postural orthostatic tachycardia syndrome (POTS) my story

[TheKajsen]

Just diagnosed today...i:

[NF5624]

Just diagnosed today...

[unusualkate]

@NF5624 were you dianosed? sorry to hear that! stay strong

[JesseJaim]

Would love to connect....I have just been recently diagnosed! I havent been able to work for 3 years. I am so glad of the people who share their stories. I will soon get the courage to do my own videos!

[unusualkate]

@JesseJaim hello I'm so sorry to hear that. Yes start making videos its great to get things off of your chest and to an audience that cares! :)

[genefirst]

I just wish they could find a cure for us p.o.t.s.ies...it is taking everything from me i need friends that know what im going through...cause my other friends have no idea...is there a website for people with p.o.t.s. i am 22 and a guy and IT SUCKS living with this

[unusualkate]

@genefirst The day they find a cure is the day that all posties will run a marathon together and our run regular people :) I completely understand no body understands the complex outcomes of having POTS! when people used to ask me how are you going I just never had the energy to explain something they just will never understand. hang on to those friends you are very lucky because I had a group of 'friends' betray me over it because appartly to them POTS didn't exisit so they just turned their

[unusualkate]

@genefirst back on me but then I had the friends that stuck by me so I just think of them and cut the strings to the bad peoplep in my life and you know what F**k them for giving up on a person that needed them the most! don't waste your time on people that just wont give a damn about you STAY strong as hard as it is! Don't worry I will always be here for you <3

[genefirst]

@unusualkate thank you for the reply sorry i seen it so late...im still in and out of the hospital and my passing out is getting worse.the worst part is that we are to drained and we dont want our loved ones to hurt so we stay quiet.i was hopeing this was going to be a new year, new me type.but i was in the er yesterday and the ekg came back with atrial fibualtion and that is what i had surgery to get rid of 7 months ago.now im looking at posibly another surgery and a pace maker.

[genefirst]

@unusualkate and i have cut my strings and have let them know how i feel...you bestly put it as "F**k them"... =-}

[unusualkate]

@genefirst Good on you! don't watse time on people who just don't care!

[cassydimech]

beautiful girl

[ChrisVitchev]

Kate I have pots too going to prince alfred for a tilt table also! Im prolly the only guy i know who has it though.. am 26

I feel you, hang in there

[unusualkate]

@ChrisVitchev Hey chris sorry to hear that but glad there is more people going through the same thing it puts your mind at ease but it's all for the wrong reasons. same to you hang in there!!

[potsinfo]

Hey Kate, what was that web address again pls? ( I can't see it lol) x

[TeenPotsyProductions]

Hang in there and stay strong! ~Kristina~

[unusualkate]

Thank-you very much. Us people with POTS need to stick together hehe :)

[RubyZeeSun]

I wish you all the very best Kate!