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From: davidversusautism
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  • Such a sick fraud! So tell me, how did this kid learn to spell at all?? especially a word like "poignant" to know the meaning of "poignant", how to properly use "poignant" in a sentence or how he even learned to compose a sentence. This "FC" crap is a FRAUD. It is an assault on the child, it is child abuse and a crime against humanity!

  • FC is a fake. Do a test. Show your kid a picture and ask him to type it, but don't let the FC sees what the picture is. Or show your kid a picture and show the FC a DIFFERENT picture and sees what is type out. Or ask your kid a question but don't let the FC hears what you have asked. Then see what your kid type.

  • We started to train autistic kids and parents to type on a paper keyboard since 1-2 years ago in Taiwan. Now some kids can type independently with computer keyboard and some needs very limited assistance (mothers gradually tapered their assistance during the exercise). Then, some special education teachers tried out the skills after they attended our speech and they successfully helped some kids to type, who were previously thought to be severely mentally retarded.

  • Look, don't get mad at people for calling something pseudoscience that has been discredited since the 90's. If you knew someone that was going through leech treatment as a cancer treatment you would do the same damn thing.

  • facilitated communication is fake

  • Stop holding the boy's hand, bitch!

  • Actually, my brother does this too, and from what he wrote it is evident that it IS real. He told his therapist stuff she couldn't know but we know it's true and he has the phantasy of a little child and writes stuff my dad would never think of. The therapist has no emotional connection to my brother and my parents and me didn't believe it either, at first. But my brother gave us so many proves that we came to the conclusion it must be real.

  • I don't understand facilitated communication. Why does he need a facilitator if you guys keep insisting that she isn't doing anything? Why can't you just give him a keyboard and ask him to type? And how does your extremely young son (with Autism, I believe?) know the word "poignant?" I'm seventeen with a 139 IQ and didn't even know that word until I just looked it up. She also was extremely forceful with him, making him finish when he didn't want to.

  • @dawningsun FC has been repeatedly and conclusively proven to be illegitimate. It is a lie and is not taught in university programs that prepare teachers to work with students who have communication deficits.

  • at that age, how is "poignant" in his everyday vocabulary?....

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  • I'm sorry but I gotta say it. THIS IS NOT REAL! I know the parents want to believe it is and that their son can now communicate with them but it isn't. All of the typing is done by the facilitator. We have to learn at some point to accept the truth. It's obvious that the kid was being forced to solely by the fact that he did not want to do it. I'm not saying the kids not intelligent b/c he is since he was able to get the facilitator mad. But please, stop forcing him to do this kind of stuff

  • Wow. It's 2011 and people are still being duped by facilitated communication?

  • You do realize that science has shown this method is a hoax. Just sayin'...

  • To the recent haters. If you have never experienced FC before you should really shut the hell up. Because I have a brother with sevre autism who currently facilitated with ME, which he never does, to say "that he loves me dearly and doesnt want me to leave to college because he needs me". You may think its bullshit but until you see the actual result you won't understand how deep and intelligent some of these kids truely are.

  • @kalene32katie people will believe anything if they have sufficient emotional investment in it. Nobody here is hating. Many studies have been conducted and have concluded that FC is not real. You should watch the frontline documentary and then read as much as you can about the topic. This is not taught to teachers in legitimate university programs. People often choose to ignore science, but facts are facts and cannot be superceded by your opinion or belief.

  • @privatepile762 no you and the others who so insistently call it a lie are WRONG.

    until science can catch up..........that's what the ignorant will say.

  • @Nellicolor Science caught up to the lie of FC in the 1990s. Nobody is doing research on it now because it has been debunked by the scientific community. I suppose we alos ought to believe in the ouija board while we "wait for the research" to catch up to its effectiveness as well. You are investing in a fraud and no matter how badly you want FC to be authentic and a valid means of communication, it never will be. The APA called FC "an immediate threat to individual civil & human rights."

  • A 3 month old could type full sentences if you held its hand like that.

