Losing Vision, Losing Sight - Part 1, Clip 1 of 2

[wreyoG]

you are really strong and i am wishing you all the best..i do not know much about TM ..i am a sufferer of another disorder called Anterior Uveitis..it is an autoimmune onflammation of the eyes...i do not think your blurness of vision is you going blind..blindness doesnt happen like that..it s a long process that leads to losing your sight...check with your doctors.it might be something else...wishing you all the best and stay strong :)

[ANJI66ify]

I was diagnosed with ATM June first 2010..Within a 48 hour time period I lost the ability to function mentally and physically. 6 mo prior to almost total debilitation I had received a burn from a hot plate at work, no larger than a dime. Within three weeks that burn had turned my entire body into a war zone of blistering, oozing, painful rashes that I'm still battling today. I have regained most of the use of my legs but have schizophrenic sensations from knee caps to ankles and I can't hardly

[AyKay47]

I have nerve damage of the myelin, I hope you are doing okay. I hope that you can feel a lot better one of these days.

[WildKatSpeaking]

I had TM in 2004. I've been a C6 complete ever since. I've also been blind since birth (and had CP since birth). Did you try speaking with anyone from the American Foundation for the Blind or other organization? They could probably help you with things you need as far as your vision goes. Wow hearing you talk about your insurance company makes me so glad I'm from Canada! I spent 8 months in the hospital when I had TM and I didn't have one bill. I lived in the US for a yr but didn't stay.

[iRage91]

I am going through something too with loosing my vision. its weird when I was about 9 years old it all started I got migraines and after the process of the migrain I would loose some of my vision its weird i've tried glasses and they just made my eyes worse and I am now at age 18 with really bad vision and my brain feels weird and all my senses are faded . I went in for an M.R.I and they found nothing wrong with me It sucks I am living a depressed life because I don't know if I'll ever be normal

[angelusa73]

You are a very strong young woman and I am really touched by the way you fight this disease.

I am so sorry that you are having to fight with the insurance companies. You shouldn't have to do this! You are sick and you should be focusing on your disease and on your health. This is crazy, right? Hopefully, one day, this will change...

You are an amazing young woman and you will fight this.

Hugs,

Angela

[alyssablairmusic]

I have TM as well, I went to the Mayo Clinic in MN in April to discuss all of the same things you are saying. Have you had steroid treatment yet? I had no feeling in my right side and after steroid IV's and 6 weeks of waiting, I can walk with a cane, and can write, think some(?) and can see better.

[Shyaporn]

The insurance/health industry is ridiculous and evil.

[tziady]

Mel...You are amazing. I know that it is very difficult to keep up the hope with everything that is going on.