@PauleQueenie No. The neck float is all kids with SMA can do without some help. She has no neck control and she can't stiffen her body, so it'd be hard to float. She loves the neck float though and LOVES being in the pool. We go often in addition to her pool time/therapy at school.
@miershpedankl, if Emily has no control over her body why is she encouraged to walk in the water then?
Some children with SMA do float in the water wearing an inflatable helmet and inflatable arm bands, there again, children are all different and do enjoy the freedom they gain in the water where their boyancy is less than the gravity on dry ground. I think it does help with relieving their spine from the weight of their body, something everybody notice while in the water. Fun is a leading idea
@xLittleMusicFan No, Emily has a very difficult time communicating verbally. We are looking into eye-activated systems and touch systems, like the iPad to give her some communication ability.
hi mom and dad she lookes like she is doing great. we have a special needs school like that where i live called clover patch and they have a pool to. my two younger brothers went their when they where littel. it helped them a lot and I know this school will help Emily alot.
@videolver2: good question. :) Emily has a disease called Spinal Muscular Atrophy (SMA) and cannot sit up or support any such weight with her body. The movement you see in her arms is essentially all she can do on her own. So, the water is extra good for her b/c it makes her weightless :)
Has Emily learnt how to float in the water?
PauleQueenie 1 year ago
@PauleQueenie No. The neck float is all kids with SMA can do without some help. She has no neck control and she can't stiffen her body, so it'd be hard to float. She loves the neck float though and LOVES being in the pool. We go often in addition to her pool time/therapy at school.
miershpedankl 1 year ago
@miershpedankl, if Emily has no control over her body why is she encouraged to walk in the water then?
Some children with SMA do float in the water wearing an inflatable helmet and inflatable arm bands, there again, children are all different and do enjoy the freedom they gain in the water where their boyancy is less than the gravity on dry ground. I think it does help with relieving their spine from the weight of their body, something everybody notice while in the water. Fun is a leading idea
PauleQueenie 1 year ago
Omg ! good job emily ! U're so pretty ! But, she can't talk ???
xLittleMusicFan 1 year ago
@xLittleMusicFan No, Emily has a very difficult time communicating verbally. We are looking into eye-activated systems and touch systems, like the iPad to give her some communication ability.
miershpedankl 1 year ago
WOW GOOD JOB EMILYY !!! GET BETTER PLZ!! WHAT AN ANGEL!!!
xchiikax 1 year ago
hi mom and dad she lookes like she is doing great. we have a special needs school like that where i live called clover patch and they have a pool to. my two younger brothers went their when they where littel. it helped them a lot and I know this school will help Emily alot.
jsrcamp 2 years ago
@jsrcamp She certainly does enjoy it!
miershpedankl 1 year ago
I think water helps kids. how old is she and what happen to her?
videolver2 3 years ago
@videolver2: good question. :) Emily has a disease called Spinal Muscular Atrophy (SMA) and cannot sit up or support any such weight with her body. The movement you see in her arms is essentially all she can do on her own. So, the water is extra good for her b/c it makes her weightless :)
miershpedankl 3 years ago
Good girl Emily! Your great at swimming!
snowflakes1560 3 years ago
GREAT JOB EMILY!!!
lossilva4 3 years ago
As your daddy would say "Cool Beans" Emily! You look fantastic and like you are having so much fun. What a cool school!
debbystonge 3 years ago
Look at you Emily,you're swimming and singing just like the little mermaid!I'm so proud of you sweetie!
princesscourtney413 3 years ago
very cool video, Way to Go Emily... I cant wait to see more :)
shylae13 3 years ago
Way to go Emily. Excellent job Lee family! You are so lucky to have access to water therapy. looking forward to more videos.
Shira2 3 years ago
Great JOB Emily!!!!! I am impressed.
Are those 1 pound weights on her feet like Lizzy uses? Lizzy has swim therapy on WED this week.
Hey send this to DR. Crawford okay?
red542000 3 years ago
Congratulations Emily! You look comfortable and very happy in the water.
benjilake 3 years ago