Hi, I really hate to say this but I really appreciate your video. I just got diagnosed with ET in Aug. I have had a hard time explaining how it is to friends and family. This video hits it on the head. It really sucks to have a condition that is manageable until you want to do something. And the bad days are really debilitating. All day in bed shaking. I feel that this is so unfair as I have always been active. Now I can't even eat soup without a straw. Keep strong.
@majik624 thanks for the comments. it does suck, but remember all the people who have it far worse and then think of something you can do for them. for example, i am presently volunteering in an adult literacy program. being a grown up who can't read is definitely worse than ET. also, i just make my tremor part of the show-->they think of me as their shaky reading instructor, and i tell them it's because i am so excited about their reading. see, not so bad now, eh? to be continued. . .
Hi, I really hate to say this but I really appreciate your video. I just got diagnosed with ET in Aug. I have had a hard time explaining how it is to friends and family. This video hits it on the head. It really sucks to have a condition that is manageable until you want to do something. And the bad days are really debilitating. All day in bed shaking. I feel that this is so unfair as I have always been active. Now I can't even eat soup without a straw. Keep being strong.
@majik624 continued. . .i would also humbly suggest that there is no need to spend the day in bed shaking. to me that sounds counterproductive to good mental health. get out of bed and do something, no matter how much you shake. stand up with music playing and call it dancing if need be. staying in bed all day is for people who are in the last stages of their death, not for people with non-lethal motor-neuron syndromes. shake n' bake! =D
@wesieboy56 hi there, yes, i can tell you the difference. but why don't you just go to wikipedia and read about the similarities and differences yourself? one major difference is that a parkinson tremor typically presents itself when the affected body part is at rest; with ET, the tremor presents itself when the muscles involved are active.
@DinosawrJr it certainly may get worse. if it is ET, it may or may not get worse. on the other hand, there are other things it could be. either way, if you are concerned you should see your doctor. good luck!
It's awful, same here too- Thing I can't stand the most is when people think I'm "nervous". I hate having to explain the condition all the time. ( I always feel like saying - DON'T flatter yourself- I'm definetly NOT nervous around YOU!)
It's horrible annoying- I'm not too bad, but after hanging out with someone for a while, they notice it. Wish there was something to cure it-
It's awful, same here too- Thing I can't stand the most is when people think I'm "nervous". I hate having to explain the condition all the time. ( I always feel like saying - DON'T flatter yourself- I'm definetly NOT nervous around YOU!)
It's horribly annoying- I'm not too bad, but after hanging out with someone for a while, they notice it. Wish there was something to cure it-
Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.
Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.
Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.
Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.
@martinclembo hi martin, i first noticed my tremor in high school, and it has certainly progressed since then. my propranolol medication is really the only thing that helps me go for a time without shaking.
hi this is my troll account lol but gonna post seriouse here I guess. I've had et my whole life it's really not that bad anyways you're a hero mrgenius for coming forth with this little disorder, Ima subscribe to you
@stxlandil cheers, mate. be sure to see your doctor to get a diagnosis. there are medications that can really help for many of us. i keep meaning to make an update vid about my ET. it has progressed a lot since my last vid. maybe this weekend.
Thank you SO much for this Mr. Genius! I am 53 and have had this for as long as I can remember. I have felt like such a freak my whole life. I always thought there was something terribly wrong with me that I couldn't tell anyone. I just discovered IETF and was so relieved when I did that I cried. BTW - I played French Horn all through school. I play guitar, but only when I am alone, or drinking.
I'm 26, mine started at 12 and thankfully it's confined to my hands but when I was younger everyone thought I was just always nervous. Information is important!
