I was diagnosed at age 30 and it progressed to both hands, arms and legs by the age of 34. The medications completely stole my quality of life. Bilateral DBS surgery was the best decision I ever made. I had subsequent corrective DBS surgeries when one of the leads failed, and again when a wire in the neck broke. It hasn't been easy, but I have so much life ahead of me & DBS was a blessing. I'm donating my brain to research one day..I hope others will consider this option. We need a cure.
I have just finnally been diagnosed with ET after fallowing 4 generations back of this disease that has never had a name in our family! Its very hard to live with and being only 32 its hard to eccept esspecally when your friends make fun of you for it. Guess they aren't your friends anymore if they can't support you when your sick. Thank god for the net and hey guys its nice to know that we all have a common bond to bad it has to be this but at least we can carry each other through.
ET is a life of Hell. There is noone to understand accept those who have it. Hang in there with me you guys. I have Suffered with it for over 35 years.
I have ET since I was a little baby, began in the hands and now today I'm 23 soon 24 years old and now have in hands, head, legs. Just being worser with the time, there should really be more information out there about this so people could know. Thanks for postng this video
Im 15 years old. I have tremor since last year. (summer 2008). My doctor said, it is a progressive tremor. Please enjoy your life everyone. In the future, i may not be able to do the things i usually do (writing, drawing, many more) and the things i want to do (piano, draw). I decided to do all the things i can do now.
i have ET since i was 21, seen in the head. i am now 28 and have made progress with yoga and progressive muscle relaxation. surgery is not the only solution for everyone! please consider other cures...
I also want to thank you for contributing a very powerful bit of education to the public. I have had ET. for several years, and was told initially it would likely not progress. It has, and I am continually looking for ways to compensate for the physical abilities one has lost, that we take for granted. Again, I applaud you for your very valuable contribution.
Thank you so much for posting this video. I have had ET for the last 8 years. I was officially diagnosed about 2 years ago. I am an artist and do typing for a living, so it's a major issue in my life. There needs to be more info like this out there for people. Thanks again.
hi i have essential tremors ive had it sense i was a baby im now 39 and just got diognosed last year anf this year i finaly after years of battle got disiblty can u write me back would love to understand et better and conect with others with it :)
Thank you for posting this
nocysfinest4ever 3 weeks ago
i had the dbs surgery in april. changed my world. no more ridiculing from people.
azthundercloud 1 year ago
I was diagnosed at age 30 and it progressed to both hands, arms and legs by the age of 34. The medications completely stole my quality of life. Bilateral DBS surgery was the best decision I ever made. I had subsequent corrective DBS surgeries when one of the leads failed, and again when a wire in the neck broke. It hasn't been easy, but I have so much life ahead of me & DBS was a blessing. I'm donating my brain to research one day..I hope others will consider this option. We need a cure.
trakat77 1 year ago
I have had it for 43 years not a day goes by where someone does mention it my high school years were hell
carol54149 2 years ago
I have just finnally been diagnosed with ET after fallowing 4 generations back of this disease that has never had a name in our family! Its very hard to live with and being only 32 its hard to eccept esspecally when your friends make fun of you for it. Guess they aren't your friends anymore if they can't support you when your sick. Thank god for the net and hey guys its nice to know that we all have a common bond to bad it has to be this but at least we can carry each other through.
-Dawn
nuclearforge3 2 years ago 3
ET is a life of Hell. There is noone to understand accept those who have it. Hang in there with me you guys. I have Suffered with it for over 35 years.
robhagle 2 years ago 4
I have ET since I was a little baby, began in the hands and now today I'm 23 soon 24 years old and now have in hands, head, legs. Just being worser with the time, there should really be more information out there about this so people could know. Thanks for postng this video
dani1985 2 years ago
Im 15 years old. I have tremor since last year. (summer 2008). My doctor said, it is a progressive tremor. Please enjoy your life everyone. In the future, i may not be able to do the things i usually do (writing, drawing, many more) and the things i want to do (piano, draw). I decided to do all the things i can do now.
AhLeeJi 3 years ago
i have this health problem since i was a young boy
it affects my hands and my head...my head twitches when i feel stressed or angry.
i can't begin to say how much this problem has affected me.
i reckon i'll die with this problem because
i don't have money to get the right treatment.
bigbreadeaterellis 3 years ago
i have ET since i was 21, seen in the head. i am now 28 and have made progress with yoga and progressive muscle relaxation. surgery is not the only solution for everyone! please consider other cures...
rotesocken 3 years ago
I also want to thank you for contributing a very powerful bit of education to the public. I have had ET. for several years, and was told initially it would likely not progress. It has, and I am continually looking for ways to compensate for the physical abilities one has lost, that we take for granted. Again, I applaud you for your very valuable contribution.
Rosie3160 4 years ago
Thank you so much for posting this video. I have had ET for the last 8 years. I was officially diagnosed about 2 years ago. I am an artist and do typing for a living, so it's a major issue in my life. There needs to be more info like this out there for people. Thanks again.
PurpleWizardBBW 4 years ago 2
I am 24 and I am having some problems with my pinky shaking non-stop. Please view my video of this and tell if you think it is ET or parkinsons.
FEARofTREMOR 4 years ago
hi i have essential tremors ive had it sense i was a baby im now 39 and just got diognosed last year anf this year i finaly after years of battle got disiblty can u write me back would love to understand et better and conect with others with it :)
shanti
shanti1001 4 years ago
Thank you for sharing this information about a common but much-misunderstood condition.
midgearea 4 years ago