  • Check out the FRONTLINE program, "Facilitated Communication Prisoners of Silence" and forward it to about 26:00 and watch the next couple minutes.  You will find you're incorrect. If facilitator and autistic kid shown the same item, the kid would correctly type the item. But if facilitator and kid shown different items (tester change picture w/o facilitators knowledge), the kid typed only what the facilitator saw. Facilitated Communication is a horrible deception

  • These people want locking up, this is child abuse in it's greatest form.

    The US government need to start introducing rules to stop BS like this, these are disabled children that needs real care.

  • total fraud

  • Mother's just want so desperately to believe... I don't personally believe in the advantages of facilitated communication, just because there's not yet enough evidence to prove its usefulness. But whether it really is David's typing or not, whatever brings hope to families is a healing thing.

  • You cannot tell who's doing the typing by looking. But when you get FC training, you learn to give light support and offer resistance for the person to push against. The people who need facilitation often tire easily and continue to need support some of the time even if they can type independently (and, yes, coherently) some of the time.

  • I am not David's parent, I'm his brother. My mom wrote some comments on my account by accident.

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  • My autistic son uses a keyboard but he DOESN'T need a facilitator. What he types are sentence fragments. Some of them make sense, some don't. The point is, it's not genuine if a second person has to hold your hand. It's her words you're reading, not his.

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  • @dave4248 I disagree completely. I have witnessed many children using FC that have shared experiences that only mom and dad would know of. The facilitators are the paraprofessionals who would have no knowledge of these instances. For example on person typed of his memory at the age of 3 the day he was diagnosed with ASD. He remembered his mom putting him in his crib then laying on the bed and crying.

  • @davidversusautism sounds a lot like an argument to support fortune telling. Truth is, this is a complex method of inconspicuous prompting. The subconscious of the facilitator is the generator of the message (just like the Ouija board; nobody is moving the piece but somehow it's moving!). The problem is that these people deny scientific evidence for their own emotional well-being. After all, who are these people and what have they been doing for the past 25 years if FC is fake? Sir, FC is a lie.

  • @davidversusautism i'm responding on my husbands site. I appreciate your response so much.

    my daughter has just begun this journey. i believe in time she will be able to type independently.

    some people don't have the physical capability of doing it without the support in various parts

    of the arm. some others, have neuro situations that require a touch to the shoulder to keep on

    task. however it is........more and more are getting a voice. like braille for the blind.

  • @Nellicolor I'm sorry, but when did a touch on the shoulder stimulate neurons in the brain to stay on task?

  • He felt sad that he could not comfort her. His mom hadn't shared with with anyone not even family. This is just one of many instances.

  • @davidversusautism What mother wouldn't cry the day their child was diagnosed with autism? I say your mother cried on your first day of school. Call me psychic.

  • @shaynedvers1

    He may need a different facilitator. The children always ask that we not pay attention to their actions because they cannot feel/control them. It's their words that count. We have proven they are their words over and over again. Ask questions that the facilitator doesn't know the answers to this will show you the truth and wether he may need another facilitator.  Is his trained by an expert?

  • Research:

    Could not post a link here so Google mattababy . org belmonte

    It will be the first link that comes up

  • New research being conducted on RPM at Cornell....see Research post here.

  • Introduction:

    Our book should be about the voices and hearts of students who utilize FC. Hi my name is David ******. I am ten years old and a student of the wonderful ******, a school for kids with special needs like me. You see I highly rely on the use of FC and I am grateful that it has been introduced in my life. I believe I have been put on this earth to teach others about the virtues of patience and justice and real love. cont...

  • I think it is important for people to realize our great intelligence and giftedness that we yearningly possess.

  • David now also uses RPM and is completely independent using a pencil to point to a letterboard. He is moving forward quickly due to FC. Anyone doubting FC or RPM is stopping their child from communicating. Find a reputable FC person, get your child evaluated and move forward. David and his classmates wrote their first book recently. This is what David had to say.

  • Thanks for posting this. Great to see him do it. Look forward to possibly in the future trying it but, AJ is only at a development age of about 18-24 months even though he is 5 years old. I really am going to try to work towards having him learn the alphabet so that when he is ready he can do this too. It must have been so nice to get a concrete communication from him.