I began showing symptoms of ET at the age of 30. By age 34, it had progressed to both hands, arms and legs. I tried every medication combo out there before finally deciding on Deep Brain Stimulation surgery. I had to have a couple (yes, a couple) of corrective surgeries, but it was the best decision I ever made. I'll post a video of my own soon. Hang in there and stay positive. =)
@mrgeniusontv If you ever have questions about it, don't hesitate to ask. I can walk you though the procedue, recovery and outcome. No one can tel that i have the bilateral implants. They do the job without stripping away the quality of life taken by the medications used for ET. I highly encourage DBS to anyone with this disorder. Again, feel free to reach out if you'd like more insight from someone who's been through it all. Take care. Tracy
Thanks, but she already did, we live in Colombia and medicine here isn't really good (except for sillicone implants). We just can't find anyone around here who can actually diagnose ET. We will have to search in a more developed country, at least in medicine terms. (sorry for the messy english)
Hay guys, ET is a bitch I have been suffering from it for years. But once I started taking Propranolol it almost goes away. talk to your doctor see what he/she says.
Thanks for posting this up mate. I have am positive i suffer from this and have done from early teens, now 27. I have it bad in my neck and left hand it it happens when ever i get anxious or find myself having to concentrate on something like playing a computer game or Dj'ing. Also happens when i get angry etc. I have been to my doc before and he didnt think it was essential trmor at all more just anxiety but I'm positive its this. How can i go about convincing my doctor into agreeing with me?
hey mate, ask your doctor is he realizes that ET is affected by stress. you should also ask for a referral to a neurologist. if your tremor is affecting your life, your healthcare provider should be willing to offer help.
Definitely insist it is NOT anxiety. I had doctor after doctor refuse to help because it was "just nerves." It is most certainly NOT, and you're the best person to know. Anxiety just makes it worse, but its still there on stress-free days too.
Ask your doctor about prescribing proprenelol (sp?) or other beta-blockers, or yeah, even go to a neurologist, but INSIST on it even if he doesn't believe you. If he won't, find a doctor that will or try and find a neurologist on your own.
@DeadlyChinchilla In the case of my gf, there aren't doctors in the whole town who eve know what essential tremor is. Such mediocrity... they said it was anxiety just because they couldn't figure out what's wrong with her! and that was 12 years ago and her tremor is the same as then. We want to ask for new opinions now (oooh the future) but I guess we'll have to travel to another country or something...
@DanyAlejandro If your gf has health coverage, she can demand a referral to a neurologist. They're usually better versed in ET and related issues, and they can do an MRI to make sure her brain is in good shape. Keep pushing, don't let them just say no! My doctors said no for over a decade, but I finally found a sympethetic doctor that knew at least what it was.
@universecrew I'm 28 and am pretty sure I have had it since teens as well. It manifested with a head tremor when I was anxious. I try to cope with it by trying to relax, but it has stuck with me over the years. I now have it in my left hand (my dominaint hand) but only when I drink water.
I have ET rather badly in my left hand, arm. It hits my head on bad days. On stressful days, it goes into my legs. I've had it as long as I can remember, and NOBODY ever knew what it was until a new doctor named it last year. Beta blockers seem to help, but they're nausiating.
I do a lot of hiding, which is sad for a 27 year old person to do. I can't count how many people have asked me what drug I'm "coming down off of," due to my hands shaking. Not sure how to make things better.
I really appreciate your posting this. I have tremors they are trying to diagnose (for more than a year!) between PD, dystonia and essential tremor. This will help (at it will help me) understand where the doctors should be going.
amg4761 - You said you are an aerobics instructor. That is so inspiring. I'm 30 female and it seems the med are not helping any more. I'm considering DBS surgery. Also - I'm having a very hard time exercising at all. Every time I start - I end up in worse and become tighter and unable to control my head tremor - which leads to where I can hardly stand up or bend forward. Just feeling lost right now. Any thought on exercises that work might help. Mariana
Hi & thanks for posting this. I was diagnosed last year but I know I have had it for years, just didn't know it actually had a name. Hope everything is going along okay for you.
So I went to the doctor and he diagnosed me with essential tremor. Ugh... I'm getting used to it little by little but its still a very irritating disease. He prescribed me with propanolol which kinda takes the edge off. You mention you play the french horn, do you play anything else? I play guitar, drums and violin; but I'm starting to get scared that I won't be able to play them for all my life.
