysabri's website for the most up to date information. Everyone is different, but I started seeing results after my 3rd infuaion. The people who got PML got it after taking it for over a year. Good luck and keep me posted!

[happyjmc]

Thank you so much for this, my 16 year old daughter starts tysabri on Friday, your video was so positive and hopeful :o) THANK YOU!!!

[laurenvparrott]

No problem! I wish your daughter the very best!! I was 16 when my MS started, so please tell her that she is going to be just fine!! Stay positive and write to me anytime!!

[mollyshere2]

Hey Lauren, Thank you for posting. I have been diagnosed for about 5 years and am considering Tysabri. My question is what made you decide to take the risk w/tysabri(PML)? This is my dilema. molly

[laurenvparrott]

Hi Molly! My neurologist recommended Tysabri and I decided to take it after I had heard from people who were doing extremely well with Tysabri. I was scared at first about PML, but they know what causes it (taking Tysabri along with another immunosuppressant drug). The statistics today prove that out of27,000 patients on it, ZERO have gotten PML.

I hope this helps!

Lauren

[qualisarx]

Good video! I agree with the positive thinking aspect it has been proven(psychosomatic) Thank you for the Educating video. Thank the other Lauren as well

[laurenvparrott]

Thank you! It has been proven and I am living proof that staying positive can improve your well-being!

Lauren Roberts is so wonderful and I feel very fortunate to have met her online!

Thanks again!

Lauren :)

[SteveAllenSpain]

Hi Lauren. Thanks for taking the time to make these vids. I have an appt. tomorrow to see my Neur. to start with tysabri. Until now I wasn't convinced, I've been diagnosed 10 yrs and feel like a lab. rat/pin cushion sometimes. My Neur only speaks Spanish, and I can only be nervous in English !!! I agree 100% about remaining positive.

Once again Many Thanks.

Steve

[laurenvparrott]

Thank you for writing! I wish you luck at your appointment! Tysabri is doing wonders for me and I hopes it works for you too!

[metallica5856]

good morning to you Lauren!!! I have 2 very good friends that have this horrible thing , and I just wanted to say TO YOU, that is was a very uplifting video........I know both my friends are going to start this new therapy, and I think they are both very excited about it :0)...good luck to you and I will check back on here to see how you are doing

My heart is with you and all the other ppl with this..... :0)

[laurenvparrott]

Thank you so much for writing! I wish your friends the best of luck with Tysabri! I hope you have a wonderful week!

[dgalexandermd]

As usual, your videos are inspiring. As a doctor and also an MS patient it is so wonderful to see that you are improving with each video . Bless you for being so positive. Dr. Dan

[laurenvparrott]

Hello Dr. Dan! Thank you so much for writing! I am also sending you a message on your account because I think YOU are amazing!

[dgalexandermd]

Hello again. I responded to your account but keeps bouncing back to me. I am glad you are doing so well

[msladyinca]

Hmmmmmm, you remind me of someone...heehee ;)

Your subsequent Tysabri video was excellent too. Your improvements are really showing through on your videos. May you continue to have many, many, many more!

You know where to reach me dearheart. Take care now, and all my best, always.

(The other) Lauren ;)

[laurenvparrott]

Hey Lauren!

You are so sweet! Thank you for sending me this message! I wouldn't have had this information if it wasn't for you!! Thank you so much and I can't wait to hear from you again!

(Other) Lauren :)

[dzuskin]

Terrific video, thank you so much

[laurenvparrott]

Thank you! I hope it helped! Please watch my next video because I forgot to mention that there is always a possibility for something to happen to your body when you take a new medication. (Not just you, everyone!)

[harveysmummy]

Lauren you are looking (and sounding so well) it is lovely to see that you are continuing to improve!! It makes my day to see that you are happy and smiling!!!!

Mel xx

[laurenvparrott]

Thank you so muuch Mel! It makes my day to see a message from you!! :)

[shockermum]

Hi Lauren! Thank you, thank you, thank you! You are still improving with each and every video, YAY!!!

Joelle

[laurenvparrott]

Hey Joelle!! Thank you so much! Great to hear from you!

[poppypat]

WOW look at you kidda, you look amazing and your tremors are hardly there at all! So good to see you looking so well,Take care

Penni

[laurenvparrott]

Thank you Penni! I just wrote you a message!

[spikegrl1000]

Rock on! Great info! Keep up the good work!

[laurenvparrott]

Thanks Steph!

[Fixer13605]

Lauren:

It appears from this latest video that you are progressing nicely, the information you received from Lauren R is from a very informed and experienced source, I'm glad to see that you're communicating with her.

BOL to you and your family, don't forget to dust off your running shoes, the summer will be here before you know it.

Fixer

[laurenvparrott]

Hello!! I'm feeling so wonderful! Thank you for your message! Lauren is such a sweetheart and I feel so fortunate to be friends with her!

Thank YOU for everything! I hope you and your wife are enjoying the New Year, and trust me, my New Year's resolution is to dust off my shoes and go for a run! Thank you for your encouragement!

[inksdry]

Wish you continued success!!!! Thanks for presenting a straightforward account of Tysabri and what it has done for you! Godspeed.

[laurenvparrott]

Thank you for your message! I wish you the best of luck as well!

[splaylaywahtheepi]

Thanks for taking the time to put this information out there Lauren!

[laurenvparrott]

No problem! I hope this helps!