  • Totally involve AJ in language and not just teaching the alphabet. Talking, movies, shows and having others around who are verbal. Not restricting AJ to a world of silence is crucial to language development. Worked for my son who is non verbal.

  • @rlongero

    You can use the fc at that age, your child is probably highly intelligent and reading?... go get an instructor! :)

    just starting w our 2 ½ year old daughter, training at IAHP in philly.

  • Just out of curiosity, what is it that prevented David from communicating before.

    I think that facilitated communication can work in some cases, but the problem is that people are quick to generalize. Like, because it works for someone with cerebral palsy the assumption is made for other afflictions.

    There are many cases in which it's obvious that the facilitator is the only person involved in the communication.

    I'm not trying to dispute this particular result, but it varies, you know?

  • @DieBlutgrafin

    He was fully verbal by 18 months, over 180 words and many sentences. Autism arrived in full force at age 2 and all words and sentences disappeared. At 7 he began to verbalize again although it is a struggle. He was thrilled to have a way to communicate and has had so much to say. It has opened up a world for him. All know how intelligent he is now and that appears to be the most important thing for him and his classmates. They want people to see that not their disabilities.

  • I hope this is real for you. You really need to do a double-blind test though.

    Show David something that only he can see then let the facilitator in the room and ask David to say what it is. Do this 4-5 times.

    If the facilitator and David get them right, it's real communication, otherwise... well you know.

  • This is not to deny that some handicapped individuals might genuinely produce results. Stephen Hawking communicates with eye movements. I've seen him speak live and its a painstakingly time-consuming process, but he unambiguously produces original output without FC. Some autistics may also do the same, and this would be all the more reason to flush out the charlatans: to allow genuine evidence to tell us more about the communicative capacity of these folks. sadly, im not holding my breath..

  • ALL written/typed forms of communication rely on a frame of reference the communicator can use to determine the construction of his writing. Typists depend on keyboard landmarks (the home row F and J or number 5 on keypads) and keeping their arms close to the keys all the time while typing to allow for nonvisual use. extended nonvisual use is only possible with repeated returns to that frame of reference. without those constant frames of reference, NOBODY can sustain cogent communication.

  • while there ARE savant autistics capable of amazing feats, nobody escapes the requirement because all communication requires FEEDBACK.This is why deaf folks who speak have a characteristic slur to their words. Please also remember that parents love & hope for their child in such a strong way that objectivity is simply impossible for them. This means they will not only interpret ambiguous results as "scientific evidence", they will resist anyone who might burst their bubble. sometimes violently.

  • So tell me, when he types independently who is typing for him?

  • do the same trial they did on the show and see if it works.

  • There is a simple way to determine if he is truly communicating to you. Show only him an object with the facilitated communicator's vision occluded and ask him to communicate what he has seen.

  • We did this and proved it was truly his communications. We are now almost 2 years using FC and there is "no doubt" it is all him. He also types independently, independent thoughts not associated with the "posed question" that no one would know about except him.

  • I have a hard time understanding why FC is so hard to grasp. There is no difference between a person with autism who is verbal and one who is not except the present ability to voice what they want to say. There are college students with autism, there are those with PHDs with no voice just the ability to type. Communication is communication. If I thought for one moment someone was typing for him, we would not do FC.

  • I agree. I have been doing research for my son who is autistic. I don't feel that the activity is worth the effort when the legitimacy of this is in question. I liked the idea, in theory, but to see it implemented..... and the testing they have done to disprove it is overwhelming.

  • What a shame you won't at least give it a chance. I know many parents that felt the same way you do. They are now proud parents of children who are communicating using RPM & FC independently. Did I mention when these children are given the opportunity to communicate, their "behaviors" fade? I can't imagine what it would be like not to be able to communicate.

  • Shirkman23. FC will never be legitimate to many who create scientific approaches to testing. Its easy to contrive tests that enable children to fail. I see no evidence of scientific testing of FC to achieve positive outcomes. As you said in your comment

    "the testing they have done to disprove it"

    There are far more successes with FC than there are failures than those who 'test' would have us believe. My son completed senior college studies with FC without a scientific tick.

