My Boss Deaf Grandson CI surgery WANNATOJEEPING's webcam video November 14, 2010, 10:56 PM

[Saznl5]

Wow...sad! Need more education to parents of deaf babies. surgeies are all always risks involved :( hopefully the paralysis isn't peremant. my heart go out to the child!

[geoper2]

Please add some subtitles it would be really helpful

[Klausny5]

I´m sorry for he! mercy!

[jbirdsal]

What is the point of this video?

[WANNATOJEEPING]

@jbirdsal ,Is show that doctors still have not perfected the CI surgery, baby will live with a scar for the rest of his life all just because hearing parents want this child to hear....

[Indigovee]

very good presentation!  Hope this helps "ban" CI in young children. Adults have their choices, BUT NOT innocent children.

[SignedByMiriam]

I just learned more from Russell's vlog and his commenters. I realized that I made a little mistake what I commented here earlier, I deleted my comments. I suppose not to judge the doctor and mother without their statements why they went ahead to surgery a baby. I don't know what caused his paralyzed face partly. It might be complicated diseases, infection, or unexpected. It's not reported in the media or internet, it might be not related with CI issue. They might try to alter baby's medical.

[Salticid68]

@SignedByMiriam CI surgery is to be blamed, b/c CI isn't necessary in the first place for Deaf babies who have no says. They force CI on them against their wills at the same time doctors, parents and FDA illegitimately and criminally gamble their lives and barbarically abuse their esteems. It's not freedom. Other surgeries are different, b/c they help to remove pain or to save lives. Improve? No, bad hearing and brain-washed Deaf people need to be improved. We don't need to be improved.

[nrchough]

Sad! Wish the boss would ask me instead as I am a deaf twin while my twin sister is hearing. We are getting along very well and are so close to each other, even without CI.

[Daredevil541]

CI Companies are the biggest villains in the deaf community, always want to be successful, despite their mistakes, is hidden from the public and we, the deaf people already knew that, through CI kids of the parents who sued their asses, in the court and CI Companies don't want that to be known to the public so they always settle it out of court, therefore avoiding the trial and these records are sealed to the public. Russell, playing dumb doesn't cut it but that's you, anyway.

[Daredevil541]

By the way, Russell, reality check for you: there is called HUMAN ERROR therefore the doctors do make lots of human errors so are the CI Companies, people who work in that field DO make human errors. Same thing as the police shooting a unarmed person and dies from it, that's human error and for your information, u are a JOKE in the b/vlogging world and i find all of your vlogs laughable.

Wannatojeeping, by the way thank you for sharing with us and keep us updated.

[gamaswanderings]

@Daredevil541 True, there are always human errors. doctors have been known to do botched jobs in surgeries. So, it happens all the time. I know of someone who went home after surgery (not CI) and on the way home, incision came off and ugh needless to say, it was ugly and upon return trip to ER (as fast as the spouse could drive), the person died. So, things like that can happen. ALL surgeries are a risk, even outpatient surgeries.

[Daredevil541]

Hello, Gina, i am not surprised to see u to agree with me after all, it's sad but true that u are FULL OF SHIT like your friends out there and I've seen your writings on your blogs, it's laughable. That 's one thing i can agree on based what others has said about you and u are part of anti-deafhood terrorist group founded by your leader, Barry Sewell.

[Salticid68]

@gamaswanderings I believe avg surgeries are far less risky than CI surgeries. What apart CI surgeries from other surgeries is that CI isn't necessary and that others are necessary such as alleviating pain or saving lives. Being Deaf isn't pain and is safe. CI doctors violate the concept of Hippocratic Oath, because they knew CI is risky and their lives aren't in danger or pain. Insurance can cover CI, but it doesn't cover removal of CI if it fails or causes pain. Users will be stuck with pain.

[jobeth2311]

My great grandpa had a tumor either in or near his ear and during the removal a nerve was hit and half of his face was paralyzed too. Horrible, but he was lucky compared to this poor boy as my ggpa was an old man by the time it happened. So what is the mom going to tell the son when he is a kid asking why he is different? "Sorry I was trying to make you normal." ??? So now that poor kid will think he is really abnormal since he's deaf AND looks different. UGH. Deaf is NORMAL in the first place!

[dominicerrigo]

So far, there's no reported incident and I've made my vlog at DVTV. Show me your evidence. I'm at my ci doctor office now and it's funny how and why you had to do this. Help me if I'm wrong.