I too get embarrased a bit by mine..heat really triggers it too. I am starting to get used to it, and when they really shake, I do limit my hand movements more so I don't keep drooping or breaking things. best of luck!
Im 24 and I have ET since I was 17, watching my hands shake has become something I got used to! Im taking inderal 80mg since then and the medicine does help and fortunately it seems that the tremors are not evolving for now, hope never will, but that's almost impossible, I hope at least it wont evolve to the point I need surgery!
Good luck for all of you people! And congratulations to all of you who like me, never let this disease take the best of you!
I am a gay man with ET living in Seattle. Please contact me anytime if you have any questions regarding ET or DBS. I take no meds and I'm now going on my 4th year with Bi-lateral DBS implants. The tremor isn't totally gone, but I get about 90-95% suppression.
I'm 26 and have ET. I had to stop taking my medication last week because the side-effects were actually worse than the tremors itself. I found this video clip while doing research about ET. Thank you so much for making information like this available. It is comforting to know that there are other people out there struggling with the same problem.
just a note for everyone, tomorrow i will be making a video update about my ET. i will also be giving some info about the condition. it has been great hearing from so many of you through comments and PMs.
I have ET but not as bad as you although I'm only 18. I did some research on ET before I was diagnosed and I believe they are beginning to experiment/come out with new pills which will help the tremors. From my understanding its a derivative of alcohol. I'm not sure. I always hated it when I got nervous and the tremors got ten times worse. Anyway, good luck with that and hope they find treatment thats more effective.
hi killers, awesome name by the way. ;) yes, there are some new treatments being tested [in fact, i was just reading about them today]. when i get nervous my tremor is brutal. i am a musician, and had some debilitating tremors from nerves as a youngster. i hope you have already found a medication that works for you. unfortunately, there are many people that cannot find a good medication. good luck, mrg.
yes, sometimes it does, but regardless of what i think, you should see your doctor and get a diagnosis. remember, knowledge is the biggest and best think you can do for yourself when facing a medical condition.
I think I have essential tremor too. But my tremor doesn't completely go away when my arm hangs down, it still shakes a little bit, which kinda scares me to think that I have Parkinson's :/
Does your hand still shake a little when it's not resisting gravity?
Thanks for posting your video.Everybody knows parkinsons,but very few people know what essential tremor is,unless you have it.I wish more people become aware of this condition,I have a head
tremor.I found a very good psychotherapist who helped me change the way i feel about myself as i use to get really embarrassed and just avoid certain situations.
sorry for taking so long to respond; i have tried a few times, but for some reason my reply never appears. i think it's great that you are seeing a psychotherapist to help you deal with your ET. ahead tremor can be tough to handle because it is hard to hide and people get really freaked out by it. my head tremor has certainly gotten worse this year. but remember that there are many many of us with ET, and it is nothing to be ashamed of. best wishes, mrg.
Just wanna say good luck to you and everyone out there living with ET. I really hope some breakthrough treatment comes along for this soon. My symptoms are starting to show and I'm slowly adjusting to it.
i know how it feels.. -.-
SelSun83 1 year ago
@SelSun83 Thanks for watching. Feel free to share experience of ET here.
mrgeniusontv 1 year ago
Hi, I really hate to say this but I really appreciate your video. I just got diagnosed with ET in Aug. I have had a hard time explaining how it is to friends and family. This video hits it on the head. It really sucks to have a condition that is manageable until you want to do something. And the bad days are really debilitating. All day in bed shaking. I feel that this is so unfair as I have always been active. Now I can't even eat soup without a straw. Keep strong.
majik624 1 year ago
@majik624 thanks for the comments. it does suck, but remember all the people who have it far worse and then think of something you can do for them. for example, i am presently volunteering in an adult literacy program. being a grown up who can't read is definitely worse than ET. also, i just make my tremor part of the show-->they think of me as their shaky reading instructor, and i tell them it's because i am so excited about their reading. see, not so bad now, eh? to be continued. . .