  • I can testify that FC is NOT fake. I have witnessed this first hand. It is amazing to see a person that is not able to verbally communicate, but can communicate their feelings to you through FC. To the skeptics, the facilitator is not guiding the students hand to type the words. In order to FC with a person, you must go through training with that individual and learn their style of typing. You start out with predictable words and answers, gradually moving forward.

  • big words for a kid

  • His favorite books for years were Readers Digest. Knew them all by heart. I am guessing the big words came from "word power".  Just the other day when asked how music makes him feel he typed and said verbally "Music gives me a gremlin high"

  • wow!

  • why is there need for a facilitator

  • Some children with autism lack the motor skills necessary to make meaningful, voluntary movements.

  • Thats the very reason why FC can be so effective. Proper firm support with FC enables many children with poor motor skills to slow down, focus and gain control over their movements. Supporting these children with FC does not always give immediate results. Positive attitudes are crucial along with an open mind for effectve FC to even start to work.

  • really great! I have a son who FC's he is 8 and already working toward independent typing. My son also talks some of the time when he is typing. :)

  • MonicaHWWT. Whether FC is more effective or not for some the literature shows it makes a huge difference to an individuals self esteem. For 6+ years we dismissed it as an option for our son who lived in his own world. With FC we were able to take him out of a segregated setting and support him in a regular school through to year 12. It won't be an ordeal for your daughter if you and those involved have a positive approach to trying it and keeping an open mind.

  • Please, if you are truly interested in FC, do your research it has proven to be an amazing gift not only to the parents/caregivers but also to the persons who have finally found a way to communicate. See Syracuse University Syracuse NY search Facilitated Communication.

  • Biklen has been proven incorrect numerous times. I'm amazed he still has his chair at Syracuse, unless he has gone on past the FC debacle.

  • His name is Doug and he visited my son in Australia 17 years ago. My son used FC prior to Dougs visit and he completed year 12 Cert. with good marks using FC. No scientific approval required. Validation came by doing and being allowed to participate in life. Without sceptical barriers.

  • No, she is applying resistance back from the keyboard. Your conception is a common misconception. David also types independently. The other day he typed "I have you under my thumb". Certainly not something I would type or even think of.

  • Arm support on occasions involves holding back a persons arm response. This alows the person to get some control prior to selection on the keyboard. I suspect this what Davids Mum is doing to offer him the support he needs. I am in the process of filming this process with my own son who needs a very firm approach. On many occasions I need to hold him back until he is ready. Pretty hard to do when the persons muscles inadvertently are fighting his intent to hit the right key.

  • It seems very obvious to me that she is moving his arm. There was a very good test of this conducted years ago that proved it is not what it seems. The child and the facilitator were shown separate screens and asked to type what they saw. When shown different pictures the answer was always what the facilitator saw. 100% of the time. Parents were devastated because they really believed it was real. This boy is not even interested.

  • This boy (my son) has been using FC for over a year. He types on his own as well. He is now considered verbal since beginning FC. I his mom can attest that she was not moving his arm as I was right next to him the entire time. He has also shared through FC with his aide and FC teacher things neither could have known about us or him. I wish for the sake of our children, people who haven't witnessed FC in action or actually Facilitated with a child would not say the things you have.

  • I am with you. Having used facilitation with my son over the past 20+ years there is no question it works. I have had much success using the same strategies to enable him to paint and create great artworks. He uses the poetry he writes to create themes for his paintings that blow me away. I use firm support to assist him to hold the brush and ensure he is in control before he starts. Doug Biklen from Syracuse Uni visited us in Australia many years ago. Great guy with vision and qualifications.

  • One family I know whos son is 14 yrs old was devastated that they would not let their child even try FC because of what "others" had said about it. Fortunately for them, their son was determined to use FC.. He began in Oct of 2008 and by March 2009 gave a speech that even his parent didn't hear until that night.

