MyLifeMoon is a community network of people “living life to the fullest” who have the Sickle Cell Anemia (SCA) blood condition, or are friends and family of a person with the Sickle Cell Anemia blood condition. Our vision is to create a web based community that seeks to bring people who are affected in one way or the other together to share their experiences and celebrate the lifestyle, achievement and exceptional life. Please visit and join our community.
Hi Nazaire, my son was a teen actor in this psa, his lines were " and that it can affect you or someone you love" even though we dont have sickle cell in our family, we do kow a young boy a friend of my older son's who has been living with it forever. We wanted to be a part of the PSA for that reason Please contunue getting the awareness out. Stay blessed.
thanks....he has a hemotologist.... and i am still trying to find an organization in my area...its like...here in southern california..they only take cancer seious..cause i asked the nurse do they still have the support group for sickle cell anemia and she said..no but i was welcome to sit in on the cancer support group...wow..how convienant. my son has Sickle cell anemia not cancer! I know they both attack the blood,,,but they are 2 different things!!!
my son is 3 months and he has sickle cell anmemia...or ss disease....i am a young mother..i am 21 and it scares me because im always paranoid and scared and i find myself waiting for him to have his first crisis...and it scares the hell out o me..because its not like he can say..mommy my feet hurts mommy my hands hurt...and i just feel bad..because my husband and i have a 2 year old daughter and we don't want this to take away time and energy from her..
depends where you live but their are many new advances to treat and even in some cases cure Sickle Cell from children not in my case as an adult but there is hope for younger children so ask your doctor about these or contact the SCDAA for more info (google it) - Best Wishes -naz
Don't be afraid. Just learn as much as you can. I have Sickle Cell and it is a struggle, but the support of my family has been a life saver. Educate yourself and your family. Go to the Sickle Cell Disease Association of America website and see if there is an organization in your area. Children his age rarely get sick, because of higher levels of fetal hemoglobin, but make sure your son has a hematologist.
I am probably the youngest one on here to have sickle cell disease and post comments about! But hey my name is Shameka i am 19 years old and I have had sickle-beta thal since I was a year old! Hey to all of us with this disease we need to band together and all become friends and keep in touch be each others support system outside of family and friends...we need to be there for each other! request me as a friend! thanks guys!We'll keep fighting til there is a cure!
You are very educated on Sickle Cell Anemia Disease.I was wondering if you or a family member suffer from SSA Disease? Its refreshing that somebody cares what happen to people with this PAINFUL Disease and want to help educate people on this subject. Thank You also Nazaire 73 for giving me HOPE that I can and WILL find a CURE for this DREADFUL disease! GOD BLESS YOU!!
yes, I am a 35 year old male with Sickle Cell Anemia (SS) - I lost many good friends to this. Its not easy but I could not just sit around and watch without doing something. After many years of doing this I don't see the major changes and people are still dying needlessly. So I don't do it for the thanks or blessings... I just felt like I had to.
Can a woman get sickle cell disease from her husband, if they have a child together. Can it be passed on to the mother from carrying the child and giving birth? I know that is a stupid question, but I haven't studied it enough.
No its not a virus, its genetic. It cannot be passed that way. You are born with Sickle Cell Disease only if both parents carry the genes that can cause it. please get tested for the gene or learn more.
Can apes and monkeys get it?
microsoftdude11 1 year ago
MyLifeMoon is a community network of people “living life to the fullest” who have the Sickle Cell Anemia (SCA) blood condition, or are friends and family of a person with the Sickle Cell Anemia blood condition. Our vision is to create a web based community that seeks to bring people who are affected in one way or the other together to share their experiences and celebrate the lifestyle, achievement and exceptional life. Please visit and join our community.
MyLifeMoon 1 year ago
monkeys get it too
bswift5 1 year ago
Hi Nazaire, my son was a teen actor in this psa, his lines were " and that it can affect you or someone you love" even though we dont have sickle cell in our family, we do kow a young boy a friend of my older son's who has been living with it forever. We wanted to be a part of the PSA for that reason Please contunue getting the awareness out. Stay blessed.
kaseem22 2 years ago
thanks....he has a hemotologist.... and i am still trying to find an organization in my area...its like...here in southern california..they only take cancer seious..cause i asked the nurse do they still have the support group for sickle cell anemia and she said..no but i was welcome to sit in on the cancer support group...wow..how convienant. my son has Sickle cell anemia not cancer! I know they both attack the blood,,,but they are 2 different things!!!
hiswifebrit 2 years ago
my son is 3 months and he has sickle cell anmemia...or ss disease....i am a young mother..i am 21 and it scares me because im always paranoid and scared and i find myself waiting for him to have his first crisis...and it scares the hell out o me..because its not like he can say..mommy my feet hurts mommy my hands hurt...and i just feel bad..because my husband and i have a 2 year old daughter and we don't want this to take away time and energy from her..
hiswifebrit 2 years ago
depends where you live but their are many new advances to treat and even in some cases cure Sickle Cell from children not in my case as an adult but there is hope for younger children so ask your doctor about these or contact the SCDAA for more info (google it) - Best Wishes -naz
nazaire73 2 years ago
Don't be afraid. Just learn as much as you can. I have Sickle Cell and it is a struggle, but the support of my family has been a life saver. Educate yourself and your family. Go to the Sickle Cell Disease Association of America website and see if there is an organization in your area. Children his age rarely get sick, because of higher levels of fetal hemoglobin, but make sure your son has a hematologist.
I wish you all the best. :)
DatTaLLGuRL 2 years ago
keep up the good work
openhaiti 2 years ago
I am probably the youngest one on here to have sickle cell disease and post comments about! But hey my name is Shameka i am 19 years old and I have had sickle-beta thal since I was a year old! Hey to all of us with this disease we need to band together and all become friends and keep in touch be each others support system outside of family and friends...we need to be there for each other! request me as a friend! thanks guys!We'll keep fighting til there is a cure!
Shameka<3
: )
hotlilmama89 2 years ago
You are very educated on Sickle Cell Anemia Disease.I was wondering if you or a family member suffer from SSA Disease? Its refreshing that somebody cares what happen to people with this PAINFUL Disease and want to help educate people on this subject. Thank You also Nazaire 73 for giving me HOPE that I can and WILL find a CURE for this DREADFUL disease! GOD BLESS YOU!!
3millions 3 years ago
yes, I am a 35 year old male with Sickle Cell Anemia (SS) - I lost many good friends to this. Its not easy but I could not just sit around and watch without doing something. After many years of doing this I don't see the major changes and people are still dying needlessly. So I don't do it for the thanks or blessings... I just felt like I had to.
nazaire73 3 years ago
I am a 44yr.old Sickle Cell Anemia Disease Patient. I will find a Cure!!
3millions 3 years ago
Can a woman get sickle cell disease from her husband, if they have a child together. Can it be passed on to the mother from carrying the child and giving birth? I know that is a stupid question, but I haven't studied it enough.
00clouds00 3 years ago
No its not a virus, its genetic. It cannot be passed that way. You are born with Sickle Cell Disease only if both parents carry the genes that can cause it. please get tested for the gene or learn more.
nazaire73 3 years ago