Congenital Heart Defect Awareness

[blacanyse]

I also have a congenital heart defect, (ACA) thank you this video was amazing!

[missdebbyrose]

I have a son, 13 years old with Truncus. So far he has had two open heart surgeries and is doing great. His main problem in DiGeorge Syndrome. Do any of the babies and people born with this defect have this. My son has not been able to attend public school because of infections. I home school him through my school district. He may have to undergo surgeries again in the spring. I am so glad to see awareness on this subject. You created a beautiful video and I hope all is well.

[missLaceyy222]

I have Tretralogy of Fallot, as I was watching this I began to cry. I am so thankful God kept me on this Earth. My heart bleeds for all the children who suffers from Congenital heat defects. I wish there was a cure. No one should have to suffer.

[linethe]

so sad! my daughter was born with hypoplastic right ventricle and pulmonary artery,

she had open heart surgery the day after she was born, shes our angel because she grew wings after 3 weeks of fighting. thanks for uploading this video

[tuntunkhanrocks]

Very nice video.

I also have Congenital hear defect T_T

I was a very lucky survivor. I had all of the defects of this disease.

[catdalquen]

i was born with Truncus Arteriosus i have had 2 ohs and need my 3rd op soon to repair my rv to pa conduct which is leaking or furring up as my cardiolagest likes to put it

[nademfl]

Thanks so much for your comment. I'm wishing you and Tristan all the best!

[TheCongenitalHeart]

My son is 10, when he was a 3 day old baby he had his first surgery... by the time he was 9 months old he had 3 surgeries. He plays tennis, good reader/speller and likes video games about snowboarding. It can be done. Get a good doctor and pray.

[papergal]

my daughter is a CHD too with pulmonary artersia & large vsd. gd luck and all the strength in the world for u mummies.

[Slykerta]

My close friend who I consider like a younger sister has this. She isn't insured though, and cannot afford the surgery she needs. She's only 15, so finding a job is not easy. Is there any way, I can help find her insurance? Her parents passed away, so I can't ask them.. She's also the type of girl who refuses me offering money of my own. I just wish there was something I can do. She doesn't have long to live the doctors said..

[lucyherzog]

that was very cool, thank you for making this, I'm going to put it on my profile page and also send it to all my friends

[thomasandkatie]

i am 16 yrs. old. i have CHD. ive had 2 surgerys so far and next month im having my 3rd. lifes rough, and im not like my friends, not many of then understand. but staying posittive and having my family there with me every step of the way has always helped me thru every docter, hospital visit. im proud to say ima CHD survivor, and WILL be for a long time.

[bensmum2008]

Lovely video, very educational/informative and possitive. My son was born with undiagnosed HLHS and lucky enough we were in the right place at the right time when it was diagnosed. Has had 3 open heart surgeries already and will need at least one more with probably a heart transplant when he is older. He is just over 13 months old and doing well x

[roxane13579]

Hi my son was born in march 2008 and was diaganosed with Truncus! He is doing well at present but has so far had 3 open heart surgerys!! my love to all affected by CHDS!xx

[roxane13579]

Hi im 23 and my son was born on 9th March 2008 and was diagnosed with Truncus Aterious! he has so far has 3 open heart surgerys and is not doing well adn will be 1 soon!!

[chd2012]

Hello! I am 14 and have congenital heart block. Thank you for raising awareness for these terrible and very real diseases! God bless you and all your families!!

[RuralGypsy]

I am a 42 year old Congenital Heart Patient..

My defect is called D-Transposition of The Great Vessels. I am seeking all who have succeeded age 40 without a heart transplant.

I would like to know their success story, and the quality of life for which they have lived. I have been told, I am the oldest living, in the United States, with this particular Heart Defect. Is this true????

I accept any assistance available, in finding others like myself. Time is of the essence.

[elijahezekiel]

hi..! im irene may, from philippines my son also died april 2,2008 {chd} congenital heart disease... i need person to talk ab0ut chd....

[desihart1980]

My son was born with a congenital heart defect.(Truncus Arteriosus) But his whole condition is V.A.C.T.E.R.L. He just turned 3years old and we just found out he needs his 3rd heart surgery. Not to happy but he has a fighting spirit. This video is great.

[ride8604]

My daughter also has truncus arteriosus. She is two and a half and we are probably looking at conduit replacement surgery next spring. Best wishes to you and your son,

[lcat1201]

my daughter also has truncus arteriosus. Her name is Mckayla she turned 7 in july. She also now has a lung disease and wont be able to have a heart replacement, but she is doing good. good luck to you and your family

[missfairyass]

@ride8604 -- I have truncus arteriosus. I'm almost 22 years old, I'm female and live in Texas. I've had 4 open heart surgeries.

[ride8604]

Thank you. I loved watching your truncus video also. I have two girls with truncus and it is GREAT to see how healthy you are!

[karayna]

I will be 23 years old in two weeks and I have Truncus Arteriosus and repaired ASD & VSD. I've gone through 4 open heart sugeries (currently waiting for the 5th one) plus a couple of angioplasties. But I've been able to live a near normal life so far. Don't hesitate to contact me. I hope everything went well. :/

[euldq1]

Great video! I have a little girl (2 1/2 yo) with Truncus, and she's doing very well. Keep up the good work!

[SupurBigMileyFan]

Thank You for making people aware about CHD My baby sister Kennedy was born on January 20 2006. She was diagnosed with DORV Double Outlet Right Ventrical. She is schedueled to have a second surgery in a couple weeks at Loma Linda University medical center. I appreciate you making this video very much!!

[SupurBigMileyFan]

My baby sister has a CHD also. She has Double Outlet Right Ventrical. (DORV) She's going to have another surgery soon to remove the surrounding skin tissue that is causing problems. Thank You for making this video to kind of open people's eyes to realize what many families around are going through.

Thanks

[MiriamDk]

Thank you so much for this.

my son was born on janyary 24 no one noticed the syptoms he had, and when i said something about them, everyone said that it was nothing. 5weeks old he was diognosed whit hypoplastic right heart syndrome. douple intet left ventricle and ventricelseptumdefect. and some other smaller flaws i dont know the name of. he has had his first surgery. sceduled for 2more. people meet me whit a judging look that says "what did you do while pregnant." Nothing.

[shonakelly24]

great video, can i pls use it for a bebo page i have set up with another friend i met thru hospital both our children have heart defect?

[jennifershafer4]

Thank you for making people more aware of CHDs. i had a child with Hypoplastic Left heart syndrome who only lived 17 day. Chds are heart breaking. No child should have to suffer with this, we need a cure. My son Soren Blake Shafer also has a video posted on her. I think you can look it up under Soren.

[ride8604]

Jennifer - I am so sorry about the loss of your beautiful baby. I watched your video and I'll be keeping you in my thoughts.

[kezzmiester]

very educational beautiful video well done to the creator i myself have a CHD baby who's doing very well but still has a long way to go he has HLHS hes called tristan and has a couple of videos on here also to raise awarness we all need to pull together for this fight and maybe just maybe we can all make a difference.

[ride8604]

Thanks so much for your comment. I'm wishing you and Tristan all the best!