[gamaswanderings]

@dominicerrigo You're right, I asked Ci team about this and they say that there is less than 1% chance of that happening. They do not cut in the area that has nerve (there is a specific nerve I forgot what it is). In past, there were high chance, but now not anymore. So, could be the surgeon's fault or could be odd occurence. It's not normal now days for that to happen. But, I wonder what his boss will say if he find out he vlogged about his boss gson without his permission? ouch.

[falzTV]

@gamaswanderings - the story is still "general" - no names, such. your last statement sounds like a subtle threat.

[gamaswanderings]

@falzTV nah not a threat. Just making a statement, cuz personally I would not do a video or blog about my boss or his/her family. Just saying, ack..is that smart? Throwing in a piece of my advice/opinion and nothing more. Plus, I'm sure many would prefer to hear directly from the mom herself as versus a third party.

[falzTV]

@gamaswanderings - unfortunately, ur statement has a lining of threat which contradicts w what u preach about others not bringing up their employments. secondly, you know based on history, most parents wouldn't come forward. Instead, they stay hidden in shame. Personally, I hope the parents would come forward so the likes of you would not throw accusations on people who want to share stories of what they have seen around them. No matter what, you and others should not attempt to shut us up!

[gamaswanderings]

@falzTV That's the problem, if parents come forward then you guys will have a good case for your argument. He said "my boss" and I don't know him, don't know who he works for don't know his boss, so your paranoid assumption that I'm trying to shut you up is moot. Can't have a discussion? ok, no problem. I won't bother with you anymore.

[falzTV]

@gamaswanderings - it is all about respect; they are in grief as you can imagine. think we are that heartless by demanding them come forward? gee. Have a heart! :-)

[rachadw]

Oh wow! Really sad for that child. Thanks for making this video. All hearie should know about this. Well ... most hearie don't listen to us, just because we are deaf thinking we hear nothing. Ah, comeon ... we have our own eye, and we know what we see everyday (reading, action, etc.). *Sigh*

Other thing, I agreed with someone who left comment under this video ... the caption should be included so hearie can watch it.

[butterflyfirefly77]

I wouldn't do the surgery either, any more than I would for any cosmetic surgeries. Because it isn't worth the risks. Being deaf would never be the reason for me to have CI surgery for my kids.

[butterflyfirefly77]

She probably improve depending how early surgery it is.

[Bilingually4Deaf]

I suggest you to have someone help you to make this captioned so that all people, oral, deaf, hearing will understand what you said. And then repost it again and put "captioned" on headline - My Boss Deaf Grandson CI surgery - Captioned

This information should be in the News media. Will your boss tell News media about lawsuit? If yes, let us know, please. I am not against CI for adults but it is very risky for babies.

[falzTV]

Hi all commenters- I noticed you blaming the mother. I do not agree with you. The mother is victim as well! I'm sure that the doctors explained risks before the surgery, but REMEMBER there are many others (even including the doctors) that would tell the parents the risks are very rare. Some others didn't even believe that the baby got facial paralysis. The parents are often under pressure by the others who encourage them to go with CI surgery! They emphasize "NORMAL NORMAL NORMAL."

[falzTV]

@falzTV - For the reasons above, I encourage the baby's parents to sue! Maybe not only the hospital but the system, too. To get FDA to put hold on CI, and investigate the safety issues of those, etc. Yes, I wish the mother didn't go ahead with the surgery, but it is no way all her fault. Remember she was completely down to learn that her baby is Deaf, and it can be hard to think things clearly when grieving and when doctors & others gave the parents false hopes with CI fantasy.

[Salticid68]

@falzTV I agree with you in your two comments. Doctors and others should tell the mother something like "Stop your hate and foolishness. There is nothing wrong with being Deaf." etc. But instead they feed her hate and foolishness with CI fantasy and so-called normal. FDA has more responsibility than the doctor and the mother. It's like government allowing slavery long ago, so that people can kidnap, sell, and own slaves.

[falzTV]

@Salticid68 - agreed, the doctors and others have money motivation, so of course they wouldn't tell the truth.

[Ernie1211]

Sue the doctor? Why? Any type of surgery is ALWAYS a risk. It was the mother's decision to take that risk and go ahead with it. She gambled and she lost! Doctors are human. That deaf child may have some deformities in his ear that the doctor is not aware of and accidentally cut or something. The mother will suffer with that conscience for the rest of her life. That was a stupid move on her part. Can't she leave things well alone? Being deaf is not a deformity. Jeez, poor kid!

