Multiple Sclerosis- MY FAMILY IS OFF LIMITS!! LEAVE MY FRIENDS ALONE.

[SuperNewhorizon]

It effects ppl differently, I like how you have a positive out look on this horrible disease, may god bless you and your family KEEP TRUCKIN ;)

[irishbear76]

@SuperNewhorizon

We shall. :)

Thank you.

[SuperNewhorizon]

I understand the stress and depression with ms, I have a client that i take care of with ms, every day is an up & down emotional roller coster, But she is very different from you , She was a head boss of men & women who woked for nasa and always gave orders to ppl her whole life, None of her family wants to help her out and im there every day helping with the bath's cooking, hair ETC, She curses at me and yells, im tempted to stop helping but she has no one not even her son, WHAT SHOULD I DO?

[cowboystew]

I can totally relate, because my son was dx'd 2 yrs ago at the age of 27. I cried for weeks and I still feel guilty. I know he struggles with guilt too. He was a new father and nearly decided to get a vacsectomy. I'm glad he didn't or I wouldn't have my precious new grandbaby. I don't like for him to see me in a relapse, because I worry that he's thinking, "There's my future." But hey... at least we have hope with Liberation. ~Nancy

[omexmc80]

Oh and there is nobody in my family, and I'm going back generations and generations.. so it just makes me think.. WHY MEE!! oh well i got it and i will never give up 2 it

[irishbear76]

Me neither. I think MS picks on only the coolest of people.

[omexmc80]

A lot of people have said only the coolest people and the good looking people have MS.. and I agree :D

[omexmc80]

Well my problems are opposite, my family just dont understand what MS is. they think is me and something to do with me worrying about something and stress, which is BS! they just see me doing everything normal and they think its just all some kind of act.. I have 2 kids aswell and the 3rd on the way and i hope my MS is not passed on to my kids..

[irishbear76]

THIS COMMENT IS VERY INTERESTING.

I have been researchiing MS for about 6 years now and there is one personality trait that I have found really stands out with MS'ers.

WE TEND TO BE WORRYWARTS.

I am serious. Like obsessive worriers!

I know that I am. I have worried about stuff I cannot control since I was a kid (atom bombs, world hunger, unexpected alarm bells and cataclysms)

At one point I came up with a theory that MS could be an immunologic response to constant stress from worry

[Sarahviolett]

@irishbear76 - I too have been a constant worrier. I think I can remember back as far as age 10 being super anxious. Anxiety (& fatigue) seem to be the 2 related symptoms that I just can't get rid of, the optic neuritis & tingling came and went but the anxiety is the same. Also, my first cousin has MS too. No one else in my family shows any symptoms. I don't have any kids, but have hope that when I do and they grow up there will be better tx if they do get dx'd with MS.

[irishbear76]

@Sarahviolett

I have worried my entire life (mostly about things I have absolutely no control over!)

I have made peace with the worry and anxiety that has dominated my entire life. NOW for the first time in my life, my worry has not reduced my quality of life.

My resolve and faith have increased.

I have stopped worrying so much and now I have hope.

With the discovery of CCSVI. I worry not about MS. I do not worry for my children any more.

I truly believe that we are at the cusp of a cure.

[lisspolanco]

Hello, I know exactly what you mean!!- you seem to be handling it so much better than me. I was dx'd about 3 years ago (very similar symtoms) my son was 6 at that time. The week I was diagnosed I found out I was pregnant t(o make matters a little more complicated)went into dark abyss of confusion; depression; ongoing crying spells. In the begining my husband was like "yeah; yeah, don't make a big deal" eventhough those were not his exact words, body language speaks tons...any how, had miscarrige

[irishbear76]

OMG! I totally missed your comment.

YOu poor thing. I am so sorry to hear this.

PLEASE forgive me and feel free to write me whenever you need to talk.

GOD BLESS your heart.

Mark

[missalgernon]

Hello, I know what you really want to know is the fact that neither of my parents had MS and neither did anyone else in my family. So for me the family connection is ZERO.

On the kid thing, I dont have any, and the risk does bother me, but more so the pain and exhausion mean it would be SO hard to do, so I probably wont have them now. But the selfish part of me wishes that I had before I knew. They must be such a joy and such a wonderful distraction. Just love them. What will be will be,

[irishbear76]

Thank you for telling me.

I have found that some people have family members with MS but there is definitely alot of MS sufferers out there that are the only one in their family.

It's okay. I am one of the weirdos that have no other family members with MS.

I would bet dollars to donuts many of my Scottish ancestors had it tho.

IRISH

[Sarahviolett]

@irishbear76 - I am more Scottish in ancestory than anything else. Plus my last name is the title of perhaps the most famous MS book "McAlpine's Multiple Sclerosis" , and my grandmother's last name, McDonald, is a common disability scale used in MS. My neurologist, when she saw my name, was super surprised. I try to see the humor in this, I have to.

[irishbear76]

@Sarahviolett

I too am Scottish in lineage. My mother's family is clan Scott.

My mom's side is Scots-Irish.

Many people think I am Irish due to my username. I do coincidentally have Black Irish (Crowe) and Scots-Irish (Scott) on my mom's side.

[bvaleriea]

Well, I just found your videos and have not seen all....but I worry about my son getting MS because my husband had MS (we didn't know it at the time) when our son was born...and then I was dx'd about 10 yrs ago...when my son was 25! We all worry because he has two parents with it...how can he not have it or get it? I can't get reassurance from statistics or reading.

[1kentuckygal]

keep trucking!.........ROFL....

I have to teenagers 13/14 . I talk openly with them and ALWAYS keep humor close at hand. I tell them what can happen and if things do, that we will work through it. I do worry about them getting MS ......my son said he " forgot " his homework, I thought "OMGosh he's got cognitive issues" .....then reality hit..... NO....he just lies! LOL!

[kezzcass]

Sorry I meant to say, I am the only person in my family tree that I know of who has MS - I sure am lucky! Kerrixo

[kezzcass]

Hey, thanks for the personal comment - I feel touched. I reckon all of us with kids wonder. I like it when my kids are in the sun-suck up that vitamin D babies! I know my son worries he will get it - sometimes thinks he gets tingly feelings - esp when I am unwell. I reassure him he doesn't have MS. I try to think that they will learn about compassion and serving others. Guilt- yeah! My kids don't like it when other people cook for us! It is true to say it affects everyone I know in some way.

[irishbear76]

Yeah. I have had a pan of lasagna delivered during an exacerbation and I felt like shite about it and tearfully thankful at the same time.

You are the lone weirdo in your family with MS so I will put in you category A with me.

Thanks for answering.

IRISH

[auntoni51]

Graded at the end of the semester.....love your humor, my friend:):)....Well, I am the only one in my family LUCKY to have ms....Ione Marie!!!!

[irishbear76]

Please let me know if you have family members with MS or if you are the ONLY LUCKY person in your family.

You will be graded at the end of the semester on your answers:)

[auntoni51]

Hello....My computer was down for over a week, thank GOD its working and fixed now....I was missing your videos and how they give me a positive feeling about dealing with my ms....Glad to be back...I totally understand what your saying about worrying about the toll it takes on the family....And thank you for the comment in your box....It is pronounced iown:)...GOD bless you..Ione Marie!!!

[irishbear76]

Thanks Ione.

I sent you a PM.

God bless.

IRISH