  • Dunkeybunker does not get it. I thought the young guy was focused considering the personal effort he had to put in to type out ONLY twelve words. It took 9.57 minutes to achieve this and that's not unusual when you are facilitating communicate. If his Mum was just moving his arm he would have finished well under this time with 12 words. I can attest to the success of facilitation through my son. Started at a training centre and completed year 12 in a regular state school using facilitation.

  • Thank you so much for your story & faith! FC has given so many without a auditory voice a way to communicate!

  • I feel for the parents of autistic children, who want desperately for their children to be able to communicate.

    However, the very valid question keeps being asked and not answered: Why does this not work if the facilitator can't see the keyboard?

    The truth is the truth - and if this FC really works, then it should work if the facilitator doesn't see what she is typing.

    MBC

  • The truth is David is now able to type independently 80% of the time. No facilitator. Please take the time to research thoroughly before you pass judgment. My son also uses a letter board completely independently. We (parents were also skeptical until we became our children's facilitators and saw ourselves) They also share things that the Facilitator has no way of knowing.

  • Using a letter board independently is not facilitated communication. It is using AAC. Facilitated communication may be a vehicle to teach students to use a letter board/keyboard, but FC as it was originally presented in the early and mid 1980's has yet to be successful in double blind studies and therefore is not scientifically based. We are all happy for those who find a way to communicate, but the communication must be completely and consistently independent, or it is invalid.

  • You may want to spend some time with the people who are actually using this method both Facilitator and typer.

  • @xXOwnigerXx If your son can type independently, why does he need a facilitator at all? Is he actually coherent when typing independently?

    The above video is a clear manipulation of the boys arm, you are delusional if you believe otherwise.

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  • The facilitator has to see the board as communication IS a TWO WAY PROCESS. It is not effective to hold the hand blindly mbc1963. Many people needing support may have poor muscle control and the facilitator may have to hold back or resist involuntary movement. Blocking communication by hiding the board is often viewed as a testing by the individual. He/she will fail in most cases as this is whats expected.

  • You are already admitting that the child is bound to fail at anything which he sees as a controlled scientific test. So what could possibly disprove something like this in your mind?

    You also admit that the communication is a two way process, which means you are admitting that the facilitator is influencing the typing in some way. My question is how do you know how much of the communication is done by the child and how much by the facilitator if the child refuses objective scientific testing.

  • Jacobins300 - I was not admitting that a child will fail in a controlled test. Children with severe disabilities, categorised & put down are prone to low self esteem. An expectation of failure by a tester can effect the outcome. Children in these cases may fail as they are doing whats expected. Scientific literature on social and emotional disabilities discusses this phenomena. Communication IS 2 way. I talk, you are influenced by my comment and respond. I am influenced by yours & respond. etc.

  • hi there we are from manchester and i work with three boys who use facilitated communication by the way is that rosie in the vid ,davids using periferal vision for all those that question,well done david you look cool typin dude

  • Thank you for your comment & thank you for recognizing the peripheral vision! So many doubt this way of communication which is sad as these children have so much to say and so much to teach us! FC with 3 boys is quite an accomplishment, you are truly an angel!

  • Yes I thought it was Rosie at first. Until she turned slightly. Rosie Cros I assume you mean. Know her and Annie well. David does look cool and relaxed.

  • It is Marilyn Chadwick from Syracuse University.

  • Not when your vision is like a chameleon as David's is. Most autistic children have vision that is unlike ours. It's one reason fluorescent lights hurt their eyes.

  • "He rarely looks at the keyboard when he types with me, his facilitator or independently"

    there was also a test that took an expert typest however and had her try and type with one finger without looking.

    she couldn't do it. nobody can. without the home keys it is impossible to do that even with all the fingers. one finger just makes it harder.

  • Last week David's vision was tested. He is seeing in 2D unlike us who see 3D. We are doing exercises to try to correct this but it would completely enable him to type without looking at the keyboard. He also has an amazing memory. His IQ is well above average for his age & that is proven without the use of FC. He has also in the last 2 weeks begun to use his words more.

  • but how does seeing in 2d allow him to type without looking at the thing and not setting his fingers on the home keys?