mrgeniusontv 1 year ago
Hi, I really hate to say this but I really appreciate your video. I just got diagnosed with ET in Aug. I have had a hard time explaining how it is to friends and family. This video hits it on the head. It really sucks to have a condition that is manageable until you want to do something. And the bad days are really debilitating. All day in bed shaking. I feel that this is so unfair as I have always been active. Now I can't even eat soup without a straw. Keep being strong.
majik624 1 year ago
@majik624 continued. . .i would also humbly suggest that there is no need to spend the day in bed shaking. to me that sounds counterproductive to good mental health. get out of bed and do something, no matter how much you shake. stand up with music playing and call it dancing if need be. staying in bed all day is for people who are in the last stages of their death, not for people with non-lethal motor-neuron syndromes. shake n' bake! =D
mrgeniusontv 1 year ago
can you tell me what the difference is between the essential tremor and the parkinsons tremor
wesieboy56 1 year ago
@wesieboy56 hi there, yes, i can tell you the difference. but why don't you just go to wikipedia and read about the similarities and differences yourself? one major difference is that a parkinson tremor typically presents itself when the affected body part is at rest; with ET, the tremor presents itself when the muscles involved are active.
good luck,
mrgeniusontv
mrgeniusontv 1 year ago
i seem to have a tremor in my voice often when i get mad or nervous.
DinosawrJr 1 year ago
@DinosawrJr that can be quite common with ET. if you think it is affecting your life, you may wish to see your doctor.
mrgeniusontv 1 year ago
@mrgeniusontv Is it possible that it will get way worse? It sucks because people always think i'm nervous and it sounds like my voice is shaking.
DinosawrJr 1 year ago 2
@DinosawrJr it certainly may get worse. if it is ET, it may or may not get worse. on the other hand, there are other things it could be. either way, if you are concerned you should see your doctor. good luck!
mrgeniusontv 1 year ago
@mrgeniusontv Okay thank you.
DinosawrJr 1 year ago
@DinosawrJr
It's awful, same here too- Thing I can't stand the most is when people think I'm "nervous". I hate having to explain the condition all the time. ( I always feel like saying - DON'T flatter yourself- I'm definetly NOT nervous around YOU!)
It's horrible annoying- I'm not too bad, but after hanging out with someone for a while, they notice it. Wish there was something to cure it-
TheMelarose 1 year ago
@DinosawrJr
It's awful, same here too- Thing I can't stand the most is when people think I'm "nervous". I hate having to explain the condition all the time. ( I always feel like saying - DON'T flatter yourself- I'm definetly NOT nervous around YOU!)
It's horribly annoying- I'm not too bad, but after hanging out with someone for a while, they notice it. Wish there was something to cure it-
TheMelarose 1 year ago
i have had that 40 years if you get high blood pressure take the beta blocker it helps with the tremors
datzfast 1 year ago
This has been flagged as spam show
Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.
Regards Martin
martinclembo 1 year ago
This has been flagged as spam show
Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.
Regards Martin
martinclembo 1 year ago
This has been flagged as spam show
Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.
Regards Martin
martinclembo 1 year ago
Thank you for your video on ET, I have ET often in my hands and sometimes in my head. If you don't mind me asking, when did you first notice symptoms and is it progressing any? What if anything do you find helps to relieve symptoms.
Regards Martin
martinclembo 1 year ago
@martinclembo hi martin, i first noticed my tremor in high school, and it has certainly progressed since then. my propranolol medication is really the only thing that helps me go for a time without shaking.
best wishes,
mrg
mrgeniusontv 1 year ago
hi this is my troll account lol but gonna post seriouse here I guess. I've had et my whole life it's really not that bad anyways you're a hero mrgenius for coming forth with this little disorder, Ima subscribe to you
stxlandil 1 year ago
@stxlandil cheers, mate. be sure to see your doctor to get a diagnosis. there are medications that can really help for many of us. i keep meaning to make an update vid about my ET. it has progressed a lot since my last vid. maybe this weekend.
keep your head up and shake with pride, mrg.