[fuzzier98]

I'm so sorry to heard what happened to that one year old deaf son. That's a real shame of what happened. I was considered to have CI when I was 18 years old but I decided not to do it because I've met another deaf guy who had CI. He had suffered headaches as a result from it. So it's why I didn't do CI for myself. I heard too many unsuccessful stories of CI onto deaf people. That's the main reason why I didn't do it. Once again, I'm so sorry to see of what happened to that one year old deaf son.

[TheGoldenAngel71]

Oh man!!! the mother can not expect son to be normal to hear everything thats wrong. I do wear CI at age 18 it was my choice to hear on my left ear. I realized it not work because my left ear was dead as deaf. I had another surgery at age 26 for my right ear to hear with CI. I am always be deaf, but I want to wear CI to hear from my family. The mother is wrong to push son to hear as hearing person. There's no cure for deaf to be hearing. Oh man poor for that little boy.

[CookieToddo]

Noooo, that has to be very rare to happen.. poor mother and son... whether or not I am for or against CI, CI is here to stay.. we need to educate what you had said, still deaf! CI may help a lot but be aware it is not 100 % effective. gosh!

[Salticid68]

@CookieToddo What's wrong with being Deaf? They're fine, so leave at that. However, hearies don't leave at that. Why play risk with CI? Many, not rare, users get headaches. They can't have electrical cardioversion when they have heart attacks. They can be killed by EMP, infestation, mishap, or electric shock. They can't play wrestling, or other sport very hard, because blood will rush to brains. There is small radiation on CI device itself. See, CI isn't worth it. Please, be sane.

[Salticid68]

The mother should be in prison for putting her child at risk, if she already knew the risks. Her doctor should also be in prison for gambling Deaf babies' lives. FDA crews who approved CI in the first place should be hanged for the crime. They illegally hide statistic. CI already caused few deaths, yet FDA didn't stop it. However, no one will be in prison. They're evil mobsters manipulate law according to what they like and too barbaric and coward to do that to babies.

[bgmaron8]

One thing that boss 's remark make me amused because what boss said "Deaf" is not normal.

Look like I am not normal? lol 

[bgmaron8]

I left my comment at DVTV so here are text. His story is sadness because of medical mishap. if patient have surgery then should expect to take the risk. The patient should consult the doctor about the risk before take the surgery. All medical procedures apply to all body (heart, brain, hip, knee and more) are risk as post-surgical. I am not here to speak against CI . I am open to options . I am talking about medical risk you have to deal. Ask many questions to Dr before make a decision.

[NeaLAUGH]

So Sad !..Shame on Hearing People,who dont understand about Deaf's Normal Life !..Doctor want GREEDY !....Surgery is So RISKY !. Some people don't getting it ?

I'm glad that your video's share to STOP IT..Poor Baby who have no empower to say NO !

[dominicerrigo]

One more thing...why didn't a parent of the child come forward and there's no reports for facial paralysis from Cochlear Implant surgery for the past 6 months. I will show this to my doctor tomorrow and he has the access to information if you're telling the truth or not. Actually, it was my real doctor appointment to get CI for a final check up.

[mrjoeybaer]

Would like to add one more thing... like some others said, we need to urge your boss's daughter to SUE. Let them know that Deaf people will stand behind her and their family. They will have plenty of supporters! Lets do that to protect our precious babies.

[PopeMistress]

@mrjoeybaer yep will remember that no matter what!

[mrjoeybaer]

Thank you for sharing. This really broke my heart and I have a sense that there are many like this but they are hiding them. They did not want us to know the truth on the risks behind the surgery. It would be great if you could add voice/captions to your vlog. If you need help, let me know!

We need to fight for social justice for Deaf people to do what we deserve and want on this earth - just like any other human beings!

[falzTV]

Good video! It is time for the survivors out there to come out and speak out. We'll support you all the way! It is time to expose the risks are REAL! It is time to stop the other skepetical parents and people from minimizing other kids' and their parents' painful experiences by comparing to their success-story CI kids. Those parents whose kids turned out OK with CIs are lucky that they gambled on their kids and they turned out OK. Many others are not that lucky!

[spiritualwing64]

It was unbelievable to hear your boss' story. There is a risk about Injury to the facial nerve --this nerve goes through the middle ear to give movement to the muscles of the face. It lies close to where the surgeon needs to place the implant, and thus it can be injured during the surgery. An injury can cause a temporary or permanent weakening or full paralysis on the same side of the face as the implant. We are still fighting for this to help hearing parents to research more about this.