  • He uses his peripheral vision to see so it doesn't appear he is looking at whats in front of him, it appears he is looking away. With exercises and glasses he doesn't do this as much now. He is also mostly independent now with his typing. Will post new video soon so all can see.

  • Have you had a chance now to video and post his independent typing? Since it has been at least a month of now mostly independent typing it should be easy to capture and would clear up a lot of the controversy and vitriol in the comments section.

  • @davidversusautism may i see some proof, once again, for his super high iq?

  • David is academically between the 4th & 6th grade levels and he is 9. I can understand why there is controversy although I cannot understand why the parents testimony is being questioned.

  • As with anything you will find negative feedback but I can tell you through my own experience, not only with my son but other students. These children are typing on there own. One boy in our son's school just needs a two finger touch on his forearm, another needs a light touch on his shoulder. Neither of these scenarios would allow a Facilitator to manipulate the person's arm on the keyboard.

  • He is non verbal yet writes. I know him personally have seen him write, all independently. One fact everyone seems to neglect is you cannot, repeat cannot get an autistic child to do what they don't want to do and to sit, stay on task in front of a computer or word processor, well lets just say it wouldn't be possible unless the child is completely engaged. Again I urge you to educate yourself with those that are using FC, & have experienced the use of FC.

  • Google "Syracuse University Facilitated Communication" then look up Jaime Burke or any of the others on that site using FC. Jaime is a Junior in college, an A student. He is autistic, his mom was is his facilitator. He not only types independently but also became completely verbal by using FC since a very young age. Look for the book being released this April called Danson. He uses another form of augementive communication called RPM.

  • My son will slump down in the chair and stare when this happens to him. I give him deep pressure and tickles which allows him to continue. He rarely looks at the keyboard when he types with me, his facilitator or independently. His vision like most autistic children is unlike ours. His depth perception allows him to see more all around him, another reason autistic children become over stimulated when there is too much stimuli around them.

  • I am not saying that there isn't deceit in the therapy, there is deceit in all therapies by therapists who don't believe in the child's ability. Believing in the child, knowing the child inside and out is a main factor in facilitating as you have to know for example when the child cannot feel his/her body and needs physical stimulation.

  • have you all not seen the vast amount of evidence against this hogwash? Why is she looking at the keyboard? only he needs to be.

  • I am David's mom and can tell you because I was sitting directly to David's left that he was looking at the keyboard and he was typing. This was May of 2008, today David types independently his thoughts and any communication he wishes to share. He is also able to do this without looking at the keyboard.

  • Have you read the research on FC double blind studies? When the "facilitator" cant see the child or the key board all effects disappear, why is this?

  • He can read a book out loud whether it is in front of him or held to the side. A little advice to you, before you call something you have not experienced yourself "hogwash", educate yourself. She is looking at the keyboard for a reason, watch and this time listen. It a no brainer.

  • Thank you all. It is amazing and awesome to know that David has so many supporters. This is VERY important for him. Thank you all!

    David's Mom Nancy

  • David, you are a special child! Know that you are cheered on daily by people you don't even know.

  • There are no words momentous enough to say about such an extraordinary young man. I know of David only one day so far and he already has a place in my heart.

    -Scott

  • what a wonderful experience.

    the evaluator looks like maybe the same one out daughter Kim has - think I know that voice!!!!! and than kind techique !!!!

    Is it MC?

    you may want to see a web site in San Franciso bay area that used FC - just doesn't call it that.

    Congratulations to David - time will be scary with the new found experience of communication but your world has just opened wide for your - step through that door!

  • Way togo... that's awesome for you both!

  • I am David's mom and wanted to share that he through Facilitated Communication and computer programs has requested "I want big math like Danson" which refers to Trig. He refused to do simple math although when given "big math" he excelled! These children are amazing! Thank you all for supporting and believing in our son as we do. There just are no boundaries unless we create them.

  • Love the quote Davids Mum. 'There just are no boundaries unless we create them.'  Have been saying this for years and its worked for our family also.

  • Nancy...I am crying tears of joy for you! How wonderful! Way to go David!

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