mrgeniusontv 1 year ago
Thank you SO much for this Mr. Genius! I am 53 and have had this for as long as I can remember. I have felt like such a freak my whole life. I always thought there was something terribly wrong with me that I couldn't tell anyone. I just discovered IETF and was so relieved when I did that I cried. BTW - I played French Horn all through school. I play guitar, but only when I am alone, or drinking.
slister45 1 year ago
@slister45 here's to many more years of music making! see your doctor if you think you have ET. best wishes, mrg.
mrgeniusontv 1 year ago
I'm 26, mine started at 12 and thankfully it's confined to my hands but when I was younger everyone thought I was just always nervous. Information is important!
kilarneyblarney 1 year ago
I began showing symptoms of ET at the age of 30. By age 34, it had progressed to both hands, arms and legs. I tried every medication combo out there before finally deciding on Deep Brain Stimulation surgery. I had to have a couple (yes, a couple) of corrective surgeries, but it was the best decision I ever made. I'll post a video of my own soon. Hang in there and stay positive. =)
trakat77 1 year ago
@trakat77 great to hear that DBS has worked well for you. i imagine my time will come for the procedure.
thanks for the comment! =D
mrgeniusontv 1 year ago
@mrgeniusontv If you ever have questions about it, don't hesitate to ask. I can walk you though the procedue, recovery and outcome. No one can tel that i have the bilateral implants. They do the job without stripping away the quality of life taken by the medications used for ET. I highly encourage DBS to anyone with this disorder. Again, feel free to reach out if you'd like more insight from someone who's been through it all. Take care. Tracy
trakat77 1 year ago
Thanks, but she already did, we live in Colombia and medicine here isn't really good (except for sillicone implants). We just can't find anyone around here who can actually diagnose ET. We will have to search in a more developed country, at least in medicine terms. (sorry for the messy english)
DanyAlejandro 1 year ago
Hay guys, ET is a bitch I have been suffering from it for years. But once I started taking Propranolol it almost goes away. talk to your doctor see what he/she says.
tothecap 1 year ago
HI, where are you from?
Sue Brisbane Aus
peanutau 1 year ago
@peanutau hi, i am from canada.
mrgeniusontv 1 year ago
Thanks for posting this up mate. I have am positive i suffer from this and have done from early teens, now 27. I have it bad in my neck and left hand it it happens when ever i get anxious or find myself having to concentrate on something like playing a computer game or Dj'ing. Also happens when i get angry etc. I have been to my doc before and he didnt think it was essential trmor at all more just anxiety but I'm positive its this. How can i go about convincing my doctor into agreeing with me?
universecrew 1 year ago
@universecrew
hey mate, ask your doctor is he realizes that ET is affected by stress. you should also ask for a referral to a neurologist. if your tremor is affecting your life, your healthcare provider should be willing to offer help.
good luck,
mrgenius
mrgeniusontv 1 year ago
Definitely insist it is NOT anxiety. I had doctor after doctor refuse to help because it was "just nerves." It is most certainly NOT, and you're the best person to know. Anxiety just makes it worse, but its still there on stress-free days too.
Ask your doctor about prescribing proprenelol (sp?) or other beta-blockers, or yeah, even go to a neurologist, but INSIST on it even if he doesn't believe you. If he won't, find a doctor that will or try and find a neurologist on your own.
DeadlyChinchilla 1 year ago 2
@DeadlyChinchilla In the case of my gf, there aren't doctors in the whole town who eve know what essential tremor is. Such mediocrity... they said it was anxiety just because they couldn't figure out what's wrong with her! and that was 12 years ago and her tremor is the same as then. We want to ask for new opinions now (oooh the future) but I guess we'll have to travel to another country or something...
DanyAlejandro 1 year ago
@DanyAlejandro If your gf has health coverage, she can demand a referral to a neurologist. They're usually better versed in ET and related issues, and they can do an MRI to make sure her brain is in good shape. Keep pushing, don't let them just say no! My doctors said no for over a decade, but I finally found a sympethetic doctor that knew at least what it was.