[dominicerrigo]

I have a question for you...a year old baby gets two CI's on both ears at once? And, was it an old way of incision like 5 inches long on the side of skull. If so, these parents didn't do their homework and the lawsuit will never accomplished. They signed the papers knowing the risks involved before the surgery. Majority of doctors today cut behind the ear which prevented facial nerve damage. The incision on my son was only 3/4" behind the ear and went to school on the next day. It's on the web.

[catfreak2010]

daughter already agreed signed before OR.. it her fault that she wanted CI on his son... she didnt get friends's advice told her dont put CI on him and now his son is different after surgery and cant SUE dr... sooo...

[auntnikki12]

Your video touched my heart. I have CI, since I was a small child by my parent's decision. And you are absolutely, 100% right about will be deaf forever even withCI. Seems to me that hearing parents have the wrong idea of what "normal" is. I hope the paralysis won't be permanent. I had temporary paralysis on one side but it went away with steroid meds. My heart feel so sorry for the little boy!

[loze101]

I am sorry to hear that. The bad doctor doesn't respect a deaf person.

[gcoolmanern]

that why hearing world still dogs because they listen doctor are god no ways.

[adidas7bryant]

that does not stop me from wanting to have C.I. u know some people are dying to be thin, dying to be beautiful and etc.. u know what i mean.. as for me i m dying to be able to H E A R!!!! every surgery has a high risk factors.. i mean no difference!

[aguabo]

@adidas7bryant

Good for you but did the child agree to having CI surgery? Did he give medical consent? I don't agree that parents make those decisions. Come on be relastic!

[adidas7bryant]

@aguabo i believe that parents to make the decisions for their children, not u or me or others because the children are not urs or mine or others. that video did nt tell when that baby had surgery. i dont know if its old news or what.. the parents should do their homework before make a decision..

[falzTV]

@adidas7bryant - Apparently you didn't pay attention to the video really carefully. He said in the video that it happened recently in around 3rd-4th week of October. So, yes it is RECENTLY. Saying "the parents should do their homework before a decision..." is MINIMIZING their painful experiences. Most of time the parents are under the pressure of the CI-proponents and emphasis of NORMAL NORMAL NORMAL. Ultimately, they chose this route. It is time to stop blaming the victims.

[butterflyfirefly77]

@falzTV first thing first, most parent feel pressured that the earlier, the better... We have to disprove that earlier does not mean better.

[falzTV]

@butterflyfirefly77 - thanks for pointing it out but that is not my point.

[butterflyfirefly77]

@falzTV rather it is your point or not. That's majority of reason why hearing parent rush through CI without giving themselves time to think

[falzTV]

@butterflyfirefly77 - if you read what I said, that was what I said. They were usually under pressure by others to go ahead with it.

[aguabo]

@adidas7bryant

BINGO! Not you, not me, not others (parents) then who shld be the one to make decision? Who? That child makes his own decision, we don't own babies, we owe them big time. Especially his mother who will have lots to think about and she owes him an apology and join us fighting for child's right to medical consent, not you, not me, not parents.

[CloggieIllinois]

I have been wanting to get a CI for a long long time, but after alot of SOUL SEARCHING, I realized that a CI is not a cure but a band aid job, and the sounds are not PURE sound, but robotic.. thanks for posting this, the mom will have to live with her decison, and will have alot of explaining to do when her son is old enough to ask questions, Oh BTW why blame the doc for the botched up operation, the parents, GAVE THEM PERMISSION to do the operation ( whatcha think )????

[WitchFrog]

Hello wannatojeeping, Let you knoww that ur vlog is in aslrocks.net and few video comment for you!!

[YAgetSHANKED]

need to caption this video to spread out to the world for the hearing parents of the deaf children

[ASLElla]

thanks for sharing this with me. I saw the other video you posted on Facebook and I shared it in my status. This is tragic. This hurts so much for me and all those people. I hope you get in touch with the daughter and give her support. Do you know about the lawyer in Pennyslvania who has sued CI corportation (Advanced Bionics) twice? I don't know of anybody successfully suing doctors for CI screwups, but it's time for all of us to share resources and stop this senseless obsession re "normal"!

[Bunjer]

@ASLElla so it's time to get Minority Rule into the picture, or not had enough yet?