DeadlyChinchilla 1 year ago
@universecrew I'm 28 and am pretty sure I have had it since teens as well. It manifested with a head tremor when I was anxious. I try to cope with it by trying to relax, but it has stuck with me over the years. I now have it in my left hand (my dominaint hand) but only when I drink water.
ash3rr 1 year ago
grazie per questo prezioso contributo.
TheElymus 1 year ago
I have ET rather badly in my left hand, arm. It hits my head on bad days. On stressful days, it goes into my legs. I've had it as long as I can remember, and NOBODY ever knew what it was until a new doctor named it last year. Beta blockers seem to help, but they're nausiating.
I do a lot of hiding, which is sad for a 27 year old person to do. I can't count how many people have asked me what drug I'm "coming down off of," due to my hands shaking. Not sure how to make things better.
DeadlyChinchilla 2 years ago
I really appreciate your posting this. I have tremors they are trying to diagnose (for more than a year!) between PD, dystonia and essential tremor. This will help (at it will help me) understand where the doctors should be going.
meteor5686 2 years ago
i have it. gets tired of telling people that i have the music in me or that i keep the wife happy.
azthundercloud 2 years ago
Oh, no problemo
polishedaluminum 2 years ago
This has been flagged as spam show
You OBVIOUSLY have et cause you dont beleive in Jesus and god is mad at you!
cough..... Sarcasm*.. cough
polishedaluminum 2 years ago
This has been flagged as spam show
You OBVIOUSLY have et cause you dont beleive in Jesus and god is mad at you!
cough..... Sarcasm*.. cough
polishedaluminum 2 years ago
You OBVIOUSLY have et cause you dont beleive in Jesus and god is mad at you!
cough..... Sarcasm*.. cough
polishedaluminum 2 years ago
right then. . . *gets on his knees*. . . dear jeebus, please stop making me shake all the time. . . amen.
*chortle*
mrgeniusontv 2 years ago
i get hand tremors in my left hand every time i handle my mobile phone. it P**** me off!
underpantswedgy 2 years ago
amg4761 - You said you are an aerobics instructor. That is so inspiring. I'm 30 female and it seems the med are not helping any more. I'm considering DBS surgery. Also - I'm having a very hard time exercising at all. Every time I start - I end up in worse and become tighter and unable to control my head tremor - which leads to where I can hardly stand up or bend forward. Just feeling lost right now. Any thought on exercises that work might help. Mariana
pattybirk 2 years ago
Hi & thanks for posting this. I was diagnosed last year but I know I have had it for years, just didn't know it actually had a name. Hope everything is going along okay for you.
daz926 2 years ago
hope you have been able to find a medication that's helpful.
mrgeniusontv 2 years ago
hola amigos tambien tengo ET y me medicaron con propanolol pero no me funciono y me comentaron que te puedes quedar impotente cuidado
raajmaa 2 years ago
yes, there is a slight chance of impotency when using propranolol, though i believe its effect is transitory. best wishes to you,
mrgenius
mrgeniusontv 2 years ago
So I went to the doctor and he diagnosed me with essential tremor. Ugh... I'm getting used to it little by little but its still a very irritating disease. He prescribed me with propanolol which kinda takes the edge off. You mention you play the french horn, do you play anything else? I play guitar, drums and violin; but I'm starting to get scared that I won't be able to play them for all my life.
Cheers!
Toxin08 2 years ago
yes, i play the guitar and bagpipes [not at the same time!]. glad to hear the propranolol is helping you,
mrgenius
mrgeniusontv 2 years ago
thanks for the comments!
mrgeniusontv 2 years ago
I too get embarrased a bit by mine..heat really triggers it too. I am starting to get used to it, and when they really shake, I do limit my hand movements more so I don't keep drooping or breaking things. best of luck!
babydahl13 2 years ago
i wish you the best. i have it too and i am an aerobics insructor..it just started w/me. good luck w/your concert. :)
amg4761 2 years ago
Im 24 and I have ET since I was 17, watching my hands shake has become something I got used to! Im taking inderal 80mg since then and the medicine does help and fortunately it seems that the tremors are not evolving for now, hope never will, but that's almost impossible, I hope at least it wont evolve to the point I need surgery!
Good luck for all of you people! And congratulations to all of you who like me, never let this disease take the best of you!
kardelyy 2 years ago 2
I am a gay man with ET living in Seattle. Please contact me anytime if you have any questions regarding ET or DBS. I take no meds and I'm now going on my 4th year with Bi-lateral DBS implants. The tremor isn't totally gone, but I get about 90-95% suppression.
matthewnsea 2 years ago
I'm 26 and have ET. I had to stop taking my medication last week because the side-effects were actually worse than the tremors itself. I found this video clip while doing research about ET. Thank you so much for making information like this available. It is comforting to know that there are other people out there struggling with the same problem.
yaksjacobs 2 years ago
just a note for everyone, tomorrow i will be making a video update about my ET. i will also be giving some info about the condition. it has been great hearing from so many of you through comments and PMs.
cheers,
mrg
mrgeniusontv 2 years ago
I have ET but not as bad as you although I'm only 18. I did some research on ET before I was diagnosed and I believe they are beginning to experiment/come out with new pills which will help the tremors. From my understanding its a derivative of alcohol. I'm not sure. I always hated it when I got nervous and the tremors got ten times worse. Anyway, good luck with that and hope they find treatment thats more effective.
KillersAreQuietSoShh 2 years ago 2
hi killers, awesome name by the way. ;) yes, there are some new treatments being tested [in fact, i was just reading about them today]. when i get nervous my tremor is brutal. i am a musician, and had some debilitating tremors from nerves as a youngster. i hope you have already found a medication that works for you. unfortunately, there are many people that cannot find a good medication. good luck, mrg.
mrgeniusontv 2 years ago
hi toxin08,
yes, sometimes it does, but regardless of what i think, you should see your doctor and get a diagnosis. remember, knowledge is the biggest and best think you can do for yourself when facing a medical condition.
keep in touch and let me know what happens,
mrg
mrgeniusontv 2 years ago
I think I have essential tremor too. But my tremor doesn't completely go away when my arm hangs down, it still shakes a little bit, which kinda scares me to think that I have Parkinson's :/
Does your hand still shake a little when it's not resisting gravity?
Toxin08 2 years ago
hi toxin,
sometimes my hands will shake even at rest, but for the most part they tend to shake when resisting gravity. this is called a kinetic tremor.
cheers,
mrg
mrgeniusontv 2 years ago
Thanks for posting your video.Everybody knows parkinsons,but very few people know what essential tremor is,unless you have it.I wish more people become aware of this condition,I have a head
tremor.I found a very good psychotherapist who helped me change the way i feel about myself as i use to get really embarrassed and just avoid certain situations.
timidas 2 years ago
hi timidas,
sorry for taking so long to respond; i have tried a few times, but for some reason my reply never appears. i think it's great that you are seeing a psychotherapist to help you deal with your ET. ahead tremor can be tough to handle because it is hard to hide and people get really freaked out by it. my head tremor has certainly gotten worse this year. but remember that there are many many of us with ET, and it is nothing to be ashamed of. best wishes, mrg.
mrgeniusontv 2 years ago
Just wanna say good luck to you and everyone out there living with ET. I really hope some breakthrough treatment comes along for this soon. My symptoms are starting to show and I'm slowly adjusting to it.
blueben77 2 years ago
thanks, blueben. see your doctor if you haven't already.
mrgeniusontv 2 years ago
I was born with Essential Tremors, it runs in my family and it gets worse with age :/. I understand what you go through mainly on bad days.
Keep it up, I guess it's just something we have to live with.
Overratedboys 2 years ago
thanks, overratedboys.
mrgeniusontv 2 years ago
thanks for the informative video. keep up the positive attitude and good luck with your french horn!
hotlez008 2 years ago
I also have et. I have the same symptoms as you. Very frustrating on "bad" days.
abeauticianmagician 2 years ago
Ahhh.. Keep up the good attitude and don't let this get you down. I say the same thing to my husband; He has stiff-person syndrome.
WrightNightmare 2 years ago